Member of the "6 Month Watchful Waiting Club", Unite!
Comments
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hello,
Follow-up breasts on 6th April. I refuse to Even think of it until i have seen endoctrinologist/diabetic doc
And finished sorting out what I can eat and what I can't. I was thinking about breasts the other day + other issues
And had a major anxiety attack and then decided that it was better to take one problem at a time!!! It's not serious but I have diabetic symptoms (thirst, glucose intolerance, tingling tongue) even if I'm pre diabetic! And the Gilbert thing made the bilirubin really high at the beginning of the year.
So I finish (I hope) the evaluation for metabolic syndromes on 1st April, then will take 5 days rest before "attacking breast issues". Just have to see breast doc on 21st to decide what exams we are doing for breast. I would like us, mammon and Mri but don't know if he ll say yes
Best,
Alicki
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dw79. Diabetic 1 at 60? Isn't t that unusual?. My nurse friend keeps telling me you can't get D1 after childhood.
ADH: I would keep follow up to twice a year if I were in that position, I believe hard evidence not statistics
One suggestion would be to have a U.S. At six months, and alternate mris and mammos every other year
Best
Alick
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my mom is type one and got it at 30yrs old... found out on halloween
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congrats Trish01254 on your good results.
Alicki I'm with you I will continue every six month hopefully my gyn will be onboard, if not I'll find a dr that is. I have my appt with mo and bs the 24th I'll see what they have to say. Good luck on all your test.
Thanks to all I'm so grateful for this group I've learned a lot. Thanks for sharing. I will stay here for support and to support others.
and I will continue to pray we all get good results and nothing more....0 -
Great news Tinkerbell!
Yeah!!
I will ask about US Aliki.
And your nurse friend is dead wrong . Unfortunately . There are many of us truly unluckily people who get type 1 Diabetes late in life. It's actually never too late to get T1D and they always tell you at first because you are old that you have type 2. They can only tell what kind of diabetes you have by doing antibody testing so if they are refusing to do that in your case I will be the first to tell you to push them.... Hard for antibody testing , you cannot just assume due to age/ weight that you are one type or the other. I manage with insulin24/7 and a continuous glucose monitoring system and a carb count of less than. 50 grms per day. Tell me I wouldn't rather be dead than have to deal with cancer too???
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Hello,
Thanks for the info. I'm new to this diabetes thing. I'm seeing an endoct at the end of the month so that should clear up things a bit. I will have list of questions for her!!!
Monday breast surgeon but the tests are not until 6th April. I just can't do everything at the same time. I'm going for mamo (3d) and ultrasound and depending on the results, I'll push further or not.
We are really advocates for our health. It took me four doctors to find out I had Gilberts and pre-diabetes. I wish that we didn't have to advocate so much, that we could trust people to advocate on our behalf but it never works that way.
Diabetes and cancer suck, and I hope you never have to deal with cancer'. So far, you are pulling through quite well on Evista so I hope everything goes ok in the future.
ALl the best
Alicki0 -
Thanks very much Aliki . I am amazed that I can take the Evista with the Diabetes. But as for Endo, it good you got an appointment but sadly you cannot and should not assume they know what they are doing. They diagnosed me with " pre-diabetes" too and for months I pushed hard for correct DX. I did not/ do not have pre diabetes. I have LADA or latent autoimmune diabetes of adulthood and I got this at age 60. Please tell the Endo that you want antibody testing. Don't let them " guess " about what kind of Diabetes you have. It's a very serious disease. Way too serious than to guess and get the wrong DX. There is a FB GROUP OF THOUSANDs who have been misdiagnosed with type 2 and or pre
diabetes. We all 2k of us have type 1.
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Hello,
Ok, I'll ask, but I don't have any immune disease (I've been tested many times but nothing ever showed up), but will ask her to test. It's another doc that found the insuline resistance thing, and I insisted on seeing an endo even if the dumb doc said that I was getting too many opinions (duuhh it's not an opinion I want, it's answers to questions!!!)
the fasting glucose is fine, the blood glucose test (over three months) is fine too. It's only the insuline resistance and producing slightly more insuline. I need to do the glucose post eating test (when they give you glucose and then take blood) and then we'll see. I'm overweight, sleep apnea, so type 2 pre-diabetes seems to fit the picture but you never know, will get this sorted out.
I've been really viligiant and have had an MRI of liver and pancreas - clear (phew!)
And Gilbert's syndrome was confirmed by a genetic test (very rare) because I said to the doc that he wasn't going to diagnose anything without hard evidence. Let's see what the endo says on 30, and I'll take it from there....
Thanks for all the invaluable info0 -
trish01254 - I have not had 3 d mammogram yet. I have had 2 - 6 month follow ups which have been diagnostic/ magnification mammograms. Just found out my next 6 month follow up will be 3 D. I don't know why it will be 3 D. I am post menopausal and my breasts are not very dense. Does anyone know criteria for 3 D?
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alicki and ddw79 - I admire how you are both taking complicated health issues calmly and step by step.
Frankie
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Hello,
I suppose a 'step by step' approach comes with experience. The first time I had breast issues I went down the anxiety lane and it nearly killed me- I then realized that anxiety and fear heightens the symptoms and makes things worse - it gets really hard to tell the difference between anxiety and what's really going on. Moreover, I lost my job and flat (I was flat sharing at the time) to anxiety and nearly lost myself. So now, yes, I rather take it one step at a time. I have managed to get a job (better one than I had before), get a home and am working on getting a sense of security back too.
Whatever happens to me in the future, I won't let anxiety take all that away-
Best
alicki0 -
Aliki I agree with you!!! Sounds like you are on the right track. More likely in your case type 2. No need to guess though. They should still test for antibodies. Remember they " assured " me at my age of type two. Not so. I'm type 1 at age 60.
But I think your A1c and fasting sounds good. You also crucially need a Cpeptide test to see how much insulin you are making . All my tests at first were perfectly normal so I'm a little concerned about improper testing. Good luck. This is horrible times 2
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hello,
Just back from BS who said mammo 3d and ultrasound now, I said ok but I want mri in September, as base after the 2nd breast reduction, he says we must find a good reason to justify it, I asked if a panic attack would be enough ???? And told him either he says yes or I ll go to GB!!!! He said no don't do that, (the ONly reason i have the best doc in the hôpital is that hé was outraged i to ok my care to GB when his assistant was being an ass!!!!) but get the mammon and ultrasound done and then we'll see. Not good enough I said, and I ll come on a horse with a sword in September to have that battle with him. So I know he ll give in (hé said hé wasnt Saying no)- don't mess with me !!!!
Right, next 6th April: mamma and ultrasound
Advocate, advocate, d'avocate....!
Best,
Alicki
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dwd 79,
My insuline is at 19, norm is at 15 (homo test). Nô idéa what that means but will Ask about AB
Best
Alick
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I think Ive logged everything so far.. I average about 12 appts a year for the last 2 years ( biopsies, lx, post op..etc) tomorrow is my next manual check up and the first for this year... Im pms-y and boobs are wicked sore so this will be awesome.. BUT right after the early morning appt.. off to Disneyland!!!
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Aliki that means that you are making a lot of insulin but you are not using it efficiently. This points to type 2 Diabetes. For lots of reasons you should get in Metformin or Glumetza because they will help you use your insulin better. You are in the process of burning out your pancreas. Read The Diabetes Solution by Richard Bernstein MD. That's my best advic
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I think most breast centers are moving to the 3 d msmmos. Only problem is your squeezed for slightly longer time than with 2 d
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trish---my mammo in Oct was a 3d tomosynthesis. my radiologist said "you really don't need MRIs anymore, these 3d mammos are just as good" (apparently it looks at multiple slices / angles thru the breast in a similiar way that an MRI does); I have to do some research on my own first, before I decide on continuing with MRIs or not. (cuz after she tried to talk me out of MRIs, then she wrote on my report "MRIs recommended fora risk of 20% or higher", and mine is about 35%).
anne
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Hello Anne,
Why on earth do doctor KEEP trying to talk us out of MRIs? They have a new 'play tool' the Mammo 3d, so they decide that they don't need the other play tool anymore. I have scar tissue on my chest wall, lots of post-surgial changes, which a mammo will never pick up clearly and hence my decision to advocate for MRIs and to alternate MRIs and mammos.
Do you research, but after doing mine, I've come to the conclusion that NO TOOL is perfect that only a combination of tools (and an excellent radiologist) will do the trick and hence, for all their screaming about 3ds, I will continue to do MRIs. This is my third year into breast issues.
You can only do what you think is best for you. But meanwhile, my two cents!
best
Alicki0 -
In the same lousy boat ladies. Two Oncologists now have told me I don't need MRIs or maybe one every two years should I live so long. I was due to have one next month and I think due to DX it would be covered but two say not needed
Although docs have steered me very wrong in the past I have ti think here they may know something more than I do but I'm not comfortable with just once o year imaging even though 3D did pick up my issue
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Hello,
Its exhausting. We fight to stay well and on top on that we need to fight docs to get what we need. One doc was amazed That I knew medical vocab and thought I was a freak because I didn't need interpretation services for his medical jargon!
Heavens!!!
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Hi ladies I went to my appointment with my mo on the 24th. She clarified everything for me , my follow ups will be next 6 mo us then 6 mo later mammogram then mri. The reason being ins only covers one mammogram a year and mri unless it's for diagnostic purpose then they approve it but it's more out of pocket cost. So they separated it to where you have 1 mammogram, 1 us a year, and an mri every 18 mo. She said 3 D mammogram does not take the place of an mri it's just another tool . She also said to much radiation and imaging can also be harmful. So I will be in a 6 month rotation.
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I have also asked about soy lechitin, I don't know if anyone here is a chocolate lover or sushi, but yes it is OK to eat. When they say no soy is soy foods or soy milk. (Tofu ) I'm happy for that 😁 wine is still a no, well on a daily basis, it's OK once in a while. Just sharing a little of my appointment conversation with everyone.
Alicki I hope they can sort everything out quickly.
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Hi,
Just found am indentation on m breast over the nipple when i taise my handsome over head. Appointment is 6 Aprile, fed up of breast issue
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Tinkerbell - it sounds like your mo went well. Are you happy with the follow up plan? Thanks for letting us know how it went. I've been thinking about you.
Ddw - how are you doing?
Alicki - how are you doing?
Frankie
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thanks for asking Frankie. Nice of you. Doing fine on Evista but still not sure what to do about surveillance. Confused .
How about you
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Hello,
I Have a mammo 3D and uktrasound on Wednesday. MRI later in the month.
I had another ultrasound done At another facility (long story...) and it was fine so fingers crossed. If the woek up is ok, then i can get my areolas And nipples tatooted. I lost them due to bad 1st reduction in 2013. If everything is ok in 2016, back to yearly checks in 201
Will keep u posted, Thanks for the support, it means a lot to me!
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will
Be thinking of you and sending positive prayers !!!
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interesting but I can only say that I've been on it for years and it didn't prevent my ADH from happening. Hasn't help the Diabetes much either
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Ddw, I'm sorry that Metformin hasn't been much help to you. Of course, even if it ultimately is conclusively proven to be effective for BC treatment and/or prevention, that sadly is very unlikely to mean it will be effective for all people. For me, it seemed like it was well worth a shot, since there didn't seem to be much down side. At the very least, I think it's been helpful in losing weight, which has been a proven deterrent to BC (and it wasa great excuse to buy new clothes!)
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