Kicking LEs butt!! Exercise & Self Care Log
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Like Tina I have been exercising but not logging in. Lots of preparation to be gone to NLN for six days.
Tina and Ohio--Glad to hear you are slowly working your way back. Keep it up!
I hope to learn a lot at NLN. My therapist is going also. We are taking different presentations so we can compare notes later.
I have a direct flight so will try to get the elliptical in this am. Then checking out the fitness center at the hotel when I arrive.
My first presentation is on exercise by K. Schmitz. Hopefully I will have some interesting info to present on this thread.
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So, Becky, when I arrive at the NLN hotel, should I be meeting you in that fitness center?
I'll be going to the exercise presentation, too. I never got a satisfactory answer from NLN on why their current position paper says that pushups are OK for those with or at risk of LE--this contradicts the whole idea of doing resistance training using measureable weights, added in small increments. So I'm hoping to ask that question of the exercise experts who are at the presentation. With extreme politeness and deference to our host, NLN, of course!
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Carole and Becky - we (fellow LE friends) are well represented at NLN!
Have fun and be memorable.
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Really looking forward to hearing about the exercise presentation. Hope you guys have a great time. I'm sure you'll find somewhere to walk in the evening for ice cream. :-)
While I'm here, I might as well report that yesterday was a low step day as it rained steadily. I did my MLD last night before bed and this morning upon awakening. Overcast again and high chance of rain. I'm keeping watch for when to walk. If I get wet, oh well.
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Ice cream...not!
I'm not off to a great start on my NLN adventure, because my first flight is delayed by weather, and unless there's a miracle, I'll miss my connection. The next flight is four and a half hours later, so my arrival will be very late. Aside from the obvious exercise benefit that I'll be able to walk miles and miles in the Detroit airport to kill the time, none of this is very fun. This happens to me all the time for work travel, but for the NLN it just makes me want to pout! Sitting at an airport frustrated at the moment. I am so looking forward to all that I will learn, and everyone that I will meet at this conference. Just want to get there!
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Oh, Carol, that just stinks. Pouting first, then deep breathing! Four hours to walk will give you time to run a marathon. I hope it helps pass the time. Put on your thinking cap. Is there possibly anything you've forgotten to do? I know you, so I'm not betting on it (LOL), but it's just a thought. You will soon be on your way.
The rain is playing with my head! Sun's out . . . put my sneakers on and when I reach the door: Rain. Drat. Okay, back to working on anniversary card for my hubbie of 16 yrs as of today. Sunny!!! No, wait, rain! Back to art work, etc. I am walking today, dagnabbit!0 -
carol57 - Amongst my top ten stressful moments of all time would be times spent in an airport. I agree ...deep breaths and lots and lots of walking.
I can't wait to hear about what you all learn at the NLN forum! Please keep us updated!
Tina337 - Happy Anniversary!
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Thanks, Dawne. Those pics are coming your way.
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I'm walking a thin tight rope wire...high up in the air right now ...
Very stressful family situation right now ... my dad made it clear a couple of weeks ago that he wants all of mine and all of my mom's stuff out of the house (she died three years ago come November) *sigh* and I'm trying to move out all that stuff while working full-time. I did too much yesterday and my arm feels achey today... supposed to work out with my trainer today ... 6K coming up September 16 ... lots on my plate right now with a family that has kind of flipped out ... that looks at my arm and says, "It doesn't look swollen to me" ... I'm walking a fine line here ... don't want to my LE to get worse but I've gotta get stuff done ... not sure I can win here ... praying I can get out of all this without a major flare ... feel like I spend my life somewhere between this thread and the GRRRRR thread ... wish I could graduate and spend most of my time here.
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Happy Anniversary Tina!!!
Carol, That really really stinks - think it deserves a grrrrrrrrrrrrrrrr - Ok now breathe! don't forget the water too *wink* *wink* - have a great time when you finally get there!!!
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Oh, Dawne, FAMILY!
How come they're such a stress when we love 'em?!
Take it slow. You can only do what you can do, and if nobody else gets it, then you have to determine to take care of yourself ANYWAY. You can do this! LE is a medical issue, and much as eveybody wants you to ignore it and get on with everything they want done, it's just not possible. Smile sweetly and take your time. Rest as needed, no apologies. You're important to us!
Gentle hugs,
Binney0 -
Carol, how frustrating!
Walk, rest, breathe, walk. Especially rest--you've got some really physically taxing days ahead. Hugs and brownies,
Binney0 -
Dawne, please take care of yourself. It's frustrating to feel like you have to justify what you are able to do in a certain amount of time. As I learned with visiting my friends in July and traveling with my husband, this is all about setting limits. You give them brief info, explain what they can expect - that's where you come in as far as evaluating what is right for your body - and stick to it. I have said to people that if they are looking for long-term participation, then I can't blow all my reserves in an hour, or one day, etc. You will be upset with yourself if you give in and then swell or flare, as you're the only one suffering. Like Binney said, you're important to us!
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Dawn - I will pray that things get smoother for you... I understand what you are going through... Make sure you take care of yourself - we need you!!!
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Dawne, those belly breaths can come in handy for you. And if you have the nerve, suggest 'em for some of the family, too. My family is a bit mystified by my LE, because I don't swell to a noticeable point, and I wear my sleeve only periodically. So I think they have a hard time understanding how I seem to have it only once in a while. If I broke my arm, I couldn't take the cast off whenever I didn't want to wear it. They know intellectually that I am in discomfort, but I don't complain and only my husband sees me do the boring MLD. So no wonder they are puzzled. In my case, family responds well to the reminder when I need help with heavy lifting or need to stop repetitive motion. I feel lucky for that, and my heart goes out to you if your family makes LE more difficult than it already is.
My step count is just under 16,000 today, thank you Delta Airline. One weather delay, one cancelled flight due to maintenance issues, and a delayed replacement flight because the crew got stuck somewhere. Weather I can forgive, and I begrudgingly admit that I do not want to fly on an unmaintained airplane, but I could have done with less walking time today!0 -
And Tina, I will just bet that the card for your DH is spectacular, judging from the drawing you used as your avatar for a while. What a great milestone! Congratulations!
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Carol, I hope your situation is soon remedied if it has not already been. Mega steps/miles for you today!
My goodness, it was positively soupy outside. I discovered when the sun was out it was way too warm to walk. Waited until sun started to set and was lucky no rain. Clocked just over 3 miles this evening. Lots of water. Will be doing second round of MLD once I get in bed.0 -
"You're important to us."
So simple. Yet so touching right now. I got teary reading those words. I don't feel important to anyone right now. Thank you ladies sooooo much.
I hear you on pacing myself and setting boundaries ... I've never been a good one on setting boundaries ... had to get better to survive ... but still a struggle for me. No one is going to take care of us besides ourself ... my dad is not a patient nor a compassionate person so it is especially hard.
Appreciate you all so much.
One.day.at.a.time.
Had a good workout today...worked more on flexibility than we've done for awhile and my muscles are tight. Can't imagine why.
I really need to get back to my yoga/pilates/thai chi class. 0 -
Marathon travel continues...almost there! I am up to 18,220 steps, adding this morning's early hour count to yesterday, because the pedometer reset. What a frustrating day, but shuttle will have me at my destination in another 20 minutes.
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Carol - Ugh. I hope you don't have an early morning! Rest to you and peace.
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MLD this morning, but no walk this evening. Just felt kind of pooped, so I am doing things around the house. Drinking plenty of water and plan for another session of MLD at bed. Caught up in drawing today, and it feels good to get back to that. My hand and arm are not hurting at all. The drawings, well that's another story! I remind myself it's about the process, not the product . . Just having fun.
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Tina, it's great that you're back to drawing! I'll bet you're back to walking tomorrow.
I got in the hotel at 1:15 a.m., a bit tired but glad to be done with that day. Today Becky and I (at NLN together) got 9,500 steps in, mostly because we didn't start the official conference activities until 1 pm, so there was time for walking in this very large hotel. Temp reached 104 outside today, so definitely stayed in, but we simply walked eight floors, taking the stairs up to the next floor, to boost the steps. Tomorrow is a sit-down-and-listen day, so I'm not sure how much activity either of us will get in. Conference was interesting today...see the NLN thread for details.
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aiming for a 45 min walk broken into segments. Weather is just perfect for walking. There are no excuses for me today.
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Hi All, Carol has been keeping you somewhat posted and I have not been online much so will catch up some. She reported our exercise yesterday. She did not mention that a lot of those steps were on stairs! We would walk across one floor then go up or down the steps to the next floor.
We had all day meetings today and I mean ALL day. Carol got up early and walked 3000 steps but I showered and got ready instead but did not feel guilty at all about it. After the last meeting and before the Jobst reception my therapist said she was going to the fitness room to work out. A little guilt crept in. I came back to the room and did three miles of Sasone. We went to Jobst party for dinner. Back to room. Feeling I had done at least 6000 steps. I had just turned on my computer to catch up here and report some interesting things when Carol came in and said she needed about 3000 more steps and did I want to walk the halls with her. At first I said no but guilt really crept in! We went all the way to the first floor and raced up many steps to the third floor. We then went up to floor 10 on steps--walked across the 10th floor then took all of the steps up to our floor which is 15. By then we needed only 45 more steps. I THINK we did it.
I am now officially tired. Will have to report on the conference site later. I am sure Carol has already posted.
Having a great time with my therapist here. We sat together today and she was my medical dictionary! That exercised my brain!
Dawne--wish I could be there to help you. I am thinking about you.
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The official Carol/Becky NLN Step Count is 10,138. And my pedometer somehow knows how to capture altitude, so it counts stairs, too. I have 32 flights, because my 5:30 a.m. effort was to walk from floor five to twenty three, halls plus stairs. And from this post and Becky's you should all rightly conclude that we are simply...crazy. No, seriously, it's a lot easier to find moments and resolve to get the exercise in when there are two of us to keep each other motivated. (Becky's guilt crept in when I whispered the word 'cake' as I passed by her on my way to the door...we both at some at dinner!)
Carol
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Dawne, I hope your exercise today went as well as yesterday. It's always nice when the weather is on our side!
Good steps yesterday, Carol and Becky, but you guys did great today. And your ears got a lot of exercise as well!
Last night I ended up getting some exercise dancing in my living room. Surely I'm not the only goofball that does this? Music makes me feel wonderful and relaxed. Today I walked two miles. Time for MLD shortly. Going away for the weekend and staying with an old friend, a second one coming in. The trick will be how to get my walks in. Probably will have to have to go it alone but planning to stay on track.0 -
Okay, MLD last night but none this morning, as I am up and gathering things for my weekend away. Meeting a friend for lunch before arriving at my destination. Talked with my friend who is hosting w/e, and she has a treadmill. I have her okay to use it, and she is also on board with walking around town if it's not too warm. Turns out she has wanted to start walking. So, I have exercise support for the weekend and won't be derailed.
I am learning that a little extra planning and setting expectations with others goes a long way in getting what I need with self care. Hope everyone has a good day!0 -
Carol and Becky, you two are walking warriors!
I'm keeping at my online yoga, it's sure kicking my but. I tried to get in a camel pose, it's an alternative to downward dog. Yeah right, bend my back like a pretzel! I need to take F2F classes soon.
I also picked my weights back up, I don't want to lose the "guns."
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Working both jobs today - finished one now off to the fabric store... I wish I had a pedometer so I could see how much I really walk in that 6 hours... First day back to both jobs on friday... pray for me please...
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Nibbana, there will be a research presentation at the NLN conference about yoga for breast cancer-related lymphedema. It's to be presented tomorrow, and I will ask permission to post the abstract of research results here, and in any case I'll write up some notes from the presentation. The researcher actually did a 4-week randomized controlled trial of a yoga intervention when there were supervised yoga sessions, followed up by six months of follow up. They were looking for changes in both limb volume measures and in subjective areas related to quality of life. The abstract is not clear on whether the researchers noted any volume reduction, but it does say there were benefits. So I hope the presentation gives more information!
GmaF, get thee to a WalMart, where you can find some pretty inexpensive perometers that will do the job of helping to motivate you, by reminding you constantly of how many steps you have already taken during the day! I hope this first day back in dual-job mode is treating you kindly!
Carol
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