After Radiation
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count me in in on the cranky party!!!!!Did I miss it?:)
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kingjr - LOL! That is awesome. The ride was smooth. Granny is a good driver.0
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Yes king that is exactly what my broom looks like.
And I wear that hat when im driving it.lol.
Im goin to a NJ reunion tomorrow....finally Im gonna meet some of the wonderful sistas.
I made it home just in time.Yes JOJO the ride was smooth.
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Well now everyone at work thinks I drive a broom, so let's prove them correct! I've been waiting to drive it long distance!
My photo/heat/crap started a couple of months after chemo finished. I'm on a year now. MO said it could be a lifetime symptom or could go away. Being that I was 41 through treatment the RO kept stressing that side effects can be for a long time and since I was younger.....but hey, lifetime, that's a good word.
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gmaF - please don't leave & don't stop posting. I don't post much myself, but it's you & others on this site that have kept me going for over a year. Your posts and other posts like yours have kept me from feeling so alone in this fight. You are important to me.
Martha
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Thank You Martha and all of you! That brought tears to my eyes and I realized - yes it has been a year since the torrent has started for me too... For the ones that don't follow the "I hate LE GRR" thread, I am going into my first LE therapist on weds. I don't have LE in my arm but some Ladies here think I might have it in my breast... Not sure how I'm going to pay for this but it is important that I don't get the full blow LE. I REALLY understand what some ladies were saying when I first started, "BC, the gift that keeps on giving" I'm sure glad I have all of you and the Lord walking by my side... My DH is awesome, but he really doesn't understand much except I'm in pain all the time.. and he doesn't like it.. yesterday he started the "what if"s - like - maybe you shouldn't of had radiation... Maybe we should of gone for a second opinion... maybe....... That just tore me up. I told him it was too late for that, let's move on with what we have...
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GmaF---so glad you are havin that checked.I knew the sistas on the i hate LE would give you the info you need.If it was one of your kids who needed the $$$$$(GOD forbid) you would find it.Right?find it for yourself.There is help out there and yes even where you live.ya gotta do the research.you will be surprised what is out there that we dont know about.Plenty of free stuff too.good luck.huggggggs K
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so glad king that all is benign.
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Good morning from the land of 100 degrees today.....gross, hot, sweaty....
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It is going to be 104 and will feel like 115. I agree Gina - hot, sweaty. Heading to the pool this afternoon.
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this Texas heat is brutal
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I am soooo sorry you all are having such a heat wave - I just had 2 days that were in the high 80-90s a week ago and my breast swelled up something fearce.. I can't imagine what would happen if I lived in TX. I tried an archaeology gig in Victoria once.. lasted 4 days in the heat digging and had to quit.. I started getting heart flutters.
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gmafoley victoria is just an hour from me.
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Sherry, My friend lives in Portland, TX near Corpus Christie.
Ladies I got an update on my eye med situation... He wants me back on the Restasis for 2 weeks and we will evaluate it at that time.. I guess this stuff hurts/burns and causes light sensitivity at first, then gets better... We shall see.
Between the eyes and the breast swelling (which will be looked at by a lyphedema therapist tomorrow), I feel like a wreck...
Pocket party tomorrow afternoon... You all can get on Granny's electric broom to get here
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Gmafoley I used to live in Rockport which is only about 20 minutes from Portland. Very familiar because you have to go through Portland to get to Corpus Chirsti. HOpe the eye thing gets better.
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Gmafoley I used to live in Rockport which is only about 20 minutes from Portland. Very familiar because you have to go through Portland to get to Corpus Chirsti. HOpe the eye thing gets better.
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Anyone else have cataract issues after radiation? It was the first thing I felt, that something was happening to my eyes. They were blurry and so dry. They said just dry. But I have since learned that radiation can cause/worsen cataracts. Boo!
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GMA - Count me in for the pocket party. Will be holding your hand so squeeze it if you need to.
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trubff: I have severe chronic dry eye syndrome that developed about 2 months ago. It ended up scratching my corneas, but I can't really relate it to rads because I'm 11 months post rad.
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All aboard!!!!!!pocket party on my electric broom.ya know my X bought it for me...its over 30 yrs old.But it works.Ask JOJO she went with me.....
And yes im drivin to see GMAF..who is comin along.
Remeber the broom is old so we have to do local no express.bring lots of snacks.
I just went shopping and I have a lemon cake ready to go.Already sliced.
Happy trails everyone....jump on.
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Granny - I call shot gun!!! LOL
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Fine with me JOJO....0
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Love electric broom rides.. I'm in (I am a redhead so gues I should always be riding a broom
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Hi ladies,
I have new to posting here and I haven't had radiation yet but will in august after my surgery July. I am finishing chemo in two weeks. I am just looking ahead and wanted to see if any of you that have gone through this have any advice on exercising during or after radiation. Did anyone run during rads? How long after rads did you start exercising? Anything that will make this easier is much appreciated!0 -
Hi Everyone,
I am so, so sorry for not posting in ages, and I feel even worse because I could have chimed in when GMA was having her Lymphadema issues. I had/have breast lymphadema and caught it right away. There really was no mistaking it. My breast was bright red and swollen and the key to diagnosing it is orange peel skin, usually on the bottom of the breast. I was sent to LE therapist immediately and was prescribed a special compressure bra and was given exericises to do twice a day. GMA- I was astonished at what your doc said when you brought it up to him. How did he not know that lymphadema could be just in the breast? With all the lumpectomies being done these days, it has become quite common. I read somewhere that it is actually 40% of lump/radiation patients, but most never get diagnosed. Hope your own therapist is able to help you. I know mine was a miracle worker. I still get swelling from time to time, but I know now what to do.
I have been crazy busy buying a new house and selling our old one. My shingles are now chronic, so I take acyclovir daily. I feel almost normal now and am almost weaned off my gabapentin. It was nice to be without pain for a while, especially in having back and neck disc issues, but gabapentin was causing me to retain water. I have gained 8 pounds since starting! I just happened upon a bit of research regarding radiation that I thought I might share. I was trying to find any articles on immune suppression and radiation (i.e. why I keep getting shingles). I found one article that said that T-cell count remains low for 10-11 years after radiation!!! T-cells are the white blood cells that fight shingles. Now why are we not informed of this by the doctors before radiation? Now my next step is to find what kind of foods will help boost T-cell production. I do know that exercise does, so that is what I'll be doing. Glad to be back. Hope my info helps you, GMA!
Susan
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I missed the last ride on Granny's broom so I'm in and I love, love lemon cake. I'll be sure to take my Dramamine for my air sickness. Have meneires and get vertigo. No loop-di-loopies ok Granny.
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SusanHG - this is what confusing me: "My breast was bright red and swollen and the key to diagnosing it is orange peel skin, usually on the bottom of the breast." I don't have that - My breast is a little swollen, (edit: I do have one scaly spot on my scar the PCP said was a fungus) a little warm but HURTS 24/7 and gets worse during walking, gardening or the weather gets hot... so is it just a mild case? or not Lymphedema at all? Now I'm questioning myself again... Guess I will find out at my spendy appt. this afternoon... I need alot of hand holding thanks for being in my pocket.0
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jpmomof3 I exercised all the way through rads. I did rads in the afternoon then would go home and take a nap. When I got up I would exercise while I had the energy and then take care of supper and the normal evening things. I am not much of a runner but I had started to run and had to quit during rads and do a fast walk. I just got too tired. I did have to lay off the last week and about a week and a half afterwards because I was so raw and the chaffing of my arms hurt to badly but after that I was right back to exercising.
Susan that is very interesting about the T-cell. I have always had issues with fever blisters which is a type of herpes virus like the shingles is. Since rads my wbc has continues to be low and my fever blisters have gotten worse. I was already on daily meds for it but have had to adjust it to keep the fever blisters at bay.
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SherryC, thanks for the info, thats very encouraging. I would love to get back into running but walking is good too. I guess the main thing is to listen to my body and be sensible. I am impatient to have my normal life back but in the grand scheme of things this wont take all that much longer to get through...
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Oh another question for everyone, how did the fatigue from radiation compare to the fatigue from chemo for you? (my regimen is listed below) My oncologist is a bit heavy handed with the what to expect symptoms in general. I know she means well, i guess better to let me know what the worst case scenario is and be happy when it is better...
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