Life on aromasin
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I do not remember hearing night was better than morning for taking the DANG pill...but I have been taking it in the morning
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I've taken it in the morning from day 1, with no problems. I don't think it matters when one takes it. Consistency of time taken seems to help any medication however.
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When you take it really doesn't matter. What does matter is taking it the same time everyday so that you have a steady level of the drug in your system.
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I don't think it really matters when you take it. It depends on what is better for you. I took the Arimidex at night but I couldn't tolerate the joint pain so I was switched to Aromasin. I take it at night and I tolerate it much better. I do have knee joint pain, memory problems and some depression. I'm 58 as well and feel so much older since taking the AIs. Ugh!!
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Oh skin--mine is so dry it has peeled a couple of times like sunburn does and I pull off layers of skin--I try to use thr best lotions but my face is awful, wrinkles and dryness galore so---I'm a mess anyway. LOL
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I think the aging of skin we experience is from the elimination of almost all estrogen production. When I took a two month break between arimidex and aromasin, my skin bloomed after the first week. I had a glow return and my skin became more flexible without the fine lines. As soon as I went back on an AI, it returned to it's duller state with more fine lines. Going from menopause to post meno gives the same result except you've not lost all your estrogen. Most of us aged 10 years over those few years.
It's also important to realized that we get older each day and are aging regardless of any TX.
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why thank you yorkiemom! I've been using plain coconut oil on my skin lately and it looks some better, but it has aged a lot!
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My skin is no drier but there is a major loss of elasticity. It looks like it's fallen, lol. I've been back on the little pill for five days now and have new joint problems. The knees are talking to me lots. Never ever have had knee problems. Will look for a wedge to put under the knees at night. We must do what we must do.
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no one has any info on aromasin and lobular?
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I believe it's our HR/PR status that determines our need for an AI or tamoxifen, so whether you have ILC, IDC, inflammatory, etc.. Is not the decider, only hormone receptor status decides. I think you don't see lobular as much because it just isn't as common. A friend of mine with ILC HR+++/PR+++/HER2-- is on an AI since she completed her chemo.
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Thanks, good to know. Can't recall if it was the Armidex or Femara it was best to take at night to help with SEs. Will now take it in the mornings.
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Have any of you been involved with any trials at the University of Michigan? It looks like this doctor is trying to find out why, what and who! http://www.cancer.med.umich.edu/news/pain-after-breast-cancer-treatment-2013.html
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Holy cow the knee pain has increased. It feels like the knees are on fire. I am supposed to be doing exercises for the Achilles tendon but can't because it exacerbates the knee pain. I have been doing these exercises for months and don't think my form has changed. It is just in the week since I resumed the exemestane. I have to be able to stretch the Achilles. Maybe there is a way to modify the exercises. A lot of ibuprofen doesn't touch the pain. Good grief! I hope this is just temporary. If not I will have to quit this med once and for all. Dang dang dang.
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Corky there is so much to this little tiny pill, I don't even know what to say.
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Just getting back to read the responses. Thanks to everyone for the input. I'm starting week 3 and I'm already beginning with pain at night and finding it hard to get going in the mornings. But I'm a fighter and once I get going, I'm good. Hoping it doesn't get worse. I didn't have trouble with chemo or rad.
Thanks again
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gee, almost hate to admit that I am really not having SE. Doc says I get to end the dang pill the end of this month. So will I feel any dif? not sure but just making it the 5 years seems vital
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Proud, WHY would you hate to admit that??? SEs BAD. No SEs GOOD!
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guess because I feel bad for folks who are having SEs, but I think my dear gym workouts are helping me avoid the aches. Strange as I have many side effects from other meds (as in simple NSAIDS) so really odd who gets the SE
but still gonna stop the end of month! think that is only8 days?
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Proud, I have read here somewhere that stopping this drug cold turkey will have side effects like headaches etc, almost like withdrawl and that it is better to taper off like taking it every other day and then every three days etc. Not sure if I am right and hope someone else comes along that knows about this. I just would hate to see you have needless pain/suffering if you can minimize this by tapering. Congrats on your 5 years! You are my hero..lol
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Yes, congrats on the 5 years proud! I'm only into year 2, but like you haven't had much difficulty, at least as far as I can tell.
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hmmmm. had not heard that but it may be a good idea to follow. actually, I have some extra pills so maybe I will do the tapering. Lordie but I know how bad it is getting off of steroids like precnisone so seems to be a easy enough thing to follow
I think part of the reason I had so little trouble may have been due to the fact that I never stopped going to the gym, even during rads and all. I did less but did something. I get stiff as a board and achie if I miss my gym so maybe?
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Proud, I'm the same way. I don't go to the gym, but ride my stationary exercise bike about an hour a day. Exercise is soooo important for so many reasons.
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course I do remember having a meltdown right after diagnosis when I was on an elliptical, one of the trainers came over to say hello and I spilled out...I have BC!....she informed me that I should be taking the vitamins that she was selling...as if I had, I would not have gotten BC. I was too shocked to say much, since my doc was very specific that I only take suppliments she had approved.....I blasted that trainer the next time I saw her~~~told her she should keep her mouth shut as not to harm folks....
can you say I was a little emotional?
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Proud, that is beyond despicable!
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It sure is a memory that sticks with me till today. When I confronted her, she said she had researched it online and "Knew"....so glad she is not at the gym anymore!
ok, out for some "snow related exercise" or snow removal!
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OMG, she "researched it online and knew!" Cruel and stupid! Arrrrrrrgh!
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Proud, I am so happy for you. But I am not longer going to take Aromasin because the knee pain is intolerable. It has a cascading effect to other joints. One has to be able to walk if at all possible. Walking is the foundation of exercise, followed by weights, bike, etc. for those of us who are able. I am hopeful that the knees will recuperate and then I can try another AI.
Camillegal, thank you for the kind thoughts. You are a true gem.
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I am not good on walking actually but do not think it related to the aromasin. I had a problem with my big toe and had been told I needed surgery for about 10 years and delayed it. dumb me but when I finally did the foot surgery, it did help a lot, before surgery I could not do treadmill, after the surgery now I can do 25 min. But blame that issue on "I was stupid and wore hi heels and ran around NYC" and broke my toes so many times....
anyway, did about 45 mi at the gym so now relaxing, snow is melting
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Proud so happy for u, u'r at 5 yrs now> wow this is so good, good luck with the stopping of this.
Corky I must have missed something what did they say was wrong with u'r knee?
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I called the MO's office today. She said yes, absolutely discontinue the exemestane. I will see the MO about another AI after the knees recuperate. The PT said it sounds like the patellar femoral joint in both knees is inflamed but until she sees me she can't say for sure.
Edited to add: Proud, sorry I wasn't clear. When I said that walking is the foundation of exercise I meant that even to go to the gym one has to be able to walk from the car to the gym. Sitting in a chair crying from burning knees just won't work. It is only five days off the med and already the knees are feeling better.
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