INSOMNIACS place to talk in the wee hours
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2nd.....never feel bad about venting....life is about living it with each other . Iron sharpens iron. We are here to help you by listening, and praying for you. Hang in there
Sas....yes it smells pretty strong .....lol need a nose plug for it
Hope everyone has a good Monday.
Foots...hey girlfriend.....sorry about your lymphodema .....can't even imagine it all over. Hope faith makes you smile...prayers and gentle hugs your way
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I'm currently worried about my ears ringning, extreme sensitivity to light, dizzy/nasuea at times. I've already self dx'd brain mets, which is completely ridiculous...or is it? I spoke to MO's nurse last week and she told me to stop the tamoxifin to see if things got better. I see MO on Thursday for a previously scheduled appointment. I'm worried too because in June when I had a scan on my head they did see "something" but ruled out mets at that time.Someone please tell me that I'm crazy and this isn't mets...that there is no way, no chance. Please! How do you go thru post cancer treatment w/o worrying?
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Tangarang, it is NOT brain mets. If we all got a brain MRI, they would see something on all of them. Our brains change, ( shrink ) as we age. Now I realize you are young, but still you have used that amazing organ for 40 years. It is aging, very slowly.
This post treatment time is difficult. You, in my opinion had a nightmare of chemo, infections...etc.....your bumps in the road were much more difficult than most. Now is the time to learn how in the hell to make peace with the past. 2 steps forward, 1 step back. I will be one year PFC at the end of Nov. I try hard not to think about the horror of my treatment, but as you know the pain & SE of the meds we take now are a constant reminder.
I do not think your crazy, but NO way is it mets...we need you here. Your beautiful DD needs a mom to grow up with.
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good morning ladies.
2nd. Vent all you need to. We really don't mind listening. That's what we are here for. Quit trying to compare your problems to everybody's else's problems. You have your hands full and running over. Your shoulders have got to be weighed down like a bunch of cement blocks. Def is not whining or piddly. Don't be sorry. I pray for you and your family at least daily. If that is offensive just please let me know. ( I'll still pray but not tell you about it ). We are here for you. Someone is almost awake and on here. Wish we could get you in the middle and give you a giant group bear hug. Guess we will just have to do a virtual hug for now.
Chevy / you are correct ( as always) about what stress can do to our bodies and brain. Sex is a great stress reliever. As is most exercise.
Susan / iron sharpens iron. Never heard that but I love it. Hope you are feeling good.
Tang - no idea what the symptoms of brain mets are but do know what kind of problems stress can create for you. I am not a dr so can't sag no chance but can say unlikely. You always make sense to me. So how long does it take for tamoxifen to get out of our bodies fully once you quit taking it ? There are def some. other treatment choices available if this one is giving you too hard of a time. I agree, scans and waiting SUCKS. Just wondering did you ever call the lady from church ? (It was you that told the story right?). Sometimes I get confused. If you haven't called yet let me encourage you to do so. Don't put it off another day. Just call and get it over with. Of course you can always count on us when you need some encouragement, a laugh, or a shoulder to cry on.
Hope everybody is off to a great start for Monday. Hugs for all who need or want them. I guess I need to start on my to do list if I plan on getting anything done today. Still in my pjs right now and it's 11:30. Very unusual for me. Funny hoe just getting a shower , getting dressed and doing my hair and makeup makes me feel better mentally. However physically it is exhausting.
Hootie hoo
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Just skimming through, time is NOT on my side these days! And I saw where Sas asked me a question because my name was highlighted, so please forgive me for not addressing other things!
Sas, I go to MO on Wednesday, will ask about it then, if don't like the answer, I will schedule with ENT! However, it seems to be getting less frequent, or maybe I'm just getting used to it! Also, I found out today that my dad has this, never has had any kind of sickness or anything, so maybe it's hereditary????
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To my sweet friends on IT: I so very appreciate all the kind words of friendship and support, you have touched my heart! Not knowing where to turn for support may have been at the center of my frustration and loneliness, but that's not a problem any longer. Yes, I would welcome and appreciate any and all prayers if you feel inclined for me, I would never be offended by any kindness displayed, prayers are so very much important. I am, however, not a public prayer person (as some of you know), mine are done in private between me and the God of my understanding. (hopefully this pity party for one has ended)
Just a quick stop and post as I have been preparing for another interview this afternoon.
Love and hugs and prayers to all who want or need them!
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Tang! So did it help by not taking Tamoxifen? I mean with the ringing in your ears? Did you try and find out if other women on Tamoxifen have that SE? I had to stop it, because of my hearing.... But that was almost 3 years ago.... Have you had a physical to see if it could be something else? Like your BP or also make sure that your coffee intake doesn't throw everything out of whack! I'm just saying that, because I had so many problems with stress, and then drinking too much coffee on top of that.
I got dizzy all the time, and almost passed out 5 times one day, while driving across the SFOBB one day, and then around San Francisco.... I COULDN'T because I had my Dad, who was totally soused, and my little 11 year old Grandson in the car. Actually, HE would have been a better driver at the time....in case I DID pass out.
All those tests, just to find out, the worries, and stress going on started all of that.
22222222222nd! We're ALWAYS here sweet one.... just come back and let's talk it over.... I wish I would have had someone when I had so much troubles going on with my family.... I DID find this church.... and it was beautiful..... But I could only sit there and cry..... You get to a point, where you think you can't take any more.....
I learned to relax, and just "listen".....
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I stopped the Tamox on WED, still having some ringing in my ears but head not hurting as bad so far. Just a dull ache now....not sure how long it takes for it to leave system.Patty, you are right i need to call her.
I'm putting one foot in front of the other ((hugs))
2nd ((hugs))
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Tang.... it sounds like it is something else.... especially with your head hurting? I don't know if Tamoxifen would cause that..... Maybe it is something that will just go away in a few days.... but I would get it checked anyway.
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Sorry i have been MIA lately ladies. I have been working mad overtime, had a family reunion, am getting ready to fly out to England on Saturday, and find myself with a sinus infection, bronchitis, and laryngitis after i got too many vaccinations at once. (stupid me!!) I've been looking in now and again, but can't seem to get caught up.
Maddy, we are all here for you.
Spookie- hope your arm feels better soon.
Sas, Chevy, Holein1, Sudan, PattyPepper, Mags, Teka, tang, Rose, Cami, Foots, Meow, Ace, EVERYONE! giant hugs and healing thoughts all around. I will try to post a link to photos of my travels here if anyone is interested.
Will be glad to get back and have a week or 2 before the holiday madness begins. Maybe i can get caught up when i get back.
LOVE YOU ALL!
jeni
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Jwoo be careful and have fun ! Yes to the pics of course.
2nd. Hugs
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OWLETTE GROUP HUG!!!!!!
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tang on kindle. Ears dizzy etc. You did the first best thing and that was to stop the tamox. You have an appt. Make a list of any changes in last several weeks. Do it in a timeline.
Just work the problem....doc first...tests....ativan...throw in a massage...do something with daughter........
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I did a lot of getting ready for fall too
It was colder today
Just wish easier fall and winter, no big winds
I hope You are doing well tonight
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Yes and I know that some people that are running are not
truthful
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Nope i dyed my hair purple, n love it
Maddie i am so sorry bout the issues with u r parents.
HUGS ALL AROUND
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We never know, but life is good, I hope that I can finish getting
my medical coverage, I found out today that the office says the cover
what Medicare doesn't cover. they have help, would that be wonderful.
(sleep machine needs)
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Foots that is awesome
Hi teka
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, I hope it will all work out, my old stuff is not working
right.
Hi blondie How are You doing with Your wonderful hair do?
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just wanted to post this- promising treatment if they can make it affordable and available for all
http://www.foxnews.com/health/2014/09/29/roche-breast-cancer-drug-unprecedented-in-extending-lives/
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Hi foots hru, awesome, love it,
Hey jen
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JWoo- that article is about perjeta (sp?) and it only works if you are Her2 + (positive) otherwise it doesn't. Bummer seems to do a good job. Great for the gals that are ER-PR- Her+ and won't help the triple negatives either. Have a wonderful trip in England!! Show pics when you return.
Popped my ballot in the box today.Can't believe I voted to legalize pot for adults.. never thought I would see that. Sick of spending $$ on police to put away some one with one joint. Go catch murderers and rapists; spend the $ on that. Some of our political choices were ick and ugh! Even the papers wouldn't choose! I refuse to answer the phone until Wednesday... enough already. Things are improving slowly.
Hugs to all. Be well and have a good week.
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Tanga I too have the ringing ear and headaches I think it is the AI meds. it bothers me before bed. Still taking the AI my onco told me to take vitamin b12. So far no change.
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Morning gals! The political thing is almost OVER! If I get ONE more robo-call, I'm going to ..... oh wait.... that reminded me to take the phone out of the microwave....
So okay, yes, it DOES have a dead battery from staying in there ON all night... but nobody could call..... HAH! I'm not going to say here in public what I really think about ALL the candidates..... Because right now I don't like ANY of them.... they don't like each other either, so why should I? Nope, I didn't vote. First time....
They are not behaving... All the ads and phone calls and mailings are just about how bad the OTHER guy is! So since I am neither a Democrat or Republican, but an Independent, I therefore am choosing to be independent and not vote...
Independently speaking that is.....
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Ah HAH! I've been trying all morning.... (almost) to try and copy a picture from the fuzzy thread, and I DID it!
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Had a rather interesting start to my morning, the cat almost jumped in the shower with me! Silly kitty!
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We had a cat who would jump into the tub after we took a shower. Turned out he liked to drink from the running faucet.
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Hello to all......
Jwoo, enjoy your adventure. I have been to Europe, a few countries, but not to London. Yes, if possible photos. Love travel pics.
I am still working on the house, arrrggg, it's getting old. We will list it next week. I am heading to Vegas on Thurs. I have a family baby shower to go to on Sat. ( A few hours past Vegas ) Good excuse for a getaway. My DD & friend are also going. 4 nights in LV. I am not a huge fan of the craziness, but it will be much warmer, good food, a little shopping. We are looking at going to a show. I do not gamble, so that is not a fun factor.
I think ( & worry ) about all when I am scrubbing. I got to call a cleaning service to help!
Have a good Tuesday.....
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