mets to lung
Comments
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Hi all late posting for 2020
Jan has been a rollercoaster intro to Intensive care for drug induced Pneumonitis as oncologist recommended the addition of everlomus to second AI exemestane. A quick response treated wth predisone has improved lung function .
Lung mets still stable with no new sites .
.uncertain how long a second Single AI therapy will slow down my idolent lung mets
As well Im asymptomatic..no lung problems for 3 years.
Legs and hand cramps only side effect of of AI
All the best Bright in Hope
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hi Bright, how many mets do you have? I was thinking if there were just a couple of them would some local treatment be useful ?
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Bright55,
So the Everolimus caused your pneumonitis? I was considering Everolimus + Exemestane for my next treatment. MO wanted me to go on Abemaciclib + Exemestane. Insurance denied that. Now trying to get onto TROPICS 2 trial. Very worrisome that Everolimus had that effect on your lungs.
I had been coughing continuously and had pretty severe shortness for about a month. Went to see a Pulmonary specialist last Thursday who drained 550 mls out of my lungs. Everything is much better now. Have been off treatments since Jan. 10 trying to work out my next treatment.
Have widespread mets but the only thing that has been growing is the nodules in my pleura and a couple of lung tumors.
Hugs, Susan
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SusaninSF, have you had the fluid tested to check whether the cancer's pathology has changed?
I hope the fluid stops accumulating and that you feel better soon!
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Thanks BestbirdI
Yes. I asked them to check the fluid since they couldn't find any cancer in my seven core lung biopsies and last Thursday I went in for a breast biopsy and they said in the ultrasound they couldn't see anything that looked like cancer to biopsy. They took five cores anyway but they weren't hopeful. Weird. But the pulmonary onc said, "It's like fishing. Just because you didn't catch any fish, doesn't mean there aren't fish in the pond." In both my breast and lung, at first mets diagnosis, I had very large tumors, both 4+ cm. They still show up as masses in my scans but I wonder if it is scar tissue. The only place I have seen progression has been in my pleura. Increasing number and size of pleural nodules. Hopefully, an analysis of the fluid will have some information.
Hugs, Susan
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Hi Bestbird
many thanks for your detailed info on therapy options
Cdk's are an option
i live in australia..and do not qualify for reduced cost
Especially having seen recent BC .org podcast which is about CDKI lung side effects...
I am uncertain about starting
Q. have you come across any detailed info on this issue as pod cast was a general discussion
Many thanks
Bright in hope
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Hi, I'm new to this subforum. I was diagnosed with a metastatic progression just over a week ago. I had a lung biopsy last Tues but found out yesterday the tissue was too necrotic to properly assess. I will have to do it again. Still waiting on a bone scan too.
If it's TNBC again, my MO is suggesting the next phase of the Impassion 130 trial which should open at a site near me in mid March. That's immunotherapy + abraxane + something else/placebo. Anyone doing the immunotherapy?
But first we need to confirm the hormone markers & make sure I qualify for the trial. It seems scary to wait what will probably end up being a whole month & I might not end up qualifying. My original ca was very aggressive and this recurrence seems same. It's already 6cm in the lung. Essentially the whole middle lobe of the right lung is whited out. But if I start any treatment now I'd definitely lose a spot in the trial and accessing the immunotherapy in other ways is very hard and expensive.
I have the cough and the alternating sweats/chills. Tylenol Cold during day and nyquil at night seemed to keep it under control for a couple weeks but I think it's getting worse already.I'm in the sad and freaking out phase today
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moth , why don't you try and sort some supplements/ metabolic blockers for you - mebendazole or fenbendazole ( there is a topic about fenben in the Mets open for all to contribute section, called ringworm drug for cancer or something like that.) and lots of other medication , frankiscence oil rubbing into your chest and breezing it , anything really.., . It may help but if not at least you are going to feel like you are doing something..
I was without treatment for 2.5 months after Mets diagnosis; I had cough and sob ( shortness of breath) on diagnosis which has gone about a month after , about a week after biopsy without any conventional treatment- either on biopsy that particularly offending lymph node was reduced enough to make a difference or all the changes and medication I started taking started to work or some miracle happened.
Hughs to you , wishing you to control the symptoms and knock the cancer down if not off completely
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Just wanted to pop in and remark on a previous check in I did about coughing up blood. We thought it was cancer related but pretty sure now that I had a chest infection of some kind. The inflammation in my lung resolved and the blood is no more. So wanted to report that for anyone in the future that may have similar happen.
Sorry to see you here Moth. I recognize you from posts in the Canadians in BC thread. I haven’t been active in there since my MBC diagnosis in 2017 but frequented it when I was early stage. Best of luck with the treatment protocol you end up on.
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HI Ashlyn. Glad to hear your chest thing resolved & turned out to be infection related. I also have liver mets and those are worrying my MO more. The lung met is one big (6cm I think) necrotic blob. I still have an annoying chest cough but nobody seems to know what it is from or what to do about it. It's only in the day. I'm beginning to think it's related more to the tumor on the mediastinal lymph than the lung tumor. Thx for your good wishes. Hope verzenio is your magic super long ride.
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Hello everyone. This is my guest check in on this topic. I was diagnosed with high likely hood of Mets to left lung last week. Pet showed 1 8mm light up in left lower lobe, I also have a 4mm tumor in upper left lobe but to small to sti anything on PET scan. CT guided needle biopsy confirmed cancer and cells appear same as initial cancer. Waiting for removal of tumor.
Wondering what types of surgeries you ladies have had for lung tumor removals?? Especially those who have had a tumor removed in the left lower lobe. Im sadly not finding much information on left lower lobe surgeries and I don't meet with thoracic surgeon until Thursday.
Thank you!!
~Katie 💗
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ipenelope,
I have never had surgery suggested but have had radiation and a long list of chemo/targeted/hormonal therapies as you can see from my profile. The only procedure I have had is getting fluid taken out of my right lung due to pleural effusion. It was a quick and painless procedure that immediately remedied my shortness of breath. I will probably need another removal of liquid as it is building up again. If it keep happening, they can put in a temporary or permanent stent so that the fluid will drain.
I have heard that lung resections are terribly painful and they can't do anything close to the heart.
Hugs, Susan
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Bumping this thread up. Hasn't been much activity.
I also see that there's another thread with pretty much the same name. Are we abandoning this one?
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hi Susan
Great to read your post
I feel that this Original lung mets thread has lots of info for the those first diagnosed
So we should continue to use it
I left a message with moderators to see if new groups posts can be added to is original group
...makes sense to have only one.
Im on the kisquali /faslodex combo
Five months with some regression of plueral nodules
Minor skin irritation
Your posts have given me lots of info for treatment options
All the best
Bright in hope
So all good for me
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Hello members,
Just letting you know that there is a new thread on this topic and so for the purposes of avoiding duplication we are locking this thread.
Please click on the link below to the new thread:
The Mods
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Hi. I am glad we now have 1 lung mets thread. I had my 4 month scan on Friday. My liver remains clear. All my existing lung nodules remain the same size, except my largest nodule grew from 13mm to 15mm. Sadly, I have a whole bunch of new nodules. The largest is 3mm. They think the new nodules are from the Covid I had starting on December 27th. But they have no way of knowing if they are cancer or covid related. So, if you have had covid, be award of this possibility. I hope this does not happen to anyone else! 2 stinking 'c's we now have to deal with. Ugh. ~kar
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Thanks for keeping this thread alive! It's so useful to have information on how people are doing with mets to specific areas. I am currently on Enhertu on the DESTINY04 trial and my lung mets have been stable. My liver mets have been more active, so I've spent more time on the liver mets threads lately.
KarPC - I hope that the new lung spots are Covid-related and not new mets! Given that the known mets are not growing, it seems likely. I'm so sorry that you had Covid and that it's adding to your cancer worries!
Theresa
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Thanks Theresa. Wonderful to hear the trial is working for you. I am also glad the lung mets thread is seeing more activity. I am the opposite, my liver has remained clear for 3 years, but my lung mets slowly grow. I follow the liver mets thread tho and all the wonderful ladies on it. ~kar
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Anyone here have experience with Abraxane? I just washed half my hair down the drain this morning. It was a bit of a shock because my MO used the words "hair thinning" so I took that to mean - well, it would fall out gradually. Nothing gradual about this morning. I'm ordering a few warm fuzzy cloche's in hopes my hair holds out long enough to get them! I wore wigs the last time and I hated it! They just were not comfortable on a bald head. Lessons learned. Advice welcome.
The upside is I actually started feeling better and more like myself after the first week of treatment and I've felt increasingly better week after week so far. Fortunately, I look cute in a hat!!
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I had abraxane- it has the same effect on hair as does taxol - basically loss of it. I used cold caps as I did not want to go bald and wear wigs if there was an option not to.
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Yes, Abraxane does cause the hair to fall out. I was ok with the hair on my head leaving, but loosing my eyebrows and eyelashes really upset me. One does look a bit sickly without those. GR4C1E, I answered you on another thread, but a question for your MO would be about SBRT. It can be done more than once and is an easy protocol. If the radiation kills the tumor, it does leave scar tissue. A lot depends on the size of the lung mass.
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Thanks again, JCSLibrarian. I'm starting to realize that the hair is engaged in a full mutiny. I just plucked a ball of hair off the back of my sweater. Last time, with Taxotere and Cytoxin, I lost my hair, kept my eyelashes, but lost my brows at the very end. It was kind of funny. I found out my brows were jumping ship when I scratched my face and accidentally scratched half of one of my eyebrows off! OMG, I never laughed so hard. I wish I took a picture. Not many people walking around with an eyebrow and a half! Priceless! I found that wigs with bangs can cover a lot!
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I switched from taxol to abraxane in nov and all my little taxol regrowth (I lost it all and then about 4 mnths later started getting stubble), it all fell out.
I'm getting little stubble again. For a while I had a few eyelash tips showing too but I think they're gone again.0 -
Yes , eyebrows and eyelashes ...
It hurts to look ugly without them😕
Permanent make up is a good option. When one is sick one does not have to look like they are so !
It is not the same of course but a decent substitute and makes a difference in how one looks !
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Yeah. Lost my eyebrows and eyelashes on Abraxane. Now on Trodelvy for over a year and they still haven't grown back. I pretty much have no hair on my whole body. I feel like a dolphin!
Thought about the permanent eyebrow thing but one of the aestheticians said she wouldn't do it on anyone on chemo. I do think I am more likely to develop an infection so decided not to do it.
I also can't stand the itchiness of wearing a wig so just wear hats all the time. I also usually wear sunglasses and a mask when I go out so no one can see my face anyway.
KarPC, I have a bunch of lung nodules too and they seem to increase in number over time. I also have some pleural effusion. Had it drained once but it's smaller and not growing so I have just left it alone. A few larger tumors near the center of my chest. All in my right lung. My left lung is clear. Though I also have brain, eye, and bone mets, only my lungs mets have been progressing.
So happy to see this thread become active again!
Hugs, Susan
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Hello ladies. My wife, Polly, has been battling MBC for almost 2 years now. Until recently, she's been "lucky" (I suppose) that she's had no real symptoms. Well, unfortunately that has changed, and she's recently had shooting pain in her left shoulder. This is apparently referred pain from the tumors in her lungs. Although her MO has indicated she'll prescribe an opioid, Polly would prefer to avoid that if possible (at least for now). She's been taking Advil, but that's no longer effective. Any suggestions? Thanks in advance.
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BLmike
I am sorry Polly it's going through this tough time. I certainly understand her desire to avoid opioids if possible. I only take them for the very worst of days and avoid them most of the time.
Pain is a tricky thing and many people respond differently to drugs. Is it possible that she could try a stronger anti-inflammatory such as Celebrex? It doesn't take away all my pain but it certainly makes a big difference from if I don't take it. I am on the highest dosage daily at 200 mg morning and evening.
Is she allowed prednisone on her treatment? Prednisone can be very helpful not only in pain relief but in energy.
If her cancer is being controlled, is it possible she could have a local treatment like SBRT to the tumors causing the pain?
I go to physical therapy to help my muscles relax and learn how to exercise those painful areas. It could possibly be a tool in your bucket.
I hope you find somethingacceptable that works to curb Polly's pain.
Dee0 -
Mike, my general advice would be to inquire if there's a palliative pain team and see if you can get a referral. They just tend to have a bigger tool box than the main oncology tram.
Two options separate from pharma: treating the tumor with rads or sbrr; neurosurgical blocks if they can identify the nerve (these vary from temporary to permanent)
Identifying the cause of the pain. Is is nerve or muscle or localized inflammation. Maybe topical ointments? Massage? Biofeedback?
Physio to prescribe stretches and positions to avoid to keep the arm as strong and flexible as possible?
Cannabis? Maybe just adding cannabis on top of what she's using would be enough to take edge off and allow sleep?
Best wishes to you both
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Mike,
I have Plueral Mets and my right should has been aching. I had an X-ray and I have arthritis in the shoulder but did not realize it could come from lung? Is her pain on the top of her shoulder?
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Mike,
I too have never heard of shoulder pain coming from lung mets. I have shoulder pain on and off but it is due to deterioration of my bones there and probably also my over-exuberance while doing yoga. This showed up on my last bone scan.
Has your wife had a recent bone scan?
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