mets to lung
Comments
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Love it. What a fun looking group! Glad you got to go and that your stomach took a vacation from aggravating you so you could enjoy it!
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oh, what a fun picture! Brenda, glad you had a great trip!!
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Thanks, Tina. Now it's back to reality. I have a brain MRI scheduled on Saturday and a full body scan on Monday. Yikes! It doesn't help that I have pain every time I sneeze, cough or yawn.
Hugs,
Brenda
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awesomw, glad you had fun and good luck wiwth the scan!!0 -
Adnerb....So wonderful that the trip went so well...looks like a fun group of ladies...The Rocktobers....LOVE the name! Hugs, Peg
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The Rocktober sisters look like there was not a moment of silence and lots of laughter interspersed with a tear or two. Great group....Thanks for sending in the picture...So important to know that there are still good times even in metastasis.
Blondie I will say a super prayer for you to be uplifted with joy in the midst of your rough conditions. You sound braver than anyone and you deserve some wonderful times left with your family...Blessings to you. Carolyn
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Thanks car2 appreciate it
Night ladies cant sleep
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Thinking of everyone today. Brenda, hoping for good results from your MRI tomorrow and your body scan on Monday. You deserve some good news. Blondie, hugs to you today and everyday! I have lots of sleepless nights. Don't know what I would do without my ipad and word games!! I can sit in bed and Not keep my husband up!
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Thanks sprained my ankle earlier it is awesome something
Have a good weekend
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great pic Brenda, hoping for good news from your MRI & scan! So good to have fun times too.
Had my first Gemzar/Cisplatin on Friday - & it's kicked my ass!! Feel like I've been run over by a truck, a couple of times. Nausea's better today, thank God for Emend! Can't drink coffee so I know it's bad. Had steroids & my arms & legs still weigh a ton!
Back to the couch & a book, another 4 hour infusion this Friday of the same again, then 2 weeks off, ooooffff
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Carolben, sorry your SE's are so awful. I know you are looking forward to your two weeks off!
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Help!
Me: stage
IIIA in 2002, 3 cm tumor in right breast (lumpectomy) and 4 positive
lymph nodes out of 26 removed under right arm. I was ER positive, PR
negative, HER2 negative then. I had 8 rounds of chemo, 33 radiations, 5
years on Arimidex. Cancer "free" until 2013. On June 28, 2013 I was
told it had come back, stage IV. Still ER+, PR-, Her2-. I have numerous
lesions in my bones: Mets to skull, spine,
ribs, sternum, pelvis, upper left arm, left thigh. I had nodules on
outside of
right lung which are gone. I had Pleural effusion June 28, 2014,
drained 900 ml,
it's gone (just a little remains). I had positive lymph nodes in chest,
gone now too. So now it's been just bone mets.I was put back on Armidex last June and October 2013 I began Xgeva shots once a month.
My tumor markers CA25/27 or whatever, have
NEVER been normal. In June 2013 when I was first diagnosed, they were
898. Slowly, after being on Armidex since June 28, they began dropping,
very rapidly at first. Then in February of 2014 they stopped dropping
and got to 132.Now the bad: April 166.6, May 196.7, July (last
week)
272.9. My
PET scans have gotten better, in fact, the one in June 2014 was better
than the
one in Feb. 2014, with nothing lighting up. But since my tumor markers
are climbing again, my onc. is feeling something's not right.
He is wanting another PET scan the first week in August, and an MRI of
the brain. Coincidentally, my regular dr. had an MRI done April 17, 2014
(headaches) and it was fine. But the onc is now worried.
What is going on????0 -
Hi Ladies:Good luck with your scan today Brenda! Ahhhh Blondie... darn that sprained ankle is not what U needed now! Wandering spirit... we are hoping it is good not bad news! I won't even pretend to know what is going on but plz keep us updated. No big news with me.. still doing my drug trial.. Scans in mid Sept will tell! Hugs Ladies!
Cathy
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Carol so sorry, I am sure u r doing the right thing, se r worse then cancer for me
Wandering we have in the same exact places. Sorry about the tm they will find out what the deal is good luck
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Carolben, hope your se's are an indication that chemo is working and kicking cancer's butt!
Blondie, how long is your break and what is your plan thereafter?
Ladies, my scan showed that my chemo stopped working. The cancer is still on the lining of my left lung. Now there's a little mass that's connected to it and the chest wall. I will start abraxane this Friday. All other organs are clear. Bones are clear.
Hugs,
Brenda
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no break am off completely. Mine is on the chest wall, in the lungs n in the living of the lungs, can't breathe either, been on oxygen 24/7 for year. In my bones, lymph nodes under my arm and in my chest have a lump on my leg also, good luck Brenda
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Carol,I started Gemzar the same day as you! And same thing with the SEs. Omigosh!! I couldn't even get strength to get to the ER and none of my friends checked on me after I told them I started the infusion (they were too busy at a party they forgot to invite me to). I'm on two weeks off one week. I'm still debating going to the next infusion because I am terrified of the SEs. They refused to lower my dose even though I told them I've been losing weight kind of quickly and they used an old weight (did not weigh me at infusion time). SEs definitely are not an indication of the drug working as it should.
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Carrie and Carol,
Sorry you are going through some tough s/e's! I remember getting procrit for my red blood cells. I also had to get transfusions. My onc lowered the dosage of gemzar accordingly. Hope your onc does the same for you!
Brenda
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Brenda - Hoping your new treatment does the job for you. Hugs to all and best of luck with your treatments!Cathy
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Make sure they wejgh u
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Sorry you had such a rough go, Carolben! I usually had an easy time of this drug, so I was hoping you would have the same experience. They did have to back me off a few times over the course of treatment to my current regime of every 3 weeks due to low platelets and wbc, but I'm very fortunate that it's kept me stable. I also had zometa infusions at the same time as a bone strengthener, and I was having flu symptoms with the combo of all those together, so now my Zometa infusion is a week after the gem/carb, and it's worked well to separate them out. Recently had a problem though, and am hoping someone here will have words of wisdom for me: I'm pasting in a post that I wrote in another forum because I"m too lazy to re-write it:
My gemzar/carboplatin combo may soon be at an end. I've been
getting these infusions since March 2013 - then suddenly, midstream
through my carbo last Friday, I started having an allergic reaction -
breathing got very tight. Hands and feet were burning. Face flushed - my
BP and Pulse went way up, and oxygen went down to 88. I've seen the
nurses in there rush around for a patient before, but this time, it was
my turn. They quickly stopped the carbo and started fluids and benadryl.
That got it back under control, but apparently, that often happens -
suddenly you become allergic to the carboplatin. My onc. is going to try
it again in 3 weeks with benadryl as a pre-med, but I'm already very
nervous about it repeating. From what I've read on dr. google - once you
have that reaction (which can quickly go into anaphylactic shock or
respiratory arrest), you'll remain allergic to it. I've also read
though, that a person can go through a desensitization regimen and then
continue on the carboplatin. It involves getting it very slowly over a
24 hour period in a hospital, and then after that - you're desensitized
and can have normal infusions again. I'll be talking to her about that
prior to the next chemo. Has anyone else ever had this experience? I
don't want to give up on it as it has kept me stable and has been an
easy chemo for me thus far - plus, as a triple negative, I don't want to blow through my short
list of chemos too quickly!0 -
Surf,
My side effects on the carbo/gemzar combo were easy to tolerate. Constipation the first couple of days, then mild diarrhea. Low bloodcount kept me from getting one or 2 infusions. I'll have to stop the regimen as it has stopped working. Now I'm on to abraxane. I see that you did that before the carbo/gemzar. Wow, you've had a long, good run! Hope you find something that will allow you to tolerate it.
Brenda
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Got latest PET scan results back today. Still looking pretty good. Bones stable, fluid on left lung increased from 3 months ago, but they don't see any cancer activity going on, and since it doesn't seem to be affecting my breathing too bad, they're just going to keep an eye on it for now. (Listening to my lungs and what not, I suppose.) Being courted by the stable boy is a good thing, yes?
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Good job carole
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Yes, Carol. Have fun with the stable boy!
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I want a part of that stable boy so save some for me.. I don't mind sharing that one! Congrats.. yes good news!
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So happy for you Carol! Big hugs of congratulations!
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Hello. Just found out on the 24th that I have a single met in my left lung. Not sure what we will do yet but will probably be looking for advice, words of encouragement, etc. Maybe surgery is the best thing...???
Headed to Lineberger Cancer Center in Chapel Hill for a second opinion and to see if they have any clinical, etc that I can be in.
Still in shock but reading that people are still around after several years makes me feel better.
Thanks for listening.
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Hi wrsmith,
If you have never had ratdiation of your chest area, you may be a a good candidate for radio frequency ablation, or just plain surgery to remove one tumor.
I have been trying to get rid of my lung mets since Sep. 2013. Mine was a whole bunch of little tumors in the pleural lining outside of my lung. I think I have more now that in April and January, but still less than September of last year. I am not a candidate for radiation. I had that with my lumpectomy in 2005. Had I known then what I know now, I would have opted for a mastectomy. (sigh)
Good luck!
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Welcome wrsmith
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