mets to lung
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Susan,
I was surprised also. But they told me that even within a cell they can have varying positive and negative hormone statuses. Weird, huh? Perhaps more of the hormone negative folks could ask their docs about it? Thanks for the response.
Namaste'.
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One of the Rocktober Sisters perished from this wretched disease yesterday. We thought we were invincible, but there is no such thing, is there? Especially when it comes to MBC.
The Rocktober Sisters met right here on these boards in 2005. We stayed in touch, 14 of us, and met up when we could in different places. The last meeting was in Alaska.
Paula was our beautiful sister from Australia. She was only 40. I am so incredibly sad.
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Mrsmith, so sorry, cancer sucks
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Brenda, so sorry about Paula. It hurts us so to lose the sisters we have come close to on the boards ... Even the ones we never meet, so I can imagine the loss you are feeling. hugs!
I've been away at my mom's for a week to help her decorate for Christmas. It was a good time and she is adjusting well to her new independent living apartment. It makes it easy for me to see her in a good place mentally!
I went for my first abraxane treatment today. So far, other than sleeplessness, doing okay. I just got out of bed and made a double batch of cookie dough that needs to chill so will be baking Russian tea cakes tomorrow.
The best thing is the good news I got from the pet scan I had yesterday. For those who remember, I had a ct scan right after thanksgiving that shows nodules in my liver. Onc and radiologist diagnosed it as liver mets. Pet scan says NOT .... No lights showing anywhere other than some new growth in the lung so ONC would have changed my chemo anyway. I am still in a bit of shock since I was thinking the worse, of course. I never even thought that those nodules could be benign, and I am usually so positive. I guess dealing with this thing for 6 years has dampened my optimistic spirit a bit!
Yes, Mrs, M, CT was how I was originally diagnosed with lung mets. I had chest pain and thought I needed a cardiologist. My onc was more worried about lung mets and was right on.
I also have been on a fentanyl patch since the thanksgiving incident. It was pain the day after that sent me to the hospital and the reason the onc ordered the ct scan that showed the liver nodules. My pain was so bad I just kept popping oxycodones and was really worried when they didn't touch the pain. It had previously been well controlled by oxy. It is also in the rib area. Onc has said it is from the Cancer being in the lining of the lungs but also said this last time that it could be caused by the nodules in the liver pressings against the diaphragm. The fentanyl patches work most of the time but I occasionally add an oxy
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from glenna, part 2
Surfdreams, I have horner's syndrome, too, but it came quite a bit after the lung mets. I actually thought I may have had a stroke and went to a neurologist. Wasted a lot if $ on MRI's when my onc probably would have known right away what it was.
Robin, get the best onc in your area. Very important to believe in the doctor who is going to be keeping you alive for a very long time! Definitely hormonals for as long as they work. I did them for three years before moving on to chemo. Changed when the side effects became unbearable or there was progression. There is a lot of stuff out there. I'm six years out and still trying new chemos!
Delirium, I'm only a day behind you. My next treatment will be dec. 26 and the next Jan, 2. Today went well but I am having trouble sleeping ... Could be because I had a nap today when I got home. Sorry you got kicked off your trial but more sorry that the MRI showed progression! I am having the pain problems, too. That's what put me in the hospital. I couldn't get it under control. Thought I was going to go crazy!
Namaste, sorry your Cancer came back so soon after your surgery. I was on tamoxifen and femara for many, many years. My onc thought I'd had enough so took me off. Wasn't long before the lung mets diagnosis. I often wonder what would have happened if I had stayed on the meds. The only major problems I had were weight gain. I also have had neuropathy since my first bout with Cancer in 1987 and don't know if that lingered because of the chemo or the hormonals. It isn't bad bad and I've gotten used to it. I did tamoxifen again somewhere in my 3 years of hormonals. I do feel like they are easy drugs compared to some of the other hormonals but we are all different and others have had lots of side effects.
Jab, yes to the pleural thickening and calcification. Sorry you had to join us. I love your quote .... Something for all of us to live by!!
Sky lotus, yeah for the xeloda working on your brain mets, too! Any regression is a good thing.
Sorry I seem to have written a book but haven't been on in a long while and had some catching up to do.
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Thanks, Glenna. Great news about your liver!!! Don't worry about the length of your text. I love reading your posts!
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Blood on stool so after that we explore the pain in gut. Not feeling well, SOB, pain in gut and new lumps on "good side". Onc says presumed progression on "good side" (that only had DCIS at surgery 2 years ago). Axillary dissection on Monday, then we will investigate pain adn blood on stool next week.
Damn, I had a good run for a while.
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Drats, Chanah, sorry you're having to deal with all this crap .... Will be thinking of you on Monday as you go through further testing. Hope you are able to manage the pain over the weekend!!
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Chanah,
Hopefully it's something that you can treat once again. You've done it before.
Hugs.
Brenda
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Chana, Sending special prayers for a kinder bx result and a good treatment plan. Hugs, Peg
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Chanah, what is the latest? Looks like everyone has taken a break from this thread. Just logged in to see what was new. Please let us know about your results and treatment plan.
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how are you doing in te abraxane gator? I did my 3rd treatment of the first cycle today. It has been very tolerable. MUCJ better than ixempra and xeloda. I sure hope it is working. Meanwhile I am still awaiting cyber knife procedure fort growing again brain lesions. Hope it is going well for you. I am icing during treatment since it is in the taxane family. I have a phobia of losing my toe nails. Happy Mew Yeae ladies
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Delirium pie, tell me what you do to "ice". I've never tried that but did lose a couple of toenails when I did taxotere. I've been putting like 10 layers of nail polish on toe and finger nails. Will have my 3rd treatment of the first cycle on Friday. Tolerable, yes, but I feel tired all the time. Dozing a lot but then when I actually go to bed, unable to sleep. Go figure! I haven't lost hair yet, have you? When will you get the cyber knife?
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Icing is when you apply ice to your hands and/or feet during your infusion. I did it the first time around, including 3.5 hour taxol infusions, brrr! The best method I have found in my experience is to fill 2 gallon ziplock bags 1/3 of the way with ice. You have to press all the air out of the bags too. Then. With help, I place one on top of foot and one on bottom and use big rubber bands to secure them to my feet. I make sure they are covered from ball of feet to around my toes. You can keep socks on or not. Still gets cold with socks but is more comfortable. For my hands I just hold a refreezable block of ice that the chemo room has for our use. I should be more concerns with my fingernails too but my toes freak me out. Icing is also supposed to help prevent neuropathy. I did four rounds of taxol last year with no issues.
Know what you mean about tires and unable to sleep. I started feeling pretty good last couple days but this morning I am having a lot of Chest and back pain. Took some hydrocodone. I had been completely off them for a couple of days after increasing fentanyl to 25. Do you get chest pain afterwards? This is like in he center of my chest. It seems to happen always the next day.
Don't know about cyber knife. Need to call insurance today to inquire. RO is on vacation this week. Ideally I could do it next week during my chemo off week.
All of my hair came out during brain rads this time. Then the ixempra kepr it gone. I've been wondering when this stubble will start coming out.
I hope you have a nice week and good luck with number three. I am anxious to see tumor markers but dr said she won't compare them until the first tx of cycle 2. Take care!
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hello,ladies,I had Ct scan in March,it show in my lung:0.9&0.6 .now,after in 15,December I had another CT
my report say:3.2&1.1 cm iBL-Lobed infiltrate in left posterior costophrenic angel.my Dr. send me for biopsy .
Who had biopse-please,tell, how they do it,so scared.
thank you .Happy Ney Year everybody!
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ladies.how get a second opinion.? I never did
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Didn't have chemo treatment today. When I got to my appointment I found out that my Onc had changed my protocol to two weeks on, two weeks off. He decided that my red blood counts couldn't tolerate the three. They've been low since May. He may have told me this when I saw him last, but if he did, it didn't register. That happens sometimes! He said if they are still low when I come for my next treatment that he will give me an injection to boost the counts. Something like neulasta I guess. Thanks for sharing about icing. Not sure I could take the cold. I've never seen anyone in the chemo room doing it. I haven't lost any hair yet. He said some people never lose it. Hope that will be me! My hair has gotten pretty long and I am liking it! So, delirium pie, now we are really on a different schedule. I took my son and grandson to the dallas redskin game on the 28th of dec. my son is a huge dallas fan nd my grandson is a Redskins fan. We had a really great time!
Hopeinfitcher, getting a second opinion is as simple as finding another doctor and making an appointment. Of course you should ask around as to who would be a good oncologist to go to. Insurance companies don't seem to have a problem with paying for a second opinion. I see you've been a member since 2009. Is something going on with your current oncologist that has made you feel you need a change? Best of luck to you!
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Good luck gator, i am a big dallas fan also
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Blondie, how did you get to be a Dallas fan?
Dilerium, forgot to respond to your question about the chest pain. I do get pain right in the middle of my chest on occasion. Not sure though if I get it the day after chemo. I will pay attention to that on my next treatment. What does your ONC say about it?
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Long story son is 40 was a fan @ 7 heis not anymore, eagles, im still dallas
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so funny. My son has been a Dallas fan since he was a little guy, too. He has several dallas Christmas ornaments. He proudly wears his dallas hat and jersey which is pretty dangerous to do in redskin and Ravens country!
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dear Gatorgal,thank you dear,for respond.I,m poorly speek Eng,I had more 5 y.same Dr,now he became siak to.anather yong Dr-men, who order in March Ct,that show something in left lung.after 6 month he order second Ct,that show incrice from 0,9&0,3 to 3&&1,2.,now new Dr,she want to send my for biopce.I so scary ,don,t know what to do.
thank you agai. .wish you ahead many healthy years.happy Ney Year
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hope, the biopsy sounds like the right thing to do. You want to know if it is Cancer in your lungs and if it is, is it the breast cancer or another cancer. Knowing exactly what you are dealing with is important in knowing what the best treatment would be for you. I would encourage you to have the biopsy. If you aren't comfortable with the doctor who replaced your original oncologist, try to find someone else. It is better to have a doctor you have confidence in. You will feel less scared when you know what you are dealing with and get started on a treatment plan. We're here for you. Let us known how the biopsy turns out. The procedure is not difficult .... You can handle it!!
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well that might be nice to have a longer break schedule each cycle gator. If it is just as effectie then why not?
My onc doesn't say a lot about things like that. She puts it in my notes. She nods. Says oh or that can be an SE of chemo, things like that. I've come to just not tell things unless they bother me constantly. I end up playing my own dr a lot.
Treatment and the manner in which I am treated feels so different since all of the dreadful progression news came. They often make me feel like a lost cause and they are just humoring me. I have wanted tonshopnother drs but am not sure it would be much different. They don't mean to make me feel like that but I tend to read between the lines and also can be very cynical. It's a very differnt world from the "battle" that we were fighting in the beginning. I digress...
Funny about the cowboys. They aren't doing too bad this year I think. I'm not a sports fan but you kind of have to like the boys by default living here.
Hope everyone's year is off to a good start.
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hope, don't worry too much about a biopsy. It's not that bad. It's done with help from the CT machine. I remember a lot of time spent moving me around to get in just thr right position, but the only pain was a few seconds when the novarcane was injected. I'll be thinking of you and wishing you a good report. Nanc
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delirium, reading your post makes me a bit sad. No one should be made to feel like they're a lost cause. I can sure understand your cynical feelings. My onc has always been more upbeat than I am and I am pretty upbeat. Whenever I have progression he says things like "we have plenty of weapons in our arsenal" and changes my chemo. In the beginning he said I could live 10 years or more with BC mets. I didn't believe him then, but do believe him now. I'm 65 and I know he is older than me. I'm worried he will retire ... He's been my doctor since 1987 except for a time period when he went to Singapore to open a Johns Hopkins Cancer clinic. He was gone for a number of years but I was in remission then. Anyway, I digress. I believe in abraxane (or any chemo from the taxane family) and I believe in you
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dear nenalee,you gave me a hope,i read lettle about lung biopsy-it scary me,becouse it inside body.
you say,its no very bad?thank you for good words,you and all you girls make me cry.all time pry for me and all
ladies and always will be
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thanks gatorgal. It's better with them a it'll lately. Except the RO and team anyway. They are and have always been clueless. It's just so differnt than when I started his at 32 with the goal in mind of "beating" my cancer. It was all get through it back then. Now tey look at me like I have the answers. I want my MO to tell me what to do again. I know she can't but it sure felt better when I thought she had all the answers. It is te brain mets that make it worst. Obviously. But everyone just looks at you with that look. I'm pretty negative right now again because my insurance company feels like they've written me off too. Brain tumors growing, time of the essence and tey can't just approve my cyber knife procedure. I was supposed to have it before Xmas. Just frustrating and scary
I dare to say I think the abraxane is doing something positive for me. I feel so much better than when I was wasting the last three months with ixempra and xeloda. Have not had to have effusion drained in a month now. Also pretty happy withdraw SEs compared to those other drugs that were kicking my butt! I hope it is easy on you too.
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Hopefinch - when I answered your pm I was talking lung biopsy. I did however have a breast biopsy called a core biopsy. They froze me and it was really no big deal. I am holding my own on my drug trial. Stable. There is so much they can treat you with now. Hugs to all.Cathy
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Deliriumpie,
Sorry you are going through this. People like us should not have any insurance or financial woes on top of what we already have! I could feel the frustration in your words. I also prefer it when the professionals have a "take charge" attitude. It makes me feel like I can still be "fixed".
Abraxane brought my mets to stable. Good drug for many.
Hugs to all,
Brenda
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