Member of the "6 Month Watchful Waiting Club", Unite!
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Sunnygirl do you know the measurement from the calcifications? My daughter had the DR Radiologist do it in the office righ
t after it was found on Mammo and Sono. So maybe you could find such setting? Recommendation from Radiologist? She had a stereotactic biopsy guided via Sono, then there is another type that my other daughter had it was guided with an MRI also at the office.
You are not hypchondriac, you are a Human Being very scared. So who would not be? Definitely look out for yourself. How many calcifications did they see? More than 7? In what shape where they formed? It all makes a difference. See if this is helpful for you to understand what's what
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Hi everyone, this is my first time posting here. My craziness started Nov. 2014 when I first was diagnosed, and I guess being naïve I thought this would be over quickly. After surgery and radiation last year this past October I had a mammogram and ultrasound which again the results stated suspicious findings. After the stereotactic biopsy this past January I again was tested and now the clock starts ticking for my next 6 months. I'm sorry for what you all are going through, it's not easy to be positive about all of this but with God's help I'm going to take one day at a time and try to make some sense of it.
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Arcats what suspicious findings?
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Thx momallthetime, that was a helpful link. Had my mammo yesterday. Called back to take more views. Told to wait for the doctor. Waited. Waited. And waited some more. Finally was told that the doctor was tied up. Go home and we will call you. Still waiting. I figure that's a good sign!
But my question is, what is the risk with all of these additional mammos, in terms of radiation on the body? I know that it is a question of risk vs benefit, but without knowing what the risk is, it's hard to know the answer to that question.
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Sunnygurl I am so mad, I just checked in and saw your post. This is so wrong, sorry to tell you. Which state are you in? What kind of place would do that to someone? This type of anxiety? First, if you didn't yet, you should call them and ask them to fax the report or send it out asap. ALso, it's always a good idea if you could tell them to send to your Primary, if you have a good rapport with him/her, then they should be able to call up or something and get the results asap, and you could find out sooner. Or you GYN, they could call up.
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Sunnygirl, I wondered the same thing leading up to my diagnosis. I had a cyst that they monitored every 6 months with an ultrasound and yearly mammo. Then the ultrasounds became every year and stopped, and they just did a yearly mammo (big mistake). About 3-4 years ago I went in for my mammo and the technician took 8 views of the cyst spot, all in one sitting. And at the time the cyst was painful. I knew it wasn't right and when I read up on the amount of radiation I made a complaint to the health plan/clinic's corporate office and I believe they may have let that technician go. Now I wonder if something had "triggered" in that appointment, but I'll never know for sure. My doctors say that they don't do more than one mammo per year, and it's just alternated with MRI or ultrasound so you have some type of imaging every 6 months. I think that type of monitoring is safe.
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This thread has been quiet a while, but I thought I would post.
I am a new member of the 6 month club.
I am 33 and had some bloody discharge from my nipple so my OBGYN sent me for a mammogram and ultrasound. He suspected intraductal papilloma and surgery. I had my ultrasound and mammogram this morning and the doctor gave me my results immediately. They did find the papilloma and I would need a ductal excision to remove the affected duct.
BUT, they also found a fibroadenoma, and want me back in 6 months for another ultrasound. The doctor assured me that the tumor was usually benign and might even go away on its own.
Under normal circumstances I wouldnt probably be so nervous...but my maternal grandmother had breast cancer when she was 38 years old, and passes away from ovarian cancer when she was 42.
My Mom is worried (obviously), I don't want to let her know how worried I am as well. I know it's all in God's plan and perhaps this papilloma was his way of getting me tested early so my doctors can keep an eye on things.
I was just looking for a place to vent, and perhaps see if there is anyone out there with similar circumstances.
Thanks ladies!
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Hello,
Just popping by to say hello. Breasts are fine now, next check-up in September. I've been having other issues (hyperinsulinism and gall bladder) so I
disappeared for a while. I hope everyone is fine. I know there are a few of you due for September/October checks.
Have a great summer
Best
Alicki
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i am on year three of the watchful waiting. Every six months or sooner depending on breast changes. My MRI is the 18th and I have a lump in the breast of concern that they have been watching. It enhanced on MRI in Jan then when i went for the biopsy it didn't even show up when they injected the dye so no biopsy was done, come back in 6months and just got genetic testing done (neg thank goodness)...it is frustrating and scary. I feel like all I focus on is the waiting and it is starting to steal my joy. I am glad there are more like me out here. Hope it's ok if I pull up a chair and join you ladies.
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hi Crmnsuga. You are so welcome here. Let's put the positive spin on this and say that you are so special that Drs want to make sure everything stays benign and appts are non eventful.
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Hi alicki - nice to hear from you. I've been wondering how you are doing. Sorry that you are struggling with hyperinsulism and gall bladder issues. I have osteoporosis and a bad back that prevents me from doing weight bearing exercises - needless to say I'm not sure how the weak bones piece will play out for me when I can't exercise. My next 3 D diagnostic mammogram and ultrasound appt is September 12 - obsessive anxiety is creeping in.
Welcome crmnsuga197 - please do pull up a chair and join us. I understand what you mean by the waiting is starting to steal your joy. In 2 months I go for my 3rd 6 month check. Let us know how your appt on the 18th goes for you - and yes hopefully it will be uneventful. Check in with us as often as you want. We "get" it. Hugs to you.
Frankie
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Hello all,
I was diagnosed with LCIS in my right breast in January after a CNB and excisional biopsy, initially BIRAD 4. I've been on Arimidex since February. On 7/6 I had my first 6mo f/u diagnostic mammogram. A number of calcifications in my left breast and a huge area of something in the right. Tomorrow morning I go in for my first MRI and I have to tell you, I'm a little freaked out. I have a lot of confidence in my MO, but the thing is, he doesn't like to do MRIs unless he's concerned.
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Good luck to you tomorrow Zoggina. I have found that a little zanax helps with MRI days. While the machine noise is a little freaky, I try to imagine myself somewhere I consider a happy place. Wishing you benign findings.
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Good luck and good wishes from me too Zoggina! Keep us posted
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I guess I have joined the club! Diagnosed in January with lumpectomy and reexcision with radiation finished in May. Just started tamoxifen this past week 5 months post total hysterectomy. MO said I could have mammogram of right unaffected breast now and wait the six months for left, but BS said to just wait and do them both around end of December - would also help me from paying anything since I have met deductible for the year. My question is this. BS said after this, I wouldn't have mammogram for another year. I thought that I would have some kind of imaging every six months for the first 2 years?
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hi Frankie and gals,
Just made the appointment to have my nipples tatooted since I lost them due to bad breast reduction (yikes!) in 2013.
I go in August 11 to see what she can do and will report back then :-).
Check up breasts in September.
Best
Alicki
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Thanks for the kind words and thoughts, everyone.
So, MRI was BI-RADS III. No evidence of malignancy on MRI but still clusters of calcifications in both breasts that we are watching. I will see the MO again in October, my next scans are in January.
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Next up for me in November. Beginning already to be a little worried about it
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Welcome loving, some I have seen have alternating scans every 6 months. For me I just get mammogram 1x per year with physical exams every three months between surgeon and MO visits. Unless the feel I need ultrasound or MRI.
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Hi alicki, ddw79, and new friends - my next 6 month follow up (and my first 3D) is September 12. Anxiety is difficult to deal with already. I'm more worried because it is a 3D. Every time I start to calm down, it seems like it's time to go back again and each time my anxiety increases. I started neurofeedback and it is helping a bit. How are you doing ddw79? And new coping ideas? May we all find peace as we go thru this process.
Frankie
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zoggina what type of cluster calcifications? It makes a difference which type, they don't wanna have it biopsied?
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I'm thinking of having a support group for oncoblot positive people to exchange ideas and suggestions. ONCOblot cancer test, sensitive and specific, explained in brief video https://t.co/dKotCjXsIs
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Hi Ladies
I'm back at you. I just had my first grandchild ❤️👏. I'm
Eternally grateful that BC didn't get me first. The event has taken my mind off of this for a couple of weeks.
I am still taking the Evista. I have no idea if it helps or how long I should stay on it. It's been about ten months now. All I know is that I was very scared to start it because I am a type 1 Diabetic too. No trouble with it at all!
The anxiety about the next test is always with me too. The break with the grandson was good and he kept me pretty busy for a week.
So much good luck to those coming up in
September!
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Hi,
Congrats on grand child!!!! Im gland you re doing well with Evista. I need to go to Breast specialist on 24th
My under collarbone area is swollen. I was doing a lot of sports so could well be that but best to Check. Then regular Check on 13th September (ultrasound).
Lymph nodes seem ok but you never know....! Best to check
Best wishes,
Alicki
pS: There s a whole bunch of us on the march/September follow-u
bTW: i have insulin resistance/ no diabetes or pre diabetes. Was diagnosed with gallbladder bilary colic which was causing havoc - waiting to do op to remove gallbladder, end of year!!
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Thank you and congrats on the diabetes free life. I cannot begin to describe how difficult life truly has become with type 1 and now all of this breast cancer issue.
Lots of good luck going forward with the scans. I pushed mine off until November. Hope that was not a bad decision
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I doubt it's a bad decision, we NEED breathing space sometimes....
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Hi ladies
It's been a while, but i check in once in a while.
Ddw79 congrats on the new grandbaby. Mine is 10 months now and growing by the day. He's also been keeping me busy and my mind of bc.
Good luck alicki hopefully its nothing.
Djabi good luck on your follow up. I also go for my second follow up in Sept, the anxiety gets worse as the days get closer. I dont have a date yet for my follow up but i know its coming up.
God be with us all...😓💟
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Thanks it's only a three week delay in truth . But if I find DCIS or more invasive cancer this time I'll be just doubly upse
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Thanks Tinkerbell and much goodness coming your way to
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Just checking in to say hello to everyone. I'm so grateful for your friendship and for continuing to visit our little group to share news and encouragement to keep us all going. I'm still on evista with no problems at all. Congratulations on new grandson Ddw79! and so glad you had a bit of a break from worry while enjoying the baby. So sorry you are struggling with the diabetes along with the apprehension ofpossible bc. I can only try to imagine how hard it is to deal with both of those issues. Nice to hear from you alicki and my best wishes and highest hopes that any new symptoms turn out to be nothing. May we all somehow find peace as we go thru this process.
Frankie
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