TRIPLE POSITIVE GROUP
Comments
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Camillegal - dark round spots on your arms and stuff look like these
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Today is day 3 of my first AC treatment. So far I have felt pretty good with the exception of a little fatigue. I took the Claritin so I'm hoping that has helped keep the bone pain away.
I'd love some input from you ladies. I met my new MO today. He recommended taking my ovaries out due to my age (41) and being strongly ER/PR+. That would allow me to take an Al instead of Tamox.
FBN - I always love your optimism. I've had so much fear about this thing coming back that it has taken over. Sharing what your MO said about you living a long time gives me hope. My old MO said my chances of recurrance were low. This new MO said my prognosis looked good. I am in great health too except for this of course. Good luck on the next part of your chemo!
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Mammato3 I personally would get a 2nd opinion when it comes to removing any body parts. 10 years of Tamoxifen is an options as is ovarian suppression. I can't weight in what you should do but there are issues with no ovaries (osteoporosis, maybe heart and etc linky) especially at such a young age. This is a recommendation if you are BRCA+ because of the high risk of ovarian cancer. I would weigh all the options
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I have zero moles on my left arm, but have had more than 25 skin cancers. In fact, I have a new biopsy site on my lower back right now from last week, and I fully expect that the pathology result will be another skin cancer. 100% of my biopsies have been malignancies, but they are basal cells, not melanoma. I have had uterine fibroids, obviously had breast cancer, a pre-malignant ovarian mass, ovarian cysts, and a golf-ball sized benign tumor in my calf. I am also a radiation downwinder - don't know if there is any connection other than there is a confirmed cancer cluster, and class action settlement, where I grew up.
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I only have tiny little moles that I never bothered to count. Ever!. Counted them just now and came up with 15. But their so tiny I might have missed a few or even a lit. Hers the 2 biggest.
And as for tall people being more um resistant, guess my family doesn't have to worry. LOL.
BTW I'm 5'4!
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for more laughs on this subject, ladies, there is a funny and great one, called"lets conduct our own study on how we all got breast cancer". it is truly hilarious, i think you will enjoy it when you need some humor. some of the reasons we give, i am sure my peeps here can relate! i have one massive mole on my face, and a teeny one on left arm. but other family members have a ton, and so far so good, i think i am a changeling!
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I blame it on that shitty company/asshole boss I worked for. My tumor started (according to my BS) 4 years prior to diagnosis. That would be 1 year and 3 months after I started freelancing there. I knew I should have quit after 4 months (1 month after going perm) but my DH said to stick it out to give it a year. What stress!
Seriously I have no idea why I got it other than no kids and dense breasts. OK maybe living in the city and breathing all the vehicle exhaust but no all women in the city get it. I really think stress is an understudied reason as one of the triggers.
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Well, I am short (5'2" in my tallest days), and have maybe 1 or 2 moles. I know I am high risk for skin cancer - very freckled redhead with a history of many severe sunburns as a child. But no skin cancer (I'm in my 60's). My paternal grandmother had the only breast cancer in the family, 60 years ago. She did die from the BC - back when the only treatment was surgery & her doctor told her for several years that her lump was "nothing". I always worried about this history, but I tested negative for BRCA1&2.
Besides my grandmother, no other BC risk factors: menarche at age 12, first child of three at age 24, breast-fed all of them, hysterectomy/oophroectomy at age 50, only a couple of years on BC pills. Always ate healthily, exercised pretty regularly. I did have HRT for a few years, but have been told my BC would have already been there, not caused by it. So who knows what caused this????
I sure hate people who think that we must have done something wrong to get breast cancer!
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I know what caused my BC - I started growing breast when I was about 13 LOL - it was all downhill from there.
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Linda lol - yep - that will do it!
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from Dana Farber
Nine foods for cancer patients
http://blog.dana-farber.org/insight/2012/08/nine-foods-for-cancer-patients/
Some of these I could never have eaten during chemo but I must have eaten watermelon every day for 9 months!
It always tasted cool and refreshing . I have enormous respect for the power of that fruit! Plus it is delicious to boot!
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Watermelon is actually really good for you unless you are a diabetic (lots of sugar). Do a google search and you'll see.
Red Hot Chili Peppers do that a lot but I get hot flashes at night when I eat spicy. Not too bad but on the Aromasin they are a bit more intense so I find when I do eat them I wake up between 4:00-4:12. But as you can tell this hasn't stopped me.
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l ate a very, very, very nutrient dense diet when in active treatment . I read a bunch of stuff and combined the things that seemed to overlap.
Watermelon was one of them. I never took any supplements.
It seems that we all seem to muddle through somehow ... Even the girls who have digestive troubles.
I still do high nutrient but will occasionally eat crap these days!
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ashla n lago, what about ripe papaya? i eat it almost everyday. i noticed it aloso help me with constipation.
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3rd day since treatment and fatigue and dry mouth are ugh! Funny I look at a banana - my favourite fruit - and go gross! Keep it away from me!!!! I just forced my self to eat oatmeal with bran buds, crackers and cheese, green t and a bit of apple juice. Then a peach. It was all gross!
Took my meds and a "just incase med" for nausea which increases fatigue
Didn't help that I woke up last night with intense hip pain plus more in my lower back. Heat from hubbie made that go away
Now I have to exercise. Thinking about it is easier than doing it because I feel so tired but I'm going for my walk...... Eventually!!! Lol
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I too have no children, dense breasts, and am tall-5'9".....so fall in the same stats as some of you. I thought the BS said since I was negative for Brac though that the causes were probably mostly environmetal.....its all so scary to wonder how we did indeed get this mess. I dont have moles, but have had two pre-melanomas cut out. They were a freckle that had turned dark black. I am full of freckles from all my days in the sun.
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Vette girl...
5'6" here & dense breasts .
Footballnut & soriya
Nutritious foods... Whatever you can get down comfortably ... Are always good and especially when your body is under stress .
I understand papaya is extremely nutritious . I am not crazy about the taste but maybe I should try it again! Thx for the reminder.
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OK Thanks Linda I do have a mole on my face like Cindy Crawford, that's why people get us confused all the time.
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Camillegal too funny
I also have two moles on my face. I forgot all about them because I've always had them. Like Cindy Crawford x 2.
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5'6, no moles.
Footballnut: Have you tried carnation instant breakfast. The nutritionist suggested I and I could get down pretty easily. You have to keep experimenting to see what works for you that you can get down. I know it's hard right now, but it will pass. Best wishes.
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Foobtallnut, I lived on carnation instant breakfast and scrambled eggs with cheese. Seriously, everything else tasted like shit on a shingle!
I am a huge fan of yogurt, greek, regular, frozen. But I could not eat it at all during treatment. UGH !! Tasted horrible. Keep experimenting, you will find what works for you.
G
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It sounds like maybe the common thread with a lot of us is dense breasts. Not sure if that lends itself to getting BC or just makes it more difficult to dx.
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Actually dense breasts don't cause BC. But it's a great environment for BC to grow (from what I read). It's a petri-dish environment. Granted it is harder to diagnose but that doesn't mean it's the cause.
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I'll try carnation instant. Funny I hate milk and only have it with cereal. I remember eating Nestles quick with a bit of milk when I was a kid. Mmmmmm
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hello everyone chemo tricks I have learned in the last 24hrs
1- your first chemo treatment is emotional, I nearly killed my lovely husband on the way to treatment we fought for an hour over NOTHING
2-I felt fine the first day
3- the second day I started out in surgery for my port and got my shot of neulasta
4-on the way home threw up in my husbands truck. Next time take a barf bag
5- phenegren suppositories for Nausea . The work a million times better!
6-let people bring food
7-when you are sick don't lay flat. Prop yourself up on pillows to a reclined or sitting position it really helps
8- hot tub bath for leg cramps. The neulasta shot really causes bone pain
9- laughter is a strong medicine
10- it's shocking how much your kids can do to help you IF you let them!
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camillegal, you always crack me up. ashla i eat both green young papaya and ripe papaya. i like to use green one for spicy papay salad and red ripe one as fruit
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my friend lois who passed last year from this awful disease, stage four for 5 years, swore green papaya helped sooth everything from treatment induced gerd and regular old gerd, and nausea, and constipation. i wish i liked it, have tried several times. it did take me severaal tries to learn to love mango!
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I don't have dense breasts, and yet still here. Our commom thread? We have breasts, seems to end there. Question, just noticed some bruising on my upper arm, the side my lymph nodes were removed on. I don't recall bumping myself. Is this a chemo se? Should I be worried or call my mo?
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agent99, have you tried Claritan? For the nuelasta shot pain? Just the regular Claritan not the D. It helped me. I love papaya but I've never had green. And during chemo sometimes supper would be rice crispie and milk. As long as the milk was real cold.
Much love
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I think we just drew the short straw. All my docs tell me I should not have BC-am an outlier with a very very aggressive form. I am 5'5. Was of normal weight until Femora. Do have red hair and freckles and was sunburned as a kiddo in the Iowa sun. Breast fed all 4 of mine until they shoved me away-or in the case of one-I was knocked up with a 5 month old, breast feeding totally, with an IUD, and hunting season in Texas. Go figure fertile one. Took oral contraceptives for a grand total of 20 days in my life. Vomited for 15. Never took hormone replacement due to vomiting on orals and vomiting during every pregnancy from conception to delivery of placenta. Do-or did when I had them-dense breasts. But felt those babies constantly for lumps bumps and foreign objects. Knew what and when something new appeared. No moles. Rare pimple even.
But. Both parents died young-age 56 mom age 60 dad from lymphomas. Were part of the mid-western Farmer Study due to fertilizer after dad died. I submitted medical records to the study group. Uncle died of leukemia @ 36. Grandma died of BC--but in her 80s. Now brother has renal cancer. He is 56. I am part of the Nurses Health Study. Have been for years and years.
Was healthy as the horse until BC. Exposed to piles and piles of diseases. Worked a newborn to age 2 infectious disease unit where i breathed the air of many many weird and crazy virus and bacteria. Did not contract a one. Working peds and psych and having kids exposed me to all forms of kid crap. I think I have missed work due to actually being sick maybe 2 times in my life prior to BC.
So for me, I just got it. Would not wish this crap on anyone. Not even those I would not look for the hose to put out the fire. I have bargained all my life--let me have it/do it instead of my kids or instead of someone else. So--here it is.
Still hate Femara. But did watch entire Season 2 of Orange is the New Black last w/end.Trash for the mind with really good writing and outstanding psychobabble.
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