Come join others currently navigating treatment in our weekly Zoom Meetup! Register here: Tuesdays, 1pm ET.

Adhesive TAPE - help need to find non-allergic

11819202123

Comments

  • minustwo
    minustwo Member Posts: 13,359

    Moth - as long as I used the MedaPore or Hypafix tape, I could use plain cotton gauze. I had to look up the IV3000. Please do let us know how it works over the year.

  • Trickling
    Trickling Member Posts: 295

    Bumping and sending WARM wishes and CREATIVE inspirations to everyone, especially to those more directly affected by the frigid weather who have to come up with solutions to literally survive the cold. Seriously. Remember that show, MacGyver? https://en.wikipedia.org/wiki/MacGyver

  • moonflwr912
    moonflwr912 Member Posts: 5,938

    another bump. Have a Happy Easter and Good Passover!

  • minustwo
    minustwo Member Posts: 13,359

    How dumb am I !!! Ripped a piece out my fragile skin last week on a cardboard box corner. I popped neosporin & a bandaid over it. It bled for days & I kept the bandaid in place. Finally yesterday I ripped it off only to discover all the skin that was under the adhesive is severely compromised. So now I have a Telfa Pad and what I should have used in the first place - Medipore or Hypafix "tape".

    Moon - good to see you. Hope you & your family are doing OK.

  • Trickling
    Trickling Member Posts: 295

    Bumping with LOL.

    Am experiencing medical bureaucracy and litigious attitudes. Recently, I went in for a cystoscopy procedure which I looked up on the Internet. I actually found a YouTube video of the procedure. It was clear and factual and sensitively presented. I was happy with this new knowledge and confidently looked forward to the in-office procedure in the spirit of adventure.

    When the doctor and staff came in and asked how things were, I happily stated that I had found an Internet video. Instead of us moving forward in this same spirit, I was repeatedly told not to be looking at the Internet. It didn't matter to the staff how I was approaching the Internet. Upon reflection, I later realized that the doctor could have -- and in my opinion, should have -- better informed me about several aspects of what was going to / not going to take place.

    I'm sharing this to encourage everyone to continue to hang in there and respectfully stand up for patient-oriented healthcare. I draw strength knowing that we are struggling together. For those who are new to this thread: the info is priceless from the many voices of experience, Therefore, seriously consider sharing all kinds of your experiences. How else do we learn that despite charts and our speaking about our needs and wearing armbands and whatever about our allergy, that some staff, nevertheless, proceed to the contrary? That a product may be helpful for one person and not another? That our bodies change so that what worked or not at some point may end up in the reverse capacity?

    Personally, I learned of 3M Cavilon No Sting Barrier film thanks to the sharing on this thread. I also learned that it would be a good idea to carry some of the swabs with me. Yes, I admit -- despite my knowing the importance of having my own stash of swabs -- to a crucial time when I didn't think I had one with me. Fortunately, while rummaging through all the stuff I had with me, I found some swabs where I didn't usually place them. I've had the tip of "Have swab. Will travel." confirmed not once but many times.

    Most significantly, whenever I pull out a swab or experience difficult interactions with staff, I tangibly sense I am doing and experiencing what I am doing in your company. I am able to do this because you took the time and the courage to share your experiences.

  • minustwo
    minustwo Member Posts: 13,359

    Trickling - thanks for sharing your experience. Eeeek - why don't they want patients to be "partners"?? I think of you often and hope you are doing OK.

    Glad you found a swab. I always carry a few. In fact I should put some in the glove compartment of my car just in case.

    I'm having some renovations done due to pipe leaks. I found an emergency first aid "kit" that my son put together when he was 8 or 10 for cub scouts. Included was a package of bandages (Curaid) and a roll of tape. He is now 50. You can imagine that there was no adhesive left on the "bandaids" and the tape was a joke. Found three tablets of "tylanol with codeine #3" from 1969. Who knows what they would do now. Directly into the trash. About the only thing I saved was the ace bandages (in two sizes) and the eye cup.

  • betrayal
    betrayal Member Posts: 3,319

    Minus2: Anything stored in your glove compartment would be subjected to changes in temperature which could effect the product adversely. If you need to have them available, I would suggest your purse.

  • minustwo
    minustwo Member Posts: 13,359

    Thanks Betrayal. You're absolutely right about the heat. I actually carry only a really small purse, or none at all if I'm fortunate enough to find clothes that the fashion designers realized women need REAL pockets. But I do keep a soft sided, zipper carry bag packed to grab whenever I head to a doc appointment.

  • Trickling
    Trickling Member Posts: 295

    @ MinusTwo and ALL SORRY: I had a computer glitch (now rectified) and didn't receive this forum's emails.

  • Trickling
    Trickling Member Posts: 295

    @ Minus Two Aw, shucks! I thought you'd at least get your son to look through his old stuff for his chemistry set of younger days to experiment with the TYLENOL from 1969 . . .HOPE YOU ARE DOING A-OK

    @ Betrayal Thanks for the reminder about storing in places subject to HEAT (or any extreme conditions).

  • Trickling
    Trickling Member Posts: 295


    Speaking of EXPERIMENTING:

    ?? Has anyone tried Elisse skin barrier film? I have not tried it.

    If anyone is currently experiencing an allergic reaction and is willing to try it this link offers a !!! FREE SAMPLE !!!

    https://trioostomycare.us/project/trio-elisse/?gcl...

  • minustwo
    minustwo Member Posts: 13,359

    Trickling - nice to see you. Glad your computer glitch is resolved.

  • betrayal
    betrayal Member Posts: 3,319

    Please remember that any alcohol based gels/hand sanitizer, etc will explode/catch on fire at extreme temperatures as well so keep out of your car. When I was working full-time, my car was sort of an extension of my house and office so I kept bottled water, etc in the car. Not a great idea either since the heat can have an effect on the plastic bottles. Stay safe.

  • WC3
    WC3 Member Posts: 658

    I've noticed that sometimes I will be fine with band-aids/tape and sometimes a different batch of the same exact kind will give me issues.

    I've also noticed that sometimes I don't develop a reaction until I've had the band-aid or tape on for a few days or I won't develop one until after I have removed it.

    This causes me to suspect that oxidation of the adhesive has something to do with it.


  • minustwo
    minustwo Member Posts: 13,359

    Interesting theory. I can usually tolerate 'fabric' bandaids for a day or two. But you're right - I definately have problems after that. Luckily I am normally a fast healer.

  • ShetlandPony
    ShetlandPony Member Posts: 3,063

    Yup, fabric bandaids bother me less than plastic ones, and the sooner any bandaid is removed, the better. Like moth, IV3000 is my go-to dressing. (I have an infusion through my port every three weeks.) Usually the nurse uses a barrier cream also. My skin does not like chlorhexadine any more, so we use betadine for disinfecting. I carry a port kit with me, and have occasionally provided the IV3000 dressing or the betadine swabs if a nurse does not have quick access to them. This is more likely to happen before a scan than at my regular blood draw. (I have the supplies left from when I did IV antibiotics at home for a month.)

  • minustwo
    minustwo Member Posts: 13,359

    I too carry a 'bandage' kit to all my doc appointments. I have found that many infusion centers have a barrier cream and either Hypafix or Metapore bandages. Hospital surgical rooms usually have Metapore if you fight for it.

    I'm just grateful that I can usually wear a fabric bandage again for 24 hours. Important when I snag my arm on a rose bush - which happens with some frequency.

  • ShetlandPony
    ShetlandPony Member Posts: 3,063

    I got some special rose-gardening gloves that go up to the elbow. Though not leather, they are thick like leather, keeping thorns and prickles from hurting me. When I started wearing them to weed and to cut roses, it was one of those "Where have you been all my life?" Things.

  • minustwo
    minustwo Member Posts: 13,359

    Yes, I have some of those gloves too that a friend give me after BC and lymphadema and they do work great. But I seem to get pricked by random runners when I'm NOT pruning roses. I just pop out to get a couple of ripe mini tomatoes and WHAM the runners from my Cecile Brunner Climbing Rose get me EVERY time. I cut that darn thing to the ground after our February freeze and still have to cut it back from 8-10 ft tall every 10 days. Motto - I wanted to have what my Mother had outside her kitchen window when I was little. I have a much smaller space and should have put in the Cecile Brunner bush rose instead of the climber.

  • Trickling
    Trickling Member Posts: 295

    DURING THIS SPECIAL WEEKEND .. SPECIAL WISHES TO EVERYONE FROM NORTH AMERICA AND BEYOND

    https://www.jacquielawson.com/sendcard/preview?con...

    https://www.jacquielawson.com/sendcard/preview?con...

    }}} HUGS {{{

  • Trickling
    Trickling Member Posts: 295

    B u NP i N G

  • minustwo
    minustwo Member Posts: 13,359

    Trickling - how nice to see you. Are you doing OK with all this COVID mess?

    Thanks for bumping. This is ALWAYS a pertinent topic. I still carry Aplicare and Hypafix or Medipore tape with me to every doc appointment. I was gratified to find that my new derm doc used Hypafix tape when bandaging my recent biopsy site. (luckily only an AK, although she suspected a Basal Cell).

  • Trickling
    Trickling Member Posts: 295

    @ MinusTwo: What a relief to learn that the area was Actinic Keratosis. It sounds as if it was a close call. Will you need to have follow-up visits?

    Although there are increasing numbers of people not wearing masks, most people around this part of Chicago continue to wear masks. I haven't been downtown for so long that it seems like a different world. It is not that live in the suburbs or the lie. Before the pandemic, I used to take the express bus from our intersection to downtown at least once a week. I often think of you bravely wearing a mask amid a [Texas] population so antagonistic to masks and vaccines.

    Agree: Carry the tape you have found helpful and for me 3-M Cabiion swabs for sure!

    (HOW to APPLY 3-M Cabiion swabs) https://www.youtube.com/watch?v=d28fNUiH68M&t=132s

  • minustwo
    minustwo Member Posts: 13,359

    Yup - bravely wearing mask about says it all. That & i don't really go anywhere inside except to the grocery store once a week. And the liquor store once a month. I still walk my 6 miles, but have cut back from every day to 4x a week. No masks outside in the park!!!.

    I have to have a full body check by my dermatologist every 6 months. In that short period, enough AKs and SKs have developed that they always freeze at least 15-20 places with liquid nitrogen. Every two years something needs to be biopsied. I do stay on top of it because I've had MOHS surgery for 6 basal cell cancers so far. Always fingers crossed.

  • Trickling
    Trickling Member Posts: 295

    @ MinusTwo: Did you see the poignant special Rachel Maddow (MSNBC) did on moles on October 6, 2021?

    Quite a reality check!

    @ ALL: Speaking of reality checks:

    Bohemian Catsody - A Rhapsody Parody Song for Every Cat Queen and King!

    https://www.youtube.com/watch?v=pXezLv_5RaY

  • minustwo
    minustwo Member Posts: 13,359

    Tricking - I like Rachael Maddow but I don't watch TV. I'll have to see if I can find it on the internet. Thanks for sharing.

  • Trickling
    Trickling Member Posts: 295

    @ MinusTwo Simply go to YouTube and search for rachel maddow. A list including show dates will probably appear. Choose rachel maddow 10/6/21.

    Before I moved years ago, I had such poor reception in my area that I stopped watching TV. I have not had a TV since and can't afford cable. What a good thing that turned out to be! I am truly a YouTube University graduate!

  • Trickling
    Trickling Member Posts: 295

    Excellent video regarding some possible solutions to skin breakdown:

    (10:56 min) "Crusting Technique" for Peristomal Skin

    https://www.youtube.com/watch?v=X6zrh9ErLAQ

    HAPPY THANKSGIVING to EVERYONE

    LOL

    Trickling

  • minustwo
    minustwo Member Posts: 13,359

    Nice walk Trickling. Thanks for posting. Hope you have a good holiday also.