mets to lung
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Roberta, I have to chime in here, although I mostly comment with the faslodex girls. I did have mets in lungs when first diagnosed but they seem to have gone in remission.
But, I also have a nutribullet, and I bought it because it helps me get more fruits and veggies into my system, which my onc said I needed. But here's something I've been told and have read. Research in Canada has determined that a daily dose of flax seed, perhaps a tablespoon, has signifently lowered the markers of patients with stage 4 breast cancer. Is there any truth to this? I'm not sure but I went to a health store and bought a bag of ground flax seed and throw some of it into my nutribullet mixture whenever I whip one up, which is not every day but should be. It certainly can't hurt. Give it a try.
Teresa
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ah, thanks GatorGal, nice new name, interesting about you not losing your hair, so maybe I won't. Am finished obsessing about hair now! x
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Carolben, sorry, tried to make this smaller but my ipad won't let me. This is me at my daughter's wedding ... Lots of hair to blow in the ocean breezes! Only time I have lost my hair was with taxotere. Have been on chemo for over 3 years!! Mods, if you can make it smaller for me, please do!!
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Great picture GatorGal -- you look beautiful, and I can almost feel that ocean breeze!
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Nice picture!
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Gorgeous, Gatorgal! You look so happy!
Carolben - I've been on gemzar/carbo for 16 months so far - my hair all grew back on it that I lost with Abraxane. Best wishes. So sorry to hear of your progression, but hope your new chemo is as kind to you as mine has been to me! ;-)
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Can I come n play with u all
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Teresa - good information on the flax seed. Does it have much taste? Wonder how it would be sprinkled on sugar free strawberry ice cream?
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Jump in, Blondie! The water is fine!
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I put flax seed in my oatmeal every morning along with walnuts, blueberries, cinnamon, almond milk and a tiny bit of maple syrup. YUMMY!
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Carolben, can I come have breakfast with you? Sounds yummy. I do like green smoothies and go on kicks. Right now I don't have much of an appetite and should be making them but haven't been. I am eating lots of fresh fruit, however, and since my husband's heart surgery last November, we've both been on healthy diets. Now, that does in include ice cream two or three nights a week! welcome, Blondie! Are you on a chemo break?
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great pic, GatorGal, love the hair! And the smile!!
Hi Surfdreams, wow, 16 months on Carbo/Gemzar! Did you get regression with it? Thanks for the reassurance that it's a doable chemo, I always get nervous when starting a new tx.
Welcome Blondie, come & play!
Just back from a great walk in the beach, listening to Neil Young & Andrea Boccelli, I kind of dance along, it's such a life affirming thing, opening up those lungs & letting my light shine brightly!
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Carolben - How great it would be to live by the beach! I'm so jealous. The ocean is so good for the soul!
Raro has started a couple of good threads re: Gemzar - and the use of steroids which really helped her to tolerate it. My MO gives me IV steroids and IV anti-nasea meds as pre-meds right before my treatments. If your oncologist isn't doing this, he/she might want to. See the threads - lots of good information there:
https://community.breastcancer.org/forum/8/topic/8...
and
https://community.breastcancer.org/forum/8/topic/8...
I've never had remission with my combo, but have sure enjoyed hanging out with the stable boy! I'll sure share him with you!
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Well thanks peeps, am on oxygen 24, 7 and decided to stop chemo, se are too much for me. Been doing infusion chemo for 2 1/2 years after doing hormonals 4 2 years. The lungs aere so annoying.
Thanks for letting me play
Sandy aka blondie
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GatorGal, you look so pretty and healthy!! Is it the juicing or the ice cream? Let me know because I'm doing both, and I'll be happy to increase my ice cream intake if you think it's good for your health. ;-)
Seriously. I'm cutting down on dairy, but I enjoy ice cream from almond or coconut milk. The mocha ice cream bars with crushed almonds at Whole Foods are my favorite treat.
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tarheel .... Could be the red wine! LOL! I am one of those who tan even though I NEVER EVER sit in the sun. I think that is why I look healthy. Someone on one of the threads commented about looking healthy but not on paper! That's how I feel sometimes. I do like the green smoothies and think that does give me vitamins and nutrients I wouldn't ordinarily get. I am not anal about anything but do try to supplement my chemo with some good stuff! Carboplatin has really affected my appetite and I just don't feel like eating.
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sandy, are you just taking a break or off chemo for good. I notice we've had a lot of the same treatments. Are you in pain from the mets to the bones? If so, I sure hope it is being managed! Going to the battle of the beltway ball game (Orioes vs washington nationals) tonight after having chemo today. Hope we don't get rained out! I'm wearing my Orioles black and orange! Go O's.
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Hi Ladies, just got my scans back (the results) yesterday and my lung tumor is bigger, as are the spots on my bones plus new ones, in 2.5 months since last scans. Markers are up to 480. Doc is taking me off A/A combo and starting me on Faslodex as of yesterday. I'm thinking this is going to be like the little kid roller coaster ride, slow ups and downs, although I am waiting for some stability or better yet backwards movement. Sigh.
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skylotus - sorry to hear of your progression
.. maybe Faslodex will give you the stability or yes better yet regression! Cathy
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Sky I am so sorry
Gator I am off completely, couldnt deal with the se anymoe, spent the last year in bed with no good days. Qol is important to me , have 7 grandchildren wanting to make memories..have 5 kids also n 20 twins home with me watching me detereiate. Drs tomorrow to talk bout hormonal therapy. Not sure what I want to do,
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thanks Cathy and Blondie,
And Blondie, just.....wow! You've been there, done that, and seen it all. Stay strong and resolute in what is best for you, your family and your qol.
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Just wanta send hugs Blondie!0 -
Skylotus, Also very sorry to hear of your progression. Some women here are very successful with Faslodex treatment. I have been taking Faslodex since end of Jan/2014. Scans seem overall stable but an area of loculation was noted in lung with mets...small and onc thinks that it may be a result of pleural effusion last Nov. Just wondering...what is your Her2neu status? I am also Her+ Herceptin..again. BTW. are you doing CA 27/29 markers? The very best to you with your new treatment. Hugs!
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you're right, Surfdreams, when I'm on the beach my soul says Aahhhh! Will check out the threads, thank you. They'll be giving me steroids & an IV anti nausea as premeds too, they're also giving me Emend for the first couple of days (had it with the AC and it's good). Also they flush me (to protect the kidneys?)
I know the steroids help, but those first couple of days being all "roided up" is not my favorite & I crash when it wears off. But hey, I'm looking for that stable boy again so we can dance together!!
Sheesh Blondie, a year of no qol is not nice, I so get the feeling of just being chemo'd out... Make wonderful memories each day with your kids & grand kids - our loved ones are the important things in life. Whatever you decide to do, you'll always be supported here. Hugs xxx
Skylotus, am sorry to hear about progression, and just wish you an easy ride with Faslodex & I hope you'll come dance with us with the stable boy (at least!).
Ronda, ice cream, chocolate & cheese cake are all good sources of comfort, and a necessary part of living (know I'm not good when I just can't stomach them) . Been off chemo for almost 3 weeks now & finally have some appetite back. Been all responsible & cooking and freezing stuff so I won't have to do it (or rather, not do it) on chemo. My tastes have changed - I used to be the chili & pickle queen, that's gone, along with avocado, banana, hard cheese, rich ice cream (love frozen yogurt & sorbet) liver (that's the worst). I do use turmeric & cumin & like a touch of coriander, but that's about all the spice I use now.
It's a lovely sunny day, if a but chilly (we're in mid winter) so I'm off to dance along the sea shore for a while
X
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thanks peeps, well went to the dr. and he was going to put me on 2 hormonals but the one a side effect of lung issues is a possibility so he decided it wasn't worth the risk, so I am off chemo and lets see what happens, he told me that the reason for my demise will be my lungs since I already have issues with it and there are tumors in them and in the lining of the lungs oh and there is the oxygen 24/7 thing, lol// I am sure liumg dr. will put me on predisone but then I will be up not able to sleep forever...Sky,so sorry or the progression that sucks...hang in there...
Carol, ice cream is always the answer for me especiallly dairy queen...
Mom Hugs to you..
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Skylotus, oh how I hate reading if progression. Hope faslodex is the magic bullet!
Blondie, I totally understand the desire for QOL. Sorry chemo has been so rough for you. This time was bad for me but generally I only suffer SE's for a couple of days. That's doable. But a year in bed .... I totally get where you are coming from. Enjoy your kids and grandkids! That's what counts!
I need a trip to the beach. What is it about those waves crashing to shore?
Hugs to all my lung mets friends!
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A trip to the shore, that works n thanks
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Just back from my Alaskan cruise!!! I highly recommend it. Prior to embarking I had stomach issues from chemo. I did not feel any stomach problems for 7 days!!! Of course the food was heavenly, and I walked around a lot with my friends. There were 11 of us. 8 of us were breast cancer survivors. We are called the Rocktober sisters.
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Super group selfie, Brenda. So glad you had a great time!
Tina
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