After Radiation
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I am getting really worried about Granny. Since she can't be around family just after getting the shingle shot, I can see her venturing too far from home. If anyone hears from her, let us know right away.
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I'm sending out an APB for Granny.............
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IM HERE.yes my back is killin me.its from the massage table.cannot sit on the puter fo long.But im goin to pa this weekend.my GD called both her dr and my GGsons dr and they both said its ok.
jo jo---im sooooo sorry you had to take a step back.you were doin so good.Things will start lookin up again.nothing stays the same thank GOD.the good and the bad.Im prayin for you.
Ducky--first remember i have edema so its a little different.but i do the exercises from the link that beanius posted.and i do gently massages pushing from under my arm to the inner boob toward my neck.the stretches are important.i do exercises everyday anyway.doin it for yrs.keep everything movin.im tryin to unclog the drain.like a blockage.i massage when ever i think about it and stretch my arms way up too.check out that site.
Hi to Cat,Sherry and Teklya...we love you..huggggggggggggs
Tory i almost forgot,you said the PT gave you tools right?as ducky says will you share?
and last but not least my sista CHEVY..---always givin me support and now she lost 2 dear friends.im sorry i didnt even know.hard stuff sista.and it keeps gettin harder as we get older.shit.I lost 7 people in one yr. and ya know what happened to me????thats when i got that bad case of shingles....flashback.if i remember correctly you did get the shot.i sure hope so.
I hope i didnt leave anyone out.thanks for thinkin about me...all of you are sooo dear to my heart.I probably will not be back until next week sometime but i want to wish everyone a very happy and healthy mothers day.and to my sistas who are not a mother celebrate anyway...I love you all.God bless.huggggggs K...WHERE IS THAT VACINE???
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Granny, can you send me that website again, although I could trace back......
Tory ..............if you have anything good I would appreciate having it too.
Maybe I just have edema too, but they did say the arm was a little swollen., nothing huge (although I had batwing arms long before cancer) so when I say huge I mean not massive as I have seen ...online......and it scared the shit out of me.......
But like I said.they told me node removal has nothing to to do with LE, its the luck of the draw, and how your fluid flows up toward your neck after surgery
Ok ladies thanks for any help, and Granny, I'm sure that APB helped us to find you..........................Hope your back feels better, and where are you going in Pa.? Anywhere with family is fun............hugs.
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ducky - Thanks for putting out the APB on Granny.
Granny - Don't do that again - please - you scared the crap out of me. I really worry about you when I don't hear from you. Have a great time in PA this weekend.
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Your welcome ......jo 1955....gotta keep an eye on that Granny she has a way of getting away from us.....................Happy Mother's Day.....hugs
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ducky---i dont remember the site name but its on the lymphedema thread.it gives you all the exercises to do for the lymphedema.sorry.I dont believe that rads,biopsys,node removal does not give you lymphedema.luck of the draw yeah right.its them playin with that arm and cryin boob.just the way i feel.my PT feeels the same way.ITS CLOGGED UP FROM WHAT???????.
damn im tryin to think of the site...BEANIUS WHERE ARE YOU?????????she is the pro.
I know i wont be back till next week.NO APB girls.but thanks for the love.hugggggs K
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CHEVY-----sending you another hugggggggggggg.i know your havin a rough day.xoxoxo your sista kantalope0
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I'm here, have had a BC sista off the board in need of some time...Ducky I went around for sooooooo long about having more nodes out. I had 2 positive out of 6 when the did the SNB which was just awful news and so depressing that it got in my nodes...I knew that meant chemo for me. I argued with every doc including docs in my family and did all this research, etc. proving I didn't need the full axillaryLND. There is a prediction calculator that predicted no more cancer and I really didn't want any more surgery. But some of my family members twisted my, arm plus my RO said he'd have to blast a bigger area, so I finally agreed to the full surgery and guess what? They took another 15 nodes out and no cancer in any of them. So now my underarm has this big dent in it and a big scar and another scar where the stupid drain was. But it was my decision and it did get me out of a tougher chemo and a larger rad area. This disease sux! Sorry for ranting, but when I remember all this it just drives me nuts.
BTW - Jo, Granny, Chevy, Sherry... I need to give you all a bunch of WHACK, WHACK, WHACK'S because I will be traveling tomorrow and won't have a chance...I will see you on Sunday for a wonderful Mother's Day. I have to go over toward Seattle for my follow-ups which are also driving me nuts. I am so worried and just can't stand the mamos but I will somehow get through this.
Granny, take care of your back!
Big hugs to you all, and Happy Friday!!! ~ Beanie
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Beans - Here is a big WHACK WHACK back at you. Travel safe tomorrow.
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Jo - thanks, I need it right in the stomach to get rid of this stupid knot!
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Beanius---good luck sista.ill be prayin for ya.hugggs kantalope
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Beesie ............sorry for bringing back lousy memories...............I was told my nodes had to come out to prove there was no cancer in them..........just wish the dye would have taken, but just my luck...............I'm getting an early start on LE, maybe it won't get too bad. Here's hoping
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Hi you sweet ladies! What IS this? Everybody leaving? Is it just going to be you and me Jo? Ha! We can even talk about them, & eat everything we want, & they won't even know!
I was going to tell you Ducky....that Kantalope had Edema, & not Lymphedema, like a lot of gals have, but then she finally woke up & posted!
Kantalope!!!! I am fine honey....It was just such a shock to hear someone went that fast....I think he must have had a heart-attack or stroke, & lost control....anyway, he didn't have to suffer. It's just that he leaves little Ruthie....but I'll keep calling & pestering her to go to breakfast in a week or so. And your back? My back must be sympathizing with YOUR back, because it is killing me! I just took an Ibuprofen.....We walked around the flea market in the hot sun, & it really wore us out....But I had on a straw-hat, and sun-screen....Ha!
Beans!!!! You GOT me! Whack to you too, little kiddo! Don't hit me hard, I might fall over.
I want to work in my Gardens tomorrow..... And DH feels so awful! He has a bad cold, so I am playing nurse..... Oh well, it keeps him from drinking....
..... I just hate to see him so "down"..... And NO Kantalope, you can't kick him in the pants! Sherry! Honey, I'm so glad your rash is better! Just keep that stuff on hand, it helps a lot of mystery rashes, & bites & things like that!
Okay Jo! It's almost time to party! Are they almost gone? Ha, ha! xoxoxoxoxo
xoxoxoxoxoxoxo!
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Chevyboy - All the threads I follow have been pretty quiet today. Not much action. Kantalope is in PA for the weekend and I don't have the faintest idea where everyone else is. I don't do much on the weekends - stay home for the most part - no money to just go spend. Maybe that is my problem. It was a pretty stressful week and I just don't have the energy to do much. Heck, I even took a nap today just because. Heading for my sewing room for a little while but will be back later.0
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Hey ladies...what is going on? Everyone having a good weekend?
Granny and ducky--what are your questions and what do you want to know?
Hope all you "mommies" out there (with human kids or fur babies) have a wonderful Mother's day!
Hugs to you all!
Tori
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Wishing everyone a Happy Mother's Day!!!!!!!!!!!!!!!!
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xoxoxooxox!
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Before the child was born - Anonymous
A mother's love begins
Before the child is born
And lasts through time
And difficulties
And differences
And many wounds
And days of joy
And days of sorrow
Winding, wearing
Weeping, sharing
Changing
Until, at the end
What remains
Is that solid core
That began as love
Before the child was born.Wishing you all a glorious Mother's Day!
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Question for everyone and looking for advice!!!! I finished rads Dec 3rd and can't seem to get my energy or stamina back. It feels like the fatigue just won't go away. My question is: Is this normal this many months out? And if so, how much longer can I expect to feel this way? I am usually a very active person with a hectic job and when I at home, I just want to sit on my butt all day and do nothing. I have to force myself to get up and get somethiing done. I do sleep pretty well so that is not an issue.
Thanks - I could use some words of wisdom.
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Hi Jo! I think it's still the Rads, but you should call your Oncologist to make sure! It hasn't been that long since you finished..... So just don't expect too much yet....Ask the other gals on here, cause they had the same type as you.....
Are you having a nice Mother's Day? I hope so....! Guess I can't whack you one, right? Oh, that's alright, I will anyway....It's a soft pillow, ha! xoxoxoxoxo
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Jo.... Some folks breeze through treatment, while others don't. And then some breeze through only to hit a wall down the road. Find some time to see either the oncologist or your internist to discuss it. Your fatigue might be due to the radiation or something else. Thyroid, anemia, hydration and anxiety all need to be ruled out. Also, don't forget.... You aren't that far out from treatment. I just want you to know that one of the worst symptoms of the frozen shoulder was exhaustion due to lack of sleep and pain. I can't believe how much better I am feeling now that I can sleep. Good luck and hang in there!
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Hi Jo - Recently I was wondering the same thing and then all of a sudden felt my energy go up again. I really notice if I don't get enough sleep I seem much more prone to fatigue. Also when I set a lot during the day it sure helps to get out for a walk. If it seems really bad I would check with the doctor. Big hugs to you (and three WHACK, WHACK, WHACKs even if it is Mother's Day)!!
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I did something positive today.......I fired my surgeon!
I know it's mothers day but I am doing something for me. I was very unhappy with their office (very rude argumentative employee) and then they charged me for a post op appointment 6 days after surgery. I tried to fight it but of course my insurance company did nothing. It's only a co-pay but it makes me mad that because you are on medicare (private medicare advantage) they smack you with everything. I had one doctor (not BC) who charged for 14 surgeries and 10 office visits on the same day. Guess what, the same insurance company paid it even after I had called them........go figure.
I was very upset with the BC surgeon anyway for taking out 21 nodes for no reason, didn't do the dye test either. Also come to find out I got stuck with a $988 bill because even though he took my insurance, his hospital didn't and he sent the tissue sample there. I did get that one written off thank goodness. I paid the co-pay and sent them a letter with it telling them to basically take a hike........now I've have to find someone for a follow up and a mamo..............how does one go about that?
HAPPY MOTHERS DAY!
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Lestwin! I ALSO more or less "fired" my Oncologist! She couldn't give a rat's behind that I went deaf on Tamoxifen! So I called back the day after I saw her, and told them to cancel my appointment....that's all....Guess I should have hollered, right?
But I called my Radiologist, who I love, & she will take over my care, which is only blood tests every 3 or 6 months....So now I'm happy! Try & fine a Doc that you know, that you like...Are you taking one of the meds like Femara or Arimidex? Even your Radiologist can give that prescription, or even ask your Primary Care?
Anyway, Happy Mother's Day gals! xoxoxoxo
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Thanks ladies for the kind words and advice. I am due to see my MO in a few weeks and will put that on my list of questions for him. Even though I try to live by the 24 hour rule, seems I do get off track every once in a while.
voraciousreader - Rads was an absoulte nightmare for me. The stress of just going everyday was incredible. I really hated my RO and would have fired him if I had the option of going somewhere else for treatment. I know some days I probably try and do too much but hey! I think I am wonder woman and call do it all. Guess again - gonna have to stop that.
lestwin - Good for you. Sometimes we have to take control of a bad situation and do something else. Is it necessary for you to continue to see the surgeon when you have a radiologist and MO to oversee your care? I had surgery at the end of Aug and my last surgeon appt was the end of Oct. I let my MO take care of testing, breast exam and anything else I need. One doc/one appt. Just a suggestion......
Chevyboy & Beans - I haven't forgotten about you two. I know this is Mother's Day - I don't have children - just a 4 legged baby. With that said - WHACK WHACK WHACK! Goodness that felt great. I needed some cheering up. Time for me to leave the pity party.
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YAY Lestwin! YAY Chevy! We hire med professionals to help us and we pay for their services and if they aren't treating you right then I think it's great to find someone who will!! Right before I started chemo the boards said to make sure to get your teeth cleaned. Well, when I went to the dentist, which was in a new town for me and an office I hadn't been to, I had to fill out all their forms which wanted health history, so I wrote down that I had been healthy but recently found out I had early stage BC...I couldn't believe how weird they were...I felt like they looked at me like I had two heads...the dentist would barely say two words to me. Anyway, I'm not going back there. I asked my rad nurse who is a long time BC survivor for a dental referral as she's been here a long time. I need to go in for a check up and cleaning next week and when I called their office they were so so so nice to me, so I'm really hopeful to be treated well. Sheesh! We deserve respect! YAY!!!0
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Chevyboy: Yes I am on Arimidex and last weekend I had a really bad reaction, almost did the wrong thing but I changed the time I take it and have not had that bad depression again (that was a nightmare). I have been so positive through all of this until the Al's. I also have a very rare form of leukemia so I have a MO (have been seeing for 6 years) whom I like who gives me the prescription for Arimidex which I have been on for all of three weeks. I have a PCP who I usually see every 3 months but he recommended the surgeon unfortunately (they are under the same umbrella medical wise).
I will be seeing my MO in July, my RO at the end of May so maybe one of them will take over my mammo or maybe I could go to the hospital where they do my mammo's and have them find me a breast surgeon? I could not find a BS specifically in my area, I would have to travel to Orlando about 60 miles away and I don't want to have to do that...decisions decisions.
Thanks everyone, I kind of knew I could vent here.
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lestwin - Ask your MO about scheduling your mammos - mine does. He even scheduled me at the facility I have been going to for many years even though he is not affiliated specifically with the hospital system the imaging center falls under.
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xoxoxoxoxoxoxo!
