Canadians in British Columbia
Comments
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not sure about cold caps, i am trying to get surgery overwith, then will delve into the chemo chapter of my journey - am interested though!
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Hello All,
I am oldie to posting...going for my mammo next week...yikes. I am 7 years from treatment. Going for this mammo never gets easier...in fact i think I get worse.
Welcome to all of those in BC. I notice a lot of comments on the treatment and the service we are getting. I did pretty well 7 years ago and I am happy to hear that things are improving at the Cancer Agency and that there are more resources.
Hugs and stay tuned....we have our local annual get together "Potluck" in the fall and have attendees from the lower mainland and island etc etc. I imagine we will be setting a date soon
Hugs.... Kosh aka Leanna
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Leanna, can we have it in November? I am off leading another trek in the Himalayas mid Sept. and not back until Oct. 22.
Michelle, you are sounding positive. Chemo can be tiring but the best advice I got the BCCA was to keep moving, getting out for walks even they are short ward off fatigue better than anything else.
Does anyone have "She's" #?
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@Mariannelizabeth, how about Saturday Nov 21? We can do the Christmas theme again?? your house??
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Works for me but how about no gift exchange? Just community and sharing. Looks good for some new sisters too.
Wishing I could reach She! She said possibly surgery on 21st and asked for phone numbers but nothing since.
Marian
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Marianne,
Ok, I am cool with whatever. Did you try send SHE a private message to see if she responds ?
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here I am! I had surgery last Friday and have been mostly asleep since. Im so sorry to worry you. I'm in wait mode now, pathology, scans, the works. I expect chemo for the long haul will follow. My best to all xx
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Oh she I am so sorry you have to go through this again.. Hope all turns out well for you. Are you staying in Canada for a while?
Look forward to our get together again this year If any of you new ladies living in the fraser valley wants to join let me know and we can carpool. I always carpool with koskha We have a great time and even have show and tell.. Nothing off limits. Great support group
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hey ladies
I may be interested in joining the party in november, however i will most likely be starting chemo in october and dont know where that will take me and how i will feel. Ossa, would love to carpool
Keep me posted!!
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Yes , we can arrange car pools
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Off to the Himalayas again~~Nepal/Bhutan/India and home for Thanksgiving. Now if I can only pack!
Nov. 21 here for the potluck reunion and chance to meet new BC sisters! More to come when I return
BTW, am feeling much better than a couple of months ago.
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Hoping for some input if possible.
I was diagnosed with DCIS in March 2013 and in the last year or so have had major pain in my foot. I went to a podiatrist and was told it was plantar fasciitis. I got fitted for Orthotics but doesn't seem to be improved.
It's painful to even put any weight on it especially first thing in the morning. I'm walking with a limp most of the time.
Does anyone know if bone metastasis can go to the foot?
Thanks for any advice or suggestions.
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hi Allyp,,,,highly highly highly unlikely that you have bone mets to your foot....Plantar Fasciatis is really really hard to get rid of and common for a doctor to diagnose..It is very specific where it is found and they know that it is in the "cushion" part of your foot and not in the bone....hence no bone mets. Plus, if you don't take care of your foot it can come back. Trust me! I am plagued with it.
Do not wear heels!! Wear running shoes out and in the house. Do not wear flip flops or thin sandals without cushioning. By a cushion for your foot to stick in your shoe. Also, doc can wrap it up. Orthotics did not help me....cushioning my foot does. Also, maybe some Ibuprofen for a bit.
No pounding sports until it gets better (ie,,,running, aerobics etc).
If you have further worries,,,please post cause you seem to have a case of Cancer-Itis....that is when you think that simple injury is Cancer. It is a normal among us survivors. That's why don't be shy.
Hugs Kosh
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Vancouver and Lower Mainland and anywhere from BC Annual Get Together : Potluck
When : Saturday November 21st
Time: Noon
Where : Marianne's House "marianelizabeth"
Details of address will be sent in private message or by email.
If you have any questions please message me : Koshka1 or Mariannelizabeth
This is our annual get together so hoping to see all the oldies and a whole bunch of newbies!
We have a great afternoon of food and beverages and boob stories!
See you soon!
***carpools and pick ups at bus or skytrain can be arranged!!***
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Hi guys - I just went to a Look Good, Feel Better session put on by the Canadian Cancer Society and it was great. Got to meet some local ladies and got a giant swag box of makeup and skincare items (MAC, Clinique and drugstore stuff). It was a real treat. They also had a part about head covering options (wigs and scarves etc) so it was informative. You can find your local session at www.lgfb.ca/ - it's definitely worth it!
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thanks michelle, good to know
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Allyp71, I had planters many years ago, and yes, it hurts worse in a morning. Orthotics did nothing, I had strapping..nothing, and eventually I had a cortisone shot which wasn't the most pleasant of things but it worked...partially immediately and, so far (touch wood), never to return! Hope you get some relief soon, it's painful
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Hi everybody. I'm new to this group. I was diagnosed this past Friday when I went to see my family doctor for the results of my biopsy done on Monday, October 5. When he said the words: "not good news, you have a cancerous lump and it is a bit big", I think that is all what I remember from the appointment. I was in shock. I have had so many problems with my breasts. I'm full of lumps but never serious. I have had many aspirations and lots of fluid taken out. I have had a previous core biopsy done and the results came back negative. But not this time. The core biopsy came back positive and the word cancer just got stuck in my mind.
I didn't ask how big is "a bit big". I didn't ask for a copy of my pathology results. I know he has sent a referral to Dr. Noelle Davis. I hope she is good. My doctor said she is. So this Thanksgiving long weekend has been a very hard one for me. Luckily my daughters are amazing and I have had an amazing support from them this weekend. Now I guess all I need to do is wait for the call from the surgeon's office to get a date for my lumpectomy.
Have lots of questions, but don't know where to start. I have been reading a lot about lumpectomies and what you all have gone through and it is scary. I'm glad for this group and I see there is lots of support.
I guess I'll be posting once I get my appointment with the surgeon and what she says. Oh boy, a new chapter in my life is starting. I hope it ends well. Happy Thanksgiving everybody!
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Hallo ladies took me a bit but I found you fellow Canucks some of you I know from other threads hi Dee.
So I was diagnosed in June of this year I have my home in Enderby close to Salmon Arm. However as of July 1 I live in Vancouver. I had been misdiagnosed by too many medical professionals in the interior . My family doctor a surgeon another family doctor(because I have always believed in second opinions) an oncologist in Salmon Arm and a radiologist in Salmon Arm. It's a cyst don't worry it will go alway after menopause. Now stage four I have kind of lost faith in our free healthcare.
Goldieone1 Dr. Noelle Davis is amazing she is who I was initially referred to and she probably saved me a lot of pain. At the beginning they thought I was only stage two and the plan was to operate and chemo and radiation. After the bone mets were found it changed everything. No surgery and she got me on Tamoxefin my oncologist Dr. Chia was a nightmare. As a stage two patient he was interested in treating me as a stage four he lost all interest. All water under the bridge.
I hope all you ladies had a lovely Thankgiving
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Welcome Wendy and Goldie! We are thankful for this thread as it is helpful to have "sisters" in the same province. There used to be a great Canadian thread but it got deleted in error and we were told by the moderators that it would be too costly to bring back up.
Wendy, I am sorry to hear that you were misdiagnosed~~Tamoxifen only at this point? Who is your MO now? Assuming you are at the Vancouver BCCA?
Goldie, please keep us posted as you go through the next steps that so many of us have.
To all of my BC~~BC sisters, I got back from yet another trek, this one in Bhutan just a few days ago. It was so challenging and as a leader, even more so with rain, remote paths (we saw no one other than a yak herder and his two yaks for our 5 days until coming down) high altitude etc. that I forgot about breast cancer for the first time. Thus it was a resounding success!
I know we have our 3rd annual potluck at my house on Nov. 21 and look forward to seeing old friends and new.
Much love to you all,
Marian
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Thought I'd say "hello" and introduce myself. I am also from British Columbia. Seems like most of you are from the coast. I live in the Okanagan. I envy the support available in Vancouver but am fortunate to have a great oncology team here. I was diagnosed as Stage lV from the beginning early in 2014. The oncologist and surgeon had not anticipated that I had bone mets and I was advised to have a bilateral mastectomy prior to a bone scan. Putting the horse before the cart. In hindsight, I am happy that the primary was removed and without the prophylactic mastectomy of my right breast we would have never known about the 2 small malignant tumours that went undetected by ultrasound and mammogram. I have not had reconstruction but consider it at times. I am HER2+ and have targeted treatment every three weeks by infusion. Lots of side effects but effective. Originally, I had 6 tumours in my breasts, 12 spots in my bones, a chest wall and armpit full of cancer filled lymph nodes. Currently, I have only one tiny spot in my spine that may or may not be cancer. Obviously, I am hoping to remain like this forever but...
That is a brief summary of my story. Very grateful to have the support of this site.
With love,
Karen
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So Sad to see so many new ladies on here. Glad you found this thread though. As Marian said there used to be a Canadian thread where we had support from right across this beautiful country. Welcome home Marian you are a true inspiration for us all Look forward to the potluck
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hallo Karen I'm sorry to hear about your diagnosis but things change as you are seeing I do hope it stays this way and you are NED soon. I moved from the ok ananda we still have our house there..I miss the sunshine.
Yes I'm in Vancouver and my MO is BCCA and some private as well. I'm only on Tamoxefin nothing else. Is that not normal I'm still pretty new to all this.
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Hi Wendy3!
Yes, the sunshine is nice. Especially right now in the Fall.
If you are on Tamoxifen you must be ER+, PR+, both or triple positive. If you look at the Bone Mets thread you will see that most women with hormone receptive cancer are on a hormone therapy. Bone mets can also be treated with a bone strengthening treatment such as Aredia. I do not have a hormone receptive cancer so I am far from being in the know but the women in the Bone Mets thread would be.
Hope you are happy with your new MO. Trusting your oncology team is extremely important.
Thank you for the greeting! ~Karen
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Karen yes I am Er+PR+ and Her - so lots of hormone therapies available I guess. Tamoxifin is working pretty well for me right now the tumor has shrunk down two centimetres already from four and a half. I'm secretly hoping that it just packs up and leavestaking all of it with it. One can dream right?
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Wendy3 - Sounds like Tamoxifen is doing well for you. That's great. Hopes & dreams are two things that inspire us to move forward. Hold on tight to your dreams and never lose hope. Karen
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Thank you ladies for the warm welcome. I feel like I'm walking on clouds or like I'm watching a movie about another person which is not me. I still am in shock. I guess I need a little time to really absorb all this and believe that this is really happening to me. I will be checking here regularly to ask questions or get some support from all of you. Thank you again.
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Marian I would love to get to know some woman in person , I would love to come to your Potluck let me know if I can cook something specific ie dessert salad ....wine?
Wendy
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Goodiesone1: I am sosorry that you also ended up joining the "Breast Cancer Club", esp. before the Thanksgiving long weekend! But thankfully your tumor was detected, you have amazing support and a good surgeon. The mammogram failed to find my tumor, my surgeon also was not very informative or communicative. I had two lumpectomies, the 2nd was re excision/ revision of a positive margin. It has been such a learning experience, I wish I had learned before making decisions. Hope you have a lot of positive thoughts and a smoother journey.
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Thank you BeachLife for your kind words. I had today the appointment with the surgeon. She told me that, yes I will need a lumpectomy, but that it is a small lump (contrary to what I was told originally that it was a large one) and that it was good that it was detected early. I only have Grade 1 cancer, so basically after the lumpectomy is done and I recover then I will go for radiation. I think that has been the best case scenario that I could have had.
It is really sad that the mammogram failed to find your tumor. How did you know you had go for a lumpectomy then? I'm still so ignorant about this issue and I trying to learn as much as I can.
Thanks again everybody for all the support.
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