mets to lung
Comments
-
carpe, good to hear that you have been stable for 3 years. That is very good news!!!
Hugs to everyone,
Brenda
0 -
Teri, in my case I think losing my voice was from the cold, which is still hanging on. The voice came back after 2 days but is quite raspy. Doubt if I get chemo this week either. I am ready to feel good again!
0 -
"It can't get any better than this!" said Charlie Redfern. Charlie is my
oncologist. He called to tell me about the latest scans. He still
wants me to do my last chemo tomorrow, and I will still see him Monday
for my scheduled appointment. It sounds like he wants me to take
anti-hormone pills anyway, and he will try to convince me on Monday why
it might be a good idea.
Thank you for your prayers and kind words. You have helped me get here. I know I am not cured, there's
still no cure, but this is the next best thing.Hugs to everyone,
Brenda
0 -
Great news, Brenda! Thanks for brightening the week!
Tina
0 -
Brenda, this is super, great news!! I've been on hormonal therapy drugs (Faslodex and Arimidex) since November and I feel great! They are certainly worth a try!! So happy for you!!!
Love, Judy
0 -
Thank you, Tina and Judy!
Hugs to everyone,
Brenda
0 -
Brenda, thanks for sharing your good news with us. Hip hip hooray! I haven't had chemo since November because of low counts and a nasty lung infection. My onc ordered a ct scan last week just to check on the cancer's status, and even without chemo there has been no growth! I'm a happy gal, too! Love to celebrate the good news!!
0 -
Glenna, I am very happy for you as well! No progression sounds like the chemo that you had is still working or your own immune system is helping!
Cheers!
Brenda
0 -
Brenda and Glenna: I love to read good news and am happy for you both. No progression is awesome! Jean
0 -
Brenda, GREAT news, am so pleased for you, you had a rough haul so far, it sure is wonderful to hear your good news!!
You too, Glenna, that's almost 3 months no chemo & you're dancing with the stable boy - you kick up your heels & dance, girl! It's always so wonderful to hear good news, keeps my hope alive, so thank you!
Scan on Wed, doc on Thursday, scanxiety setting in. Going to just keep busy, except am really knocked with fatigue right now, busy sleeping would be more like it!
0 -
Brenda & Glenna, Thank you for sharing your good news. I hope you dance with the stable boy for decades and decades until they find the cure.
My scans have been moved up from March 17 to February 10 due to MO's assumption that there is progression based on blood tests (and how I feel).
0 -
Ditto! Wonderful news! That stable boy is stringing a lot of us along, and none of us mind it a bit!
0 -
Chanah, I do plan on dancing with stable boy til they find a cure ... And I am hoping your scans show that your MO is wrong about progression ... Surfdreams, isn't stable boy just the greatest boyfriend??
0 -
Carolben, I will be thinking about you on Wednesday.
Chanah, I hope your MO's assumption is wrong and that you get the stable boy as well.
Surfdreams: This stable boy is a keeper!
Hugs to everyone,
Brenda
0 -
Chana, holding everything for positive results for you!
I'm now also a member of the stable boy's club!!! Scan last week showed no difference to previous scan. Am so relieved, and yes, I'm happy to be part of the stable boy harem for as long as possible, don't mind sharing him one bit!
Fatigue got worse, slept a lot of the day yesterday and didn't feel guilty. Appetite really bad so eating less, maybe that's adding to the fatigue? My head feels like it weighs a ton, even my arms feel too weak to do anything. And I have a burst geyser with water coming through my bathroom ceiling - wringing out wet towels with zero energy does not work!! I find I cope with all the everyday stuff ok, but throw me a curve ball and I fall apart.
When in doubt, go to sleep....
0 -
Carol, may you be stable for years and years to come!
0 -
So happy to hear so many people dancing with the stable boy. I had progression on Xeloda and am now going to start Ixempra on Friday. Anyone done Ixempra before?
0 -
Loveforlife: No experience with lxempra here. Sorry you've had progression. I have progression too and it's a definite bummer. Worsening SOB lately. Just had 3rd Halaven Monday but was sent for chest x-ray where I now have pleural effusion. It's not a large amount so onc is not having it drained. The hope is the Halaven starts kicking in and the fluid gets absorbed. I was so concerned about the new mets in the peritoneum I hadn't thought about worsening lung mets. I've never had pleural effusion before and, honestly, having that drained terrifies me.
Jean0 -
Jean,
Hope the Halaven kicks in soon. I also haven't had a pe drained - have two tiny ones. Would like to avoid that!!!!
Laura
0 -
My first thoracentesis was the worst. It happened in the hospital where I was admitted for shortness of breath. The radiologist and his assistant were not very considerate and were talking about me as if I was not there. I was afraid to get my second one until I was sent home and had to go to the imaging center where I met these 2 ladies, a nurse and a PA who were both very calm and nurturing, kept me distracted by talking to me while the draining was going on. They described what they were about to do and told me that I could stop them at any point. They gave me 2 types of numbing medication: One for the skin, and one a little deeper. After that it almost felt good, maybe psychologically because I knew that the procedure would help me breathe better. Well, after 4 drainings there was nothing left to drain. I could breathe normally. The chemo was working and the mets disappeared.
Hugs to everyone,
Brenda
0 -
Brenda: I'm so glad you shared that. It's a frightening thought for me, so I appreciate your post. I'm hoping I won't need the draining. The SOB can be horrifying enough. I go back Monday for another Halaven. I don't think they'll do another x-ray unless I have worsening symptoms. TMs went up slightly, but it's early on since starting the new treatment.
My sister (who is one year older) is undergoing testing for lung cancer. She is having a horrible time with SOB. CT has shown tumors in lung, but she needs a biopsy next week to determine what kind of cancer. Her right lung is not expanding at all and she is having a terrible time breathing. As soon as the biopsy is done, they can put her on prednisone to help bring relief. It just seems like enough is enough. She has a mass near her shoulder and pulmonary specialist told her that would indicate she may have brain mets. Brain scan scheduled today.
0 -
Jean, I'm so sorry to hear about your sister, damn!!! I know how anxious I was when my sister was waiting for results from her regular mammogram, I would be devastated if either of my sisters got this £€^*+¥€# disease! I feel like I'm prepared to go thru all this on behalf of my sisters, if you get what I'm trying to say. Big hugs! I hope you don't have to have your lungs drained. When they did the biopsy on one of my lung tumors, my lung collapsed & they put a drain in, which was very painful. But as Brenda said, it worked & she could breathe again.
Had a bit if a scare in the sea the other day - I'd swum out deeper than standing level & suddenly lost all my breath. It was really difficult getting any air in. Almost panicked, but just floated on my back till I could get to shore. It felt like my lungs wouldn't expand enough to take in air, & it took a while till my breathing got back to 'normal'. Anyone else had that?
0 -
Loveforlife, thinking of you today, hope your 1st Ixempra infusion goes well and that it will be your magic bullet! x
0 -
Loveforlife: Ditto! Hope your infusion goes well. I read it is a slow drip chemo. Is it a once a month drip? Jean
0 -
Jean, sorry to hear about your sister. She must be very anxious right now. I hope your chemo eradicates your PE and the accompanying cancer!
Carol, you must have been terrified!!! I would have panicked and given up! You must be a good and disciplined swimmer. Thank God. I don't swim well, so just the thought that my whole body is under water frightens me. Maybe next time you can have a swimming buddy with you.
Loverforlife, hope this new chemo works. How do you pronounce it?
Hugs to everyone!
Brenda
0 -
Adnerb, I used to swim competitively and feel at home in any water! Yes, it was scary, and a swim buddy is definitely good advice!
OMG, I just got it!!! Adnerb is Brenda backwards - I've been puzzling about that for ages!! lol
0 -
Carolben - sorry about your scare in the sea! I've been pretty limited in my swimming lately - used to swim at least once a week for a mile in a local pool. Now I paddle a bit, but SOB has kept me from my usual laps. It does feel great to float though.
Thank you all for asking about the Ixempra. I did well, I'm taking it every week for three weeks. According to my oncologist, the term "Evil Ixempra" was coined when they gave it once every three weeks. Big dose with lots of SE's. He's said his patients find it pretty tolerable on the 3 week on, one week off schedule. I did have several premeds with it, one was benedryl which they pushed in, probably too fast since I slept for about 16 hours after the infusion! Got home about 7 and didn't wake up until about 11 this morning. I feel okay now, a bit dopey, we'll see how the next few days end up.
It's prounounced ex-em-pra, but the other name is ixabepilone - not sure how to pronounce that!
Jean - I'm so sorry to hear about your sister. I hope you don't have to be drained, but at least Brenda gave you a good explanation.
Thinking of you all. I keep you in my daily lovingkindness meditation where I say: may you be well, may you be happy, may you know deep peace, may you feel the love that surrounds you.
Laura
0 -
Jean, so osrry to hear about your sister.
Carolben, Wow I'm sure that was a scary experience. I love being in water, swimming, whatever. My mom used to say I was a fish accidentally born in human form. By profession I am a swim coach. So, I too, was overwhelmed the first time I lost my breath and then my coordination in water.
0 -
Hi Jean and you other wonderful ladies on here. I also had the thoreocentesis done in September. I didn't feel much discomfort because the nurse was keeping me very comfortable and the PA was explaining everything step by step that she was doing. I started asking them to tell me about their children and the nurse told me about her youngest son's birthday party. We all laughed when she said the PA could tell me some really cute dog stories but she didn't have any children. I told her that would be fine with me but she was too busy to talk.
Brenda, I wouldn't have liked them talking as if I wasn't there either. One more thing about the procedure--I felt such relief during and after that I would do it again if I have to.
I am so glad that so many on here are stable!! That is such great news and it encourages us all!!
Take care all!!
Judy
0 -
Caroline, I had just gotten the adnerb / Brenda thing a few minutes before I read your post!
I had one thoracentesis and it was not fun. I guess I would have another if absolutely necessary but fortunately the chemo keeps my tumors and the fluid from becoming too big an issue. Although I have sob, I can deal with it.
I love swimming and surfed when I was a bit younger, but ever since seeing jaws I do not go out very deep! LOL!
0
