Weekly Taxol group
Comments
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Joan - thanks for the tip- I will look into the l-glutamine. Thank you also for the heads up on the surgeries forum
Good luck to you on the surgery!
Mareluna - thank you! I'm just having the lumpectomy on 11/21. Ugh, I hope the neuropathy clears up for you soon!0 -
Treatment #5 yesterday and still doing fine. ANC was back up to 2.8 so I was very happy about that. Tired of wearing this wig and already ready to ditch it and just go to caps, but feel weird at work that way. (I am a COO of a credit union)0 -
wondering if anyone else is getting blood noses on taxol? It's a daily occurrence for me. Mostly in the morning.0 -
Happy Halloween Yall!
Say Amen to # 10! Feltnsick during infusion today. Also had a metallic taste for the first time since June. Came home and fell asleep, which I never do! My neuropathy has gotten much better with the neurontin! All in all not too bad. Only 2 more to go! Hope SE's are minimal for every one else! Sending hugs {{{}}} to all!
Snazzy-I have had bloody noses since week 1! Feels like my sinuses are full all the time. I also have drippy nose as well as itchy nose! If I hadn't 't lost my hair people would swear I had a coke habit and not the drinking kind! LOL
Stay strong!
Susan0 -
Yes Shazzakelly, I had them almost daily in the shower. Try saline nasal gel I think it is called Ayr or something. It helped with dry nosE. the nosebleeds ended 7 days PFC.0 -
I also have bloody nose almost every day. Not a lot, I haven't but was told saline spray drippy or dry!!! I have two more to go and Im so tired......never been a napper but these days Im taking one every now and then!!!0 -
Good morning ladies, I was supposed to start my first Taxotere today but MO office called yesterday and my ANC is to low and immune system not strong enough for chemo, geez I have been off for 3 weeks I would have thought that would have been long enough. I guess the Red Devil is still getting me. Have a nice Friday all.
Shary0 -
I have been on Taxol and Avastin (clinical trial) for 6 months, 21 treatments every Wednesday, 3 weeks on, 1 week off. They both have lots of side effects, sometimes hard to tell which causes which. I'm in a blind clinical trial for the Avastin, but can tell from the symptoms that I am recieving the real thing. My blood pressure became elevated (never had before) and the nose bleeds were pretty bad.
My hair thinned in a male pattern baldness way til I looked like Daniel Day Lewis or Gene Simmons from KIss sans makeup. So I shaved it off. Now I have hair again. First I looked like a kiwi. Now it's very fine but pretty thick. It's super soft and my husband loves it and calls it my pelt. Really does feel like mink. Came in very white but is getting darker, almost like the dark brown it used to be, with white streaks. When I wear my glasses I look like Drew Carey.
I have had almost no nausea, but lots of diarrhea. For the big D I take metamucel 2-3 times every day. I'm afraid of constipation. The Metamucil absorbs water in the loose stools and they become more solid but never hard. I also take probiotics, which have to be the refrigerated ones, up to 3 times a day. If the D gets too bad, I eat only bananas, brown rice and toast. Cheese and chocolate are binding so I eat them a lot.
My routine has worked out like this:
Wed - light breakfast, 20 min drive to onc, chemo (thru which I mostly sleep), 20 min drive home, sleep til 5 pm, bounce around from steroids til at least 3am, sometimes 6, sleep til 11am
Thur - great day, lots of energy, try to get as much done as possibe, bite tongue cause I get roidy and grumpy, start crashing at end of day
Fri - mixed bag, naps return, foggy brain, D, find myself strapped to emotional roller coaster
Sat - begin feeling like I'm in someone else's body, but still on roller coaster. Hubby is instructed to remind me that I just have to get thru today then will feel better. I try not to throw things at him.
Sun - We play a gig 2-6 (spouse and I are musicians). Have not missed one yet. It's just sitting and singing, which is easier than housework. Smells at BBQ joint are sometimes awful, sometimes great. It's good for me to get out and interract with non-medical human beings. Appetite is pretty good, but not the food.
Mon - start to feel more like me, appetite great, energy okay, thinking semi-clear. Play gig 9-midnight. I try to pretend like I'm too sick or tired but usually end up going. This is a songwriters' showcase so we play a while then other people play. Some are great, many are sooooooo bad. I try not to drink, even though it's a cool old Texas roadhouse bar, since I have liver mets. My failure rate is pretty high cause I get bored. I knit to pass the time.
Tues - My favorite gig is this night at an old art deco pharmacy that's now a bar and restaurant. We play our music 20 minutes, then run an open mic. Lots of good friends come, sometimes there are amazing suprises. We eat free and my appetite is always good. We get home around midnight. I try to make sure the car's gassed up cause I have to drive back into town in the morning for chemo.
Sometimes I hurt all over, usually just here and there. Have a headache most every day, only take tylenol. Neuropothy got pretty bad so three weeks ago onc reduced the dose on my taxol. Now my hands are almost completely fine (left thumb and pointer excepted), and my feet are better but weird. My brain percieves lack of temp signal as cold, but I touch with my hand and they are warm. Only the last two toes on each foot are really numb, so I'm not wombly like when the numbness went up my calves. But still a little unsteady.
They do my bloodwork every Wed before chemo and it has stayed pretty good. Levels get a little low during treatment but always bounce back on my week off. My immune system is not compromised to were I have to be super careful. I still hug everybody. At open mics I put a cover on the mic cause it's shared with un-hygenic muscian types and touches my lips. I call it my microphone prophyllactic.
I go to music fests almost every month, often camping in a tent wishing I had an RV. My onc says it's okay to travel, which I plan to do more in the next year. We don't know how much longer I will be on this treatment, I have a scan Nov 18. My 2 liver tumors have already shrunk about 2/3. The bone mets are small and were not visable til they showed up on CT as calsifications.
Sorry to be such a chatty Cathy. You'd think it's a steroid night, but it's my week off so I guess it's just the real me peeking out thru the fog!0 -
Jimmie Bell...sometimes i feel like im the only one going thru this,and i read this,and im not alone.I have to take multi symptom relief Imodium,its the only thing that helps me..i get these cramps in my stomach,and then diarrea.I have 4 more tax,and then radiation.I just wish i had the energy you have..i love music,and put my earphones on while im getting chemo..it relaxes me.Will be so glad when i see hair..hope it comes in blonde.lol .Im like you with food.Sometimes its ok,then other times its yuk...I have labs on Mondays,and a shot,to boost my wbcs.Then Tuesday chemo...I like reading what you wrote,so dont stop... Kayezzy0 -
6 taxol done, 6 to go... hair growing back during taxol. yay! V0 -
Taxol #5 coming up on Monday. To add to the list of annoyances, in addition to the stress fx on the foot (I've ditched the boot cause it's causing too much stress on the other foot; walking carefully on heel instead) I now have a GU infection! As I'm reading through the list of no no's for antibiotic, Cipro, I see the steroids prechemo can cause a problem as well as any history of tendonitis/bursitis (long history). Oh, my, what to do. Cipro can cause a spontaneous tendon rupture! Just what I need on top of everything else; however, must address the infection. Since it's the week-end will address on Monday; however, may forgo taking the at home steroids.
Had a major melt down over hair/wig management the other day. Yesterday my hairdresser helped out with styling a wig as close as she could to my usual style - it's not me, but much better than what it was & at least I feel I can open the curtains again! Hope everyone has a good week-end.
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ShazzaKelly - yes I had nosebleeds almost every day after a few weeks on Taxol. Today I'm exactly 2 weeks PFC and the nosebleeds FINALLY stopped over the weekend. It was super annoying (especially at work) and I couldn't do anything to stop them. They were gushing nosebleeds and a tissue or two stuffed up my nose for a few minutes usually stopped. Good luck - it does get better!0 -
Shary - Hope you are doing well and get to start your Taxotere this week.
JimmeBell - we were in your neck of the woods last weekend. Went to Wurstfest. Hope you are feeling good today.
HVV - half way through, yay! I have #6 Wednesday.
SyrMom - Hope you are feeling better0 -
Thanks, Warrior, I am feeling better.
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Happy Monday! Busy week coming up. CT tomorrow, meeting with my BS Wednesday, and chemo #11 on Friday! Whew, I'm tired just thinking about it all. Praying for no mets, a surgery date, and minimal SE's on Friday! I am convinced the SE's are trying to kick my butt until the end! Sending hugs and healing thoughts, Susan0 -
I had taxol number 8 of 12 today. I've been lucky I've had minimal SEs (think I used up all the horrible SEs on Xeloda) so it looks like they are going to tack another 6 treatments on to the end. That will mean chemo on Xmas eve and New Year's Eve!!!0 -
Best wishes to all of you. Good luck SGC on the CT scan.
Shazza, I ended chemo on Dec.26th. I counted down to Christmas last year.
I found Taxol doable but side effects were cummalative. By the end I was just wore out. I still tire easy. I am home sick today. Another darn sinus infection.0 -
Finished #6 yesterday, so halfway though Taxol! YAY. Unfortunately FEC is next, but one step at a time.0 -
Anyone have sharp left side abdominal pain? V0 -
happy Saturday All! Weekly #11 is finished! SE's are the same with the exception of a sick stomach right after infusion. My nurse said she thinks it was because my infusion was too fast. We shall see as Next week will be #12 and she plans on slowing it down a bit! (Hooray ladt one!) Finally have my surgery day: January 13, 2014! It 's going to be a great year! If all goes as planned, I should have a nice break over the holidays! Will still have Herceptin through next summer, but that I can surely handle! Have a wonderful weekend warriors!0 -
I have 3 more to go...and then yea ....good luck..0 -
I'm starting weekly Taxol next week for 12 weeks. I just finished 8 weeks of AC and I get one week "off" chemo.
I feel depressed and am very moody. Im sensitive to almost everything my partner says to me. Typically I'm optimistic and happy. Is this mood a part f the AC treatment?
Any insight or suggestions to help feel better are so appreciated.0 -
Good morning ladies, I hope this note finds you all well with minimal SE'S, I had my 1st Taxotere last Friday and all went pretty well, so far major fatigue and Extreme body aches from head to toe. I go for labs this morning to see if I am a go for Taxotere #2 Friday, keep your fingers crossed. Is everyone getting plans made for Thanksgiving? I am not doing much this year, we usually go to my Daughters In-Laws for Thanksgiving, they have a big beautiful home and a Big family so that makes it easy🐔 Have a great day all.
Shary0 -
pocatatio - my NP told me one day when I was very emotional " you know we are messing with your hormones BIG time....its OK to feel the way you do " just hearing her say it made me feel better. Hang in there .....I just finished my #12 taxol and it went by pretty fast and I feel OK !! Life is returning....hair is growing ....I see the light in the end of the tunnel ....I feel hopeful !!! One day at a time and don't be hard on yourself .....0 -
annika12, Thank you for those words of encouragement I am hoping to get Taxotere # 2 this Friday and even though it is not W/O SE'S, they are nowhere near as bad as A/C was but I too feel better and I feel as though I am beginning to see the light as well and peach fuzz is growing back❤️
Shary0 -
I have 2 more tax to go,but it seems like ive had a lot more diarrhea,and upset stomach,with this tax chemo.Scared to go to far.Will be so glad to start healing.Hopefully radiation will be alot easier...My hair seems to be growing so slow,and my head gets cold.I see a little light,at the end of the tunnel...I know this will all pass.Please have a good day...0 -
#7 is done! Had a check up and MO said chemo is working very well so finally some good news.
Hope everyone else is having a good week.0 -
Hi all, I got word from MO office my ANC was just a hair low but we are going to proceed with #2 tomorrow but MO wants me to get the Neupogen shot 5 days after treatment because my counts are struggling to come up. Can anyone tell me what the different SE'S are with Neupogen VS The Neulasta I had after each A/C?0 -
Happy Saturday Weekly Sisters,
I am finished with my weekly taxol! Hooray! My tumor hasn't gotten any smaller, nor have my lymph nodes. For the next 39 weeks I will have the Herceptin infusions once every three weeks. My surgery (bilateral mastectomy) is scheduled for January 13th and I am hoping to start moving/exercising more next week! Already started increasing my protein intake in preparation! I hope you all are doing well and will check back often! Susan0 -
Good morning ladies, I keep getting on these boards hit and miss these day', I am just about at the 1/2 way point through chemo, I get a neurogen shot tomorrow and hope fully my 3rd Taxotere Friday and that will conclude my 1st of 4 cycles. Just having issues dealing with the isolation this disease has caused and feeling like I have lost so much freedom and my independence, I know this to shall pass but I have hit a bump in the road I guess. Blessings to all today dealing with this awful disease.
Shary0
