After Radiation
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Oh I forgot! We ARE after rads! WHACK!0
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ok chevy i copied the recipie.have to eliminate quite a few things like the scalions,anchovies,boulion etc.the boulion has loads of salt.i cannot have salt with this swollen boob.what else can i put thats not spicy for flavor.im gonna give it a try with some of the things but im gonna need some kinda flavor.help me out here if you want to make me all betta.
the dr.said i have edema.but according to the sistas they dont think thats what i have.as always that can be mixed up very easily.cant wait till i go back on tues.i have lots of questions.im doin the massaging and the exercises for both.figure im doin it all along...now its the salt.first the sugar now the salt.shoot me now.and you wonder why i weigh 65lbs.ha.no 119lbs.thats bad enuf.
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Merck is the manufacturer of the vaccine.....check it out with them
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Granny DukesI know on the Merck site it says "pregnant women should not get the shot, but it doesn't mention about being around someone who is pregnant if "you " get the shot...........Just call Merck before I give you a few more whacks..................I don't want you to be alone on Mother's Day.........Just do it damn it, before i toss your sorry ass into the bonfire.............hahahahhaha
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Geesh Ladies! Enough about the food already. Chevy- Just face it, we are the only ones who know how to eat right. And the fugugly bra - glad it is not me that has to wear that thing. Yes, this is After Rads and we are talking about after rads stuff. I don't see anyone comparing notes on rads treatment. I, for one do not want to relive that nightmare.
Oh GD - By the way - whack whack. hehehe
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ok ducky---you win.today is sunday they must be closed BUT tomorrow ill call Merck and hit them up with a lot of questions...its ok to be alone on Mothers Day.for me its Mothers day all year long.so what if i celebrate it a few weeks later.its no big deal but i know my GD will be scared sooooo if i get the answers yonu expect me to ill have her call merck too.THANKS FOR CARING.0
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Hey Granny, can't say I blame her, and guess what even if she calls Merck, she may still have her doubts, and stay home herself,.....................just didn't want you to be away from your family............after all Granny, you started this ball rolling you know..........without you they all would still be a gleem in someone elses eye..................haha
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im gonna take a pic of that bra and when my GD comes over ill let her post it.and while im at it im gonna send both you JO JO and Chevy you very own pic to save and think of me wearing that damn harness 24/7.then maybe you will have a little drop of pity for your sista who right now is starving ......I think ill have a bowl of cereal with the almond milk.IF ANYONE THINKS I LIKE THIS DIET YOUR SOOOO WRONG.I HATE HATE HATE IT.WANT MY SUGAR AND SALT BACK. damn i want my old life back.0
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granny - I know we should not tease you so much about your bra but we really love you girlfriend. As for the diet, I know that part really sucks. The bra is temporary - the diet is not. Cereal and fat free milk is one of my favorite meals. I don't use real sugar but do use salt and I am trying hard to cut back on that. Like you always say - and the beat goes on!
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Well, some of us have to work tomorrow. Better head to bed soon.
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im done for today too.had my cereal with the almond milk.yummy.really not bad at all.the bra i gotta live with.for how long WHO KNOWS????? the sugar and salt is FOREVER and that suks.im gonna try that congee if Chevy could give me something besides the boulion because there is sooooo much salt in that.im gonna make it like a stew/soup.not for breakfast tho..nite all.hugggggggggs and God bless.cancer suks.K
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GD-My LE is not gone...it has significantly decreased, but I don't suppose it will ever be gone completely, I will just learn how to control it to a certain degree so I can keep being active. Most of the swelling was in my chest, so that makes a big difference on how quickly it decreases too (at least that was how I understood it)
My PT has been an LE therapist for the last 17 years...he is pretty much known as the "godfather" of LE therapy here in Oklahoma and is highly respected for what he has done for so many people here in Oklahoma. In fact, when he was first certified, he was taking patients from Kansas, Nebraska, Iowa, Texas and a few other states, because he was one of the only LE therapists around until about 10 years ago. Most of the therapy he uses was used in Germany before it came here to the states. He heard about it many years ago and got in touch with the wife of the man that taught it, and was actually trained by him. He is so intelligent, and yet a very gentle man who just wants his patients to get better...He videotapes what I need to do each night to keep things under control...I watch it and do it before going to bed... all seems to be going well, so I'm just hoping it continues...
It's been a loooooong weekend, so I'm heading to bed girls...
Sleep well all...
Tori
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Morning gals! Okay Kantalope ....(tinker-toy)....I just sent you the recipe by email. Don't use Anchovies! That was a joke, Ha! Besides, if you say you can't eat salt, you would fall over in a dead faint with those! You don't need the bouillon either! I just do that for added flavor! If you have ever eaten "Pho"....that is a Thai noodle bowl, and it is sooooooooo very good! I bought the Pho bouillon cubes at an Asian market here... I KNOW you would like that....with or without meat.
Jo! Don't work too hard! I only work around here, ha! Been retired for 12 years now...Now I have enough time to garden and do stuff I like to do! Maybe I found something that Kantalope will actually like, with that Congee? Ha!
And Kantalope, I think you have to make sure you DO have Lymphedema, before you treat yourself as having it. If you have Edema...that is different. And I think the two are supposed to be treated differently. http://www.massageandbodywork.com/Articles/DecJan2005/edema.html
This is an article that explains "fluid" buildup. Whichever one you have, it's still water retention underneath your skin. See if this helps. I just know Lymphedema, like these gals have is more painful...There are threads on this forum that talk about this....
http://community.breastcancer.org/forum/64 Okay....check these out!
Have a great day gals! xoxoxxoxoxo
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Chevyboy - Good Morning. You gotta keep Kantalope straight with the ingredients for the Congee. She is obsessing over the salt thing - I've told her about that. Please remind her she needs to relax and breath.
Have a great day ladies!
Love & Hugs
Jo
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Ok chevy - I copied that recipe too, the ingredients look good but that pic was fugly and I'll do like GD and use brown rice!
You are all quakin me up!
Someone said we should talk about after rads...well my post rad boobie is still a bit pink and the nipple is larger than the other one and when I get cold, the non rad nipple shrivels like normal, but the rad nipple doesn't shrivel as much, it just looks like it's gone to sleep. Not sure if that will change. The swelling has gone way down so size wize I'm looking more balanced. Girls, I think I'm getting better! Hurray!!!
Hope you have a wonderful day!!!
P.S. WHACK WHACK WHACK
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Beans - I think the rad boob will always be a bit different than the good side. Sounds like you healing - good for you.
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my rad nipple is always perky as well. makes it hard to go without a bra and I am very small chested. would be nice.
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Update on the breast LE. It IS LE and she manually massaged the lymph nodes and man oh man...night and day. The boob is down to almost normal and the hardness is gone. She showed me how to do it and I am confident I can keep it down. So glad I went.
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yes, and the rad boob also feels different, not as soft as the other one, but not too bad, maybe that will get better with time. My RO said it could get "tougher" feeling, so I guess whatever happens happens. Anyway, I do feel it's healing! Hope the same for all my rad friends. ~Beans
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Okay, OKAY!!! She gets mad if we don't mention "Rads".....So the lumpectomy boob is smalller now, than my other one! And while I had the Seroma, they were the same....but now my bra pushes them together, & it hooks mostly towards the "good" boob! (Not in the center) But do I care? Nope! No-one is going to see me in my bra....Ha! Just thought I would mention that, because it DID happen after Rads! RADS!!!! rads.....AFTER RADS!!! SHeesh!
BEANS!!! Yes, the Congee is so good! You can add to your brown rice, anything you want! It is very good even without any meat...but I added cooked chicken breast. You can also serve it with an egg. Scramble one little egg, then slowly drizzle it into simmering congee, stirring with a fork, & it will "set" while you are doing it...Just like making egg-drop soup. We had a little side-dish with breakfast....They serve it ANYtime in Viet-Nam, & Thailand. Okay, Quack? I think you mean WHACK! Gotcha! Hah!
Jo....We need to have Kantalope take a Valium or something....
We need to somehow cheer her up! After all, we all have great news today, right? I know we hate to hear of people losing their life, but it couldn't have happened to a more deserving DH....and that doesn't mean Dear Husband!!!! It must bring back so many memories for the people closely involved....I just hope it's "over"......Hi Sherry! My boobs haven't heard the word perky since I was 65! Ha, ha! But that's the first thing that comes off, is my bra, when I come home! If you are over 65, your little nipples start heading South, if you know what I mean! And no, I'm not including a picture of THAT!!!!
xoxoxoxoxo
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Well back from Rads..........no winning lottery scratch off today, but that's ok...........Went to the LE specialist.........She confirmed I do have the beginning stages of LE.........She also said it was good that I was so quick to notice the slight change in the size of my arm.
I will be going for therapy, which she explained completely, what I would do and what would happen.......She did say that this is "lifetime"...........How I take care of it will determine the degree to which it gets better or worse. Very nice person and really knew her stuff, however because only Medicare pays for her, I have to go to another facility associated with my hospital for treatment......Close, not far from my house, but would have preferred to stay with her.....I will be seeing an LE specialist at the new place too.
She also confirmed the main things for avoiding LE, and Cellulitis if you have LE, and what you should be doing with regard to the arm on your surgery side............
No BP in that arm
No blood draws
Gloves when gardening to avoid cuts, and if you get cut use alchol, peroxide, and wash good...also put on an anti-bacterial ointment, and cover....
That was it............nothing else.........use your arm as you normally would, no restriction on repeditive movement like, scrubbing, cleaning, dusting, and she said sometmes using it is better then not.........So, the first things I told you about are fact, the rest are not necessary.
Hope this puts to rest the LE thing, and use of your arm, or arms after surgery.........
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Chevyboy - I understand this is an After Rads thread but do we always have to talk about rads? Doesn't life go on after rads? We do more with our lives, don't we? I don't even think about rads - I am not having any problems post rads. Heck, right now, I am so hungry, I am sitting here thinking about what I am going to make for dinner. Does that count? I know, I am just trying to stir up Kantalope. hehehe0
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I'm not going to "Whack" you Ducky! Just a soft hug instead. You know, before my surgery, a gal came in to talk to me, about Lymphedema...& I thought "Okay, now I know what to expect".. But I guess no matter when we had our surgery, we can still get it? I had mine Jan. 4th, 2010....so that's why I just feel like everything is going as well as I can expect it.
But, I AM wearing garden gloves now!
And I scrub my hands after I do EVERYthing...! I'll also get out my gloves for washing dishes, etc. We have never had a dishwasher, so we are it! I don't take hot showers anyway. I saw the Lymphedema site on this forum, and I read what the gals are going through, and also how to prevent it! So thanks Ducky, for making me more aware of it! I have always had Edema in one of my ankles..... But since I stopped taking Tamoxifen, I notice that I no longer have that! Well, I mean just a tiny bit. But I don't have to take any water pills.
When my Dad had congestive heart failure, his legs were so swollen, and even drained....I used to rub salve on them....They had such a hard time regulating his blood...either too thin, or too thick.
So okay.....Holy cow Jo, don't go gettin' Kantalope all riled up! As long as we mention "Rads" I think we are alright! She thinks we get "off track".....but that's okay....I have been off track all my life!
I worked in my garden today, transplanting strawberry plants! And laying stones for a walk-way! (I wore gloves too!) I think we need a snack!0 -
Chevyboy - Thanks for the snack - that looks yummy. Wait till Kantalope sees this. She does not think we eat healthy enough. I know I have been off track all my life - seems more interesting that way. Speaking of Kantalope, where has she been hiding anyway?
This is what I am making for dinner tonight.
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No, she's probably still in bed...
And your dinner looks deLISHious!! We are having a little fried Italian sausage patty, and baked egg rolls and Congee.... I know it sounds funny, but we don't eat much at night anymore.... So we fix just what we want.xoxoxoxoxoxo
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Jo I had spagetti for lunch, yumo!
It is OK if we get off track and Jo you are right there is life after rads!
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Sherry - Like I said in an earlier post, I try my darnest not to think about rads and that horrible experience. For me that is looking back over my shoulder, I just want to look forward and see what is in store for tomorrow. With the unexpected departure of our assistant managers, I really had to adapt Sandee's 24 hour rule. This is not the first time this has happened to us, it is harder this time as I don't have the mental or physical energy it takes to bounce back and train another couple to help out.
I just re read what I wrote and I sound just pitiful - but that is the way I feel right now - ain't gonna deny it.
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Jo Honey......hugs, hugs hugs...! It's okay.... you can feel bad for a little while....just don't get down....I understand.....You don't sound pitiful.....well yes, maybe you do.....but that's why we are here....we love you! Guess this is no time for a pillow fight? You don't have to look back.... We are all done with that stuff! I'm here with you! xoxoxoxoxo0
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Chevyboy - I may sound pitiful but could always use some cheering up - I sometimes turn around pretty quickly. Pillow fight, huh? WHACK WHACK - that felt soooo good! LOL0
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Okay little butterfly Jo, before I crawl in our warm bed, just know that I am thinking about you! Talk to you tomorrow! xoxoxoxxo Oh WAIT!!! Whack, right back atcha!!! xoxooxxoxo
Some cookies & milk for us! I'll share the milk too!
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