mets to lung
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use the cancer card if you have too, and I took it and still take claritin....0 -
Chanah! I am so happy that you are feeling well with Reggie and the Stable Boy! I hope you stay that way forever! Please do not ever feel guilty. We want to hear good news! It gives us hope!
Beckers, I hope that your mother has been taken to ER or urgent care. I am just now reading this and it’s already been several days. Hope she got the help she needed!!!
Peg, thanks for the info on Abraxane. It’s Sunday afternoon once again and so far so good!
Sky, let us know if you see a glimpse into the future and share it with us if it’s good news!
Glenna, it’s great that you and Chanah are feeling good! Whoop whoop!!!
Carolben, it was pretty stupid of me not to yell out. My son was only one hallway away, but I did not have the heart to upset him the eve of the first day of BAR exams. He gets very, very anxious about my health.
Cathy, your trial drugs are working! Good for you! I am sorry about the insulin levels, though. Don’t ever be that low again. Always poke yourself or whatever you do to see how you’re doing.
Blondie, how do you feel now? I bet it feels so much better not to have any side effects from all the toxins!Hugs,
Brenda
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OMG it is so awesome, mostly feeling like I used to, other than the breathing I am loving it....thanks
how is everybody?
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hope it all goes well in Florida, Glenna, & your Mom finds a nice place!
Blood's back up after 4 Neupogen shots, no side effects that stand out, but I was feeling so lousy, so who knows what is what. Only started to feel better yesterday, so have had 2 good days! Will speak to my onc about how we can better control my blood counts & make it easier. 3 or even 4 days of feeling crap I can do, but 10 days...... Not keen.
Cathy, great to hear your breathing's a bit easier, great stuff. Sorry about the diabetic incident, but you sure had it in the right place!! Hope those steps keep getting easier!
So, chemo tomorrow - my stomach turns at the thought of it, but I'm ready for the 2nd round (I think)!
My hair has thinned a LOT and I'm starting to show lots of pink scalp, so I'm going to bite the bullet & shave it all off this weekend. It drives me insane to watch it fall slowly, I get obsessed, so shaving will put me out of that misery!
Love & hand holding all round x
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Carolben - Thanks and glad your feeling some better but sorry its just in time for another chemo! Hope this one is a bit easier for you. Well I remember thinking when I lost all my hair - no bad hair days.. one less thing to look after! Hugs and holding hands in our circle.Cathy
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I'm holding everyone's hand as well!
My older son shaved off all my hair, leaving just a stubble. He and his brother thought I looked "tough". They both recommend I do away with the wigs. I don't know. I am not that brave, I think. You'd think I am used to it as this is my third time.
Carolben, I don't remember how often you get your infusions. Probably not every week. You and your onc could play around with the frequency and dosage. I remember my onc lowering my gemzar by 200 mgs. and that was what I needed to stop having rashes.
My s/e's are not as bad this week. No fainting or weird pain spells.
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good news on the rash Brenda. Never got used to losing hair though. This is only my second time though.
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Carol, I get the 10 days, that is why I went off of chemo....
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Yes : Encouraging words...Believe in HOPE...Do not give up..that is different from denial. Stay in the moment...Read uplifting educational information...Address whatever your spiritual connection is...Know that there are similar cancer ladies out here who care and are hoping for the very best for you... Carolyn from Music City, Nashville
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unfortunately I am a 1/2 empty kinda person, I am lliving everyday based on how I feel and what I want to do...0 -
Brenda, I ditched the wigs and went with scarves and hats this time, and it was SO much more comfortable! Try it -- you might like it!
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I spent a small fortune on a real hair wig and didn't wear it once. My housekeeper told me her daughter was losing her hair so I gave it to her. She's in her late twenties. This way, there's at least a hope that it gets used! I usually wear a hat since it's cold here but when it's warm enough, I just go bald. I get a few looks and I've been called "Sir" a couple of times but I've also gotten a lot of compliments!
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I also took the plunge and shaved it all off - bald again! - Far better than patchy and thin and sick looking.
Blondie (sir?, you look so feminine!!), I so get you, to have more days that are bad than are good is not qol. I'm feeling stronger today, had chemo on Friday, hoping my bloods don't fall again so drastically. My insurance has covered 4 Neupogen shots with each chemo, so I'm hoping that'll keep things in check. Am terrified of getting flu, there's a nasty bug going around now. But then, I've been spending so much time on my couch at home so have not been getting out much. The way I'm thinking at the moment is that I've done 1.5 cycles, I'll stick it out for the next 1.5, then we'll scan; and if this combo has not made serious inroads, like regression, I'm going to think twice about continuing with it. I'm finding it hard going.
Meantime, it's just one day at a time. I went up to town this morning on my scooter for the first time since Thursday - just don't have the strength to drive it for the first few days after chemo. So that's progress. Now home to rest, then I'm going for coffee (tea more likely) with a couple I've met recently. He's also got mets to his lungs (small ones, all over both lungs, like you & I, Brenda) and after 10 years of traditional medicine he's gone the natural route. He went to John of God, in Brazil, who is a spiritual healer, uses cannabis oil, chinese herbs, changed his diet etc. So I'm very interested to hear of his progress. I guess his real answer will be in his ct scan, which he should be having quite soon.
I won't bother with a wig - it's winter here, so beanies etc will do me. I used to feel that I needed to cover my head in case it upset other people - then I got real! So I can go bald, beanied, scarved or whatever. People come up to me and ask if I'm on chemo again - well, I never stopped, it's just that a bald head yells CHEMO! This is my 3rd time of being bald, and I feel more vulnerable somehow, and no, it doesn't really get easier each time. I'd say that you should go with what you are comfortable, Brenda, it's about you, not what others think, experiment maybe and see?
I think we should all wear our bald heads with pride!!
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I also had a wig I wore about twice (to work) and it was scarves and nothing around home. Sorry its so hard on you Carolben. Keep well and away from any bugs!Cathy
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Carolben, you and Susan are rockin' the bald look! Today I wore a scarf for the first time. My younger son said I looked cool because I reminded him of Steven Van Zandt of the Bruce Sprinsteen band! Coming from him, it's a compliment (I know).
I want to hear about John of God! Please let us know how your friend is doing!!
Carolsue: Did your normal hair grow back after taxotere? Taxotere ruined my follicles.
blondie: Do you have a lot of fluid accumulating in your pleural lining? You may feel better if you drain something like that. But I'm sure you know that already. What is causing your breathing difficulty? (I'm too lazy to go back and look at your history).
Hugs,
Brenda
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carol....glad you got out and yep the bald sucks, do what you feel is comfortable for you, that is what I did, went out bald!!0 -
I did taxotere also and my hair came back fine. However I did have severe bone pain to the point of tears. The only thing that would touch the pain was oxy. Thank goodness it wasn't long term as I prefer not to take that for long!Cathy
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have back bone pain and oxys it is!!0 -
We have decided to do a Navigational Bronchoscopy to biopsy the lung nodule. I also have a lymph node in the lung that lit up in the latest PET. Any reason to believe that a single lung nodule with a lymph node still might be benign?
I am grasping here...almost hoping it is lung cancer instead of bc mets.
Thanks.
Namaste'.
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wrsmith - I have lung mets and also the node involvement. However my oncologist told me that breast cancer mets to lung rather than lung cancer is much slower in advancing and easier to treat as there is so much to offer for treatment. I had all the questions at first too. Good luck!0 -
wrsmith: Cathy is right. You don't want lung cancer.
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Six years in May since I was diagnosed with lung mets ... And good ct scan results today. Still hanging with stable boy! My onc happens to be a lung specialist, not a BC specialist but he was my onc in 1987 when I first had BC. I have stuck with him even though he's gone a different direction. He also treats BC patients and stays up on all the latest. He says it is good that I have mets to lung and NOT lung cancer. I did have lung cancer in 1989 (totally unrelated to the BC) but only needed a lobe removed and haven't seen lung cancer since! Namaste', What I'm trying to say, a bit wordy, is I understand the grasping but things get easier when you KNOW what you are dealing with. Come back and share the results of your bronchoscopy. We care!!
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GatorGal,
May you hang with the stable boy forever!
Brenda
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great news GatorGal, you stick close to that Stable Boy - happy to hear your good news - 6 years stage 4, you're an inspiration!!
There was also a question with me about whether it was a 2nd primary - lung cancer, or bc mets. They come down on the mets dx cos of how the nodules appear (?). Also heard bc mets better than lung cancer.
Had last chemo on Friday & am only starting to feel human again today - been able to eat with a bit of appetite, & feel my light coming back on. Did 3 shots of Neupogen Monday, Tues & yesterday. I have discovered a whole new meaning to "tired" - felt totally sucked dry - love my sofa! However, this afternoon I'm on the sofa by choice and not because it's too much effort to be other than horizontal! Plus, I'm listening and allowing my body more leeway. May even put on my gentle yoga dvd & see what I can do, but later!
wrsmith, namaste, pls do let us know your bronchoscopy results, and there's nothing wrong with hoping it's benign, am hoping with you! As GatorGal says, at least you'll know what you're dealing with!
I also had an enlarged lymph node in my lung (showed up on the last ct scan), when I asked what that meant, my onc said it has probably got malignant cells in it. So I asked if that meant it's spreading those malignant cells around my system & he said that at stage 4 it's already spread anyway, and just said we'll keep an eye on it.
So I've survived 2 cycles of Gem/Cis, one more cycle & we'll scan again. I can't believe anything could survive this combo!
But now I still have a whole week off chemo, big yay! Time to get back walking on the beach.
Sorry you have back pain too, Blondie - thank God for good painkillers! The Neupogen does a number on my lower back & hips, which is not nice, using a mix of codeine & anti inflammatory for it. My big question is do you feel better for being off chemo (guess that's a stupid question) but has your qol improved?
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Carolben - OMG how you explain it brings back memories (not good ones) of when I was doing chemo. Sure hope you enjoy your free week! Hope the combo kicks mets butt! Hang in there!Gator Gal - Congrats! You are an inspiration to us all. I am looking for my own stable boy next month when I get my scans. I really think I'm getting the Palbo and not the placebo on this drug trial. I do feel some better.
Cathy
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Love stable, good luck
Carol...hang in fthere I would self talk or call someone to tell me I would b fine
Yep my qol has improvred n can actually go places... I have not felt good 4 the past couple of dsys thou. Dont know why.
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blondie - Glad to hear qol has improved and hope U feel better soon so U can enjoy again!Cathy
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Cathy, sounds like you are getting the real thing and start a long relationship with stable boy! Blondie, sorry you haven't felt good the last few days but overall it appears your QOL has improved. Enjoy every moment when you're feeling good!! On my 2nd sleepless night after carbo. Decadron was responsible for last night, pain on my right side under the rib cage is tonight's culprit. This happened last treatment, too, but I thought I had pulled a muscle or something while painting my som's bathroom. Since I've done nothing to cause the pain this time, I'm figuring it has something to do with the Chemo. Three pain pills and no relief. Heating pad helps some but sleep is out of the question. I will be a walking zombie tomorrow!! LOL!
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Not nice GatorGal - hope your feeling better soon. Do you receive steroids while taking your chemo? That was the culprit for me for interruption in my sleep pattern.Cathy
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i break my ribs when I cough and I have 2 broken ribs from cancer now, one on the left and one on the right, it is so annoying...sorry you are in pain and the pills aren't working, if mine don't work when I take them I take another one, dr. knows, oh well0
