For Older People with Sense
Comments
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Her name is Marlene and her user name is beachwalker54. She has just signed on for herself.
She has some questions about tx options.
Thanks for the help.
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Lisa didn't you take those glorious photos in Holland? They are just amazing.
Happy Easter All!
Love Ginger
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Lisa didn't you take these photos in Holland. They are beyond beautiful.
Happy Easter All
Love Ginger
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Ok Nancy, I'll look for her questions.
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Ginger, yes, I took them in Holland..it was amazing!
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Welcome Deboye and Patti. Good to have you both! We talk about anything and everything here, including but not limited to bc. I look forward to getting to know you both.
All the cooking I'm doing tonight is done, thank goodness. Potato salad can wait until tomorrow, since I must free up some refrigerator space first!
Hope everyone has had or will have a wonderful Easter or Passover.
Hugs to all.
Kathy
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Hi Crissy,
I am a new friend of Nancy's from the MVBCSG and am having a hard time deciding whether or not to listen to the doc's advice about having a 3rd excision to get clear margins and rads or just have a mastectomy. I have been reading threads form others with ILC and many have chosen to have a mastectomy and no rads. Also my MO said that I am borderline for chemo according to the oncodx test #21 and that chemo hasn't shown to be effective for my type of cancer. (I will also be 5+ years on meds.) Well, that's scary and I was so full of information at this team meeting that I didn't ask what would happen if I had a recurrence and couldn'd use chemo? What else is there besides maybe surgery? I am confused, and so tired and haven't even started treatment yet!! thanks marlene
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Thanks for the warm welcome♥
The other subjects I frequent are: Thinking Out Loud and So, what's for dinner.
I am trying something different for Easter, going to cook Duck A'L'orange.
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Happy Easter
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Here he is in my back yard..
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Hi Marlene nice to see you here.....welcome. You really do have some difficult choices ahead of you and I fully understand your quandary.
Regardless of what choice you make there will always be in the back of your mind the question of will it come back.......I'm afraid that is a question we all live with, even me and I'm already stage IV.
I think it will come down to asking yourself what is going to ease your mind the most, another lumpectomy and rads or a mastectomy. Either way you will be on either Tamoxifen or an AI for five years which by the way is a good insurance. The cancer can come back even when you are on them but the likelyhood is much less than if you had taken nothing.
Cancer of any kind can be and is very sneaky and we can only do what we think is the right thing at the time and hope that it is enough. I cant tell you what to do other than to say, what ever you choose be happy with the decision and know that right now it is the right decision.
Love n hugs. Chrissy
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Hi Marlene, and welcome. I can imagine how your head is just spinning with all you have to consider now, but you have a good friend and adviser in Nancy. All the rest of us, I'm sure, will try to help too. Ask questions any time or just vent if you need to!
Like you, my diagnosis was ILC and I opted for lumpectomy (plus re-excision) and rads. Radiation was not hard for me at all, but I realize some people have problems with it. Had I known at diagnosis what I know now, I think I'd have had a mastectomy, but so far, so good. My insurance won't cover a prophalactic (sp?) mastectomy, even if I wanted one. Mammograms are very nerve-wracking now, to say the least. Chemo wasn't an option for me either, due to a low oncotype dx score.
But, despite having to have a stereotactic biopsy for calcifications after my first post surgical mammo, all's been well. We'll see how it's going after the next mammogram in June. I'm 2+ years on arimidex and coping well, or at least it's better than it was at first.
Again, welcome.
Lisa, love the Holland pix and the rabbit! It's almost time for the Easter Bunny to come.
Easter blessings to all,
Kathy
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thanks for the warm welcome chrissieb and qca...have a great day with your families today.
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Hi Kathy,
Thanks for your support! Could you just tell me why you would have chosen a mastectomy had you known then what you know now. I am also curious to know what your onco # was. Did the docs ever say that chemo doesn't really help with ILC? Maybe it is that I am pr-???. Also, how was your lump detected and are you stage IV because of the size? Still new to all this stuff
Have a wonderful holiday!
marlene
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Thanks everyone for the Easter wishes. Hope you all had a nice one. We did, with better weather than expected. DGS baby Aiden was baptized this morning at the early service. It went well despite his shock and outrage at the water put on his head, but his other grandmother (DIL's mother) didn't make it. She was following them to the church and they didn't worry as she'd assured them she knew the way, but she got lost and didn't have her phone.
Marlene, my ILC was found in a routine mammogram. I never felt a lump, even after I knew where it was. I was at first termed stage one but later changed to stage 2 after the re-excision. My onco. was determined I'd have chemo but my score on the onco dx was 11 and he then said it would't be worth doing. My onco didn't say that chemo was less effective on ILC but my surgeon did, so it may be a matter of who you deal with at the time. I do know that many women with ILC do have chemo. I'll PM you later.
Kathy
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Happy Easter everyone actually it's almost over. My ds has been home and we have been busy. Some yard clean up,etc... And cooking and then eating of course. I am beat.But just wanted to check in.
Kathy congratulations on the christening. Funny about the other mom getting lost.That's always the way,forgetting our phones when we need them most.
Welcome to the new ladies, (let's see if I can remember) patti, deborye, and marlene. Just a note don't try to go to another page while posting or you will lose your writing. LOL with my memory I am probably just reminding myself.
I am going to pack up all the candy and send it with ds tomorrow.
Night all.0 -
Had a great Easter - hope everyone else did as well. We drove over to Hoods Canal (which is not a canal, but rather a long inlet). Anyway, hubby dug some clams, we thawed out some salmon and scallops and I made cioppino. The weather was grand, and except for an awfully lot of smoke from people deciding to burn yard stuff it was a thoroughly marvelous day. Today I start on-call for work, so will have to hang around this coming weekend - just in case of issues. The weather is supposed to go back to cool and rainy this week - so far it's been a pretty typical NW spring (which is a far cry from what the last four years were).
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Hi Kathy,
You were so lucky that your ILC was found on a mamogram. Now I am really nervous about the MO saying not to have chemo (although who wants it) with my onco dx being #21. Maybe I should call her. Sure wish all the drs. agreed on what to do. Did you have a mx, I can't remember. Still waiting for my BRACA test to come back, drawn on March 7th. still not sure if a mx is for me or 3rd re-excision to clear margin and rads. thanks for helping me with all of this everyone!
Thanks for the welcome Nancy and for the help using this forum, I have a long way to go but I'll get there!!
Marlene
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you are welcome marlene and you are here aready! I am learning as I go, too.
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Marlene, I had a lumpectomy, no mx. Also did rads and now take arimidex. I sent you a PM.
Kathy
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Morning all
Hope all the new folk here doing well. I had no lump - it couldn't even be felt by the pathologists so for me mammos are the best. Mine is actually a very mixed path which I couldn't work how to record so its not just what is in the stats.
Sorry don't feel like writing much - have had 'asthma' all weekend actually have pneumonia. Now have lots of drugs.
Big hugs to all
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Alyson, I'm so sorry you have pneumonia. Please rest and take those drugs. Got to get you better and kicking again!
Kathy
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Oh Aly! I hoped this wouldn't happen but now it's there please stay warm and rest, rest rest! Take care you.
I'm heading off for my regular massage so I'll check back in later all.
Love n hugs. Chrissy0 -
Oh Alyson, so sorry to here that. Hope you'll be better soon.
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Alyson, please take care of yourself.I echo the others,rest,rest,rest.
Chrissy,I had a massage today,too.Are you still doing the water therapy?
I head to the city tomorrow for another appointment with the dermatologist,oh fun!
DS has headed back,so it is very quiet again here.
Thanks everyone for keeping me company.0 -
Alyson..please take it easy and get well...
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Alyson, take it easy for several weeks due to the pneumonia. If you push yourself too soon, you take longer to completely recover from it.
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Nancy, I'm still doing the hydro therapy and go on Wednesdays.......your Tuesday.......so tomorrow is the day. I do feel so good after I see the massage therapist......she just seems to know where I need the work......lol.
Oh Lisa! Those tulips are just divine!!!! The color is so perfect I have no words......they took my breath away.
Yes Aly, I agree with Kath, make sure you take it easy for a few weeks not just a few days.........I know you, you will be champing at the bit to get going and get things done but please don't, for your recoveries sake.
Oh I did some browsing in a fabric store as I was early for my massage........I just can't help myself......lol. I found an exquisite book of wedding embroidery and now I just want to some of it. I must get the wedding dress train done first and if I have time, I will be able to do some of what I found.........nothing like having project upon project to keep ones hands busy!........lol.
Hope you are all doing well and those who aren't, I'm hoping you feel better soon.
Love n hugs. Chrissy0 -
Chrissy are you familiar with Beverly Sheldrake (sp) SHE DOES AMAZING EMBROIDERY AND i THINK SHE IS FROM EITHER nz ir AU . I met her at some Martha Pullen Heirloom Embroidery School. Her work is wonderful.
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