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After Radiation

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Comments

  • kingjr66
    kingjr66 Member Posts: 406

    Jo - all my breast MRI's were in an open machine.  I get to have a yearly MRI on top of my every 6 month mammo. 

    An open machine is not at all like the tube.  there is no closeness and you don't feel claustrophobic at all. 

  • kingjr66
    kingjr66 Member Posts: 406
  • kingjr66
    kingjr66 Member Posts: 406

    here is open MRI machine like the one that I had my breast MRI's in.

  • jo1955
    jo1955 Member Posts: 7,545
    kingjr - Is your head in the machine or just your body?  I don't think it would be so bad if my head was not in the machine.  Sorry to ask so many dumb questions but I have only had the one MRI and know I don't want to do that again.
  • chabba
    chabba Member Posts: 3,600

    jo, I'm pretty sure it would be, but even though my head was obviously in it when I had the MRI of my brain I did not feel at all confined.  The tube is large enough in diamiter that it does not feel that it is closing in.  I am a bit clausterphobic but had no problem even though I forgot to take the valium they gave me ahead of time.  They had a mirror rigged so I could see out into the parking lot and the green belt beyond.  The worst part was the sound of the machine.  I chose jazz for the music but even with headphones I could still hear a thumping sound.

  • jo1955
    jo1955 Member Posts: 7,545

    When I had my MRI I was not offered music or any other distraction.  Since I was having my cervical spine done, the tech had to have my head between two supports and then he clipped another one over my face, then had pads on each side of my head.  The noise did not bother me but maybe music would have helped.

  • Sherryc
    Sherryc Member Posts: 4,503

    Hey ladies just got back from the PS and I got one of my drains out. yipeeeeeeeeeee, breast still hurts but nurs said to take it easy on that side today and tomorrow it should start feeling better

  • Ossa
    Ossa Member Posts: 685

    Sherryc.. Woohoo for getting the drain out

  • jo1955
    jo1955 Member Posts: 7,545

    Sherry - WOOOHOOO on getting the drain out.  Such good news!!!

  • kingjr66
    kingjr66 Member Posts: 406

    Jo - it's like what Chabba said.  you can see the other side opening and they put you in and your head is almost to the other opening in back.  Yes, I had a mirror too.  When it came time to inject the contrast the nurse was right there at my head and I could see her.  The tube opening is not like the other machines at all and is actually a higher opening. 

  • jo1955
    jo1955 Member Posts: 7,545

    kingjr - That is good to know - I will have to ask next time my MO schedules me for a mammo - I see him twice a year - June & Dec.  The Dec appt is when he will schedule my mammo for Jun 2013 do even have to think about this right now.

  • kingjr66
    kingjr66 Member Posts: 406

    I'm due now for my MRI but I have to forgo and have 6th month mammo in June since surgery was in December and then 6 months later the MRI. 

  • FireKracker
    FireKracker Member Posts: 5,858

    Sooooooooo i heard that the boards were real quiet without me...oh yeah!!!!!im back.a lot crippled so ill make this post short.

    Here is a biggggggggg hugggg to all my sistas.

    Sherry--congrats...

    JOJO---its almost here for you...ill be in the top pocket....ill be talkin to you throu the entire thing.

    I read all the posts but i remember shit.Later.....K

  • kingjr66
    kingjr66 Member Posts: 406

    welcome home granny.....hope you had a swell time.  My short term memory is shot from neurological issues (so they tell me) so join the club.   Personaly I believe it's from my party days as a teenager.....to much smoking weed.  I don't remember shit either. 

  • jo1955
    jo1955 Member Posts: 7,545

    Welcome back Granny - It was really quiet here without you but we did the best we could. Rest up and post when you can.

  • sagina
    sagina Member Posts: 849

    Yeah Sherry!!!!!!!!!!!!!!! Talk about short term memory problems - as many times as I asked Sherry when her surgery was, the day it came I forgot!!!!!!!!!!!!!!!!!!!!!!! I could have seen her that evening!!! kick in butt, kick in butt!

    So breast MRI s, well let's see.....here's what I wrote in my journal a few years ago....keep in mind I am NOT a small or medium or large person even....I'm in the X part of my life, and I don't mean dirty movies!!! lol.

    THURSDAY, OCTOBER 21, 2010 12:56 PM, CDT
    Today is Thursday one day before I revisit the barbaric MRI chamber. I mean really who possibly came up with this one? Lay on your belly, elevate your chest over the medieval looking box with two cup holders, hold your arms straight out....but I'll be sedated for the procedure tomorrow. So hopefully I won't know a thing. Oh, did mention that I tried this once already? sober? not so good! 

    Come to find out later.....San Antonio has a breast only MRI machine, you go in feet first (a woman must have designed that one) and they don't jack you up on a box to stick your boobs in two measuring cups, the table has a whole in it.  Your head never enters the tube.....but insurance companies don't like to pay for a device that only does boobs.....I'm asking this time around.  My friend with brain mets, it was the MRI that found the most of the small cancer tumors, she has about six in her brain.   

  • Sherryc
    Sherryc Member Posts: 4,503

    Welcome back Granny we missssssssssssssed you!

  • jo1955
    jo1955 Member Posts: 7,545

    I am soooo excited.  I am having lunch with one of our sisters on Saturday.  I will finally get to meet her in person.  Who is it you ask?  It is Ceeztheday.  We live about 1 1/2 hours apart.  Will take some pictures to post.

  • FireKracker
    FireKracker Member Posts: 5,858

    Hey everyone!!!!!!!!!

    this place is sure quiet.do you need something to get this thing going!!!!!!

    Damn,im goin away again on Sat.Gonna do some long overdue healing.

    been workin on this forgiveness thing since i was blessed with the bc beast. I think its finally working.

    And nothing keeps you smiling like a 2 yr.old spoiled brat that looks just like dennis the menace.and a 5 month old who just cut his first 2 teeth.

    Gonna try to get back here before I go....

    SOMEONE SAY SOMETHING!!!!!!

  • jo1955
    jo1955 Member Posts: 7,545

    Granny - Something - LOL!

  • mla2000
    mla2000 Member Posts: 1

    Hi gals,

     This is my first post. 18 months since Dx ER+Her2- Stage 2B Lump removal. Subsequent chemo and radiation was completed one year ago. I get occasional sharp shooting pain in my breast, which I see by reading this is not uncommon. 

    More significantly, I am still short of breath post rads. Are there others who have this shotness of breath, struggle to climb stairs post rads? My med-onc is suggesting cortisone and pulmonary function tests. I am almost 68 yrs and had got into good walking shape before this diagnosis and subsequent treatment.I did not have to stop on the stairs three or four times to go up one flight. Altho this seemed to have improved somewhat, it never really got back to where I was pre- treatment.   I have recently had the flu and now am as short of breath as I was a year ago.

    Can anyone else relate to this? Is this common? Will it improve without drugs?

    Thanks.

  • Sherryc
    Sherryc Member Posts: 4,503

    Granny we miss you when your gone.

    mla2000-I do not have the shortness of breath but I do know that rads can cause lung issues so you might want to follow up with the test your MO is suggesting and get to the bottom of it. Keep us posted.

  • mostlymom
    mostlymom Member Posts: 378

    i had shortness of breath where it felt i would have to sit down or i would fall.  i took naps between my naps - i saw every doctor in the world & the others who just walked past me sent me a bill also.  this was about a month after completion of rads & i was sure it was rads related but my ro said definitely not.  none of the other docs could find a cause either.  my oxygen level was very low with walking - got down to around 84....  here i am trudging down the hall at the docs office with a very nervous nurse following me with the blood pulse ox meter saying it was a wonder i was still walking & i should slow down.  anyway, about the time i got all the bills paid off, i started feeling better but i still firmly believe it was related to the rads.  i just turned 69 & am extremely overweight & i know losing weight would relieve a lot of my problems - but knowing & doing doesn't compute....

  • kingjr66
    kingjr66 Member Posts: 406

    mostly mom - can relate and why is that.  I know walking and exercising is so good for me but my mind does not compute to actually do it.  I do here and there but I just don't.  I'm losing a little weight here and there by counting calories but I need to get motivated.  That's it.  I just convinced myself.  See you in about 40 minutes.  Going for a walk.  Nice cold morning here in upstate New York, get the blood circulating. 

  • FireKracker
    FireKracker Member Posts: 5,858

    Everyone and i mean everyone should do some kinda exercise every day.no excuses just put 1 foot in front of the other and go....I dont need to lose weight(im not braggin wish i could gain) but you gotta move that body...

    And yes every damn friggin problem you get after rads is for sure related to it.No Dr.will admit it....so why do we all get the same thing?????

    It does get betta,it will get betta,it BETTER GET BETTER....

    Happy Easter and Passover.Ill be back!!!!!!

    hugggggggs K

  • crog234
    crog234 Member Posts: 324

    Oh Granny how I wish I could put one foot in front of the other... I did do bowling on the wii with granddaughter yesterday and today I am lame... I do arm exercises so those don't hurt but my back does. To bowl I stood holding onto one crutch and did my best not to fall over.



    You are right though we all need to keep moving however we can.... I certainly need to do more of it...



    Everyone have a wonderful weekend



    Cindy

  • FireKracker
    FireKracker Member Posts: 5,858

    Even walkin and stretchin is good.Every day!!!!!

    and never overdo it.

    Treat your body very kind.It took a huge beating...

    I love all of you and I pray for healing and love

    huggggggs K

  • sagina
    sagina Member Posts: 849

    HI everyone, been quiet on the boards cause work sucks and I"m overloaded, can't even sneak in a few minutes with my friends here - will check in on weekends though when I can't get here during the week.  

    As for post rads - don't touch me where I was radiated, I'll jump! Feels like a fresh bruise, all the time.  I sing at church, and still don't have the breath back I used to....I'm a year out of rads in June. On the happy side - one year ago I was BALD - now you wouldn't even know! 

  • FireKracker
    FireKracker Member Posts: 5,858

    Happy Easter and Passover to all my sistas.

    Ill be back!!!!!!!!!

    hugggggggs love and kisses K

  • omaz
    omaz Member Posts: 4,218
    ((((hugs))))) Granny!