Stage IIb and 5+ years out, anyone?
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Thank you so much to all who chimed in on this post. I NEED to hear this. I passed my one year mark on 3/3/2013. I'm still here! I have a PET scan tomorrow and am scared out of my wits. My sister was stage IIb, ER+, grade 2 and she is 10 years NED!
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Hi, can someone explain difference between so called micro mets to lymph nodes and other forms of cancer that spread to nodes?
(I apologise for my bad english, I m from Europe and learned english only in school)0 -
Somebody with better knowledge than me will come along, but in the interim, I'll offer this: I think micromets are just a smaller amount of the cancer in a lymph node than a macromet.
You can have a few cells or a foci under 2mm at it's greatest diameter in a node and I believe that would be called a micromet.0 -
Hi 5 years out with 3 nodes involved. I'm doing great and am working through my bucket list!
xx
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Hi - 5 yrs out as of July 30 (mx in 2008) and fine, as far as I can tell - well, except for darned arimidex
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Always love when you check in, Maltomlin!
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Awesome, Flannelette! You're another beacon of hope.
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Stage 2b,Grade 3 tumor, with a postive lymph node - 5.5 years later and still going strong. Ran my first half marathon in April - and I was in no way shape or form a runner before b/c!
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And, of course, hearing from Mary is ALWAYS good. Way to go, NatsFan!
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just to make COLT feel better - I had a huge tumor (about 8-10 cm) AND a score of 9 out of 9 on the rapid cell division hooliganism scale. (there is a correct name for this - Nottingham or richardson or something)
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Flannelette:
Making COLT feel better is always allowed. You are quickly becoming one of my favorites.
God bless.0 -
I am in the process of coming off Aromasin in order to try one of the others, I am 52, getting terrible joint problems. Have you ever managed to acertain whether the pain is actually indicative of damage to your joints?
I have also had problems with my speech, more in terms of word confusion than actual speaking and my eyesight has deteriorated quite noticeably.
I am thinking of asking to try Letrozole as the joint problems reported seem to be marginally less on that, my alternative is Anastrozole. The other alternative is back on Tamoxifen which I didnt have many problems with but as I had a grade 3 DCI with 4 positive lymph nodes implicated I feel that I should stick with AI's.
Any advice about the side effects of these two would be welcome.
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Especially for you Colt 45.
I'm doing just great. 5 years on, OK I have some s/e but nothing I can't handle. Life is good and I'm thankful for the opportunity to enjoy life again.
Take care.......you'll get there.
xx
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well. I can't help it. have to gripe a little, so here it is. will they never leave me alone? no. I had the weensiest tiny granule of something in my lung last summer when they were trying their darndest to find one bc cell hidden somewhere in me (because I had enlarged lymph nodes, stemming from the rash from hell, they had to concede).
I had every test going, including 6 lymph nodes removed for dissection. nope. nada. then around last Xmas they just HAD to do another CT scan - or was it an MRI? I've lost track, on my lung again. Nope, the teensy granule had not budged one nano-particle of an inch, causing them to say it's no doubt a scar left over from an old lung infection. Great!
But, is that not good enough? NO! I just had a friggin call asking me to come in for yet ANOTHER ct scan on my lung, this November. arghhhhhhhhhhhhh! Just when you think you're out of it......whammo, they pull the string. so, my utter conviction that it is just a scar turns to a little bit of doubt, and it takes all I have to not let it wreck my day....sigh..right now I know I should be thankful but there's an overwhelimg urge to just tell them to F* Off while I run away
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clairship1......I think you may get appropriate replies if you repost in a forum that deals directly with endocrine therapy (such as Hormonal Therapy- before,during and after; anastrozole side effects etc etc) or put 'aromasin' into search and you should find posts you could add yours to.
Best to you,
Sam (in UK too)
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Flannelette - I agree with Colt. I love reading your posts and you are quickly becoming a favorite as well. Please keep writing and never go away...we need you here.
Today was my last chemo and I want to be here supporting others in 5 years out! This community has been such a source of strength. Thanks, Nisa0 -
NisaVille - congrats on your last chemo...whew, turn the page, seems like the heavy duty part is over.....is it rads next? Hey, your dx is practically the same as mine. IMHO rads = piece of cake! Except, perhaps, if you are in the US, you seem to get twice as many as we do in Canada...I think we end up about the same, except I guess they make ours twice as strong & do it less?(15)
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Flannelette,
My wife has nodes on her lungs that were there 3 years ago. She went to her pulmonary doctor every three years to watch it and it never budged. She has asthma and they were caused from scarring. Sounds just like you.
I can only imagine the hoopla thats gonna cause when she goes for her scan. Im gonna have to explain it to them!
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My dear sisters in survival,
This is my first post to this board. I remember how frightened I was when first diagnosed and how I frantically looked for long term survivors to make sure that there actually were some around. I was diagnosed at age 37 with a 4.5 cm inv. ductal tumor with 8 positive lymph nodes. I am estrogen +. I had chemo (AC), a stem cell transplant, radiation, tamoxifan, and arimidex (which I am still taking).
I was diagnosed on my oldest son's 6th birthday. My younger son was 4 at the time. On Friday, my oldest son celebrates his 22nd birthday!!! I will celebrate my 16th anniversary of being a survivor and still NED. When I was newly diagnosed, I was introduced to another young survivor who was three years out at the time. She also had a stem cell transplant because she had 23 positive nodes. We are still close friends and she is a 19 year survivor and NED.
We survivors are still out here. Believe it or not, the longer time goes by, the less you think about it. We get busy with other things and don't come to these boards anymore. Be strong and know that we are here.
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WOW AMAZING STORY TINA! Can you tell me about the Stem cell thing, how does that work?
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Wow! That is amazing! They don't do stem cell transplants anymore for breast cancer, correct? Just curious, did you have your ovaries removed, or have any sort of ovarian supression since you were diagnosed so young?
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★ ✩ ★ ✩ ★ Today marks 3 years NED for me. ★ ✩ ★ ✩ ★
No nodes but a really big (6.5cm in totally… 5.5 IDC) HER2+,Er+, Pr+ tumor
Plans on playing the lottery later today. Wish me luck.0 -
Congrats to everyone!
Tuesday marks my 3 year "dreaded cancer diagnosis" date. October 2010 was the actual surgery.
Happy to report the past year has been quite blissful other than the stupid anastrozole joint problems. I am scared to death to try anything else because I dont want the cancer to come back. I just turned 50 in June. Had a HUGE birthday party because back when I got this diagnosis I never thought I'd see my 50th.
Things are well. I don't get on here too much because to be quite honest I don't thinking about it too often anymore....which is a GOOD thing.
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Well I was not Stage 2, but stage 4. Seven years ago! Did 6 rounds of FAC, 12 Abraxane and a Stem Cell Transplant at MD Anderson. Finished with all that in 2007 and have been cancer free since then!
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Kasey Anne-very encouraging! What have you been on since 2007? Where was your spread? What type? You give me hope...
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Wow KaseyAnne that is fantastic.
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Hooray for all of you wonderful ladies!
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Kasey Ann! How wonderful! Congrats
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@Maltomlin:
Thanks. Having you looking out for my wife and me means a lot.0 -
Lago: a big "Congratulations" to you on your 3 year anniversary. This inspires me
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