Any October 2011 Surgeries out there want to wait together?
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Kelleyrod --- sendy tons of prayers your way that the kidney is ok......
Ginger -- I know what you mean about the year. I feel the same way some days it seeems like yesterday when I got the call that I cancer and other days it seems it has taken forevre to get to where i am. my 1 year is just behind you - April 21
Kim -- welcome back. do you have tissue expanders that they are going to exchange or are you having a lap?
Cookie-- good luck with stage II
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Kelleyod - Those grey areas stink. I'm sorry you're left with so many questions. And I'll be praying for good kidney scan results.
Kim - Good to hear from you. Sounds like you're well on your way to wrapping everything up. Good luck on your exchange.
CookieMonster - Good luck Thursday! I hope they're able to get you the size you want. Maybe this is an odd way of looking at it, but looking ahead to my exchange, it's almost refreshing to think that the 'worst' outcome of surgery could be that I wind up the wrong cup size. Not that I'd be happy, of course!
Ginger and Margie - Congratulations on your upcoming Cancerversaries! I guess maybe you two are the first of our group to hit that point. Keep moving forward!
Made it through work today, though I resembled a zombie at times. Even my BF, who saw me over the weekend before heading home yesterday midday, was shocked how sluggish I was. I'm feeling better, though. I've just had to learn to slow things down before I start feeling it. But I am starting to feel the burden of 'cancer' lifting just a bit. I know it will always be there, but I'll grab anything resembling normal any day.
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thanks for good thoughts all. . . .
Kim - meant to say Hi to you earlier! It is very good to see your face on this thread. . . . I hope this exchange is boring, boring, boring and easy for you!
Rachel - slow and steady. . .slooooww and steady!
take care ladies. . .
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Kelley- I did not have chemo or rads either because docs did not recommend it so I know what you mean about feeling stupid but I did/am doing everything I was told to so I have to believe it is enough.
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Hi Girls,
Well, I'm feeling like I was let down completely. I was in the ER for chest pains, they did a CT scan w contrast, and lo and behold, next thing I know the ED doc is talking to me about 'my bone cancer..."??? WTFH! It seems to have spread... HOW THE HELL CAN THIS DOC SAY IT SPREAD? I was never diagnosed with mets or bone cancer!
Just talk to my onc, she said, yes, there is something there on my T8 and 1-4 ribs that wasn't there before. Next week I will have an MRI with contrast, followed by a biopsy.
Kelly, let's have our own WTF party...
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Oh Eema... I can't even put into words how sorry and upset I feel for the news you have been given. You must be feeling so scared, angry, and a whole host of other emotions. WTF is right! This is just all so very, very wrong....
To All~ I am terribly sorry for being so absent from the boards once again. I am so much better corresponding via email so please just ask me if you'd like my address or FB info.
Cookie Monster~ I'll be thinking of you tomorrow. I'm sure your exchange will go A-OK
Rachel~ (don't know why I can't seem to "bold" your name!) I know I've said it a bazillion times, but I so admire your attitude. You would make such an amazing advocate for those just beginning this journey.
As for me, I continue to float in waiting mode. Based upon last week's scans, my surg onc believes I'm safe to wait another 4 months for reevaluation of my enlarged nodes. I want to trust.... he has yet to do me wrong... but well, you all know how hard it is to put your faith in someone's hands, kwim? Heck, it's tough putting faith into the hands of an entire medical TEAM!
Eema, again... know that you are in my thoughts and prayers and will be hoping for the best possible outcome at your MRI next week.
Hugs to you all~
AJ
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Oh Eema, haven't checked in for some time and when I just did I saw your last post.... you must have been left totally shocked and speechless by such an abrupt and tactless ***hole.. how can this guy be so sure anyway??? Just try and hold on and look after yourself until next week and the biopsy..it's only then that they can say anything with certainty, the rest is speculation. My thoughts are with you dear friend...
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Eema -- I am in shock and cannot image how you are feeling. I agree WTF. I am sending you a ton of prayers and good thoughts for your test next week. --- sending you a huge cyber hug.
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Eema!! HUGE HUGS! I'm sorry to hear about this being dumped on you. So so sorry. Sending positive thoughts/vibes and virtual hugs your way.
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Eema- I can't believe this latest news. Sending you tons of hugs and prayers. Wish I could make it all go away!!!
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Eeeeemmmmmaaa! WTF is right? WTF. . . ! Crap . . . This is just not real.... Ok, no jumping off bridges until we get scans and results, deal? You must have faith that this is not what it appears to be. . . . I am echoing the rest of the sisters shock and love for you. . . . We are holding you up. . . .WTF.... Just shaking my head. what day is the MRI?
Cookie. . . You can do this tomorrow and do it well. . . Keep us in the loop when your Are able. . .
AJ . . . Waiting zone feels like my gray zone. . . I am hoping and praying for your peace as I pray for my own . . . Totally get what's you are feeling. ..
Thinking of you all tonight. . . .
Kelleyod0 -
Hello surgery buddies - sorry for the duplication if you're a December buddy as well.
My stage II went fine, or so the PS said. For the DIEP in December, the abs hurt more than the foob, for this one (he did a foob reduction and a bit of lipo on the side near the foob and revised the ab scar) the boos seems to be hurting more than the ab. I think the local pain meds are starting to wear off in the ab area and it's getting just a little achey.
I did have a leakage problem this time though. In recovery I noticed some blood beneath the foob so we wiped it up and the nurse put some gauze on, I put my shirt on (decided to forgo the bra - luckily) and they got me headed out. When we got down to the entrance my shirt felt damp and when I looked it had gotten blood on it, so we had to go all the way back upstairs and get it taken care of. The nurse paged the PS and he told her that it was fine and not unusual - wish he would have told the nurses! But once we put another piece of gauze on, it settled down and I'm fine now. I did have to wear a hospital gown home, as I didn't think that showing up to pick DS up from his playdate today in a bloody shirt would be a good idea. HA!
Now onward we go - oh, it just dawned on me that I might have to sleep on my back tonight - YUCK!Sending positive vibes forward to those who need it much more than i do now.
Off to the MO tomorrow for a follow up.
-Judy
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Hello everyone. It has been a looooong time since I posted. I come and read from time to time, but find it hard to jump in when there is so much to respond to...but,now, I must jump in...
Eema....I am thinking of you. And hoping for all the best for you...
Kelleyod and AJ...I hope that the waiting gets easier...(like it ever does??!!!)
Everyone...you are all in my thoughts.
I am going through my every three month appts...and my next mammo is Monday. I found a lump in my remaining breast, but the bs thinks it is simply fibrocystic. I am inclined to think he is right, but he wants to add an ultrasound to the mammo for next week, just to be sure...sounds fine with me.
I am hoping for all of the best for all of you. Even when I do not post, I am reading and thinking of you all.
Claire
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Cookie-that sounds like it would have been scary; hope everything is ok!
Claire- nice to see you and I will be thinking about you on Monday. I found a couple of lumps a few weeks ago and I know how our mind can get ahead of us. Mine were just cysts of lymph fluid. Let us know how it all turns out.
Eema- I am praying and praying and praying some more for you!
I had a very uneventful 1 year anniversary of my diagnosis...I guess that is a good thing. I am ready for some "uneventfulness" in my life for a bit. We have a 3 day weekend off from school for Easter; looking forward to getting some rest.
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Ginger - it was worrisome, but I wasn't bleeding profusely. It just meant an extra long wheelchair ride (2 laps instead of 1). Just a bit more gauze and I was once again, good to go.
Good to see you Claire. It's hard to stay up with everything, but I don't think any of us take it personally if we don't get specific greetings from every poster. Visit when you can, post when you can.
To those with a 3 day weekend - enjoy the extra day. Happy Passover to those who celebrate it, and Happy Easter to those who celebrate that one. Me, we'll do some of each, but not religously. We have a friend who throws a themed Easter party each year. He was diagnosed with Parkinsons in the past year, I think it was. This year at my suggestion he chose the theme of disease - in "honor" of all of the people in our group of friends who have been diagnosed with nasty diseases. All the food served will have either fungus, bacteria, or mold in it - the menu looks amazing!! (cheeses, mushrooms, yogurts) Then on Monday it's back to work for me - Yay and BOO all at once.
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Hey sisters. . . .
Who is juicing out there? I finally got my juicer and diving into it. . . . any good combinations to share? One of you said carrots & apples - tried it! Loved it! Anything else? Looking for good, fun ideas!
Happy Easter & Passover all. . . .
kelleyod
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Margie C- I had tissue expanders placed at the time of my mastectomy. Will be getting implants instead of a flap. I'm still going back & forth between saline vs. silicone. My PS is really pushing Silicone saying it will be more natural and visually appealing.....decisions, decisions!!
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Kim - I have the same decision. I'm leaning toward silicone, but....
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Happy Easter to those who celebrate it!
Kelley- I did not get my juicer yet but would love to hear what you have tried so far.
Kim & Rachel- My PS said she only does silicone so I did not have to think too much about it but I am happy with the way they look.
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Kelley- I just found this thread...might be of interest to you.
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Kim and Rachel -- my PS recommended silicone for me since they look more natural then saline. I am happy with how the silicone implants turned out. Check with your PS to see if they do fat grafting. I had that done a couple of weeks ago and it made my implants look more natural.
Kelly -- I just got my juicer too and interested in any recipes you all have.
today I get my stiches out of my new nipples. It will be interested to see them without all the black tread on them.
happy Monday everyone
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Juicing update. . . .
I love it. My kids hate it! ha!
they say I've "gone vegan". . .so not true. Not that I wouldn't. . . just haven't ventured there yet . . . Oldest Daughter's favorite: carrots and apples ---- got that from someone on this thread. can't recall who! VERY popular.
My fav so far: Kale, cucumber, broccoli, romaine, pear and about 1/2 inch of ginger root. Very green - very shocking looking it's so green - but not bad at all. (Frankly I think if I put vodka in it my DH would drink it - ha!)
I'm trying to get the wheat grass in . . . . my not too successful yet . . . . I'd like to try spinach (focusing on veggies) but just not sure what to mix it with.
Yes, I'm going a bit nutty here - but what the heck? Nutrition is a cancer fighting tool. . . .
Oh - Kidney update: Surgeon called and said, "We don't seem to see any enhancement - which means blood flow to the mass - which implies that this is a cyst . . .therefore we'll call it a 2F cyst and follow it up with another MRI in 6 months. . "
Note the usage of non committal words . . . SEEM and IMPLIES . . .which says to me "Hey - don't sue me if I'm wrong. . ." Sigh. Well I guess I embark on living my life in 6 month intervals. . .ha. . .just got to get all the check ups to align so it's 6 entire months and not broken into cancer zone check ups! (Colonoscopy this week - what fun I am having. . . .)
How is everyone else this evening? Thinking of you with your MRI this week Eema . . . Margie - let us know how those headlights look! Kim - hope the decision is one that makes you feel fabulous once it's made.
Take care - hugs all around . . . . kale juice too!
kelleyod
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Kellyod -- I have tried spinich with apple and carriot and it was pretty good - good luck with the colonoscopy this week.
Eema -- think about you this week with your MRI.
Got the stiches out last night and when I got home and looked closely at the new headlights I freaked out. I hadnt really been paying much attention to them thinking a lot of the black I was seeing was the stiches. When he took out the stiches there was still a lot of black. (bad on me for paying more attention to the nipple and asking while there - I was more focused on the area of my leg where he harvested from). I contacted him this morning in a panic and he said he did noticed the big scab on the nipple yesterday and that is quite normal... some of the nipple will die off and shrink which is normal. It may also ooze a little as well and he was sorry he didn't mention it yesterday. Glad to hear, but me and my DH were freaked out last night. I had in my mind I had a skin eating desease. UGH what we stress over. I'm just glad that it's nothing.
have a good Tues everyone...
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Hello Ladies! I just got the news today that I am officially in remission! Thank you all for your support through this crazy ride! Sending out my love to you all!
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Shannon - That's wonderful news! You made it! I know how hard everything was for you, but you pushed through and won! Wishing you only the best in the future.
Margie - I can imagine why you were nervous. Glad it's 'normal,' but hope it clears up quickly. And my PS does do fat grafting, but only if necessary after the exchange.
I think I'm seeing the light at the end of the tunnel, and I may even be emerging. Still tired when I walk around, fingers are tingly, and my mouth is giving me problems, but I am really starting to feel like the worst really is over. Such a great feeling. Oh - and it looks like my exchange is pushed to June 7. I'm playing a recital on June 3, so May 31 surgery was not going to work. So happy that I can finally put non-medical appointments first!!!
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wow wow and more wow....as usual I am so surprised at everyone's news....good and bad!
Eema...holy sheeeit...I am really hoping the spots on your bones turn out to be calcium deposits or something and NOT friggin cancer!
Rach--yay...for getting through chemo and YAY for the exchange. You will be so glad to have the squishies. Mine are so nice and soft (I admit, I feel them alot just because I am so amazed at the realness..LOL...however they are numb!)
YAY to Shannon for being in remission. I have followed your bumpy ride from your husband posting to your chemo treatments, and now remission. Wonderful!! just wonderful!! :-)
MargieC...I decided to get new fipples. I thought about it long and hard and decided I had come this far. I want to feel complete. I am hoping I don't regret the fipples as I really don't want them poking out through my shirts, etc. I did hear that they flatten quite a bit so will be more realistic to my pre mastectomy boobage. (flat and saggy...LOL) what was your pain level like after this surgery and do you know how long the surgery lasted? The thought of another surgery and recovery is daunting to me and I regret having to put my family through yet another.... I am just going to put myself first right now and do it anyway.
My exchange is finally healing up but it is STILL so dang sore on my sides. I can't imagine lipo on my stomach the way this contouring has hurt with the lipo, etc...I guess in a couple more weeks it will feel tons better. I still have alot of burning and almost feels like tearing when I over do things! Weeding the flowerbed last weekend set me back for several days and had me taking my vicodin. ugh!!
Giving a nod and wave to Ginger48, Dukes Up, Kelly, and CLC... sorry if I missed anyone!
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Just had my exchange surgery yesterday and I'm feeling really good!!! It was so easy compared to the BMX!!! I'd feel much better if I didnt have these drains, but I can live with these for a week!
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Congratulations, Kim!
ILUV- my lipo areas were really sore too; can't believe people do that voluntarily!
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HA! Voluntary lipo, the thought makes me shudder, my small lipo area was also bruised and sore after.
Congrats on the exchange, Kim, sounds like you're moving forward.
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Hey Ladies....
I would love some imput on getting new nipples (fipples). Can anyone share what the recovery and surgery was like?? My doc's office said there is not 'too much' pain as the foob is pretty numb, but the donor site can be pretty sore. I was also told it would be a 2.5 hour surgery. At least they are getting shorter!!
I plan to take a week off and return to work. The doc said I will have to be braless for 2 weeks. I will have to beef up my baggy shirt wardrobe.
hey-- on another note....I started drinking these shakes sold by "Body by Vi". Oh wow are they ever tasty and good. It is a weight loss plan that uses high protein shakes (soy protein) as meal replacement. Think Slim Fast, but GOOD tasting!! I know I have been cautioned about limiting soy products because I am ER/PR++ but I figure the short time I will be on these to lose roughly 30 lbs, it is better than all the risks that go hand in hand with being fat, right?? I don't eat a lot of meat and am good about eating veggies daily and I have stopped indulging in wine :-( If anyone wants to try the shake google Body by Vi and they will send you a free trial envelope. Believe me...I am SUPER picky so if I like these ...they must be good. They smell and taste like cake batter. yumMMM
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