Bone Mets Thread
Comments
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Dee and Linda- my deepest condolences to you both. Remember the good times and honor their lives by smiling at their memory. Love never dies.
Carol- I take citalopram, it's one that works well with tamoxifen. I have been taking it since my sister died in 99. It has done wonders!!!
love and hugs!! Chelle.
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Loves, I was taking Cymbalta. I had horrible SEs. Neuropathy, headaches,dizziness, feeling like I was going to faint. Switched to Lexapro, withdrawal from Cymbalta still awful a week later. Can't comment on Lexapro yet Myra.
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Good morning to all,
Dee and Linda, still thinking of you both and sending love and hugs.
I've got myself in a bit of a predicament. I decided to try acupuncture to help with some of my pain, especially the arthritis from being on letrozole. I've had a few treatments and noticed increased fatigue, heightened emotions and some dizziness. I mentioned it to my acupuncturist who said this was all normal. Well after my last treatment on Thursday I have a lot of numbness and tingling. My head, face and hands feel very numb and tingly and I'm extremely exhausted. It feels like one of my first MS attacks. I hope it hasn't caused me to relapse, I was doing so well and just saw the neurologist last week who said I was stable. Not sure what's going on but I'm scared.
Hugs to all, Annie
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Oh dear Annie, I'm so sorry. I hope and pray this is not an MS relapse. My heart goes out to you.
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Annie what did the acupuncturist say? That's really scary but it could be nothing I'm thinking of you today that it all clears up. You were givin the all clear by your doctors only a week ago, can things change that fast?
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Annie,
I'm not familiar with either acupuncture or MS, but I hope it's just a temporary reaction and that you're back to your normal self soon
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Annie, I hope that your symptoms clear up and that you are not experiencing a relapse of MS. I have never had acupuncture therapy, so I don't know if what you are experiencing is within the normal realm of the process/SEs. Hopefully someone here can speak to that I will pray that you find relief soon.
Lynne
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Good morning everyone!
Thank you again for all your support, it means the world to me.
Annie, I hope this is just a temporary SE of acupuncture. I had several sessions of acupuncture & never found it really did anything for me, so I'm no help there at all. ((hugs))
Not sure that I'm going to make the trip to Vancouver for Susan's funeral. It's treatment week for me & I think of everyone, she would understand if I had treatment instead. Conflicted...
Wishing everyone a good day. Cheers, Dee
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Annie, it could be a treatment reaction. If so, it would last a day. If it has been longer than that I think I might contact the acupuncturist and get a FREE gentle treatment to help reestablish balance. I was anot acupuncturist and I would insist on this.
Well, I'm caught up here. I fear saying it because then I get sick again, but maybe I'm safe since I'm already sick. I don't know what's wrong even after an evening in the ER, brain CT, and chest xrays. This is one sticky bug.
My best to all. Need pictures from Terre.
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Dee, so sorry to hear about your friend. That's really tough. Linda, so sorry to hear about your dog. Your dog and your boyfriend, you are due some good news. Annie, I hope you are feeling better soon and your symptoms have nothing to do with cancer or MS. Dana
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Dune, I didn't know you were sick. What is going on? I know your lung mets play a part but do you have a bug now too?
Dee, I'm sure her family will understand and you need to take care of yourself this coming week. Easier said than done I know.
Annie, My acupuncture ended early because the acupuncturist went back to China! I only had it about a month so not sure if your reaction is that or MS flaring. Are your meds for MS helping any? Maybe your neurologist may have some idea about acupuncture and MS.
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Thanks everyone for sharing the antidepressants with me. I have a pain that is high rib area but it's hard to pinpoint but it's there. Heating pad and Motrin do wonders for it. It did this on my other side exact same spot but seems to have gotten much better. I prob have a small met there but it's possible to locate it by touching the area. Does this sound familiar? Ty.0
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Dee, my condolences on the loss of your friend.
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Linda,
Dogs are constant companions and know everything about you without judging. They never say the wrong thing and are always there when you need them. It's very different from a human being but just as powerful a loss. So sorry to hear about your dog.
Karen
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I really need to understand bone mets.... Background... I "cracked" a rib exercising July 2014. Diagnosed with BC October 2014... Fast forward to fall 2015 and muscles or the rib are "talking" to me when I move in certain ways.... Last chemo done this past week..... I do not want to over react OR under react!!!
Please share... what did you feel that said something was not right??? Thanks so much.... Maggie
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Maggie,
Different people have experienced bone mets,initially, in different ways. From lots of pain and even fractures to no pain or any indication of a problem! This continues to be true even after a bone mets dx. If you have been experiencing pain for more than two weeks, a doctor's visit is in order. Also check out this thread for those not yet dx'ed with mets.
https://community.breastcancer.org/forum/8/topics/...
Wishing you the best.
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Sorry. Dee about the death of your friend. It dose sometimes feel that cancer is everywhere.
Peace to you
Mary
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Hi everyone. I did catch the flu while my wbc was 2. After a couple of weeks (and the stitch which caused me to have trouble catching my breath after coughing), I went to my PCP who prescribed an antibiotic. When I was still struggling he prescribed another antibiotic and cough syrup. I was feeling too lousy to look up the drug so I took the meds without much thought. I ended up calling my oncologist about my symptoms, so of course they sent me to the ER. I got ANOTHER chest xrays and a brain CT. Fortunately the results were good. They offered me a psychiatrist to talk to. We just wanted to get out of there. That was Friday, Black Friday. Tonight I finally looked up the cough syrup; and of course it has codeine. So the cause is likely a drug interaction. The symptoms were psychotic -like, to the point where I got out of bed and took an imaginary box to another room in response to a command from the world of my heightened imagination. I can't get anything done because I can't concentrate, so I am focused on getting rid of the cough. I managed to write what I have been going through that has kept me away this time. My love goes out to you all.
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Hi All!
Linda...such a loss, my heart breaks for you. I'm sorry that you have to endure so much pain in the last few weeks.
I am curious if anyone on the thread is being treated with hormone therapy instead of chemo even though their biopsy stained only at 10% for ER and PR negative? The second opinion I received said that bone biopsies are not always entirely accurate and that no matter how low the percentage is, the cancer is still considered hormone receptive. Does anyone have experience with characteristic changes with their cancer?
Karen
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Dune! So sorry you're sick. Stoned on codiene....hummm...sounds like a bad trip! Hope you feel better soon.
We are 100% out of the rental house and living among boxes at the new pkace. I was on kitten rescue duty this weekend. Five 2 week old babies and three 5 week old babies. Drove them to Kitten Inn which took about 4 hours return trip. Means no boxes unpacked but 8 tiny lives saved.
Pics just for you Dune.. two week old babies. House pics in the near future. I know everyone wants to see our purple and green bathroom.
Hugs to all
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Karen, my bone biopsy pathology report confirmed that I was er/pr neg but I am being treated with Femara and Ibrance. My second opinion was at Dana Farber in Boston and they feel strongly that it is positive as when they calcify the bone for pathology it looses immediately the ER/PR status. Especially where I had my pathology done is not the greatest. So... here I am being treated after 18 years of thinking I was cured of BC with bone mets. Their pathologist reviewed the results of the biopsy and the cancer had 2 things in it that could not be positive if it was not hormone positive, so they feel we must go this route first. First time around I was ER/PR pos. My BC did not come back in the breast, I have both of my breasts and they tore apart them looking for the cancer as they were that stunned that it returned after 18 years.
The good news is they said mine is very slow moving. We found it because of lower sciatic spine issues. All my mets are lytic at this point and just involves bone. I have one in my left femur, (ha to have a rod put in 3 weeks ago) one in my right illiim (these are the ones they are concerned about). I have a few tiny ones in my right rib and one on T-1-T-5 (they think). I just started round 2 of Ibrance and I am having rads done to 3 areas which I am half way through.
If you're interested I will pm you the second opinion of the Dana Farber Pathologist report.0 -
Good morning to all,
Terre, you amaze me! Rescuing kittens in the midst of a move. So nice of you to do that, I'm a huge kitten lover so appreciate your efforts.
Thanks to all of you for your support. I'm still not feeling quite right and have put a call into the acupuncturist but he must not have been open yesterday. The numbness on the side of my head and face seems a little better but I'm still so fatigued and have alot of tingling in my hands and feet. I started thinking if he is trying to boost my immune system that could have caused this since it is my immune system that is over vigilant and attacks my body. I need it balanced so it helps in the fight with the cancer but doesn't trigger my MS. Maybe acupuncture is not for me, I will speak with him tomorrow.
Dune, were you an acupuncturist? I sure hope you start to feel better soon. I also have an allergy to codeine so I can imagine what it did to you. Rest up today and praying things turn around for you.
Hugs to all, Annie
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good morning ladies
I've been lurking. Sorry can't respond to all. I am back in the hospital. Got here yesterday. Same ole. Uncontrollable vomiting and diahrea. Very dehydrated. Guess I got plenty of time on myhands to catch up laying in the hospital bed
Hugs all around
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Patty, oh my goodness I'm so sorry you're back in the hospital. I wish they could get to the root of what is causing the vomiting and diarrhea, this has been going on for too long. I'm sending you big hugs and whole lotta love!
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Patty I hope you hydrated quickly!! Thinking of you and hope you get some rest. Hugs.
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Patty I'm sorry your stuck in the hospital, but your right relax , read and hydrate. I hope you get some deserved rest and then get out. Hugs to you ☺️☺️☺️
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Patty, I can't believe you're back in the hospital. I wish they would figure out what this is that keeps knocking you down.
Dune, I hope you get over this cough soon. Take care with those meds, they can be as dangerous as they are helpful.
Hope everyone else is having a lovely Sunday! I'm being extremely lazy today, it's almost noon & I'm not dressed yet! Take care, cheers, Dee
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Oh, Patty -- at least you're where you're getting the care you need, but what a contrast to how you were feeling just a few days ago, and what a way to end up a Thanksgiving weekend. Hopefully, you'll be out and back to feeling great very soon.
And Dune, that psychotic episode sounds very scary, and certainly gives a whole new connotation to "black" Friday! Thank goodness your chest x-ray -- and more importantly brain CT -- were clear!
Carol, your experience with Dana Farber is a prime example of why we need second opinions, preferably from an NCI-designated cancer center, where they would pick up on a bone pathology possibly degrading the specimen, which I've heard is easy to do, especially if it's done too fast.
Annie, so sorry to hear about what you've been going through. I have no experience with acupuncture, but with so many issues suddenly going on, I don't think I'd have another tx until you get things sorted out. Praying it's not your MS flaring up, but if it is, I'm concerned about your acupuncturist telling you your SEs are "normal," when you have MS and they're also symptoms of that condition. As you said, stimulating your immune system may be counterproductive in view of the MS.
Maggie, we try to keep questions like yours on the thread that Caryn pointed you to, mostly because this one is so busy and there are a lot of questions like yours that would become lost here. But in case you haven't re-posted there, I wanted to ask you if you've ever had a PET or CT since your bc dx? Since your initial dx was Stage IA, I'm guessing your onc didn't feel it was necessary, because if you'd had one, you probably would have more peace of mind right now about the rib discomfort. So I guess if I was in your situation and hadn't had one, I would probably ask for one now as you finish up your tx -- as a baseline going forward and to relieve the worry you're experiencing. Just my two cents worth...
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Patty, so sorry to hear you are in the hospital. You need some TLC, and I hope you get lots of it. Sending hugs and lots of prayers. Also, I was thinking you need a warm fleece robe since you said you were cold all the time. LLBEan has a zip up long fleece robe that is really warm. Hope you get relief soon.
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Hells bells, as my grandma used to say. Patty - I am so sorry you're back in hospital.
Annie - sending prayers your way.
Hugs to all...I will get caught up, I will get caught up...:)
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