mets to lung
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oh no blondie!!! That sounds terrible. I hope yiu are not in too much pain.
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Sorry about your ankle, blondie. You're right about hanging in there. We don't really have a choice, do we?
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I've only had pleural effusion drained once and it was so painful I begged them to stop. I read on the threads accounts from people who have no problem with them. I usually keep my mouth shut because I don't want to scare anyone. Sorry it happened to someone else, but glad to know I'm not just a wimp! I did feel much better afterwards ... But I would have to be really miserable to go through that again. Blondie, how in the world did you do that?? Was it chemo SE's that caused you to fall? D-pie, have you gotten your approval yet
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got approval. Got scheduled I sart on Tuesday for five days. Landed in ER tonight after so much pain and swelling in my belly since draining. Found out have pancreatitis and gallstones. Want me to have gallbladder removed ASAP. Looks like more CyberKnife and chemo delays. Sigh....
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D-pie, oh, crap, when it rains it pours! Hope the gallbladder surgery goes well!!
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Oh NOOOOO Blondie.. that's all you need!!! Wishing you the best!Cathy
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D-Pie, do you have to fix the pancreas first before you deal with the gallbladder? I hope you get the laparascopic type of surgery, small incisions and shorter recovery period. Still major surgery. Prayers and healing thoughts go out to you!
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? PET-different
dear ladies,had PET scan-it say:no abnormal focus arias of increased metabolic activity in right lung,left lower lungposterolaterally and remaining lung&mediastinus.
#2=increased metabolic active in right neck.,but,befo rCT shows-nodules in left lower lobe
Dr. send me to pulmonologist.What to think?
Preyer to all of you!
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Hi ladies....I have a question have any of you had cyber knife on any of your lung tumor mets....I have a consolation tomorrow with a new rad/onc. ... One of my tumor sis 5.2 x 2.2 cm and my doc feels it might just be time to get rid of this one...I still have a few other smaller rumors, but this one is the one he is concerned about....I had RFA of my other lung back a few years ago...and it worked ..nothing has lit up in that area since..only problem with RFA is where the tumor is located...I also had to stay an extra night because I had a small leak...but otherwise it was an easy procedure....much more so than most things I have had done...AND I'm with GatorGal, I had my lung only drain once, it was last March, and it was the most painful thing I have ever had done..I had pockets of fluid so they had to put in leads into the two different spaces...they think they must have rested one on a nerve, because when it started to drain I got such stabbing pain that I couldn't stand it...they gave me all kinds of pain meds, to which I vomited on top of all that pain...I had the sweetest intern that stayed by my bed for 5 hours...he was afraid to leave me...I will NOT have that done again...I I will do everything I have to to prevent any plural effusion again..including this cyber knife if he thinks it will help...and of course my fluid from the plural effusion came back positive for more cancer cells...I can't seem to catch a break...I have been on the boards for years now...taking a break at times..but I have been doing this a very long time..141/2 years since original dx, and 9 years of it being stage 4 ....I'm so tired....anyway...any thoughts on the cyber knife on the lung would be helpful...thanks..K....
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Hello ladies,
I was wondering if you have experienced back pain as a result of the lung met and if you have some success to manage the pain.
There has been some back pain on the same side of the thickening pleura. Initially, we thought there might be some bone met, but the MRI and CT scan showed that I was clear. Now, we suspect that the pain is due to the met in my pleura. This is not confirmed.
The pain is strong. I tried hydromphine and keterolac, also Tylenol and Advil, and combination of these drugs. They have some effect to ease the pain, but usually last for a couple of hours.
I was wondering if anyone has similar experience and has some success to manage the back pain. Many thanks.
Elgen
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I had back pain with my pleural effusion before I was even diagnosed with bc. It went away when the fluid was drained and then came back until it was drained again. The pain was never that intense and was controlled with acetaminophen. Was there any sign of fluid around your lung? I would think it would show up on CT scan.
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Hi carpe_diem,
Thank you for the pointer. I had some effusion and had it drained in early this month. It helped with my shortness of breath, but the pain persisted.
Elgen
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KLynn - I just saw your post regarding Cyberknife for lung mets. I didn't specifically have Cyberknife but did have SBRT (stereotactic body radiation) the middle of December. I'm not sure but I think the only difference may be the type of machine they use. (FYI - they used the Novalis with me.) I have two persistent mets in my left lung that aren't responding to Herceptin and Perjeta. In December, they measured approximately 3 cm in diameter and were becoming more active on PET scan. The SBRT required me to have gold markers (they call them fiducials) placed in my left lung via bronchoscopy. They then used these fiducials to precisely focus the radiation so it hit only the tumors while avoiding surrounding tissue. Like I said, I had this in December. I had a total of 5 treatments (2 a week). Painless. I won't have a scan until the end of March so am unable to tell you how well it is working. I definitely have my fingers crossed!
Julie
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petvet, look forward to hearing how your scans turn out. It amazes me the things they can do these days! Sure hope you zapped those tumors into outer space!!
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hi ladies
Dpie- so sorry to hear about the gallbladder - ouch!
Blonde- hope the ankle is ok!
Petvet - good luck with the zapping. I suspect we don't have that technology in these parts!
Yes to back pain! On both sides below my soldered blades.
The pleural effusion draining sound like no fun. So far I have yet to experience that, thank goodness!
I have a couple of questions if you folks don't mind
Is anyone on prednisone and is it helping with breathing ?
Do any of you have strange lymphocyte counts? I read somewhere recently that lymphocyte can go up with lung mets. (And mine are up but was curious about others)
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I am on prednisone for the breathing it is helping.
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Dpie, gallbladder and kidneys have kept me off the boards recently, but are resolving. I hope you sail through your procedure and move forward with treatment as soon as possible!
Jab, yes steroids have been prescribed for me when my breathing is particularly difficult and, yes, my white blood cell counts got out of balance when the cancer load was increasing. But, lots of things can do that to white counts so don't go getting all worried about something so common.
Though my CT scan did not reveal the source of the abdominal pain, it did show that all 5 liver spots are gone. More tests are scheduled in the coming weeks. Pain is more tolerable when I know there is no visible cancer in there. LOL.
Happy news, if all goes well, on March 4, I am off to Israel for 11 days on a tour with 22 temple friends and then right from the airport on the 15th, I head strait to Ohio for 8 days to see my youngest daughter (rabbinical student and newlywed). And then a stop overnight in DC to see a museum and visit a friend's restaurant and another overnight stop in Philly to visit a museum and the zoo. My husband is joining me for the Ohio/DC/Philly legs of the journey as he is starting his retirement on March 15! On the topic of retiring, I got offered a job with my past employer which I declined due to these trips and to spend time with hubby. They re-offered the job adding I could start after the trips and work only 30 hours if I would take the job. I declined again, but I am happy to feel I am no longer unemployed - I am retired!
Meantime, my 5 kids and their 8 little ones keep me happily busy.
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Chanah! I am so happy to hear your good news! Is this all from the Femara, you think?
Great news!
Brenda
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Chan i live right outside philly let me know if u need anything
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Brenda, yes, the Femara has had significant positive effect in my liver and lungs. No so for the rib and lymph nodes in neck, which are ever so slowly progressing, but quality of life is generally excellent.
Blondie, thank you. PM me your address or phone, maybe we can touch base when I pass through.
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Great news Chanah! I still have unexplained abdominal pan. Lots of brain met trouble over last couple of weeks though. Increased vision problems not helping my mood either! Was on 8mg a day of decadron which they wanted me to increase to 16 a day after my last cyberknife treatment and falls. I only went up to 12 though since i need to be tapering down and they are causing so much weakness. I can tbarely get around the house at this point. and am not allowed to leave at all without a wheelchair. Fun times!
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Dpie, how do you sleep with so much decadron in y.our system? It keeps me awake all night when I get it as a premed on chemo days. After two treatment cycles my hair has started to come out
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quiet on the thread. Hope everyone stayed warm on this very cold Valentine's weekend. Delerium pie, how are you doing??
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Hi Glenna,
What chemo combo are you getting? I stopped chemo last November to give Faslodex a try. I will find out tomorrow if it is working (ct-scan tomorrow). I have a dry cough that won't go away. And flu like symptoms. I have not had the flu in 25 years! I would not be surprised if I get bad news.
On the bright side, the weather in San Diego is amazing. I am so lucky to have lived here most of my life!
Love,
Brenda
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Hi Ladies,
I have posted this in a few threads to raise awareness of this petition, as I think it's an important cause to all of us. But response has been slow and has basically stalled. I am wondering if many people are not seeing it, so I am now posting it in some of the active threads. I hope you don't mind me doing this. If so, I will delete it.
Some of you might be familiar with Ann Silberman's great blog "Breast cancer...but doctor I hate pink", which has chronicled her journey from diagnosis to metastasis. I know many of us share her concern that Pinktober madness does not necessarily help towards BC research for a cure. She has started a change.org petition requesting that more fundraising dollars be allocated to finding a cure rather than just raising awareness. I am posting the link here, hoping that we all can support this cause, by signing the petition and sharing on social media. Thank You !!
https://www.change.org/p/keep-a-breast-foundation-...;
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hi Brenda,
Heck, I don't know what I'm on. I just wrote that I was on carboplatin because abraxane didn't work then noticed my profile which says I was on carboplatin April through August and now on abraxane. I think I'm chemo brain confused! I'll check my notebook tomorrow and see what I'm on. Pretty sad when you have so many chemos you can't remember what you're on. Whatever it is, it's two weeks on, two weeks off.
Ihope you get good results from your scan and find the faslodex is working for you! I can't remember right now why I stopped faslodex, whether it wasn't working or then SE's were too bad. Will look to hear from you!!
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I just noticed my list of treatments says I had carboplatin last April. That isn't right. My chemo rain must have screwed up somewhere. I'll look at my notebook tomorrow and make corrections! Too tired to get out of bed and do it now
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Glenna!!! I got bad news, and I was really not that surprised. Pleural thickening has worsened. One rib met has gotten bigger. I get to go back to Abraxane as early as Friday. Good-bye, baby eyelashes.
P.S. All other organs still clear.
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crap, Brenda, sorry for your news. Well, the bad part anyway. It is good that it hasn't spread to other organs! Love your positive attitude, I.e., "I get to go back to abraxane" as if you've hit the jackpot or something! I have chemo tomorrow and I think it's abraxane. I couldn't even figure it out from my notes. I think that tells me I've been on too much chemo for way too long. I will ask the nurse tomorrow to verify what I am getting. If it is abraxane, it hasn't been too bad. Just tired all the time. I still have eyelashes and thin hair. Trimmed it on Monday because I got tired of long hair everywhere. I'm hoping i don't lose it all but it won't be the end of the world if i do. Somehow we just keep plugging along. My red and white counts area low and bilirubin has been slightly elevated though all other liver numbers are normal. Did you have low counts when you had abraxane before
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The s/e's were not as bad as the anti-hormonals, I remember. The counts got low and I skipped infusion once and another time I had to get a transfusion.
I don't know why my body does not tolerate the anti-hormonals as well as other people. The bright side is that they don't work anyway, so why even try?
I'm just looking forward to addressing my coughing/breathing issues.
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