5 year survivors, post your screen name here!

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Comments

  • songbird68
    songbird68 Member Posts: 127
    edited October 2015

    Where'd you get that gorgeous smiley Iago?

    ooh found it!

    Hug

    Happy

    Heartxxxx

  • lago
    lago Member Posts: 11,653
    edited October 2015

    ThumbsUpLoopy

  • Letlet
    Letlet Member Posts: 55
    edited October 2015

    Yes Survivorwoman and Iago! I remember you all so well! There is also someone named Paula, I forgot her exact screename...but we were all together. I am so happy to "see you both. I remember we posted our treatment experiences...I can't believe it's been five years...may we be blessed with many many more :)

  • lago
    lago Member Posts: 11,653
    edited October 2015

    Letlet I don't remember if you remember Survivorwoman from NYC and Mumorange from Australia but I met them both on the 10th in NYC. It was like we were old friends. Celebrated life

  • leftduetostupidmods
    leftduetostupidmods Member Posts: 346
    edited October 2015

    6 years and counting here. Wasn't able to recover my old account so I had to make a new one. Old forum name was Day

  • songbird68
    songbird68 Member Posts: 127
    edited October 2015

    Awesome news Seachain, congratulations!

    HappyLovely to see you back here(not that I saw you first time round, but you know what I mean!)

    x x x

  • Joanne58
    Joanne58 Member Posts: 317
    edited November 2015

    Sure loved reading all these great stories! I'm adding my 5 years of NED as of Sept. 7th, 2010, and how my dx changed my life in many ways. With the struggle of BC, I got to know myself more intimately--what I was made of. Allowing others to help me softened my pride and caused me to love them even more. I found myself anxious to give what I could every time I met someone at the market, asking for help, or those cute kids that want you to buy sweet stuff they're selling. I used to pinch pennies, but now I don't even think about reaching into my wallet to try to make life a little better for someone. I still have so much more to learn, and lots of weaknesses to overcome. I thank heaven for the chance to have more time to do this. Life is rich and worth every effort to love it and live it, come what may. Blessings to all!

  • live_deliciously
    live_deliciously Member Posts: 183
    edited November 2015

    thanks joanne58 for sharing. Great words. Congrats.

  • Nash54
    Nash54 Member Posts: 699
    edited November 2015

    Joanne58..Congrats and thanks for sharing your experience. Wishing you a lifetime of NED!!!

  • lago
    lago Member Posts: 11,653
    edited November 2015

    Joanne58 Congrats from another 5 year NED triple positive gal

  • pumela115
    pumela115 Member Posts: 48
    edited November 2015

    Congrats Joanne58!!! Nicely said!! 

  • LindaKR
    LindaKR Member Posts: 1,304
    edited November 2015

    5 1/2 years post diagnosis - still NED!!! My docs always seem surprised! 

  • lago
    lago Member Posts: 11,653
    edited November 2015

    Yay LindaKR! (BTW ToniLee is still NED too. Also triple positive stage III). Not sure why they are surprised.

  • LindaKR
    LindaKR Member Posts: 1,304
    edited November 2015

    Thanks lago - and yippee about ToniLee  too.  We've been on this ride together, it's always nice to see posters that started about the time I did! 

  • Joanne58
    Joanne58 Member Posts: 317
    edited November 2015

    Congrats, to you, too, Linda! And thanks to all those nice responses to my post. BCO sisters' support warms my heart and gives me hope :)


  • NatsFan
    NatsFan Member Posts: 1,927
    edited December 2015

    Eight years for me today!

    I'm fortunate enough to be NED, and I'm down to an annual MO appointment - quite a change from those months after dx when it seemed that life was one doctor visit after another! Enough time has passed that cancer is beginning to feel like something that happened to me in the past, and is no longer on my mind every day. Sometimes I look back at those days and marvel at myself and wonder where the heck I got the strength to get through it all. But of course I didn't have to do it alone. I never could have done it without those of you in the BCO community. The surgery threads, the March 2008 chemo sisters, the MOJO thread, the Vinnie tattoo thread, and the place where I spend my BCO time now - the Daily Exercise thread.

    Yep, I'm still here on BCO, checking in almost every day on the Daily Exercise thread. I've gotten to know some truly amazing people that thread, and have been privileged to even meet some of them in person. If anyone is looking for a bit of encouragement to get out and get moving, check us out! Let's Post Our Daily Exercise!

    There's a special bond among survivors, and I treasure the people I've gotten to know over the years here on BCO. Thank you all - you have enriched my life more than you will ever know.

    Happy New Year to everyone!

  • live_deliciously
    live_deliciously Member Posts: 183
    edited December 2015

    super info on 8 yrs NED! Hope to join you in being able to post someday. Bc is on my mind everyday still.

    Congratulations natsfan and so many thanks for sharing for us newbies

  • ruthbru
    ruthbru Member Posts: 47,683
    edited January 2016

    Congratulations, Natsfan, sending love to you Heart! I am another long-timer (coming up on 9 years) who hangs out on the exercise thread & I join Mary in inviting anyone who is interested to come over and join us. Exercise is the biggest non-medical thing we can do for ourselves to lower the chance of recurrence (plus you look better, feel better, and are healthier overall), so it is well worth the time and effort (and it actually becomes fun when you are doing it with friends.....check us out!).

  • badger
    badger Member Posts: 24,938
    edited January 2016

    hi all and Happy New Year! Mary, congrats on eight years out!

    I'm at six years out but not really counting anymore. Anniv sort of snuck up on me this year.

    I also frequent the "Let's Post our Daily Exercise" thread and echo the invitation. Great FUN bunch of people who support and encourage a healthy exercise habit. All ages, stages, and fitness levels are welcome. ♥

  • NatsFan
    NatsFan Member Posts: 1,927
    edited January 2016

    Thanks Ruth and Badger!! (Two of the great people on the Exercise thread.)

  • ruthbru
    ruthbru Member Posts: 47,683
    edited January 2016

    Happy

  • Joanne58
    Joanne58 Member Posts: 317
    edited January 2016

    Great to hear more 5 + years out stories! NatsFan---I think you are the one who's sister-in-law I met while getting rads here in California. Can't remember her name, darn it, but maybe you can tell me how she's doing. Hope she's doing well like you are!

    Best to all, and hang in there, live-deliciously (LOVE your screen name!) You're going to be OK :)

  • grayeyes
    grayeyes Member Posts: 533
    edited January 2016

    Are we counting five years from DX date? If so, it's been 5 years for me. Remembering when I first visited BC.org... I was so frightened. Everyone here was so helpful with advice and support.

    For any newbies visiting, I want you to know that my DX (diagnosis) info below is misleading. The tumor was closer to 2 cm, and it was sitting right on my chest wall where it left an extensive positive margin. Life is never guaranteed. But I hope at least other newbies see our posts and begin to feel less frightened.

  • songbird68
    songbird68 Member Posts: 127
    edited January 2016

    Thank you Lifeiswonderful!

    Congratulations on FIVE years! Awesome!

    x x x

    Heart

  • divinemrsm
    divinemrsm Member Posts: 6,614
    edited January 2016

    I found the lump December 22, 2010. It was a few weeks later that testing revealed a stage iv diagnosis. I consider December 22 to be the day I started dealing with bc. So I am a 5 year survivor. So far. Recent scans this month show continued stability atthe present time

  • ruthbru
    ruthbru Member Posts: 47,683
    edited January 2016

    Awesome news on the scans, Divine!

  • leftduetostupidmods
    leftduetostupidmods Member Posts: 346
    edited January 2016

    That is excellent news, Divine! So happy for you!

  • live_deliciously
    live_deliciously Member Posts: 183
    edited January 2016

    congrats lifeiswonderful. Thanks for all the encouragement. I would count from diagnosis too. I consider myself a year out. I know some people say count from active treatment but I'm on tomoxifen for 10 years and I consider that active treatment so going with diagnosis myself.

  • divinemrsm
    divinemrsm Member Posts: 6,614
    edited January 2016

    I want to add that 80% of women with stage iv bc do not live beyond four or five years. At the time of diagnosis, no one could say how I would respond to treatment. A woman (or man) who is stable with stage iv/metastatic bc on one form of treatment for more than three years is considered an "exceptional responder", and I've had that with Arimidex. Those who live with metastatic disease six years or more are called "outliers". That's my new year's resolution, to become an outlier.

    Smile

  • shutterbug73
    shutterbug73 Member Posts: 284
    edited January 2016

    Whoo hoo! Good for you DivineMrsM! You are now both Divine AND Exceptional. Maybe Exceptionally Divine, that has a nice ring. Now on to outlier!

    Heart