Bone Mets Thread
Comments
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auroaya,
It sounds like your situation is finally resolved. May you have a smooth recovery.
Scans seem to be handled differently by different mo's and per individual circumstances. Also, as someone mentioned, insurance may dictate how often and what type of scans you get. Initially, I got PET scans every 3 months. After a couple of years, my mo moved it to every 6 months. I agree with her reasoning, minimizing radiation exposure, as she felt I was in a favorable situation because my cancer appears fairly indolent. At one point, she suggested going to an annual schedule but that made me a bit nervous (completely emotional response as logically, annual would be appropriate for me) so we're sticking to the 6 month schedule.
I'm overdosing on CNN, but my heart goes out to the city of Paris and all who are suffering as a result of these horrendous acts. Hope everyone has a good weekend.
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Aurora, I am very happy to see your update. WOOHOOOOO!!! I hope your recovery an PT go smoothly and that you are home very soon.
Caryn, I am also beyond upset about the tragic situation in Paris. I cannot begin to imagine the horrific experience that the people there have been through - the fear, the sorrow, the the loss.
Lynne
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Hmmm after reading all your comments I may be over do for a scan been six months now... My oncologist doesn't like doing them to much because of the extremely high levels of radiation from the Ct scan in particular. My next appointment is the middle of January again with the minimal care....
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50sgirl,
I know this is very ot for this thread but it is truly frightening to think about how random these attacks were. Yes, coordinated by those who twist and pervert Islam, but random for those who were enjoying an ordinary Friday night. I have spent many lovely times in Paris and can't reconcile what has happened there with my memories.I will keep the victims and survivors close to my heart.
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BF broke up with me this morning. I didn't see that coming. He was crying and said that it was time my sister became my caretaker. I had not realized he considered himself my caretaker and that all this cancer shit was taking such a toll on him. He can't take the stress anymore. I'm in a bit of a shock but better now than when this disease does more harm, I guess. Not up to talking to my sister or friends today but I have to share this with you all who understand. I can't stop crying.
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Linda, It must have been so hard for you to hear that from your BF. Is there any one particular incident or development that brought him to this point? I know it is hard on our loved ones. In some ways is is more difficult for them to live through our experiences than it is for us. I think it is because they want to protect us from all that is going on, to somehow take control of this disease that cannot be controlled, and they feel helpless. I know this is one more thing you have to deal with. I wish I could take away the feelings you are having. Is your BF in a support group? It might help if he talked to others in his situation. Do you have a close relationship with your sister? Perhaps when you are up to it, all three of you can talk things through. I am sending you hugs. I wish I could do more.
Lynne
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I am sorry to hear this , Linda. BC takes such a tremendous emotional toll on everyone in it's orbit
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Linda,
I'm so sorry. The comment about the "caretaker" is one that I've heard from my BF too, and because I'm fully functioning, it puzzles me too. But I don't think we can underestimate the toll this hideous cancer takes on our loved ones. I wish my BF had a support group to talk to about his fears, but he won't and we struggle and argue frequently. Sometimes time apart (for both of you!) really does help. I send you a big ((((hug)))) today. Spend some time spoiling yourself in the days ahead.
Love to you…
Rose.
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Hello all,
Auraoya, I am so happy to read your news.
Lindalou, I've heard that kidney stones can be so painful. Fingers crossed that they pass relatively painlessly.
Linda, ((hugs)) I think there are just some people who can't handle it. I don't even know what to say.
As for scans, I've had a lot & a lot of radiation. For now, I'm getting bone scans every 3 months & if I'm having a problem, then I get a CT. I don't even know what a PET scan is.
Horrible about France, can't believe what this world seems to be coming to.
Hope everyone is ok today. Cheers, Dee
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Oh geeze...LindaE, I am so sorry. I just want to fly to Quebec and bitch slap some sense into the man. That just sucks. Sending huge hugs.
NY - so happy you're still stable!
In the face of so much sadness, pain and tragedy - both here on these boards and in France, I've hesitated to post my scan results because I don't want to seem insensitive in any way. But, I am still stable as well. My arthritis is getting worse but no evidence of active mets anywhere. So I'll deal with the arthritis.
Hydranne - you are my hero for remembering everyone's names! Wowsa!
I'm doing to do my cop-out (can barely remember my name some days) line: Sending hugs to all. Might not remember names, but I think of each and every one of you and the struggles you face.
Terre
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Thank you all for your kind words ladies. I really appreciate it. Terre you managed to make me laugh. When will I pick you up at the airport?
Late hubby was French. Called his family yesterday and they are all fine. Some of them live in Paris and the suburbs. It's horrible what is going on. My SIL was so nervous last night when I called.
NYC and Terre - Congrats on good results!
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Oh Linda, what a rotten thing your boyfriend did to you! Talk about kicking someone when they're down! I guess people's true colors always come out and I guess sooner is better then later although that may not help now. Hugs coming your way
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Auroya, So happy to hear your good news, thank God!
LindaE, I am heartbroken for you. Too bad he doesn't have your strength and character to help you through this, but we are praying for you to get the support and love you deserve. Hugs and prayers for you.
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Linda, I'm so sorry about what has happened, I'm with Terre and wish I could fly to Quebec too and give you a big hug, take you out for a nice dinner and just give you a shoulder to cry on. It's just not fair that he has done this to you now and I feel angry! And as Terre said I also would like to bitch slap some sense into him. We're here for you and will support you in any way you need. Extra big hugs to you, Annie
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Wow, Linda, I never saw that coming either! I'm so sorry. I know it's too soon to be anything but in shock and very hurt, but I pray at some point you will see it is for the best and perhaps make a space in your llfe.for someone you deserve who really deserves you.
Wendy, when I was going thru a stable period and didn't want to be scanned, my UCLA onc was fine with that, commenting that she liked to scan at least once a year. So I think it can and should depend on your symptoms, not just the calendar.
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my thoughts are with you Linda.
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Linda I'm so sorry that your boyfriend can't handle things. All I can think is really you doorknob grrrr. I've said this before men can be real babies sometimes. Yes it's hard, yes it won't be like before but geez if you really love someone then it's no question. You are better off you may not feel that now but you will after the hurt subsides . Bitchslapping sounds pretty good. Yes it's hard lots of things are friggin hard . You will find someone who deserves you, you are a beautiful lady who is kind and always there for all of us. Big virtual hug coming your way from rainy Vancouver.
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Lol can you imagine if he had to face us all now hahahha
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So right, Wendy. Hell hath no fury like women who's friend has been bad done by.
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His head would be spinning... You ladies rock! Thank you again for your support.
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Linda, I echo what others have said here and hoping you can lean on your sister and friends right now. We are here for you so try to gather some strength from that. Please take care of yourself and allow yourself some time to work through this. Sending comfort your way.
Terre, So glad to hear that your bone scan showed you are stable and we are thrilled that you shared with us. I think that's what makes this thread so special. We can share good and bad news, happy and sad times. All of which are part of this cancer roller coaster.
Wouldn't it be nuts if we all met? Laugh, cry, hug, smile etc. I can just picture it. We would be a powerful group.
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I love coming back here & seeing all you ladies beating up on Linda's ex boyfriend! Especially the bitch slapping!
Terre, At least you got her laughing! 0 -
Imagine him facing this group of estrogen deprived women!!
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Hi Linda E54. I haven't been on this board long but I wanted to tell you that I'm sorry to hear about what happened with you and your boyfriend. Sometimes men don't have the strength that we women do. I would definitely lean on some friends and family that you trust. It looks like you have so much support here on this board, which is great. I want to encourage you and let you know that you will get through this. If you can fight cancer you can do anything and life is not easy. Please feel free to PM me or to add me to your list of friends. I'm married and sometimes my husband doesn't understand what I go through, so sometimes I have to leave him alone. It's really tough but people on this board definitely help. Wishing you all the best from here in NYC. Hugs
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LindaE, I am sorry that you are hurt. But you are right, it is better now than later. Forget that man! You are kind and strong. You will find a new way to live a better life without the cold, coward, and selfish man. Hugs, hugs, and hugs...
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Oh thank you again for all your support. I can't help but chuckle over some comments and have some visions... LOL I knew you guys would help me. My sister will probably come over tomorrow. She did not have only kind words if I may say so myself. But she was so surprised and appalled. Nonetheless, it was a good chapter of my life. I still have unanswered questions, this happened so fast. Perhaps one day I will have answers and perhaps not. But for now I will try to digest and take it one day at a time. I will continue to take good care of myself and be kind to myself. It will be a grieving process but isn't that a big part of life? Thank you all for being there lifting my spirit.
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So sorry to hear this LindaE. Wishing you the best
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That's great news! Glad to hear it
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Auroaya : praying and hoping for an excellent outcome for you. You have all of us holding your hands and hugging you with healing energy. "Stay strong and don't give up. Remember, there is a deeper strength and an amazing abundance of peace available to you. Draw from the well: call on your faith to uphold you. You will make it through this time and find joy in life again. Be strong, and don't give up. I know you're going to make it, and my love and prayers are with you." I had just read that. Friends had given it to me in a card. Tonight is a perfect time to share it.0
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Thank you so much for all the warm welcomes I want to personally thank each and everyone but...this thread moves so quickly that it's difficult to keep up. It does however make me smile to see the wonderful words of support that are consistent in each of the posts. I want to send out good thoughts to all of us currently facing physical and emotional hardships. Dealing with this is still so new to me...I do feel the aches and pains starting to creep into my body. Especially in the morning, it feels like it takes me a longer time to get going. Some mornings, I can barely bend over and tie my shoes. Once I get moving it feels better. There must be a great variance with how each of our bodies manifest the pain. But what are your experiences? What does a good day look like for you, what about a not so good day? I'm curious. I live in the San Francisco/Berkeley area so it is early evening and the body is feeling relatively good but my mind and heart are so heavy. I spent the day at a 2 year old birthday party and left feeling very isolated. Does anyone experience that too? There might even be a level of resentment there too? People try to skirt the subject due to their own fear of cancer. Their inability to put themselves aside for a few moments to inquire about someone else's life. This is not something that will conveniently pass. My husband tells me not to hold on to these feelings because it doesn't help, at all. I can't help myself.Does anyone feel similarly, if so how do you deal with it?
Good things to all,
Karen
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