Any October 2011 Surgeries out there want to wait together?
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Eema! So happy to "see" you... but ?!?!?!!???.. what is going on? I'm confused... what did I miss? Cutaneous lymphoma? WTF--- so sorry you are struggling to find answers too.
edited: Reading your blog posts now. I don't know how I missed all of this but I'm here for you
I'm so glad you now have a new derm/skin specialist--- I just ditched my old one too and am currently waiting for mole pathology. 0 -
CLC~ Yes, I've continued to take my frustrations out in the gym It's a great distraction (until the "high" wears off!) I would be so much worse off without the activity. Re: nodes--- it's doubtful that the enlargement is related to my breast surgery; rather, they are more suspicious of lymphoma. I'm trying to take some comfort in that the groin nodes were benign but I'm terrified of the enlarged supraclavicular nodes <deep breathe AJ> I hate the idea of having a CT scan but I'm not sure that I really have a choice if I want answers. 0
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Deep breaths are a good idea, AJ. We are all here if you need us.
Eema I totally agree that surgical menopause is a bi**h!! Our poor bodies are so confused.
Sending hugs to all my October sisters...0 -
So sorry that some of us are still having to face the continuing uncertainty and related anxiety of this disease..Kelleyod keep us updated please, let us know your results when you get them So sorry that it has also been such a tough year for you Dukes_Up, and that Eema and Rachel also have questions which need answering... Good luck with all tests, scans, x rays, etc etc... Hope you all have a restful weekend, free from too many anxious thoughts....
I'm going to a wedding on the beach tomorrow evening and am hoping that my rather tight and sexy (or so I think!) dress will fit, after too many good meals this week. My daughter here on holiday (she lives abroad) and my carefully controlled healthy diet seems to disappear when she's here! Love to all xxx
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AJ - Glad the gym has given you an outlet. Wish I could kick myself back into the gym habit, which was pretty sparse in the past to begin with. Any more news? I understand about scans - they're a pain and cause such anxiety, but they are the only way to find things out - even if it's a negative.
Eema - Hope things are going better.
Maria - Soooo.... how did the dress fit? I hope the wedding went well.
Speaking of scans, my sonohysterogram showed that I probably do have a polyp and my gyn wants to remove it. So looks like a D&C is in the near future. I'm thinking I should just have all the plumbing removed, but I am not ready for menopause. And now my scanxiety is focused on xrays on Wednesday - I've had a cough since May, and even though my doctors keep saying my chest 'sounds' clear, my MO last month finally gave me a prescription. Wish I had called earlier but I keep trying to be positive, and it could be allergies. I'm almost alway congested in some way. I've also had some back pain. So the rest of the week will be nervewracking. Hoping I can celebrate by the weekend.
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Ha ha Rachel, dress fit, kind of, but would have had to hold in my breath all evening, so decided not to wear it and wore something much more flowing and comfortable, and enjoyed the wedding much more as a result as I didn't need to keep holding my tummy in and restricting food intake!!! Could also dance without worrying about ripping seams....
I have had a pretty much continuous post nasal drip from before diagnosis, a kind of allergy which started about 2 years ago...untreated I cough quite a lot so have had to take antihistamines pretty much without a break since then. I also react v badly to things like mosquito bites, but have only suffered like this for the last 2/3 years...allergies are like that and come and go for no apparent reason..here's hoping this'll be the case for you on Wednesday...let us know! have also had a couple of D&Cs..v simple, no pain, in and out, a picnic after what you've been through..I'd think v carefully before deciding for a hysterectomy...is there any reason to hurry this decision? Take care and good luck!
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Maria - Thanks for your encouragement. Because I'm brca+, the ovaries should come out at some point, and I've been dealing with HPV and now the polyp. So the idea of getting it all out is appealing in some ways, but not in others. Glad you were able to enjoy the wedding. I'm sure you looked fabulous in whatever you wore.
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Oh yes... I think I remember you'd told us about being brca+ ..... well, that's an altogether different story..... and I'm certainly not qualified to give an opinion here. My SIL removed her ovaries for the same reason, but was a lot older than you and was al;ready in menopause...
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Rachel- I had my ovaries and Fallopian tubes out in December. I was 48. The surgery itself was easy. I have some menopausal symptoms like hot flashes now and then but it could be from letrozole (aromatase inhibitor removing all estrogen) also.
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Wow -- I am sorry to see so many of my Oct sisters are having issues. We have all been through so much you would think we could all get a break.
Kellyod -- I'm sending you hugs and good thoughts
AJ, Rachel and Eema I hope you all get good results/answers soon.
update-- I had my cancerversary in Apr and my mastectomy anniversary is next month. my nipple recon has mostly flattened out, but with the tattoo you don't realize it unless you touch them so I am not going to do anything more. I am now still seeing my plastic surgeon every month, but my other Dr are now every 3 months. My plastic surgeon has asked me to be a patient profile for them and they are going to submit it to the women's magazine here - we will see how that goes.
sending everyone hugs and miss you all...
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Hi all
Wondering how you are all doing on this thread, especially Kelleyod, AJ, Rachel, Eema...very best of luck with results and treatments xxx 0 -
Xrays were all clear. Yay! Thanks for checking in.
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Rachel- Congratulations...what a relief!!!
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Great news Rachel!
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I am back... I think I made it to 10 and 1/2 months. I found a lump in my good breast (left) scheduled for a surgical biopsy last Tuesday and came out with a lumpectomy. I will now have ANOTHER mastectomy 10/11 and my ovaries removed. I'm back at this website, because I had (am having) a rough go of friends and family not knowing what to say. It seems here, everyone has a general idea of what I am going through, or can relate. Hugs appreciated, and messages too! Lots of love and kickin' some butt...AWP
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I am so, so sorry to hear that. You've got a lot of cancer butt-kicking vibes coming your way. I can understand how your friends and family feel, and how they may not know what to say. I hope you have at least some support nearby. But we're always here for you.
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AWP - hugs coming your way. Hang in there. Sorry you're dealing with this again so soon after the previous time.
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OH shit AWP, I'm so sorry, it's what we all know could happen to any of us... what treatment are you going to be given after surgery?
Take care of youself, sending hugs and good feelings your way, keep us posted...
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AWP~ I'm so sorry to hear this news
I understand how you feel re: friends/family not knowing what to say. Feel free to PM me anytime. I am so very sorry to know that the beast has returned so quickly Rachel~ SOOOOOOO glad to hear that your chest X-ray was clear! I just had one too as part of my enlarged lymph node workup--- negative
Will shoot you an email... Maria~ You are so wonderful with check-ins and it is so very appreciated. How are you feeling? Still have the post-nasal drip stuff going on?
Margie~ Thank you so much for checking in. Happy Almost-One-Year BMX anniversary
Can't believe it's almost a full year since the majority us became "united." Update: Still anxiety-ridden re: my enlarged nodes. After my last ultrasound confirming enlarged nodes, I now have an appt. on 10/3 with the surgeon who performed my groin lymph node biopsy back in January. Positive thinking and deep breaths don't seem to be helping much but I'm trying...
Sending hugs to you all
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AWP- that sucks! Sorry you are here again. Lean on us as much as you need to. Sending hugs and positive thoughts your way!
AJ- sorry that you are dealing with enlarged nodes. Do they have any idea why? Sending you anti-anxiety hugs!
It was just about a year ago that I joined breastcancer.org and connected with all of you. I am thankful everyday for my cyber friends and have no idea how I would have done it without you!0 -
I'm here, Maria (and everyone else!).
Sorry, I've been lurking when I should have been posting, but I've been following every one. I'm off again this semester with the docs trying to figure out what's wrong. I have massive degeneration in my neck, and quite frankly, I think it is from my implants. They are heavy and drag me down. I'm going to a neurosurgeon to figure out which to do first, DIEP or 5-level spinal fusion. Oy.
Thinking of all my October sisters! xoxox Love you all!
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Thanks for checking in Eema; let us know how it turns out.
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Eema - Is any of this ever over? I'm sorry there's more trouble for you, and I hope things turn out okay.
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Hello October girls..it's 1 October today and for all of us here it's been almost a year since surgery...some of us have been more fortunate than others, some have had issues and complications, but sending much love and good vibes to all of you here...especially those of you who are waiting to see doctors/have more tests and scans/have more surgery.
AJ, good luck for the 3rd...and yes still have to keep postnasal drip under control with antihistamines but if that's the only medicine I need to take, then I'm fortunate! Eema let us know re neurosurgeon, Kelleyod where are you? And AWP sending lots of good thoughts your way for your surgery on 10/11. Greetings to Ginger, Rachel, Margie, and all of my October sisters, and of course Gamergirl who started this thread originally. I've been reading a blog by a poster called Scorchy which I find incredibly moving, funny, informative, sarcastic and witty all at the same time...she's a lady with Stage IV bc, but I can relate to so much of what she says as well admiring her fierce bravery... blog is called thesarcasticboob... bye for now, be gentle with yourselves xxxx
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Kelley just got home from surgery in Cleveland for kidney cancer. She is still cracking jokes and so optimistic and hopefully she will stop by here soon and update everyone.
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Ginger - Thanks so much for the update.
Kelley - ((HUGS))!!! I am so looking forward to hearing from you. I'm so sorry you had to face another round of cancer, but I'm glad to hear your sense of humor is intact. Take care. Wishing you a good and easy recovery.
AJ - Thinking of you! I hope you get some answers tomorrow.
I hope everyone else is doing well as we hit our one-year surgery mark. I'm heading for a D&C and hysteroscopy on Thursday to check out polyps. Then on the 18th I have my 6-month follow-up with the BS - I pushed it up a few weeks because I have two odd things that have recently appeared on the bad breast. Really tiny, but my BS said to check carefully and make note of anything that changes. I basically have one tiny rough patch, almost like a callous, that in the past week has started to look more pimply (ie: teeny lump in the skin?), and then there's a scab-like mark that just appeared in the incision. Hoping it's all just part of the healing process. I just wish I could find a place for my mind to go that could put BC behind me for even just a few days at a time. But I'm glad I have you guys - and that we're still staying in touch a little.
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Kelley, hope you are calmly and quietly recovering and that you are being well looked after...check in if and when you feel like, but not if you don't...now is the time to do exactly what you please....thinking of you.
I have my onc check-up tomorrow, and what with that and this being October, bc is very much on my mind at the moment. Good luck with your visit to the bs Rachel..
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Wow I have been traveling for work for the past month and not been on the site (for the past 4 weeks i have been traveling like I did before I got the phone call that I had cancer 16 flights in 3 weeks - last year my boss wouldn't let me travel for fear of germs). I am so sorry to hear that so many of our group are still dealing with this crap after 1 year.
Kelly - hope you are resting and getting your strength back.
AJ - wow - I have been thinking about you a lot lately and feel bad I haven't reach out. I hope you appointment went well yesterday.
Rachel - I sure hope that little spot is nothing but after effect of healing.
Eema - sending you positive thoughts that they can help you with your neck.
AWP - we are all hear for you. We all understand the ups and downs of dealing with this even after a year has passed.
Hugs to all my Oct sisters - will we ever be done with this
Yesterday was my one year anniversary from my double mastectomy. I was sitting on a delayed flight at the time I was in surgery last year. I started getting a little teary eyed thinking wow I have made a year. In general I am doing good. I went to a survivor summit my cancer center put on and it was very interesting hearing some of the new study results. They had workshops on diet, exercise, alternative treatments, etc. If any of you have an opportunity to go to something like that I highly recommend it.
I have a question for you all who have had a mastectomy - have you gotten feeling back in your breast area? I can feel pressure but not light touch on my skin.
Tomorrow I will be wearing you all on my back
I have a team doing the Susan G race for a cure here in Charlotte. We have signs they give you to write names that you race in celebration for and I will have my Oct sisters on it.Sending you all huge hugs and tons of postive thoughts as we all pass our 1 year anniversary......
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Margie- I feel pressure but not light touch. I hear it can take a long time but comes back for some. I am hopeful!
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Onc checkup came and went and very happy to say nothing to report
Yesterday was the anniversary of my bmx, cannot believe that a year has already passed...my thoughts are with all of my October sisters who are having to deal with more SHIT from this F__KING SHITTY disease. Take care of yourselves my dears.
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