Bone Mets Thread
Comments
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Deanna that's really great news so happy to hear. What a great day when we get good news eh?
Jen swimming is such a great exercise it's so empowering when we can get back to it again. Whatever gives us joy .
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Onc said no problem taking curcumin. Yea!!!!
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LindaE i don't know how you do it with food. So sorry, what a tough go.
JFV it's the way to go! I am not sure that people just stop taking stuff. Moderation, etc.. they could have just guided you to a nutritionist or the likes but to give you a speech? Sorry you have to wait. Are you at a large Cancer Center?
Gracie good for you.
Wendy how are you coming along?
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JFV: I got a giggle out of the two margaritas
...don't blame you at all!Lita: glad to hear your pain has improved
I remember my days on Decadron when I was getting AC....my husband thought I was going crazy when I told him I couldn't wait to spend the weekend cleaning the basement !...can I have some of that energy now please
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Ok. So here I am in the ER. Pain again and throwing up. My DH is away on a golf trip so I'm by myself. Figures!!!! I just cantbelieve the pain!!! Had my Gemzar today but don't think it's that since the first time this happened was before gemzar. Need to get some answers!
Babs
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Babs, I am so sorry you are in the ER, especially when your DH is away. Sending up prayers for your quick recovery. I hope they get to the bottom of this so you feel better soon.
Hugs, Lynne
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Thanks Lynne. Waiting to have scans at 8. Just told my DH who wants to come home but I made him promise not to. I could hear the panic in his voice. Made me cry after. This shitty disease is so hard on those we love!!! Did tell my brother who's part of MSKCc so I know he'll monitor the situation. Don't want my DD to know as this would stress her and she can't have any stress now and anyone else close would question why my DD isn't here and i can't say. So hard doing this alone. I usually have the best support system. But I do know that I have all my BC sisters with me!!!!
Babs
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Babs, We are definitely there with you in spirit with our arms wrapped around you for support. I know how difficult it is for our loved ones, and it's terrible, but right now you are the focus of our attention. Your DH will feel better once you are taken care of.
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Re: Turmeric supple....
I finally checked with my Onc at my appointment yesterday. as well as chatted with my cancer clinic s Pharmacist. They are still advising NOT to take a turmeric supplement when on Fas. and Xgeva as it can interfere with the effectiveness of treatment. I live in Canada and now wondering if it s a diff Guideline in Canada vs the USA?? But I can take turmeric spice in food. Go figure.....
That being said, I drink 6 cups of green,turmeric, ginger tea and I grind some black pepper in it. Sounds awful ...lol... but it tastes great ..a little kick of spice...which seems to help with my joint inflammation But there s still very little turmeric in it.
So today I made a little concoction of turmeric,ginger and garlic, black pepper mixed and added to a tsp of almond butter. I took it like I would a medicine followed by some water. I m not that keen on the turmeric taste in salad dressings so thought I d bite the bullet. It is def doable.
My Onc appoint was excellent. Yes... Stage 4 ....right out of the gate....ER + 98 %.....3 mo ago ...started 500 mg Fas/ plus Xgeva ...first line iof treatment 8 wks after lumpectomy surgery No chemo or radiation. Bone Mets now are all showing signs of new bone growth and healing after just 3 mo on the drugs according to ct and bone scans. Onc said same result as if I had Chemo !!!
So much to be thankful for. I ve lost a total of 30 lbs now. since Jan 01st. I don t know if my exercise and diet changes are also helping but at least it gives me some feeling of control and something positive to hold onto in this living with cancer journey
My daughters and husband have booked dinner out to celebrate...The Keg restaurant...lol...I don t have the heart to tell them I haven t eaten any red meat since Jan.
But what the hell!!! I bloody well deserve it lol
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babs ~ I am going to scan today at 900 so you're not alone at all. Just picture us scanning at the same time. I will be sending you prayers as I scan as well. I understand how horrible this disease is. Its awful, and I'll be alone too, DH is out of town with work and DS & DD will be out living their lives. one at work and one in college. They are my guiding lights. Stay strong and I'll try too as well. Gentle hugs ~M~
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Babs so understand you not wanting to tell DD!!, Yes, Im gonna doble down I wanna be here for you. Where is the pain? When did you actually go to the ER? Did you go to the urgent care they have? You Mo seems decent, so she'll prob be on top of it. I know most of the time these days we don't see the actuall MO's in the Hospital, but make sure you call her with all they tell you even thou they say she knows whtas goint on, she might not be around because there is a massive event this week and most docs are away. But talk at least to her PA or NP. That's whatI do. Make sure you are in agreement. W
CT? what are they doing? Ask for a copy of Blood tests if you can while you are there, so you could follow what they are doing. If you have it and you wanna ask us something about it maybe we could help.
I just woke up which is unusual , but I double down with sleepg pills this night,
How far is hubby? Just saying, don't eat my head off, but sometimes you would think you are being good to him by not letting him be there, but he will end up thinking of you the whole time, and would just prefer to be near you. Speaking from the other side of the coin, the day D went to the ER with SIL, and they kept on the phone with me for hours anyway!!! Agh...l
Hope they find what's giving you the stupid pain right away
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Babs - I'm with you in spirit. I know how hard it is going through those challenges alone. We're all with you right now. Anxiously waiting to hear more from you. Love and hugs in the meantime.
Micmel - good luck with your scan today as well!
MCK - Congrats on your good news!
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I have mets to my L5 in my spine. Never bothered me until the past few weeks. The pain is getting worse. Just wondering what they do for it? I get Xgeva once a month. Do they do radiation on the spine? Just sounds scary0 -
Sending you (hugs) and good conversation to help you get through this time in the hospital and scan. Hoping they are getting on top of your pain and vomiting.
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Dianarose I am so sorry you are in pain. Just wondering if you had a recent bone scan which may explain the increased pain. I would def telephone your Onc particularly if these are new symptoms to have it checked out.
initially I had increased pain which they now believe could be SEs from the Xgeva injections as my scan results were good. Before scans were done I had a telephone appointment with a Rad. Onc. He said that if ever the pain got too bad on my mets at T2 vertebrae I could have external beam radiation on the mets to try to reduce the Tumor and pain, with good results But he said that there s only so much radiation a person can have
I ll be thinking of you. Let us know how you are doing. I hope you have some relief soon. Please please call your Onc s office. Pain just makes all aspects of one slife unbearable.
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thanks LindaE54...I ve learned to take this cancer journey one scan at a time. Otherwise I d ve off my head!!!
I luv your little pup profile pic 😁
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Linda, I took it because I was diagnosed with COPD before they figured out I was short of breath because of cancer juice. I got more done in a few days than I had for the entire previous year! Sorry about your tongue, must drive you crazy.
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Babs...thinking of you as well...your post brought me to tears...you are not alone....there s a whole lot of us crazy bc sisters here pulling for you💕
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Dianarose, Yes they can do rads to mets in spine, but it is done with very precise beam delivery such as IMRT or SBRT. I've had rads to T-8-to T-12 and upper ribs and L3. I can't have any more radiation, but the treatments did help with my pain for awhile.
Babs and Micmel, keep us posted about your scans.
Moma, How are you holding up? Are you taking any time for yourself?
Heading to see MO and first labs on Ibrance. Anxious to see what they say and looking forward to the MO bear hug I always get.
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Lindalou, Good luck with your blood tests. My first blood counts on Ibrance were terrible! Now they aren't too bad.
Micmel, I hope your scan results are good.
Babs...thinking of you.
Lynne
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Babs, just logging on and learning what's going on with you. I'll be praying and watching for an update. I'm so sorry you're in pain and alone at the moment, but you know we are all with you in spirit, and I hope that gives you some comfort.
Micmel, thinking of you as well. I'm always 3 hrs. behind you East coast gals, so your scan is probably done by now. Hope you don't have to wait too long to get results.
More positive thoughts & prayers for you, Linda. Hoping Ibrance is kicking butt and lab results will be where you need them to be to continue.
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Babs how are you feeling?? We are all walking with you.
Micmei when would you know results on your scans?
Dianarose oh yes, Dani had many rads over time. They only do it when it really bothers her, She only complaints when it really bothers her.
Lindalou I am ok, my DD had to wake me up today, i double down on sleeping pill, more like I took it in the middle of the night, bcs my thoughts start going and I can't sleep, and no sleep means I am half a person during the day...But i am just fine now, thank you. Cheering for good results on your visit.
MCK54 wow that's a tough ride. My DD had rads to the T2 area 2 years ago, this year she had much pain, pinch nerve some numbness on one hand, so after some misdiagnosis they finally saw the tumor on the T1/T2, but they only radiated T1 (they told me she would get on both), but they said she got the max on T2 and they did not do it, but thankfully it aleviated her symptoms, and I need these RO so I am not gonna bark for now! The mantra is when it gets in your way of life...
Hi LindaE same old same old?
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Babs,
Sorry to hear you are in so much pain. I hope the ER doctors are able to help you. Please know you are not alone we are here praying for you.
Gentle hugs,
Ronnie
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Mommal - Same old, same old. My Decadron high is over it seems, sleeping much more.
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LindaE you need that sleep, go for it!
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Thank you all for being with me today. I just got home. I was dehydrated and have a UTI. No kidney stones. Have to wait until later for the rest of the scan results. Gave me zofran pain killers and cipro. Can't wait to sleep !!!!
Could not have made it through today without you all!!!!!
Bab
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Babs, I am very happy to hear that you are home with treatment in hand. Rest, hydrate, and take your medication. I hope the antibiotic and pain medications start working their magic quickly. Let us know about your scans when you have the results. Please take it easyand recuperate.
Hugs from, Lynne
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Babs, I am very happy to hear that you are home with treatment in hand. Rest, hydrate, and take your medication. I hope the antibiotic and pain medications start working their magic quickly. Let us know about your scans when you have the results. Please take it easyand recuperate.
Hugs from, Lynne
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Babs sleep well, you deserve it! So glad you got your meds. Hope to hear great news soon.
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Babs sleep well, you deserve it! So glad you got your meds. Hope to hear great news soon.
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