Single life after a mastectomy
Comments
-
Simplicity- my hands get super stiff from the AIs. When I wake up in the morning, I have to open and close them a few times. That being said, I have never actually had them hurt.
Is this new? When did you start the AIs? I had symptoms appear within three months, by six I was really struggling and had to take a vacation from them. Talk to your MO about this, you cannot function with painful hands.
E- I was listening to some things this weekend on NPR about VZ. It is heartbreaking. The world is in real chaos right now, some countries more than others too. Hugs friend.
0 -
Same here with the opening and closing. Feels oddly painfully good to open close and stretch them also. No, not new. Since chemo. I think it's a cross of osteopenia, neuropathy, and the anastrazole. I know, right? I almost called of, but in my head I'm like, call off because my hands ache? What will I do all day? But the slightest movement hurts.
Second appointment with the therapist today. I emailed her my life timeline weeks ago. Today may be a bit difficult as far as that goes.
0 -
Simplicity- my hands and feet (especially) have the worst hits from the AIs. I was almost crippled with my walking the first six months on the AIs. Have we talked about the supplement that helps with the joint pain, hyaluronic acid? The health food store recommended it to me back when things were the worst, MO okayed it. I do notice a different when I am taking it, it puts the moisture back into your tendons, ligaments, etc. which goes away with the lack of estrogen.
I get mine at one of the health food stores and stock up periodically when they have the vitamin and suppliment sales. You can get them on line too.
Talk to your doctor about this first to make sure they are okay with you trying it.
https://www.swansonvitamins.com/doctors-best-best-...
0 -
BB- you know my hand writing has gotten really bad in the past few years. I sometimes cannot even read my own writing when I take notes. I had a birthday card I mailed to a friend last month that got returned, and brought it to her when we had a b-day lunch, and she said the address was not that legible. She did it in a kind way and said she had noticed my hand writing had changed. I really could not figure out what was going on, but now think the AIs may be why.
0 -
Mine too. If it's just a bit of writing, I seem to do ok. Otherwise it gets terrible, inconsistent and painful for my hands. My hand issues started with chemo, and just haven't stopped.
Upset tum today. Not going to work. I used to be such a trooper. I would go to work no matter what. I have become such a wimp (she says as her stomach gurgles). Considering a change in studies. EMT maybe? So many issues at work and just don't even like being there anymore.
I think it is because I have been more active, but some of my scar areas have been hurting. My lower abdomen, below the incision line has just been achey and tight. My radiated area has been hurting too. I have been exercising more, and trying to do little projects around the house and out in the yard, so I am sure that is it.
Well, E's boy finally took it there, as far as I know, and said I look like a man (to Eddie). lmao Really doesn't bother me. Surprised it took him this long. I told E that next time he says that he should reply "o, um, yea. She is a he. I am gay' Bwahahaha!!
His kids, their childhood was so different (from my kids). They became so accustomed to having dad all to themselves from such a young age. I have always been one to insist on me time. Just who I am. Whereas E put himself last for all these years, and his kids first. Not a bad thing. Were all different and do things differently. Doesn't necessarily mean 'right or wrong'
That all said, it also makes me feel so proud as a mom. To know my kids would never treat another human this way. To know they are accepting of differences amongst people.
I went with E, which his daughter disliked, to her last volleyball tournament. I saw what he see's. Seeing her in her element, she is a beautiful young lady and graduates in May with her bachelors. I was awe struck by the College. If I had had that opportunity, I probably would have never went home for the weekend lol Not everyone has that opportunity. They had a pool, rock climbing wall, huge gym. I wish these kids had more respect and gratitude for all their dad has been able to offer them. O well. I am beginning to wonder if that is why our paths crossed again. Maybe I am meant to teach these kids more gratitude and acceptance? I actually said a prayer to his DD's dog couple weeks ago, that she (the dog) would teach ehr mama about acceptance. That dog loves me. I pull up and she, old as she is, tries to jump in excitement
I just love dogs. Way more than most humans.Well, I rambled. Going to pour myself back into bed hopefully. Was up most the night back n forth to the bathroom
Hope all have a good day.
O, does anyone else's radiated area burn from time to time? Just a weird sensation where I burnt the worst.
0 -
hi. Just stopping by to wish you all a great weekend
Simplicity yes I do have that burning feeling sometimes it is not easy to describe. Maybe other lady's whom had rad mentioned too.
I am now waiting to see my MO . For the regular check up . Hopefully they won't keep me here too long
I am tire and I need to go to school
So glad to be off tomorrow I need room sleep in
0 -
Simplicity- I do believe in the concept of "it takes a village" and that children learn from everyone in their communities. Sometimes some good checks and balances that help kids to understand the world at large a lot better too. From everything I have heard, E's kids sound pretty ungrateful. A reality check from others goes a long way. Even if the parents don't always have great boundaries, many other adults do.
Boundaries are good for young people, they need them, want them and we found ways to create them when we could. I have no doubt you are a super mom, Simplicity. I am sure those kids are learning a lot from you.
Bit o spring from my my back yard this morning.....
0 -
hi friends
Jazz how nice. I found two small plants which the squirrel bite of parts I think she is just hungry. I decided to leave some cookies out for her. I know that is no good but at least she may leave my plants alone?
There is no real solution my garden teacher told me she has known squirrels to climb up to a 23 floor building if there is enough for then to garb on to then there is nothing we can do they ll keep on coming back. But I see she now has no interest on my tree and that is good news .
I ll take few pictures today.
I plan to study all day and do laundry his afternoon
Hope you all have a wonderful good Friday.
It is so good to be off work today.
I saw my MO and he said he will see me in 1 year. Basically for some reason they there sewn me every 6 months to check on blood but cuz all is good he says no need to be back on 6 months. I am glad I don't even want ro see them. But at the same time it worries me how they only monitor if there is a huge issue small se or pain are not a concern and I always wonder what if? But I am not able to take time of work for appointment is very hard to use lunch time for those so I always happy 1 year now. No more 6 months
0 -
E- glad the squirrel is leaving the tree alone. Hope you have a good weekend with the plants and with studying. Almost done with that class!
You and I got diagnosed a month apart. I am heading towards the same thing with the once a year after I get to the five years, which I have been told is marked by my surgery date (Nov 14th). I thought when you did the five years you were done with follow ups, but my MO said I go to yearly after that is done. He said they want to monitor for late re-occurrence. I will be to five years later this year, done with the AIs next March. I will see mine MO at least through next January. He also gives me the Prolia shot to counter the bone loss on the AIs. Because my AIs stop in March, we will be in between the normal visit cycles so I need to ask him this summer, when the 6 months will stop.
I hear you on the concerns about blood work, etc. Because I see the endocrinologist now too, she checks my blood sugar regularly as well as many other things. Not sure if you have a regular physical with a family doc, but that is where things can get checked too. My primary care doc has always monitored enzymes, etc. Keep up with your regular visits to your family doc. Checks and balances.
BB- how is your mom doing? Did she get discharged yet and to rehab?
Simplicity- what will you be doing this weekend? I hope you don't have to cook.....
June- how is spring coming along in the city? Any plans for you this weekend?
Lilly- thinking of you too friend and hoping things are better for you this week
Wishing everyone a peaceful holiday weekend for Easter, Passover or just with time off.
0 -
BB- I am sorry your mom is so weak. I elderly people loose mobility very quickly when in bed for too many days.
I am also sorry about her sister/your aunt being in transition. Will be a very difficult to share this news with everything else going on.
Sending much love to you and your family friend
0 -
Oh bb I am so sorry. Who can blame you for believing such thing after seen all you have been through? Here is my opinion. If you now believe in that then go and do what ever you feel that may take it away. Cuz one thing I truly believe is the power of our own self and our own mind. Till you free your mind of what ever is botherin it then you won't see the change. My poor sister who past away always belived that she also was cursed and it was painful to see all bad things that kept on going on in her life. So no I don't believe in anything now but I do believe you need to do what ever it takes for you to feel safe and lucky and beautiful so pls if there is anything like a powerful oil or something and if there is any way for you to get your hands on it without paying $ then go for it. Do not agree to pay $ for anything cuz most are fake and most who say they need $ to help you then they are fake. There is a healthy massage therapy here very popular called rekie or something maybe you can get one? Aparently it can help too? I don't even pray anymore but I have you I'm my thoughts and I send you all my powerful mind every night before going to be I think about all of you and wish u all the good you all deserve.
Hope your mom feel better too. Once my mom came out of the hospital me and my sister who was here for 6 months to help me. we had to do estrech exercise for mom every day and the simple one was very hard for her till in a few weeks her little body started to gain strength
Hope you are better today. Here is raining and cold ; (
Here is a picture of some lithops cactus I am growing from seeds
0 -
BB- I am glad to hear your mother is better and hope your son gets an offer on the job!
Wishing you better days sister
0 -
Morning ladies. Happy Easter.
I feel ya BB. I said the same to my therapist last week.
No plans here. Probly just visit mom and then relax at home. Youngest and I worked in the yard all day yesterday. Tn/hen we went to a friends down the street for a fire. Good times. I slept really good last night-it was probably the drinks. haha
0 -
good morning, hope you all are having a nice Sunday. I ll sit and study all day is the last day I can fully focus . Simplicity yesterday I study at a class mate and she offered me a small cup of red wine. It made me so sleepy lol I guess I am not use to it then drunk almost 2 litres of water lol but I did enjoy the wine.
Jazz the name of the red wine is bodacious made here at Niagara Falls
Also so a very impressive cactus in pinterest jazz check this out lol
Simplicity I bet your body was very tired from all the work in the yard. It so good you were able to go and enjoy a fire out.
Bb here is very cold they say it is 20 but I feel as if it is only 5 maybe the wind is what bothers me no sure but honestly it does no feel as 20
I went to the balcony to chase a bit of sun for my plants lol
It only lasted 20 minutes
2 of the hostas are coming out and my little tree is also showing he is going to be ok. I am so excited about this tree lol can't wait to see the leaves
0 -
bb the building I am living in is in bad shape. Is sad that in 8 years it deteriorated so much. It is in a beautiful area downtown Toronto though but it is full off people who do not give a crap. For example we have people who throgh garbage downstairs and also smoke weed and when u walk to the parking lot u smell it all over it. I hate it. But I am trying to make the balcony like you said a little place to scape lol it is a short term hoby due to our winter so I ll try to enjoy as much as I can. I still have lots to fix up but just no $ and no energy like painting the doors and installing doors for my closets I through those out and have no doors now lol o well baby steps.
Just wishing the weather could warm up already so I can keep balcony open and no care about blankets or scaff lol
I was told our last frost day is may 09
0 -
ha ha ha bb yes u are right times have changed so much I remember I grew up going to churt and seen jesus in a glass coafen and it was a big deal this week. Now I don't even know what is what lol
Those were simple days and also very happy days.
This week the national guards in Venezuela also went inside the churches and through chemical gasses is just brutal and April 19 there will be lots of blood cuz both the public and the government will take the streets
I am in my living room balcony is open and I can hear the birds across the street by the lake
Lots and lots of noise but I clearly hear the birds which is a sing of spring is finally here.
So nice to be able to hear that sound lol
0 -
Greetings friends - I spent some time in the great outdoors today, including at one of my fav hot springs. It did me good, getting outside is always a plus to me on the holidays when thoughts of missing family come around. It did my soul good.
Sending everyone peace and love on this Easter evening.
0 -
Oh jazz how wonderful thanks for sharing I close my eyes and see myself there lol
So glad you were able to go. That looks different than last one. I'd it the same place? Hum send me the name I should plan to go there 4 a week lol yet I know I can't afford it right now
but I need to keep the info in case my lottery came through lol0 -
E- it is called Giggling Springs. Different than the bigger one up north called Ojo Caliente. The one today is really a place to go for a few hours or a day, Ojo is good when you want to do a whole weekend!
I just found my claret cup cactus is starting to bloom (and early too). I know you will love this E.
0 -
Hi friends- Been an interesting couple weeks friends. I started realizing that this guy I have known for awhile and whom is in my professional community might just be interested in me. He came to a presentation I did, I have seen him a lot since, always seeks me out, etc. Last week, we were talking and think he almost asked me out, but didn't. Seems nervous around me all the time.
I was out with a friend last night and we were talking about relationships in the past, current people, etc. I mentioned this fellow above, but also talked about a couple guys from the past, including an old BF from 30 years ago in grad school. He were each other's rebound relationship, mine after my four year first relationship and him after a marriage. We reconnected in 2012 through social media and then I lost touch again with all that went on.
So tonight the guy from 30 years ago surfaces out of nowhere and says he is retired and traveling and wants to come visit this summer.
Wow, what happened here? Thing are changing?
0 -
Jazzygirl go for it and have some fun.:)
0 -
Hi Trooper- welcome and thanks. I think I will!
0 -
BB- how is your mom doing? Is she getting stronger in rehab?
And you, how are you doing?
0 -
BB- I am sorry to hear this and understand.
0 -
hi friends. Sorry was no here for a wile . I finished my class las week and finishing two this week. I will start again next week.. I am super tired and also sad cuz so much is going on in vzla. My poor country is sinking so fast
Jazz I love your cactus so beautiful. Thanks for sharing. I found that the hosta I planted are coming fast lol soon I ll have all pots full in the balcony.
Bb I hope all gets better. ; (
Sending u all a big hug
Oh and my period never came yet . Last one was March 16th and still waiting for it which drives me mad cuz I get pimples in my face like I am a dame teen lol
Anyway it seems my hormones are acting out. Not sure what to take for it ; (
If there is any natural medicine u guys know let me know.
Night night
0 -
0 -
Hahaha Jazz. That's a good one!
Hope all are doing well. BB? You hanging in there ok?
Crazy busy here. Since stopping my blocker Good Friday, I have felt so much better!! Scary to think of why I am feeling better and hate the thought of starting a new blocker. Hate the thought of a recurrence worse. This sucks.
Was taking anastrazole, new script for exestramine? (don't have bottle with me today). It's a fairly new med. *sigh* Why do I feel like a fuckin guinea pig?
0 -
Simplicity- it is amazing how much better we feel when we are off those stupid drugs. I went off once the first year for a month, as I was having such issues with adjusting, and felt great during that time. I did better going back on them and my MO changed me to the aromosin generic (exestemane) that you are considering. He said although the other has the longest clinical history, but said most women do better on the aromosin generic. We are all guinea pigs with these drugs. I think there are many things they still don't know about them and most of the MO's don't really understand how bad they make you feel. Would they put men on drugs that made them feel like crap for five year? I doubt it. I was just reading an article on the Prolia thread I started about how the risk of bone fracture is SO MUCH higher on these drugs than originally thought and the importance of the bone building drugs to counteract that.
Well, give it a try and see if it is not better for you? I still have issue with feet and hands and overall stiffness, but do cope. I have a BCO sister/friend who has tried them all and has terrible swelling on them and has not been able to do them anymore. She has ILC and the AIs are most effective with that kind of cancer, so she tells me, but cannot tolerate?
Been communicating more with my old BF from days gone by and not sure when or where we will see one another, but allowing myself to just get more familiar with who he is today. People change a lot in 30 years, I certainly have. Letting things unfold.
0 -
"Would they put men on drugs that made them feel like crap for five year? I doubt it." I don't get this. I seriously doubt a MD wouldn't rx a man a med that is known for many se's for many which could help him because he's a man. Traveltext is a man on Tamoxifen.
Many men take meds for prostate issues for years that has sucky se's. My dad is one. He guts through it in hopes of not getting prostate cancer. They have the option to opt out just like we do.
0 -
Artista, yes, welcome! You share some valid things here about the meds men take for prostate cancer.
BB- take care and we understand. I hope you can get your mom the care she needs and be sure you have what you need as well. Be well friend, wishing you better days.
0
