INSOMNIACS place to talk in the wee hours
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hi Tally, welcome here. This thread gets a little crazy and I think we missed you when you posted earlier. Hangin there! We've all been through it and will help where we can. Did you call to find out why it's taking so long?
Great news to you guys with good results. Yeah. Glad patty is feeling a little better. No new pics of Evie, I need to bug my granddaughter!
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I'm going to call my dr that ordered it . Will let you know what they say. Calling now
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she didn't answer so I left a voice mail.
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.Shep positive vibes for good results , enjoy the road trip with your son. Open the car windows and sing Born to be Wild at the top of your lungs.
Hoping you get to do some bebopping.
Loverly we had a bit of a setback with Reno countertops are going to take a bit longer, will be a couple of weeks longer. I bought a mini greenhouse from Lowe's yesterday, very inexpensive. I started some seeds 10 days agoand some are coming up, always a good sign . Enjoy planting your succulents.
Patty glad you are feeling better.
Junie are you still dancing ?
Tally hope you get your results soon , waiting is very stressful. I knew before I got my results that it was going to be bad news, so no big surprise for me.
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Brandy, call the place where you had your mammo & ask for the report. They give you a birad score. Not sure if it will help but can't hurt.
Susan, loved all the photos of Claire's shower. What an exciting time for you all. Did you make the scrubs? Your home & all the decorations & food looked lovely.
Hello to all.....
Patty, happy to see you, don't overdo it....
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lover, yes chemo today...you keep better track of me than my family...lol. Off to sleepy time for a few days
Patty p, happy to see you posting. Hope you are getting your energy back.
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holeinone, how are your treatments going
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Holeinone ditto question, Phyliss asked after you..........She's getting worked up for a lump
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I posted this last week one bowl 11 wide by 7in high, other bowl 5 3/4 in by 6 3/4, total $12
Thought it would be easy. Trapped bubble or controlled bubble isn't common. Found this today for $125, Kosta Boda Bubble Bowl - Vicke Lindstrand. This is actually clear glass. Kosta Boda is very much modern art glass. The bowls aren't the same. Mine are just slightly conical. or maybe it's lighting. But encouraged I'm getting closer.
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Sas - Ok, I don't remember why you wanted me to check out the Toradol (Ketorolac) info., but I've had it before and it does zero for me. Also, I wanted to make a clarification about a post I made a ways back in regards to I.V. Fentanyl, that you said was highly unusual. I may have misspoken, it was a PCA (patient controlled analgesia) with Fentanyl that I was connected to. Is that different?
Thank you for the directions to contact my insurance company, I will do it today. Until you mentioned it, I had forgotten that they do have a service like that.
Loverly - When we are in the midst of shopping for things we really enjoy it is so easy to get sidetracked. Despite having forgotten part of what you went for, sounds like you had fun buying your plants.
Susan - I hope your treatment goes well today and the SE's aren't too bad.
Lookforward - In my mind Yes! My actual dancing days are past with both fake hips and spine tumor. Ribs usually yell at me if I move around too much. But I can dream.
Tallygurl - Waiting is so hard! Does your Doctor or the facility you had your tests at have "MyChart"? or can you request a copy of the report for yourself directly from the facility that did the testing?
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o.k. Sas, I called the insurance company and spoke with their nurse hotline. It didn't give me a lot of confidence. The young woman I spoke with didn't have the answers I needed, but said she'd send my request to her team member and they would snail mail me the info. Information regarding transportation and shopping services available in my area post SNF. She also told me I'd need a script from my Ortho for a home health nurse if I needed one. Beyond that she seemed clueless.
There is a state program here in Oregon called NW Seniors & Disabilities. I'll check with them next.
Also left message with nurse navigator at hospital where I'll be having surgery. She is associated with the Amer. Cancer Soc.
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Sensi, this is the link to color genomics
https://community.breastcancer.org/forum/71/topics/830635?page=6#idx_155
Junie the post from yesterday on the previous page. For Toradol/ketorolac to do it's magic of reducing inflammation and inhibit awakening of dormant cancer cells, it should be used with initial breast surgery. But has a place in subsequent surgeries. Now all the studies are retrospective. Prospective studies are going on now. That's why there is so much info included in the thread linked from this this thread linked . The idea is to give folks enough info to be able to talk with their docs.
https://community.breastcancer.org/forum/73/topics/843381?page=1#post_4691613
A great starting point is this presentation by Dr. Vikas Sukhatme who is academic dean at Beth Israel Deaconess Medical Center at Harvard. Published on Jan 21, 2016. Presented by Dr. Vikas P. Sukhatme on December 8, 2015 at MIT in Cambridge, MA.
"A Simple, One-Time, Inexpensive and Non-Toxic Intervention to Improve Cancer Survival"
https://www.youtube.com/watch?v=H8zVrYEW8vE&feature=youtu.be
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Junie, on the PCA fentanyl checked net
It can be used by PCA button only not on continuous. Ah-hah didn't know that. You did say you couldn't use Dilaudid or Morphine. Probably why they went to Fentanyl. I checked with my old hospital and they don't use it by PCA.Years ago (7+) Demerol/ merperidine fell totally out of favor for IM or IV or PCA because it's metabolites made folks totally fruit loops crazy after >24 hours. Only took a few decades to connect the dots.
Junie, I shouldn't have put too much in the post. I've tried now to make it clearer. Hope it works better
On the insurance companies providing Nurse Case Manager and working through getting SW's and other stuff. The insurance companies learned over the years it saves money. In the early times the nurse just did a paper review(25-30years ago). They're was no direct patient contact.
Over time it was learned that allowing direct patient contact with these case managers improved care. Win win for everyone. Junie, that was just a phone person.. She actually had a couple of answers. Amazing. When a definitive person gets back to you, ask for "assignment of a nurse case manager that will talk with you and that you have direct access to for the remainder of your coverage by that insurance". If they say they don't do that, consider a new insurance when the time is right. It's been the accepted "Best Practice" for around 15 years.
Can't tell you what it meant to me and DH. I knew the system was available and got it working for us. Our nurse was able to trouble shoot so much stuff. Basically, keeping the docs and insurance on the same wavelength without interruption. Saved money for us.
Now either the newly assigned case manager can work through the SW order by contacting your doc or you can call the doc's office direct. If you make the call ask that the a message be given to the doc requesting for a SW to be ordered to come to the house for "Evaluation for resources and services". (this has nothing to do with Homehealth)
Tell doc at pre-op visit that you want homehealth after your discharged from the SNF. He may say that they will take care of that at the SNF. Not an unusual response. Then when you get admitted to the SNF--Tell them you want Homehealth to be set up for after discharge. Three days at least before discharge from SNF, ask if the the Homehealth has been set up. If it hasn't been done with all of these requests, It gives them 3 days to git'er done. Ask then each of the remaining days if it's set up.
One more thing may occur that may make you wonder how it happened. You may get a call from a person that says they have been requested to do a safety survey of the house b/c of the surgery scheduled. This has been usual for about 15 years. Who orders it is not consistent. Just ask for ordering person name. Check back with ordering person/company and get ID at entry.
The function of this safety review is to check for grab bars, floor covering problems, Shower safety. It's a cover every bodies ass review. Your mobility is going to be affected. If you are discharged home and are injured, Medicare/Insurance can deny coverage b/c the situation at home was not safe. You will never see this person again. It's their only function.
Now when you get home the first person in HAS to be a nurse if Medicare is involved. Not so with private insurance. PT(OT) can be the first in. Either does an assessment and writes the orders for the doc. THE one thing that Medicare and insurance has been trying to skimp on in the last decade or so is the nursing assistant. This has occurred b/c it was abused in the past. But safety showering and personal care are very important. If you feel that your safety in the shower is better served by having an aide. Don't accept a no.
Medicare will pay for 6 hours a week for personal care, bed change , and light meal prep. Private insurance may allow for grocery shopping. The key is that those hours are absolute for your care. Not traveling. A company may schedule it for 1 1/2 hours three x's a week or 5 day visits at 50 minutes. But that time is in your house working with you.
Jumie, it's a game. Some may object that I say that. You are the GameKeeper. In order to make sure all that can be done to make sure you are cared for, needs someone to watch it. If you as the patient are able, then it's good for you to do it. If not then a caretaker should step in.
Hope I did better this time.
Adding: I had a patient that had a sign in book for anyone coming in providing a service. I thought it odd until she explained that a particular company charged Medicare and services weren't rendered. She was billed when the service was denied. I thought it a good rule. It was date, signature, and reason for visit.
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Susan, I don't know why I have selective memory. Things I need to remember, I forget. Talk about forgetting....I forgot to tell you how lovely you and your husband looked in that picture of you two together. You both still look good.
JunieB, I also forget to tell you I am so glad you will be going to SNF to recover after the hip surgery. I was also worry how you were going to manage post-op since you live alone. I know you have friends from church who will most likely help you, but at night you also will need help. So sorry your mother is a narcissist. We can choose our friends, but can't choose family, can we? When I gave birth to my girls, my biggest fear was ruining them because I had (still have) my own baggage and plus my love would not be perfect.
ShepK, hope the long drive doesn't wipe you out too much. Hope they are able to figure out a plan.Did you find any bargain? I have been wanting to ask you this riddle: how is it that in 7 years both you and your baby will be 28?
Welcome Tallygurl!! Sorry the anxiety is keeping you up at night. Hang in there. Try to keep busy while waiting. That and exercise really helped me.
Sensi, when is your surgery, again? May 6th? I'm off that Friday. How can I help?
Forward, another couple of weeks? Oh boy! How is your stress level? How is your pup doing? I had fun with the succulents. I can see myself getting in trouble collecting these plants. Amazing the many varieties out there.
Hiho, hope your trip to California was good memory for your family. Also hope those suckers in your liver shrink to nonexistent.
Here are the pictures I think you requested 2 or 3 weeks ago, Ms. Sas.
Cyclamen
The succulents
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Oh Loverly. Feng Shui. So BEAUTIFUL!. Please, post the checker game on Blondie's page. She has a real thing about Ladybugs. She has hand and ankle tattoos, with a story about each one. When I met her and asked about them. She told me the story about each one. I knew I should remember each one, which of course made me forget it immediately. Sucks. But Blondie totally loves ladybugs.
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Loverly, your patio is peaceful & happy looking. I am anxious to get some things planted.
To all, Thanks for the concern. I had my 2nd Taxatere 8 days ago. All my liver enzymes & tumor marker have dropped. So, Good News on that front. My liver is still pushing on my stomach & bladder, they are both somewhat compressed. Supposedly when liver mets are dying off, it's painful. I am agreeing with that.
I got 2 weeks until next infusion, time to get energized. My sister, brother & maybe cousin are coming in 8 days. They will be here a long weekend, and staying at a hotel. I thought that was silly to begin with, but my DD will also be here. It will be best. Not as tiring. This Taxatere is the fatigue/sleep chemo.
Goodnight all.........
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Sas - Thank you for the explanation of the steps I need to take for my return to the real world after SNF. Sorry but I have to ask, what does SW stand for? I really like the idea of a sign in book for service providers.
Also, the ACS nurse navigator told me about an extra discount that is available to patients who have to travel to a doctors appt. through Amtrak (a 25% discount), plus there are volunteer drivers to pick a patient up at the station and take them to their doctors appt. and back to the station, with no charge for the patient. They also have funding for overnight lodging, but I wouldn't need that for post-op appts. The hospital and the ACS paid for my hotel back in 2014 while I underwent radiation treatment. What a blessing that was, plus people from church gave me money to pay for meals also.
Loverly - Your patio is so inviting and serene looking. I didn't know there were so many varieties of succulents. I don't think they'd do well here in Oregon, because we have so much rain and many overcast days. I too love the froggies and lady bugs, and I'd guess that the sound of the water in the waterfall is very relaxing as well.
I am glad I am going to a SNF too. Last time this hip was done I had no idea that was available to me, but when it was presented by my doctor I was relieved because I could just concentrate on healing and not get myself into trouble by trying to do too much. Knowing me I'd probably try to go grocery shopping by myself and end up in a world of hurt. I'm just determined that way, some might call it stubborn. As it was last time I had a great roomie whose husband came daily and took her for walks in her wheelchair and once I walked with them and paid dearly for it. I hope I am that fortunate in roommates this time.
Holeinone - So glad your treatments are making good progress. Hope you have an enjoyable time with your family/friends.
Shepkitty - How'd it go today?
Susan - Hope you're doing well after your treatment today.
Well, off to bed now that my pain meds are kicking in. Goodnight & sleep tight to all!
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glad to here from you holeinone. Sleep up and rest for your company
. HugsLovely, beautiful...I'm jealous
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HI1, glad that Tax is doing it's magic, sorry it's laying you low. The visit sounds great. How was the trip with the family? I'm listening to the radio as I write. Herman Cain just said he had Stage 4 colon cancer with liver mets 10 years ago.
Junie, SW was the abbreviation for Social Worker. I used both in the first post. Didn't carry it through to the second post. SW's perform different roles in different settings. The common thread to their work is that they are familiar with resources and services that are available to patients. The SW that will come to your home, will review these with you. It can be done in any setting, but when they come into your home you may end up with many more services because they are in your surroundings and can better assess your needs.
If you don't get them to come in before surgery. It can be done when you come home with Home Health(HH). All HH agencies have SW's on staff.
The reason I'm suggesting trying to get it done now is, it can take a 1-3 weeks to get all the services up and running. Doing it now will have things running smoothly for after surgery.
I forgot to ask your age or if you are disabled. Another source can be the county or city department on aging. They function quite differently, but can be a major source for services. A couple years ago I made the same suggestion to a friend. She was enrolled but had to be put on a waiting list. Once they got her onto the active list she was qualified to receive Meals on Wheels five days a week, cleaning person twice a week that also could be used for grocery shopping, a cell phone with alert necklace.
Someone suggested American Cancer Society. The SW will have bunches of organizations that provide stuff. With these types of resourses you will have to call and ask for stuff, but just having the list of the organizations and phone numbers all in one area is important. The organizations don't provide the same things, SW can help target which organization best meet your needs.
I'll do another post that is about money.
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Found this odd piece for two bucks at the SPCA thrift. Can't believe I found it already. It's dome for a candy dish. Not useful for anything without the bottom. But it's pretty. "The Byrdes Collection by Hofbauer" I went back yesterday to rescue a couple of pieces that I'd been watching. One was gone finally. The other one was Century by Fostoria. Snagged it.
Couldn't resist. Found it too. Paul Sebastian
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Sas - I am 56, and have been on disability since my primary bone cancer in 2000. I used to do Home Health work myself in Las Vegas for the County Social Services Office. But it has been so long, I don't remember a lot of the ins & outs of the game as you said. Thanks again for the info. Appreciate all of it. I am working on it. As you said, now is the time to get it done, so things run smoothly after surgery.
Even though the candy dish lid is unusable for its initial purpose, it truly is beautiful. I love the bird pattern on it. You obviously love the hunt for new glass pieces.
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Oh Junie I agree:). I was reading the history of Hofbauer. They were in Bavaria, Germany. They went out of business in 1991. They were absorbed by Nachtmann. Natchmann didn't have that many patterns on Replacements.com so I decided just to scroll them. Low and behold I find a pattern that I gave up on years ago. Anglia. Which when I tried to find something else on it, I came across another pattern that I gave up on. Stratton by Fostoria for Avon.. I had never followed Avon stuff, but ran across a piece a few weeks ago. It was a butter dome that was put together with a piece of Miss American by Anchor Hocking The Stratton avon Fostoria is a dead ringer for the hobnail.
Stratton
Miss America............the inner ring is different
It was a nice day. Hope everyone had a good day.
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Sas - Whoa! Those are beautiful.
Also, I just passed a young man at the bus station today, and he had a T-shirt that said "This is not the life I ordered" I thought it was priceless. I want one!
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Sas - Whoa! Those are beautiful.
Also, I just passed a young man at the bus stop and he had a T-shirt that said "This is not the life I ordered" I thought it was priceless. I want one!
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Hey Y'all,
Yesterday's visit did nothing but reinforce my total distrust and disdain for all in the neurological field. In all my multiple experiences, I have only encountered 2 that weren't totally bat-poop crazy. Ugh. Dicktor can't do anything for me and can't make any recommendations except for Lyrica and PT. I can't take Neurontin, ask isn't Lyrica considered the same thing? The guy tells me he doesn't know, he doesn't even know how Lyrica works, no one knows how it works, but it helps for some people with fibro and nerve pain. Maybe the numbness too. Asked him if PT would help strengthen my muscles to properly support my spine and help push my herniated and bulging discs into place and ease some of the nerve compression. Dicktor says; Oh no! No one's discs are ever helped by PT, that won't affect the discs at all and your will still have the compression. He came out with some real doozies.... Those weren't even the best. We walked out of the exam room and DS looks at me and says "what the heck is wrong with that guy?"
Will share later what the guy said about MRI's and the tool in my back..........crazy stuff.
My bones and brain are racked....thhhhp.
Did have a lovely time with DS. Had a nice lunch, visited one of our fave thrift stores and had a great time visiting on the ride there and back.
I celebrate my birthday every year but stopped adding years after I was 28. I've been 28 for 22 years now. That is how DS and I will be the same age in 7 years
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sorry appt didn't go well.
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chit
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Shep sorry to hear about your appointment
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Shep - So sorry your appt. went so badly. And yes, Lyrica is the same as Neurontin. Approx. when did this neurosurgeon graduate medical school? And what planet is he from?
At least you had a great time with your DS!
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Evie at 3 mos. soon, Susan will be posting pics too!
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