Weekly Taxol group
Comments
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shary - my side effects from Taxol were minimal. Never had numbers drop too low. I never had taxotere so can't compare thT but I know you'll do great.0 -
questions for weekly taxol gals-
I started with 4 DD A/C, neulasta with each. Those liquid gold shots always kept my numbers up. I just received my 3rd of 12 taxol yesterday and they gave me a copy of my labs before I left. The lovely chemo lounge nurses just told me that my numbers were high enough for treatment but they still checked temp & blood pressure ( only see my onc every third taxol). I compared my WBC from lab report first week (2 weeks out from last A/C & neulasta) 8.5 and yesterday 4.7. I know it's still within normal range but I didn't expect it to drop so much. Anyone have big drops with taxol and how low before treatment had to be rescheduled? Thanks! I didn't get to ask yesterday and I know I'll be anxious this week, especially with Christmas coming!0 -
syrmom wrote "Here's a weird side effect, wonder if anyone else has had it. After I get out of the shower, my skin hurts!! Not during, but once I'm done. The water is not real hot or anything. Have noticed this for the past couple of weeks."
I've been having a similar SE—episodes of fierce itching on just my hands. There is no rash or redness, and my oncologist thinks this is skin sensitivity from the taxol, rather than neuropathy. I asked about suggestions to prevent or relieve this on the Weekly Taxol for Stage IV thread but got no replies, and there's nothing about it on the Taxol page at the main bco site, so I thought I'd ask here too. Has anyone had this symptom, and if so, what did you do about it?0 -
Hot , red face. That was my side effect 24 hours after 1st Taxol. I called and reported it to a machine. 5 days later they just called me back to say that this is common with Taxol. Nothing in the bible of literature they gave me said anything about that. It lasted a day. Just wanted to post this in case another friend experiences this phenomenon.0 -
curveball ... glad to hear I'm not alone with some "weird" s/e going on. I had awful hand/foot with Xeloda, but this is totally different. Just a burning, stinging like sensation. Anyway, I've continued to lotion up as I usually do and it seems to help. I've read the chemo comes out of the pores, so maybe that's a reaction to it seeping out, who knows. It seems to be more on my legs than anywhere else.
I also have a red face the day after infusion, but in my case it's from the decadron premed they give me. It's gone by the end of the day and doesn't bother me, easily covered up with make-up, but it's a rather nice blush effect to may otherwise pale face!
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I got a new SE from Taxol. (treatment #5 of 12) MO & of course the nurses too ask me
weekly about finger/toe neuropothy. So far no issue. But I got the
facial tingling, some numbness.I felt it around my mouth during
treatment last week but it went away so quick I forgot about it. But
yesterday it lingered after I got home.It isn't as common as the
fingers & toes but does happen. I am one who tends to get the "rare
& adverse" SEs from most RX so I am not surprised LOLAt
least I know now from the onco nurse who told my MO about it that they
would probably NOT consider stopping the Taxol. That was my worry, not
so much the facial issue but that I couldn't continue treatment.I have already done dose dense A&C which was rough, and was anemic which was really rough but so far have felt pretty good with the Taxol/Herceptin cocktail.
Thanks
VintageGal
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Hi MaryFox
I am around the same schedule as you. Did DD A&C then started Taxol (& herceptin) Just had my 5th treatment yesterday. &C & anemia was rough. I have done better since my blood counts are getting closer to normal & don't have to deal with the neulasta shots SEs.
All the best to you
VintageGal
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Just finished Taxol #12, so on to FAC.
Breezy, i had the same drop the first few weeks and thrn the slowly came back up and i was at 6 the last 2 weeks. Never had a neupron shot.
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Warrior50...did you get neuropothy,in your fingers,and toes...i didnt get it until maybe the last 2 taxols,now its really there.Hopefully it will go away..Thanks.
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I didn't get neuropathy Kayezzy. I bet it will go away.
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Hi,
I got neuropathy after the second treatment in October 2012 and I still have it. It might be a bit better or I am used to it. Not really sure.. Hope you don't get it. Be careful with hot water. I burned my hands.
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I have been diagnosed with Breast Cancer 111 PR+ ER+ Her2 -grade 1. Right breast mastectomy, with 7.5 cm.
I have finished my AC/Cytoxan 4 cycles. It was not pleasant. It hit me pretty bad. I am now getting my 12 weeks of taxol; which I will get every week. I wonder if I will have the same experience with my AC/Cytoxan chemo.I am a little bit anxious.
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Yea ,the 4 doses of chemo ,hit me really bad,had just about all the things that could possibly happen...the 12 taxol,was alot better.But i got neuropathy,with the taxol..just hopeing and praying it leaves me.Have to have radiation now.Six weeks ,everyday,except on weekends.
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Hi,
AC was horrible. I ended up in the hospital the day after my first one for a few days. I found Taxol a bit easier to deal with. Good luck with your treatments Ladies.
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kayezzy
The neuropathy I got was facial, during #4 & more with #5....the tingling & numbness round my mouth & chin was weird. It went away in a day or so but it worries me. My #6 Taxol is tomorrow & I hope it doesn't get worse each time.
So far I will take the Taxol SEs over the A&C & the anemia any day.
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Marilu58
your SES may be totally different on Taxol from the A&C, specially if you had to have the Neulasta shot after each A&C. That got me pretty bad. Plus anemia wiped me out.
So far, Taxol has been doable, not bad at all. I have #6 tomorrow. Half way mark, but then I still have a year of Herceptin.
All the best to you!
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Don't know if this will help any of you but on the recommendation of one of the chemo nurses I tried acupuncture last week for the first time and it really worked. I'm two months PFC and immediately following the treatment last Thursday I have a significant increase in feeling in my hands and feet. They no longer feel numb or pins/needles but I can actually feel them and it doesn't hurt to walk anymore. I'm still slightly numb in my big toes and occasionally in the very tips of my fingers but it's completely manageable.
I hope it goes away for any that have the neuropathy but if not you may want to try acupuncture (and it was very relaxing!).
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Hi everyone!
First off I want to wish you all a very happy holiday season!!! Hope everyone enjoys as much as possible!!
I had my first Taxol infusion today (I am doing 12 weekly doses) My doc said that my SE should be better tolerated than AC. My MRI last Tuesday showed marked interval reduction in size of the right breast mass and area of adjacent non masslike enhancement when compared to the prior study. A small area of residual masslike enhancement is present at the site with wash in and wash out kinetics measuring 0.4 X 1.5 cm maximally. This is adjacent to the previously place clip from ultrasound directed biopsy. The contralateral breast is normal and no other areas of abnormal enhancement are seen. There is no evidence of adenopathy and the chest wall is unremarkable. No other abnormalities are seen. Basically it looks good.! Saw my breast surgeon today as well. She is very happy with how I've responded with AC. We've discussed skin sparing mastectomy with implant.(but that wont happen until mid April.
Again... HAPPY HOLIDAYS!!
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Hi, I'm on Week 6 of 12 Taxols. So far, so good...a little hair returning (body and head), no neuropathy so far, some fatigue...I have #7 tomorrow so we'll see how that goes. Hope everyone is enjoying their holiday!
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Hi, I'm did #2 of taxol yesterday. Still pretty good, aches and pains...little sleep (think because of the steroids in pre-meds)...but all in all, nothing unbearable yet. Waiting for the hair loss, thinning, or whatever comes with the taxol. Don't know when that will start. But I'll be ready (I hope)
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Hi thought I pop back in..... ended taxol a week before thanksgiving and neuropathy is all gone. I still have blocked oil glands in my one eye but I guess that is more due to the hormonal changes due to taxol not taxol in itself. My nails are still yucki but I can use my hands again without worrying to much they will break off from the front
My toenails are good !!! Im starting back to playing soccer next week 
The only thing that still sucks is my hair......lost waist long blonde hair and now got a short grey , my son (23) said "I really like it...it makes you look older" lol !!!! Happy Healthy New year everyone !!!!0 -
Annika12, glad to hear the neuropathy has resolved itself. When did your nails start getting yucky? Good to hear about the soccer! The hair....I can relate. I had chestnut hair down to the middle of my back before all this happened, though I did get a really cute pixie before chemo...it will come back, and you might even find hairdos that you like just as much as your former 'do....good luck and keep fighting! We almost have the same DX, except I'm not HER 2+. Keep on keeping on!
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Hi all, I'm new to this site but I truly wish I had found these boards prior to my chemo treatments. I was dx in April, bilateral mastectomy in May, and started my treatments in July. A/C went well aside from the hair loss and fatigue but I prepared my head for both! What I didn't prepare myself for was the Taxol since I had heard from several people including my Oncologist that the 12 weeks of Taxol was far easier on the body than A/C. I started Taxol in Sept and did great until week 9 then the SE hit me like a train! They started with what I thought was a UTI but later found out that the pain after peeing was a SE. Then I began to break out in a rash on my hands and forearms. At first Dr thought it was contact dermatitis but after a visit to the dermatologist and a biopsy, path report verified that it was chemo induced. Since then, it has spread to my chest, back, and legs. Still have the crusty, bloody nose, neuropathy on the bottoms of my feet and now after finishing my Taxol treatments 16 Dec, I've started intense pain in my knees and legs and nasty looking fingernails that hurt.
When does it stop? I am so over these SEs!
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Happy New Year everyone!
#4 Taxol for me tomorrow. #3 gave me a day and a half of pretty intense bone and muscle pain. (This was NOT from Neulasta, as I have not been given that shot yet) My daughter is taking me this time and we are expecting 18" of snow. Might be spending the night....
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After 3 treatments, I have one fingernail that's starting to separate. What's your experience with nail issues?
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MaryFox, I never had any nail issues at all during my Taxol treatments. However, starting a couple months after finishing chemo, my fingernails became thin and brittle, breaking and peeling easily. I'm sorry to say that now more than a year PFC my nails are just as bad if not worse. I really don't know the cause - could be delayed result of Taxol, could be a result of the (mild) anemia I had during Taxol, could have something to do with the Herceptin I got for a year. But I finished Herceptin in September, and I haven't been anemic for at least 7 or 8 months, so...who knows?
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Last time I did Taxol, when I had Stage IIb cancer, my nails were fine. I didn't do it for very long so that might be the answer. This time around, Stage IV, my nails are a mess. Both of my big toenails turned really dark and are close to falling off. Now my fingernails are sore and are separating at the top of the nail bed. I've been doing Taxol for 7 months now so that might be the reason.
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had my 3rd dose of taxol on Thursday. Hair was continuing to come out so much that by Saturday, I had it chopped off (kind of a buzz cut). Get my port in next Tuesday, if my cold goes away in time. Pretty sure it's not treatment related, as all the kids and my grandson had it first. Pretty much the only se I've seen is the hair loss. Still consider myself lucky at this point.
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Thinking about what to do with my hair...after Taxol #4 I am now beginning to shed. Considering sneaking off privately to my stylist to have it buzzed vs. going there with my family, wine and music to do it. Also thinking of saving some ponytails to make a halo.....lots of thinking today.
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here i sit in chemo chair on my #3 of taxol. Nine more to go! This cant end fast enough for me! I spoke with my MO about my breaking down episodes. We decided a small dose of anti depressant should help. Although I am not into any type of drugs this cancer thing has taken a bit of a toll on me mentally, and I am not liking what is happening to me. This sucks !!! But 9 more to go... Rest for a month or so, and then surgery. Surgery doesnt upset me so much , since I've had a few in my lifetime! Anyhow, thats it for now! Enjoy!
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