INSOMNIACS place to talk in the wee hours
Comments
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Sheppie - You're so funny!
Susan - Looks like you and Claire had a great time.
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Patty ~ Hope you're feeling better and are home soon
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Thank you for the warm welcome everyone! I love the friendship and vibe you have going.
Loveroflife, funny comment on my name, and accurate! I am part wild and part reserved.
Shepkitty, I really hate the gutter cleaning, but had to be done. No one else is going to do it!
I hope everyone dealing with illness/injury feel better and heal soon. Thinking of you all.
I've been productive on and off today...cleaned out a closet and paperwork is next. I'm taking advantage of a rare day without plans and my children with their dad. They will be starting high school the 29th (10th grade) and I'll be starting back to work, so life will get crazy busy again before I know it. I'm a substitute lunch lady, so I'm fortunate to have the same schedule as my kids.
Take care all!
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ShepK, I know that JunieB is responsible and intelligent. Maybe, it's my fear of something that is not good get overlooked by the docs....I don't know. We were trained to recognize possible serious sign and symptoms and refer a patient to his/her doctor. Also, I have heard over the years stories from patients (or their family members) who were misdiagnose that resulted in serious consequences. I didn't want that to happen to our Junie. I would like her to be around for a long time. She still has many men's butt to grab and male restroom to walk in. I need to learn to be not overbearing.
Susan, that looks like fun. You are a true Iron Lady! I can't even run half a block without getting winded let alone 5K. These are photos of my younger sisters at the Boston 5K Color Run:
Forward, please don't do a JunieB thing and hug the ground. We want all of our sisters in one piece. Glad to hear you are home. Do you have iron boobs now or you are done with recon?
I am glad we didn't scare Gracie away.
Thank you, ShepK!! No rush.
Ms. Sas, are you talking about the Gentle Leader leash? It doesn't always work with Mitzy, especially when she is scared. She still pulls with it when she panics.
WildT, is the fill tomorrow your first fill
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No, loveroflife, tomorrow is the 4th TE fill. After the 3rd last week I am at 300/200 (LD flap), and they feel like rocks now. I'm small, so my total will be only 400-500. I've had a lot of neck/shoulder/back pain with the fill process, but last week began seeing a chiropractor and that has helped me SO much. I'll be seeing the chiro again tomorrow too. Speaking of which, I suppose I should do my stretches!
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babysitting my nephew joey0 -
Hahahah Semsilove nephew Joey. Love dog smiles. Nothing like their joy. You look good chickie.
Loverly, I think that may be the thing. Of course ad's always make something look good. Do try to find whatever avoid the neck pull. Lost one dear dog JB(Jimmy Buffit). To a paralysis of the nerve to the larynx. Long story. from that learned pullers on the leash can ultimately kill them. It's avoidable, but it's work. Shat's is a puller, but she's rarely on a leash.. When we run them off leash, they are so responsive to commands it is so amazing. Put them on leash they are stupid. Go figure. I do have to try and do a "run video" A cop car pulled up to us the other day and I said something stupid like the dogs are pooping. Officer didn't even give a warning. It's on the way to the Sherrif's ranch. We've seen lot's of cops over the years. Varies how they respond. Messes me up each time. But when they see we have control of the dogs they are really nice.
Made the most amazing stew tonight. Based on "Olive Gardens chicken gnocchi soup". There's this recipe site called copykat.com. Did a bunch of variations off the recipe , but it was devine. Combined elements from multiple recipes and did it with mussels and clams.
How I have gotten through life without ever tasting a gnoochi no clue, but i'm hooked. Way better than a pasta.
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Tulip welcome here, we range from well balanced to nuts. Should make it easy to find your place on the spectrum.
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Susan your granddaughter is beautiful. The race looks like you had a great time, also nice to do something with your daughter.
Sensi your nephew looks very happy, nice picture.
Loverly your sisters look like they are standing in Snow.
Sass gnocchi is one of my favourites, I buy a very good brand from Costco.
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Umm....and who are the nuts?
Awww your nephew is a cutie, Sensi. Love that smile on his face.
Forward, those are bubbles/suds.
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LOL Loverly. Me!
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Hi again everyone
Have had a so-so day. Lots of pain today, took some Lortab but man I do not like the way it makes me feel. Tonight I just took two tylenol and am already starting to regret not taking something stronger. Tomorrow will be better I think, I seem to be on a good day then a bad day schedule Sensitivehrt, what an adorable dog
I used to love gnocchi, I can't eat it anymore, I'm also celiac. So no gluten. I miss things like gnocchi
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Hi Gracie sorry about the pain, Try a NSAID 12 hr thingy.
I saw something on line while trying to combine recipes about gluten. Hmmmmmmmmmm it was substitutuing cornstarch for flour, but didn't matter I skipped tha/ Himm just warmed a bowl. This stuff may not make it for a next night dinner,
What else is up?
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Okay, by my self...........In the old days I would just type.
Made theis great soup tonight. Donnie helped.
Basic recipe was Olive Gradens "chicken and Gnocchi. You can find the recipe on the web. copycat.com funsite.
I combined about several elements from recipes that sound good.
One time made the bestest vegetarian recipe for lasagna(sic) that way. Thought no big deal , I'll remember. wrong. It was one of a kind. My friend that had become newly vegetarian and I have laughed about it for many years.
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Hi says! I stay away from NSAIDs as much as possible because they can cause my colitis to flare up. So Tylenol it is and it's not doing a great job but at least it took the edge off. Soup sounds wonderful.
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I did go back and read you talking to yourself 😊 I may have to do that too !!
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darn auto correct was supposed to be "sas"
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Loverly - you are NOT overbearing!
This may be TMI (I hope not though). Tonight I was checking my chest to see if a bruise is showing up. Nothing on top of my one remaining breast, but underneath, there is the definite coloring of bruising. Yowsers! At least I don't do things half-a_ _ _d. You might as well go for it, right? :0)
Eyelids are drooping, so time to hit the pillows. Catch you girls tomorrow.
Have a good Monday!
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OH Gracie, How funny. I tried to go find some funny in the night banterings. Kept filliping back to pages I wanted to pass. But it's good. You got the idea. Just come any old time. You will be just talking to all of us. Anywhooses, it all works. The talking. It all works.
Oh one night so many years ago a gal and I were talking into the wee wee hours of the morning. Really both decided we were ready bto sleep. Then this gal comes on an she's in trouble. Chit, by that time my head was almost bobbing. AND she spoke Spanish. We got through that, but it wasn't easy. I then PM'd the mods that we needed a Spanish program. They did it. Never knew how she did. But her coming here made a difference.
Never worry Gracie, we got yah
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Gracie, what all were trying to talk about with all the threads. It breaks down to social threads and technical threads. A technical thread is something like a drug, condition, type, surgery. It is important to seek their advice on technical thingy's. I'm a nurse of 40 years-----no clue about chemo drugs. Many here have a clue b/c they have taken many.
Then there is the social thread (I'm quite social at the moment ----into the chardonnay)
Social is a bit more complex. It's social, but technical stuff comes up b/c of a members need.. Each member brings a different BC experience to a social thread. But not all social threads manage that the same way. I think I can express the fact that with this group, someone comes with a need, we all jump in and help. Yup, we are helper jumpers, we just jump and help. Hahaahah-----------hmm more wine.................We also, just accept each other as we are.. No judgements any way upside, down side, inside, outside. Did I cover Dr. Zeus?
Guessing I should talk stage 4 threads. They are separate. I'm a rare one that ventures into stage 4's b/c of nursing knowledge. They want their separateness unless otherwise indicated.
Oddly Chrissby came this week, Haven't seen her in ever so long she created a thread years ago that was a beautiful thread that encouraged folks that had concerns about stage 4 that they could ask their questions.
Chrissy should be responding shortly and hopefully link the thread.
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So just talking away, getting into history now. When I started this thread as a night owl so desparatly wanting sleep. The side affect is I meet the Southlanders. The Australians, Aucklanders b/c it was their day time. Chrissy formed a very successful thread that then I didn't get to see her much. Thatslife dropped out she was from Australia and Alyson was from Auckland. I still see Allyson on fb. She's tried a couple times to come here, but I think it was overwhelming.
Chrissy miss you. It was so much fun when you did the American tour. Please, post a link to the pics.
Chrissy and I stole into the Fountainbleau in Miamii. It was so much fun. Ate a hot dog in a nondescript place, then got a desert----------seems chocolate was involved. Before getting to Miamii we followed a sign that said something like "One of the ten best beaches in the world". We changed our clothes out in public behind the open doors of the car. Hahahahaha.
I drove to Lauderdale to meet her an Twojays, and ______from Austin. It ways very unnervinging b/c once you get below Stuart Florida it's concrete everywhere and highways. I'm effectively in the netherland. How there can be a netherland in florida---dunno. We haven't thankfully be discovered.
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See. Gracie, you can just talk and talk and have good memories and work out bad memories. work out problems, no one has to be here. But when some one comes they'll acknowledge that you were her LOVE& HUGS&PRAYER's ( L&H&P's)
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Hey SassyFrass! "Helper Jumpers" I like that
Gracie ~ Is your pain from the bone mets? With the bone mets, our pain is in the actual bone with the surrounding nerves becoming irritated. Inflammation is a big problem - even worse if you can't take NSAIDS. I need to avoid them too. There are supplements that help with inflammation without killing your insides. I take Celadrin, Bromelain, Vitamin D3 and mega doses of Vitamin C. JunieB swears by Turmeric (I need to try that!) Opiates/Narcotics have no effect on my pain and only make me very nauseous. I live on Fioricet and Tramadol; they help somewhat and don't make me "wonky" or muck up my guts. If you can take it, Neurontin is supposed to be good for nerve pain. Cymbalta helps nerve and bone pain too. Ask your MO what other options there are for you. Hate pain
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Sassy ~ Growing up, the beach we went to did not have any public changing rooms or restrooms. We all used to change in and out of our swim suits between the car doors, taking turns holding up our towels or beach blanket to make "curtains". How funny you did that too!
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See Gracie seeeeee,some one comes along. I forgot to say many find a "home" social thread. This is mine. Then they have their technical threads where they get info directly related to their BC problems. Then for those of us that have been here awhile we go off to "work" on other threads. To watch for newbies or such. "For me I call them my "housekeeping threads.
Now gotta go been up all night.
Shep bless you OMD
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Gracie, my sanity is kept here. I actually work on the the other threads, but if I didn't have the folks here, well it wouldn't be worth describing
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Hey Sas, hi girls!
Sas, my girls are going great guns and so are all my grands. The one bit of news on them is my eldest grand is trans gender and I now have a grand daughter.....yipee! Always wanted one but had given up.....lol. We are very happy and accepting of her and help any way we can as she is still going through her psych appointments and is out of work so grandparents are, at the moment, footing the bill but that's okay.
My youngest grand graduates from High School this year and has already secured himself a job working holidays and weekends and once school is done he will begin an apprenticeship........he is soooo excited and his new boss is really happy with him. The other two are working multiple jobs but are happy in their endeavours.
I've now had both knees done so the walking is so much better..........best of all, no clots with the second one although I am now allergic to Clexane....yep, another to add to the growing list. Thank goodness there is now Pradaxa and Xaralto both of which are anticoagulants that don't need monitoring and it's a cap in the morning and at night. I also had a radical hysterectomy two weeks ago as I was growing another fibroid and because I have been on an AI for so long my risk factor for cancers in that area had gone way up so the docs and I decided it was the best way to go.....even at my age.....lol. The bones are still good and I'm still NED, five and a half years now so needless to say my docs are all very happy with me and so am I.
DH and I went to France this time last year and spent a week in Paris and five weeks driving around the Dordogne and The Lot..........fantastic amount of pre history and medieval history there and I took so many photos I am still going through them a year later.
I opened a small Antique and craft store last week........I'm only open four days a week that way I still have time for doc appointments, shopping and catch ups with my sisters and friends as well as the dreaded house work......lol. All the craft things I am selling are things I have made myself as well as blank cards with my photography on them. I'm hoping it does well.......keeping my fingers crossed.
Sas for you, my thoughts are telling me that you should take it a little easier than you are and stop stressing over something........don't know what it is but it's playing on your mind. Leave it alone and it will sort itself out.
Oh, I meant to tell you, that when I had the clot I was genetically tested as my eldest DD is Factor V Leiden and as it turns out, she got it from me. For those who don't know, it just means that I'm 5 times more likely to throw a clot than the normal person so have to take precautions when flying or travelling long distances with out being able to move around.
https://community.breastcancer.org/forum/34/topics... This is the thread that I started on my 'Journey" AKA my trip to the USA and there are loads of picks and a narrative of my travel.
https://community.breastcancer.org/forum/8/topics/... This is the address for the Not stage IV but have questions thread.
Yes, I can still phone overseas with no problem but not if I still have your number Sas, can you PM it to me again? You never know your luck my dear, you may just get a surprise phone call from me......lol.
This thread moves so fast it's hard for me to keep up but I will pop in a little more regularly so I can get to know all the new regulars. Have a good Monday all!
Love n hugs. Chrissy
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Sas, you crack me up!
It's nice to have found this thread, as I'm fairly isolated from people who want to have real conversations, but can also joke and kick my ass, if need be. Almost all of my friends are married and no man in my life. I've been spending some of my free time this summer trying to organize my house (much needed). It feels good, but at the same time can be lonely. My children both have special needs, and many people do not understand my life. Last year I began seeing a therapist, and she gets me better then friends who have known me for decades. Anyway, I'm rambling...just happy to have found you ladies, be it middle of day or night.
Better hit the shower...TE fill in an hour!
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https://www.youtube.com/watch?v=LwGvfdtI2c0&list=PL6F92208D787B7B61