INSOMNIACS place to talk in the wee hours

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  • queenmomcat
    queenmomcat Member Posts: 2,020

    KathinDC: my deepest sympathies. If that were my reason for being absent from the boards...I would still be absent from the boards. [Husband] and I send you half of our love for one another.

  • kathindc
    kathindc Member Posts: 1,667

    Ladies, thank you for your prayers and condolences. It's helping me immensely with the healing process of loss.

    Susan, I was thinking of the DNR bracelet or necklace and adding my medicine allergy and two of my health issues that I'm most concerned about in case I'm incapacitated. Still leaning toward the tattoo as a back up. May I ask where you got your bracelet.

  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    Jazzi----so sorry I didn't respond, I was here for my B-day and haven't been back. YES , I have missed you , very much, Immensely much. You have such a great kindness towards others and great visual artistry. I hope you decide to stay here again..
    I have taken multiple breaks b/c BCO is not a healthy place for me to be. Sounds weird. But it's not. I smoke too much and I drink too much wine when I'm here. I, also, don't do the political thing either for the same reason. 

    BUT JAZZI, I'm so happy you are back. Hope you stay here forever.  Please, also, bring your photo artistry here. The "EYE" of the artist with any medium is a gift. You have a such a great gift :)

  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    Kathy, So sorry about Dear Husband, I sent a PM. It sucks to lose any one, but spouses and kids...……..
    The Victorian year of grieving, is not talked of now, but it really does have value for understanding grief. I sent a pm. . Girl so sorry. So sorry. No matter how much our spouses make us crazy. If we lived with them for decades. They're loss is heartbreaking.

  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    SUSAN WHOOohoooooooooooooooooooooo OMD OMD OMD  Okay let it fly OMD OMD OMD you are here Let the tears flow. I screwed up. Bless you for coming back. I will try not to screw up again

    Smarrty you are here too. Pictures too!!!! I'm tearing up. OMD she is beautiful

    Okay update Dear son Stephen and Jamie are prego. Got married 01/11/17.. Prego one month after going off the pill. Due date Jan 29th 2019


  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    Perhaps...…………….

  • jazzygirl
    jazzygirl Member Posts: 11,974

    Sassy- just not here as much but will stay and pop in as I can. Going on a trip shortly to my high school reunion so I will be gone a few weeks but back in September.

    Enjoy the rest of August folks!

  • susan3
    susan3 Member Posts: 2,631

    Kathincdc, the place is Lauren's hope. Not cheap.....but many designs. This is mineimage

    The underside is the ID ta

  • susan3
    susan3 Member Posts: 2,631

    hi all. Hope everyone is having a great day. I had lazy lazy lazy day.

    Daughter is due with her second child next month......yeah

  • junieb
    junieb Member Posts: 945

    Hello everyone,

    The MRI went well on Wednesday. On Thursday I went to the Neurology Dept. (without an appt.) and asked if I could get an appt to speak to the neurologist. They asked me to wait in the lobby and approx. 30 min. later I was called in to see the neurologist. I waited another 20 min. and the neuro came and showed me my MRI results. My tumor can be seen in the center of my T11, plus I have spondylosis in my Lumbar spine (it's a mess, but no cancer in the lumbar spine).

    The neuro and I had an in depth conversation about cryo-ablation of the bone & vertebroplasty, then he made several phone calls right there in front of me. The one doctor here who does this procedure is out of the clinic until the 23rd, but his nurse called him and he agreed to do it. So I'll be here another week. I have 3 appts. on Monday, 1 on Tuesday, none on Wednesday (so far), procedure on Thursday, plus I'll probably spend the night in the hospital since this procedure is done under general anesthesia.

    Discharged on Friday, PICC line removed, then I'll return to the hotel and rest for the rest of the day & Saturday. Then on Sunday I will fly home to Oregon.

    I have been incredibly fortunate to get all of this accomplished in 2 weeks. The Amer. Cancer Soc. was able to help me with 8 days of my hotel stay, but today they let me know they are unable to help with the last 5 days. So I will have to pay for those days. Even so, I am thankful to have this opportunity.

    Yesterday I made several phone calls back home to see if there is any doctor who performs cryoablation of a bone w/ vertebroplasty, but I couldn't find one. There are doctors that do Interventional Radiology back home, but none that are Neuro-Interventional Radiologists like the doctor here at Mayo. So it is worth staying here to have it done here.

    It rained a bunch yesterday and was much cooler & pleasant here today.

    While Rochester is a very nice and clean city, the cost of living here is very high. One nurse told me that the amount of money here in Rochester is mind boggling and that is why it costs so much to live here.

    Okay, that's all for now and I will bid you all goodnight.

    JunieB

  • Loveroflife
    Loveroflife Member Posts: 4,243

    Susan and Ms. Smaarty!!!! So happy to see your posts . Evie and Elena are adorable! Next month already Susan? Wow! Time does fly. You had a lazzy lazzzzzy day? 👍

    Dear niece a year ago.

    image

    Most recent picture of her.

    image

    She is full of energy. A little monkey. I am glad her mom listened to me and put her in gymnastics.

    Junie, I am happy there is a plan to fix you...I mean your back. Hah! I misunderstood you the other day. Actually, I am glad you are not a candidate for the other surgery. Thanks for the updates here.

    Kath, oh dear Kath.....my deepest sympathy for the loss of DH. They said that the death of a spouse is the most stressful thing. Second is divorce. I think about you often too.

    Ms. Wren, i hope your DH is on his way to recovery.

    Shower is calling my name. Ta ta for now.

    A big HELLO to my other Sisters....

  • jazzygirl
    jazzygirl Member Posts: 11,974

    Junie- good to see you are getting excellent care and have a plan now too. Sending you much love for a good procedure with excellent outcomes.

    The pics of the little ones are so lovely!

    I am going out of town and will be off line for a few weeks but will check back in here by Labor Day weekend. Until then, wishing you all the best for the rest of August!

  • Loveroflife
    Loveroflife Member Posts: 4,243

    Jazzy, have a fun and safe trip. I am afraid to go to a high school reunion. I went to a concert a few months ago to see my favorite band (Depeche Mode). As I was waiting for the concert to begin, I was people watching and was thinking to myself these folks graduated high school around the same time I did? Oh my, that can't be. Where has the time gone?

  • meadow
    meadow Member Posts: 998

    Hi ladies, I have been off the boards awhile, but I have popped in here in the past, and I wanted to share my joy. I am celebrating 5 years cancer free, 5 years since diagnosis with Triple Negative Inflammatory Breast Cancer. I feel very blessed. Just wanted to share. My prayers and hugs to all who are in treatment, new diagnosis, experiencing loss.

    image

  • dsgirl
    dsgirl Member Posts: 193

    Congratulations Meadow, I know the feeling is just great.

    Dsgirl

  • Loveroflife
    Loveroflife Member Posts: 4,243

    Meadow!!!! So happy to see your sweet face. Even more happy with your milestones. Lovely picture. I get to do it in 12 months :) Finger crossed.

    Dsgirl- hej! Hvordan har du det ? Ok, that's all I know. Don't answer in Danish.


  • magdalene51
    magdalene51 Member Posts: 2,062

    Hey Owlettes! Just checking in. I am home on hospice after spending 11 days in the hospital with a saddle pulmonary embolism. 6 days in ICU, almost coded. (A saddle embolism is where both pulmonary arteries are blocked. My PCP said they are mostly found during autopsy.) I was kinda hoping to get a little strength back and get my ducks in a row, but instead I feel like I’m fading. My breathing remains difficult, even with 3L 24/7. My bones are in a lot of pain. Doc does not want to increase extended release pain meds for fear of respiratory distress, so I am having to take a lot of breakthrough meds. He doesn’t want me to be in pain.I don’t either. Hospice has provided some good supportive volunteers, the key is they don’t want me left alone at any time because of the risk of another embolism. They surmise that they were the result of a DVT breaking up in my right leg. My guess is the DVT is the result of the vasculitis in March.

    Gonna go before the text box crashes. Love to all

  • avibaby
    avibaby Member Posts: 5

    Wow! You look so happy in your picture! This is exactly what I want to do in 4 years 10 months - just stand up and shout the happiness. 

  • avibaby
    avibaby Member Posts: 5

    Wow! I love this picture because you are grinning from ear to ear. This is what I want to do in 4 years 10 months - just stand up and SHOUT the happiness.

  • avibaby
    avibaby Member Posts: 5

    I am saddened by what you are experiencing. 

    Keep talking to us every day, please.....

  • Dhanno
    Dhanno Member Posts: 33

    Hi Meadow You look so beautiful and ravishing in this pic . I hope we all also get past this traumatic period and one day share our happiness like you did .Have a super duper healthy life .

  • Loveroflife
    Loveroflife Member Posts: 4,243

    In my thoughts daily Ms. Mags. I am so sorry. I assumed that PE was ruled out at the beginning. I shouldn't as PE is not uncommon among stage 4 cancer patients. You know...... everytime I think about you I want to send a text to you but worry that I disturb you.

  • Loveroflife
    Loveroflife Member Posts: 4,243

    Welcome Avibaby and Dhanno.

  • micmel
    micmel Member Posts: 10,057

    thinking of you Magda. Everyday! 💙~M~

  • wren44
    wren44 Member Posts: 7,930

    Mags, I hope pain control is in your future soon. Hugs.

    Meadow, Great photo. That's showing em!

  • jaymeb
    jaymeb Member Posts: 241
    Hi Mags

    Good to hear from you. Been praying for you. Your attitude still remains positive.

    Junie

    Where are you? Would love to hear updates on how you’re doing?

    Kathindc

    Sorry to hear about your husband. My parents were married 46 years before my dad died from lung cancer. She said each day got better, however she still misses him. So do I. Hang in there, and saying a prayer for you.🙏

    I read the posts everyday, hope all you ladies are doing well.
  • m0mmyof3
    m0mmyof3 Member Posts: 9,751

    Enjoying the break from treatment. Saw my surgeon the other day for my 6 month check-up and she has reduced my visits to once a year unless something shows up on the scans or I find something

  • dsgirl
    dsgirl Member Posts: 193

    LoverofLife

    Hi, I am doing good, your Danish is excellent.

    Dsgirl

  • Loveroflife
    Loveroflife Member Posts: 4,243

    Nerdy

  • dsgirl
    dsgirl Member Posts: 193

    Loveroflife

    Whats even more amazing to me is that you remember I am a Dane, lol.

    Dsgirl