Member of the "6 Month Watchful Waiting Club", Unite!
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HA! Well thank goodness for that . Some people I know have a very hard time with GI symptoms on Met. That includes me do I take a similar drug called Glumetza which is enteric coated. It's too expensive in the US now so I get it from Canada.
I'm really really a sceptic about drugs in general and this one is reputed to be a benefit to all of these different diseases and syndromes. Scary because medicine is medicine . I worry about the Evista too and I'm not sure it won't hurt more than help .
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Ddw79 - I'm doing fine at the moment - still in the safe part of my 6 month wait. Next appt. isn't I til September 12. I'm trying to enjoy life a bit until I enter the worry stage again. I'm doing fine on evista too. Any decisions about your surveillance yet?
Frankie
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Hello,
Mammo And ultrasound done today- all good. MRI on 20th And If everything is clear in October, back to yearly checks in 2017 (alrhough i Might beg for an ultrasound in the year)...
Best
Alicki
The diabetes problems are worrying me more. I need more research on met stuff, my gastro problems are bad without it
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Yeah for you Aliki!!! That's great news.
You are getting good care for your Diabetes and I can an will help you with all of that part if you wish. Don't worry, be happy .. About this
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hey thanks!
I hasnt done a mAmmogram in two years.
Now RE diabetic- i ll update u!
Right, 20th MRI And then breast tatooos!!!
I lost mine due to bad sugery in 201
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Came across this thread and unfortunately, am also a member of the 6 month club, and even more different, as a male. I have a cousin that developed male breast cancer and as a result I was tested and positive for the BRCA2 gene giving me an almost 10x increased chance of male breast cancer and a 10x increase in the possibility of prostate cancer. Add on that, I got the gene from my mother and an additional 5x increasing chance of prostate cancer from my father who is a 12 year survivor. Additionally, those cancers will have a 1 in 3 chance of being extremely aggressive due to the defect. If not enough, I have 2 large nodules on my thyroid that have been biopsied. Non cancerous, but now I have to monitor and have an ultrasound every 6 months, along with a prostate exam and a breast exam. I am thinking about having the thyroid removed and be done with that particular time bomb.
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C that's a crappy hand you have been dealt. Thyroid and breast cancer have a lot in common!!!
Iodine is something for you to look into supplementing. There is a book about Iodine that speaks to both breast and thyroid cancer. I have thyroid disease too. You might want to look into it by Daniel Brownstein. Don't remove your thyroid until you learn more about it . It may be the best thing or maybe not.
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alicki - I am so happy for you! Thanks for keeping us in the loop. Hope the good news continues with the upcoming MRI and October follow up. My next 6 month appt is September 12 and for me it will be my first 3 D.
CNaivar - I am so sorry for the reason that you found us but I want to welcome you to our group. You sure do have a lot on your plate. How are you managing every thing? Be sure to keep us updated and check in with us whenever you need/want support and/or a sounding board. You'll find lots of good hearts and minds on this thread.
Frankie
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Thank you for the welcome. and as far as managing, just trying to live every day not letting this have an effect on my life. We never know what one day to the next might be, so I live each to the fullest and accept that whatever bad may happen must have some reason behind it. I am not sure if it is a plus or minus, but while not a physician, have been in the biomedical field for 22 years developing new implants and new surgical/non-surgical procedures, working closely with doctors and the FDA. The plus is that I already know a lot of the answers or where to look for them, but the bad, already know and have seen a lot of the worse parts that could come and have to try and not overreact.
Again, my best and my thoughts and prayers to all those here.
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hi,
MRI done....awaiting results
Best,
Alicki
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alicki - hope you hear soon and that it is good news. Let us know.
Frankie
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Is anyone familiar with a test called Oncoblot? Dr. Joel Fuhrman just posted about it on his FB page. He describes it as a test that can find the presence and origin of very early cancers when they are more easily treated. The second article in this link explains more about it.
http://www.drfuhrman.com/ask/health-screenings.asp...
Frankie
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It is not FDA approved and appears to only being used by alternative medicine practitioners. That would make me shy away from it, at least for now.
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Good point MelissaDallas - thank you. The idea of being tested for 25 cancers is overwhelming to me. I'm having enough trouble being tested for 1 kind of cancer! The opportunity to find it so early is something to think about - but without FDA approval I think I too would shy away from it - at least for now.
Frankie
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Let us know... when you can! I have one in June (ADH almost 3 years ago so an MRI annually). I have a 6 month ultrasound recheck of a "new 4 mm something" in October.
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hi,
MRI clear- birad 2. Post surgical changes only!
Check up in September, thanks to everyone for the support.
No way I would do the 25 cancer test. My Health anxiety would go through the roof!
I've got other medical stuff to sort out now.....
Best
Alicki
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Great news Aliki on the MRI and good luck getting the Diabetes sorte
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alicki - so glad that you received good news. I think I feel the same way as you do about the test for 25 cancers - I can barely manage my anxiety while being monitored for 1 kind of cancer. I keep reading that even if they find an early breast cancer, 20-30% of early breast cancers eventually metastasize.
Best of luck to you on the other medical stuff. I am trying to figure out how to manage osteoporosis in my spine and hip . I have several instabilities in my spine that prevent me from doing any weight bearing exercises. I am working with a personal trainer in the water to see if that helps. May we all find peace and comfort as we move through our situations.
Frankie
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hello,
Thanks!! Yes hyperinsulin and pre diabetes to sort out now.
Best
Alicki
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I am wondering what is prediabetes? Either you have Diabetes or you don't is what I am told.
On the bc front I have an appointment next week for an exam and to discuss next steps. Never ends
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For someone who doesn't have diabetes, a normal A1C level is below 5.7 percent. Someone who's had uncontrolled diabetes for a long time might have an A1C level above 8 percent.
When the A1C test is used to diagnose diabetes, an A1C level of 6.5 percent or higher on two separate occasions indicates you have diabetes. A result between 5.7 and 6.4 percent is considered prediabetes, which indicates a high risk of developing diabetes.
For most people who have previously diagnosed diabetes, an A1C level of 7 percent or less is a common treatment target. Higher targets of up to 8 percent may be appropriate for some individuals. If your A1C level is above your target, your doctor may recommend a change in your diabetes treatment plan. Remember, the higher your A1C level, the higher your risk of diabetes complications.
Here's how the A1C level corresponds to the average blood sugar level, in milligrams per deciliter (mg/dL) and millimoles per liter (mmol/L):
A1C level Estimated average blood sugar level 5 percent 97 mg/dL (5.4 mmol/L) 6 percent 126 mg/dL (7 mmol/L) 7 percent 154 mg/dL (8.5 mmol/L) 8 percent 183 mg/dL (10.2 mmol/L) 9 percent 212 mg/dL (11.8 mmol/L) 10 percent 240 mg/dL (13.3 mmol/L) 11 percent 269 mg/dL (14.9 mmol/L) 12 percent 298 mg/dL (16.5 mmol/L) 13 percent 326 mg/dL (18.1 mmol/L) 14 percent 355 mg/dL (19.7 mmol/L) It's important to note that the effectiveness of A1C tests may be limited in certain cases. For example:
- If you experience heavy or chronic bleeding, your hemoglobin stores may be depleted. This may make your A1C test results falsely low.
- If you have iron-deficiency anemia, your A1C test results may be falsely high.
- Most people have only one type of hemoglobin, called hemoglobin A. If you have an uncommon form of hemoglobin (known as a hemoglobin variant), your A1C test result may be falsely high or falsely low. Hemoglobin variants are most often found in blacks and people of Mediterranean or Southeast Asian heritage. Hemoglobin variants can be confirmed with lab tests. If you're diagnosed with a hemoglobin variant, your A1C tests may need to be done at a specialized lab for the most accurate results.
- If you have had a recent blood transfusion or have other forms of hemolytic anemia, this test would not be useful, as results may be falsely low.
Also keep in mind that the normal range for A1C results may vary somewhat among labs. If you consult a new doctor or use a different lab, it's important to consider this possible variation when interpreting your A1C test results.
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I won't get into the above too deeply here because it's not the forum but the above is totally wrong and bad medicine . By the time your A1c gets that high you are already accruing major damage to life, limb and vision. My last a1c on 24/7 insulin as a late onset type 1 was 5.1. The work and the job is incredibly cumbersome and difficult. It's 24/7. I get up twice a night to shoot insulin to keep my a1c in range. BC plus this will certainly kill me. Anyone interested truly in Diabetes management please stay away from the standard websites. They will kill you. My go to read on this subject is ; The Diabetes Solution by Dr. Richard Bernstein. Himself a type one Diabetic and past 80. You don't get that far with a " normal " A1c of 5.7 and beyond. That info you posted is sadly dangerous and inaccurate
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I personally consider the Mayo Clinic a very trusted source.
You asked "what is prediabetes?" - That is the medical definition answer to your question. Prediabetes is considered an A1C level between 5.7 and 6.4.
You didn't ask what is considered good control of diagnosed diabetes.
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I understand as do most people but if you actually had this scourge you would hopefully know better. As to " pre/diabetes" there is absolutely no such animal. It's the same predictable standard baloney. Completely false and meaningless. Either you have Diabetes or you don't.... Period. It's a serious disease and needs to be treated immediately and seriously. When you actually live it 24/7 you know what is real and what is just manufactured by big pharma. It's much more complicated than people believe. Like any terrible scourge you know a lot more about it if you are sadly deeply into it. No different than all of the misguided info out there on BC sites. They told me too I had " prediabetes." Hilarious . I am totally insulin dependent 24/7
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It doesn't have a thing to do with "Big Pharma" because prediabetes is not treated with drugs.
Prediabetic level of A1C is when the doctor reads you the riot act and tells you you are heading for trouble if you don't clean up your act-lose weight, improve your diet and start exercising.
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not really . They told me I had pre diabetes . Totally misdiagnose this all the time. I have late onset type 1. Yeah big pharma definitely keeps diabetics sick and dependent on insulin because there is never any reasonable research money spent on a cure . Novartis and Sanofi love to sell us increasingly expensive insulin. No research into this because drug companies have medical people convinced that exogenous insulin is all we need. Nope, we need a cure. You hopefully will never know how difficult it is to be on insulin. It's truly the hardest job I've ever done and doing it with BC will be
A death sentence. It's the duo that scares me the most
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But it is very rare to be diagnosed at an advanced age with Type 1 Diabetes.
I'm glad we have "Big Pharma" to keep a lot of us alive and/or more comfortablefor any number of conditions, and they are getting closer all the time to finding a cure for diabetes. There is much promising research that I guess the evil drug companies haven't managed to sabotage somehow:)
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Oh no it's not rare. Considering the high misdx rate there are way more adult onset diabetes type 1 cases than childhood cases ,way more. We have close to 2k oldies on our LADA forum on FB and that's just one of many groups.
I agree drugs are important but in the case of Diabetes the drugs insulin are keeping us from an actual cure. And no there has been no change in actual treatment for type1 for more than 40 years. Nothing coming up either just better high tech management and that is not the real progress needed either. We need a cure. The artificial pancreas is not it 👎🏻. But that's enough about that at least in these pages . We got other things to worry seriously about here . I sadly just have them both and you guys do not thankfully need to go here. That is actually great news. Could always be worse as they say.
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Hi! This is my first interaction with this group, and I wish none of us were members! 15 years ago, I had my first "call back" after a mammo and was told I had a small calcification that needed to be watched. Every 6 months for 3 years. Finally was released from that. Then, last year, I had my annual and got the dreaded call back again. This time I ended up having a stereotactic biopsy which revealed pre-cancerous ALH. A few weeks later I had a lumpectomy in my right breast. I've been taking tamoxifen for almost a year now, no real SE. The only thing is, my periods, which had about stopped are completely stopped now! Yay! I still have an aching in my breast where the scar tissue is, I guess. It was a fairly good sized area removed, or so my surgeon said. I've seen it on my most recent mammo and it didn't look that big to me. But,how long will it be achy? Last December I went to see my surgeon for a 6 month post-surgery and he told me everything looked good, see me in a year. SO-in last month, I went for my annual and had a 3-d mammo for the first time. Wouldn't you know, I'm standing in Walmart the next day when my phone rings. When I saw that it was the breast center's number I almost threw up. Sure enough, another "call back". I went that week and had a digital and they found an incredibly small area of vascular calcification. See you in 6 months! I'm not sure whether to work it all p into something terrible or pretend it will go away. This is the third time.
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Hang in there Joy1. Better to be closely followed. I had surgery last year and have achy scar tissue too. I think its something I'll have to learn to live with.
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