Survivors who had chemo etc and are into Complementary medicine
Comments
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I'm on 50,000 X 2 times a wk. D3 mine is so low. After a year mine is still low.
Correction my prescription bottle says D2. Are D2 and D3 the same? Medco said they were the same, except D2 is plant based. True?
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Tim Tam......great to see you again!
How are things in Japan right now - is everyone safe that you were worried about?
Sweetbean - I took oral mistletoe (Iscador) for a couple of years; the injections are the more usual route, but I did not fancy that. It is used a lot in Germany, but most of the studies are inconclusive as to the efficacy.
Sam
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My doctor just perscribed Vitamin D for me as mine is low. Will I notice any benefits from taking this?
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My doctor just perscribed Vitamin D for me as mine is low. Will I notice any benefits from taking this?
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wow, this thread flies...hmm, i'm going to jump in and ask what the deal is with mistletoe. Benefits? risks? i keep seeing it mentioned.
@Susan - yes, i am happily perusing the raw cookbook. I won't go totally raw - I can't even wrap my mind around it, although I'm not opposed to the idea - but wow! didn't know there were so many options. Always thought it meant salad, salad, more salad.
another idea for quick lunch: i saute fresh spinach with LOTS of garlic, in olive oil. spread hummus on a brown rice wrap/tortilla, roll up, voila! tasty and filling.
re: colonics: um, no thanks. this body has taken enough poking in other places. the "Crazy Sexy Cancer" lady is a big fan, but I find her slightly annoying anyway.
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sweetbean what is mistletoe suppose to do for you. I have never heard of it.
As far D3 I am on 2000 units per day and I started out in Feb at 32 and just had it check on tuesday and it is up to 57.6. MO says he would like it to be at least 60 to 65 so I am almost there.
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re:colonics--I agree with whoever said if you are eating high fiber, etc., you shouldn't need them. You could just end up irritating the bowels. Maybe if all you eat are starches and red meat, and you don't have bowel movements very often, it might be beneficial. But you could just have a bowl of high fiber cereal instead.
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For D I take:
• Vitamin D 400 IU (included in calcium)
• Vitamin D3 1000 IU
• Vitamin D 400 (in multivitamin)I was very low. They put me on prescription first. Now I'm slightly above normal.
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lago - - I just read your earlier post about sharing the colonoscopy print out on Facebook!!! OMG ---- too funny!!! Unfortunately I am scheduled for mine next week and am not looking forward to the toxic drink.....
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I am laughing as I read this thread and fill up my pack for the Seattle-to-Portland tomorrow. Because much as I try to eat a reasonable diet, there are times when you need to do otherwise. What I have in my pack:
- Ibuprofen for my still-hurting ankle.
- Accelerade for hydration, electrolytes, protein, and energy. Magical potion for long rides.
- GU gel, or the stuff that makes hills half as high. Really important when energy starts to drop.
- Larabars. Fruit and nut bars for energy.
- Shot Blocks. More energy and electrolytes.
I will be eating a lot of other stuff I don't normally eat along the way. Really important is energy and hydration. You burn off whatever energy you have stored at about Mile 20, and I am doing about 100 miles each day.
I will eat regular food tonight, but after the "colonics" discussion will lay off the delicious figs I just bought.
Way to many miles between Port-a-Potties!!!!!
Reminder to self to make sure I look out for side roads when doing pit stops. I think I gave the guy in a truck a wee bit too much of a view last year. (This was in one of those stretches where restrooms were scarce.) - Claire
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Have a great ride Claire!!!!!!!!!!!!!! Hope the weather is good.
Do you ride back the next day or take train or?
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My friend's husband is driving to Portland to bring us back on Sunday. My car. Othewise bus back, and then usually have to go back to Cascade to collect my bicycle.
Some people ride back, but I find two long days on a bicycle seat is enough.
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Claire how exciting for you. I have just started cycling because walking hurts my hip to much. Don't know that I will ever be as hard core as you but I do enjoy it. Have a great time and don't flash too many truckers between port a potties. hehe
lago I got a chuckle out of the FB comment, but what is really scary is I bet someone as actually done it.
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A friend of mine is daring me to do it. Maybe I'll just post it on her wall.
Something she can look forward to in the future. She's only 34. 0 -
Good job girls getting your butts checked! Remember--don't wait until you are 50 is you have any changes in bowel habits (I won't go into any more detail than that--but pm me if you want more info). I was only 44 at dx. Sometimes you need to request it if you are younger, because not all docs realize younger people can get it too. Thankfully my doc suggested I get one when I was having some trouble, as I was already stage 3b!
OK, I'll get off my soapbox now....
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I have chronic diarrhea. I'm scheduling a colonoscopy and endoscopy for the fall when rads is done.
The expect to find celiac disease. But I really wonder if it's something else (IBS).
I'm taking notes from all your posts!
(I'm 35)
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pejkug3-if you do have celiac then you will need a gluten free diet. DH is allergic to wheat not celiac disease but the same diet. the best cook book I have found is 1,000 gluten-free recipes by Carol Fenster. It has great recipes.
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Claire, have a great ride! My firend was going to do that but she broke her leg in a wreck doing the century around Tahoe for L<eam in Training!
Have you guys got the Justin's Peanut Butter or Almond Butter in the little squeeze packs? They're awesome fuel for rides. I'll alternate them with the Gu packs. I'm partial to Stinger gummies (made in CO) and have just discoviered 18 Rabbits, which is like Lara bars only better. But it sounds like you're set! Ride on!
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I'm a long distance runner and GU is an absolute necessity. Its like filling up the car with gas.
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I don't even know what GU is!
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That makes 2 of us, Omaz...
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Nor do I
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I don't either but am chiming in to wish Claire in Seattle luck and fun on her ride. I used to be an avid cyclist. nothing is as fun. Unfortunately, my knees are shot and I haven't ridden on a long ride for 16 years. I used to make a baggie of natural peanut butter, rice krispies and honey... just too rich without the rice krispies which made it much easier to eat and swallow, especially when one is rather low on water.
no no to colonics.. for me. ick. I don't know what the deal is with enemas.. they used to be rather popular. I think for some there was a bit sexual pleasure in the cleanse..
"the best cook book I have found is 1,000 gluten-free recipes by Carol Fenster" and thanks for that SherryC... My son went on a no carb diet and not only did he lose 30 pounds but his psoriasis went away. My sis avoids glutens and it serves her and her 'diseases' well. I suspect son #2 is gluten intolerant as well..... getting him to control his diet is a challenge tho.
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pejkug3,
the treatments can also contribute to diarreaha, but make sure to get it checked. If you have strong feelings it is celiac, you could go gluten free for a while & see if that helps. But stll do definitely have it checked.
And to emphasze Tina - please don't wait until age 50 to have colonoscopy if you have any, any unusual symptoms. And if anyone in your family has had colon cancer, please have your first colonoscopy by age 35, 40 at the latest. So easy to treat if treated early.
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LOL--since I'm single --GU has always meant geographically undesirable.
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GU is a brand name for a form of gel that endurance athletes consumer. It has carbs and electrolytes and tastes like cake frosting. It comes in little packets that you can rip open and ingest (always with some water) easily. During my marathon I consumed 4 or 5 of them.
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Apple, Sexual pleasure icky no enemas thank you.
I will have to see if I can find the gluten free book at the library. I find it interesting your son is psoriasis free. That is something I would love if I could get rid of mine. I hate using the steroidal creams every day.
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I quit using steroidal creams on him in his early childhood.. they would work, but only if I kept using them and that didn't seem right to me.. The only thing that consistently worked for him (and his psoriasis is pretty severe is vitamin D and sunshine.. we even have a winter sunshine lamp that he reads under with it shining on his knees.
My sis has psoriasis something bad.. poor thing. she is in town right now.. Anyway she swears by gluten free for herself.. that it get rid of 85% of her psoriasis.. she just seems to have scarring now.
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apple,
I agree using the cream daily doesn't seem right. I never had problems with it till about 11 years ago. What is even stranger to me is it cleared up while I was in active BC treatment. It came back about 3 months ago.
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Kira...I just read the article you posted a couple of pages back. It just shows how insidious this disease is. It doesn't follow the rules!
I too have psoriasis. I did find the ultimate cure. FEC100! Cleared it up right away. Unfortunately the taxotere brought it out in my head and it is still bad there. But four years later I am just getting the odd spot starting on my arms and legs. I did find it interesting that I was a mess for a year before bc dx. My hands were so bad that I had to wear the fingerless gloves all the time. I have about 15 pairs of them still in my drawer somewhere.
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