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After Radiation

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Comments

  • jo1955
    jo1955 Member Posts: 7,545

    painterly - Can you be a little more specific with your question please?

  • painterly
    painterly Member Posts: 266

    I was wondering at what point we stop seeing the radiologist. Also, what are they looking for ....new lumps?

  • jo1955
    jo1955 Member Posts: 7,545

    painterly - If you are referring to your Rad Onc, that is a good question.  Why are you still seeing him/her.  I saw mine one week after I finished rads for a so called "skin check" and that was it.  So glad of it - I hated my RO.  As far as I am concerned, the only one I see now is my MO.  He can take care of anything I need.  Oh!  Still seeing my PS - not finished with the boob job yet.  I just wanted to add that my MO does a very thorough breast exam and of course my GYN also does one once a year.  That should cover everything.

  • Gayle56
    Gayle56 Member Posts: 111

    My RO is still going to be seeing me for about a year.  He saw me a month after Rads was done, he wants to check my skin in 3 months and then again 6 months after that.

  • SusanHG
    SusanHG Member Posts: 455

    I see my RO about every 3 months now. After I finished last May, it was every month for the first couple of months.  He has been monitoring my lymphadema and skin healing and of course I get a couple of very thorough exams which I look forward too.  Actually, don't know what I would do without him!  They never said how long they would see me.  i guess when they know that I have fully recovered and my risk of local recurrence is gone. I see him again in September.

  • FireKracker
    FireKracker Member Posts: 5,858

    I saw my RO 3x after tx.Now im wondering if i should see him again...i just changed my onco and im doin PT.he was the only one who noticed the edema i had last year....I think ill see him again in the near future...im booked for july and i want aug off...NO WHITE COATS FOR ME FOR THAT ENTIRE MONTH...NOT EVEN THE COLONOSCOPY!!!!

    I have a party on Aug 4th and then i plan on goin to PA to see the GGrandkids...havint been there since April...

    I finish therapy for the LE at the end of july...yay

  • Ossa
    Ossa Member Posts: 685

    I saw my Ro once after rads Now just MO and PS

  • Sherryc
    Sherryc Member Posts: 4,503

    I saw my RO for a three month follow up and he ordered a mammo the week before.  He released me to my MO after that. Said I did not need to come back unless I had a problem and by all means call him.

  • sagina
    sagina Member Posts: 849

    I saw my RO at six weeks after, then 6 months, then one year, but he and my MO are in the same clinic, with same computer records, so I think they are interchangeable sort of.

  • gmafoley
    gmafoley Member Posts: 5,978

    I saw my RO at 2 weeks post - 6 months then 1 year to release me even though I was having post rad breast issues. He didn't want to deal with it.

  • FireKracker
    FireKracker Member Posts: 5,858

    July 16th was the last post...are you kidding me!!!!!where is everyone?

    I know its summer in america and sistas are on vacation BUT....come on....

    check in!!!!!!!!

    I too am guilty...stayin with a sick friend so im not on the puter that much.she is sleeping right now so i figured i would start some rockin and rollin!!!!!!!!!

    Here is hoping everyone is doin just great and enjoying this ugly heat that is covering America.

    hugggs everyon K

  • ptdreamers
    ptdreamers Member Posts: 639
    Feel so fortunate. Live in Washington and so far it has been a very cool summer with just a few days in the 70'sSmile
  • FireKracker
    FireKracker Member Posts: 5,858

    Ptdreamers---thanks for showing up...lucky you with the wonderful 70s....my kinda weather.In Nj it reached over 100 many many days....it was damn hot!!!!!stinkin hot!!!!!And I am not a summer person....give me a nice day of 30 deg.no wind,snow or ice....thats the perfect day......

    And now that i just got another gift from that damn bc.i have LE....I spend most of my days either are spent indoors,wearing long sleeves or putting 3 different oils on my arm and pressure points plus i wear a battery operated OFF clip on....

    Bring on the winter!!!!!!

  • jo1955
    jo1955 Member Posts: 7,545

    This thread has been really quiet.  Must be everyone is doing well and/or vacation.  It has been a while since I have posted here.  No complaints - just taking llife one day at a time.

  • FireKracker
    FireKracker Member Posts: 5,858

    keep checkin in JOJO-----the sistas need to hear that you are livin one day at a time...

    seems we are all finally doin it....

    well its about time.

    sistas still missing.....where you be?????

  • FireKracker
    FireKracker Member Posts: 5,858

    Oh no you dont Nancy----ya gotta stay here to support our sistas and somewhere along the way you can find some answers.

    I too a goin to a new onco.tomorrow.

    Is the new intergrative center covered by your insurance.That is my dream but the ones i heard of do not take any insurance...good luck with that...

    come on sistas!!!!!!!!still misseing lots of you....just a quick check in would be soooo nice.

  • FireKracker
    FireKracker Member Posts: 5,858

    Im gonna see how intergrative this onco is....some of them lots of stuff but play dumb and others like the one i dumped knew alot but she started treating me differently when i told her no to the 5 yr.meds...i swear its cause of that...maybe she will have to miss out on a huge vacation or something....im sure that some of these drs.get kickbacks for pushing their poison.Im not against the meds but hey im 71 yrs.old and i want my QOL.I do have a wellness pharm.who is just as good as any dr.and advises me on certain alternative meds.wishing there was a 1 fits all.lol.

    when this thread starts to get busy i think of when i started this thread...HOW DUMB WAS I????????????

    thought that after rads was the end of the road.....SURPRISE!!!!!

    hugggggggggs everyon K

  • jo1955
    jo1955 Member Posts: 7,545

    Nancynow - Good to hear from you.  Hope you like the new docs and the new facility.  That really makes a difference in how we feel and our recovery.

  • gmafoley
    gmafoley Member Posts: 5,978

    Thank you Granny for referring me to the LE board, I've been spending alot of time on the LE boards gleaning information.. Radiation post effects have caused a move to that board unfortunately, but if I were to see my RO - he would deny he had anything to do with that... 

    I have been travelling with granddaughter all week - just got home last night - I was very tired and cranky - snapped at our boarder and my DH.. I told him to just give me some time - Sending my granddaughter home and knowing I won't see her for another year, just got too me - I didn't fall apart in front of her - gave her hugs goodbye.. She left with her daddy - He has to send her home to her mommy in CA and it isn't the best environment for her down there but nothing we can do about it... Just pray - she is a very strong girl and knows how to survive.

    Both upper arms are swollen this morning - even my good side. Almost 2 months ago now, iit was mild breast LE.. now upper arm is involved Tongue out

  • FireKracker
    FireKracker Member Posts: 5,858

    GmaF---Im there with you on all the LE threads.When i sent you there i was fine but im not anymore....that stupid PT who told me i had edema should be shot....it was always LE.and then the stupid bra fitter gave me all the wrong bras.another jerk.

    Im back to square1...on the boards lookin for the right fitter,exercises and all the other junk.

    doesnt this LE just suk?????

    just keep on keepin on....We will get this thing under control....bet on it!!!!!!

    hugggs everyone.....this thread has been kinda slow....just hope everyone is doin just fine.

  • liefie
    liefie Member Posts: 761

    Anybody experiencing itching on their arms and legs three weeks after rads ended? I'm scratching, scratching . . . hydrocortizone cream helps, but I'm wondering if this is rads-related?

  • gmafoley
    gmafoley Member Posts: 5,978

    Yes Liefle, Itching is normal from what I remember - Remember you have been radiated on the inside too and it need to heal too..I remember one doc saying you will heal on the surface then all the inside after. You will also be sensitive to new clothing (not washed), soaps and cleansers... Have you had any changes to laundry soap? fabric softeners? Keep using your creams - whatever worked for you during rads.

  • liefie
    liefie Member Posts: 761

    Thanks, Gma Foley. I'm seeing my onc on Monday, and will talk to him. It's not been too bad this last day or two.

  • gmafoley
    gmafoley Member Posts: 5,978

    Don't be surprised though if the onc denies that is rads.. My onc didn't believe anything I said and tried to hand me "another drug" to shut me up... I learned more from these ladies than my RO..  I hope he believes you!!!

  • gmafoley
    gmafoley Member Posts: 5,978
    Thought I would ask the "Rad" ladies here too -  I found a pea sized lump about an inch away from the end of the scar, in my breast.. Its been a year since rads... Its got to be scar tissue - Correct???? Cancer cells shouldn't be in my radiated breast so soon??? I will probably call the surgeon tomorrow and ask - but Man it sure surprised me last night - I found it the same way I found the other one  in 3/2011.
  • Cindyl
    Cindyl Member Posts: 498

    It's probably scar tissue yes.  But definitely get it checked out.  I'm sitting here 2 months after rads with a brand spanking new lump.  PA thinks it's a cyst, but I haven't been to a physician with it yet.  (Found it in a mess of infected tissue last week.) I thought it was a bug bite that got infected and was worrying about cellulitius.  But no such luck.  Hope your bump is nothing!

  • FireKracker
    FireKracker Member Posts: 5,858

    what do we have here?????double header!!!!!Both of you please have it checked out....

    and do let us the results....please dont wait....

    As we all know AFTER THE RADS ANYTHING COULD HAPPEN.....

    Good luck.huggggs K

  • Cindyl
    Cindyl Member Posts: 498

    I have an appointment with pcp on Tuesday, hoping she'll say the infection has cleared up enough to get it checked.  The PA was supposed to have sent her notes to the RO on Friday, so we'll see if he has to say, if anything.  Gah.

  • MostlySew
    MostlySew Member Posts: 1,311

    Gma and Cindyl,

    I'm glad you're both having your docs check things out, but thought you'd feel a bit better knowing that I too ended up with an odd lump 2 months past rads. With an ultrasound they decided it must be a fat necrosis. I had my mammo at 6 months past rads, and another uktra sound and by then I had 7 areas of fat necrosis, scar tissue and seromas. I think I'm still developing the. some hurt, some are just very hard lumps (like the one on my SNB scar) and some I can't feel. So.....hopefully yours are something like that.

  • liefie
    liefie Member Posts: 761

    Cindy and Gma, I hope and pray for good news for the two of you.

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