Bone Mets Thread
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It's been a while since I've been on this site. I hope everyone is healing well.
I met with my oncologist yesterday and good news are in order. My tumor markers are continuing to decrease and the spots in my right lung that needed to be monitored are gone or maybe I should say the PET scan was unable to detect them. Which of course I'm taking as good news.
The only bad news I got was that pain I've been experiencing in my left hip is due to arthritis. Same area where I had radiation in February. I think the radiation to my femur exacerbated the condition. I need to see an immunologist and an orthopedic surgeon regarding my hip and arthritis.
Take care everyone.
-toni
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Fantastic news, Toni!!
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Has anyone everattended this?
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Linda, congratulations to your son and to you! I'm so sorry you couldn't be there in person, but we are so fortunate to have FaceTime to bridge the distance. I hope and pray your lack of ability to travel right now is temporary, and that you'll get back to a place where you can.
Great news, Toni! I hope there's something to ease the arthritis pain you're experiencing. The supplement curcumin helps me a lot with overall joint pain. It may not be good to mix with some meds, but maybe something to try, depending on what your docs come up with.
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Thank you ladies for the info on your pain and how you manage it. It makes me feel less alone. Yesterday I powered through the pain. Today I don't have the energy. I haven't found opioids helpful. I'm having some success with the Tylenol ibuprofen combo. Trying to accomplish something everyday. Otherwise I get more depressed.
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I've been punched in the gut.
Just got PET scan resilts back. MAJOR PROGRESSION. Moving on to new Iv chemo. MRI ordered for brain mets...massive headaches, seeing grey spots and they found uptake in lymphnodes in neck.
Major uptake in femur and illiac muscle, and now more bones involved.
I don't know what to feel right now
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Oh Lita- so, so sorry to hear that. Hugs and prayers and keep us informed.
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Oh, LIta, you must feel so blindsided. I'm so sorry. More hugs & prayers that you and your onc find something that works better quickly, and for a very long time. Hang in there! You are such a warrior, I believe you will turn this around.
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Oh Lita... I am so sorry.... I just want to wrap you up in a warm gentle hug. I am winging prayers your way and hoping your new chemo kicks butt! You are such a fighter...stay strong my friend.
To the newbies welcome! You will find so much support and information here.
Hugs and prayers
Claudia
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Oh Lita!! So sorry to hear of your progression! Cancer sucks SO bad!! Prayers that your new treatment will knock the beast back! Hang in there!
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Oh, Lita, I'm so sorry! Have you been on more than the one hormonal?
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Lita - we are here for you! Whenever one of us gets punched in the gut we all feel it. Hang in there! Sending gentle hugs and love.
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Dear Lita, How awful for this to hit you so hard. Sending prayers and good thoughts. Mair
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Lita, I am sorry to hear this. I will keep you in my prayers. We are all here for you. Wish I could do more. Chris
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Lita that is not fun news geez just when we find a peaceful corner and then the next thing happens. I'm holding you in a big gentle bear hug🤗. You are such an inspiration to me all that you've been through and come out on the other side. You will do this again we all will (unless they find a cure😜I'm always hopeful) over and over. We do it for our family and friends and for all those moments we will get to experience in between . Big hug
Wendy
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Oh, Lita. That's such unwelcome news! Wish I could be there to help you.
I've been on about four different chemos now, so if you want to talk about the various flavors, I'll be right here.
Hugging from a distance.
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Lita- so sorry to hear! And, yes when that happens one does feel gut punched. did get to share this major accomplishment I am hoping the next treatment kicks these mets on their as_!
Linda- what a wonderful achievement for your son!! And you were here!!!! Maybe not with him physically but you did get to share this special accomplishment with him.
Landed in Tel Aviv tonight. Met DD and SIL at the airport. Went to his family's rented apt for a drink and then out for dinner. For me this is pre heaven!
Babs
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Sorry my computer jumped all over the place n my love post!
Babs
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Lita- Sending hugs as you figure out next steps. The brain stuff is really hard on top of everything you havebeen doing to stay ahead of the beast.
I found good info on the Brain mets thread. There ARE treatments to control things! Gamma knife keeps popping up as an option with good QOL.
Stupid cancer!!! Hang in there Lita!
When I wanted to try a B&B it certainly wasn't bone and brain!!!
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Lita Im sending prayers and gentle hugs. I know your next treatment will knock it back
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You have all brought heartwarming tears to my eyes. Thank you all for lifting me up. I had so wanted to start a hormonal, but MO said that wouldn't be enough with this progression. Looks like it is Taxol in 2 wks. MO wants me to gather some strength in the meantime.
DD's big patio party is this weekend. So at least I have that distraction.
DD has just put our favorite movie in the dvd player: Julie & Julia, so I will forget about Mr. Cancer's latest invasion for a couple of hrs.
Babs, have a nice cocktail in Tel Aviv for me, and enjoy looking at all the hot Israeli men over there.
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Lita is right,Babs! Enjoy a refreshing beverage
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For Lita~ please think of all of us walking with you as you knock the he*l out of this progression. gentle hugs ~M~
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I'm so sorry to hear about the progression Lita. It is my hope and belief that the next good thing is just around the corner. FYI, hugging a bulldog usually makes things better
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Thinking of you Lita!
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Lita--your words gave me comfort. I wish i could say something in return. I pray for your comfort and peace as you take the next step in your treatment
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thanks I tried a protein smoothie this morning and some bland oatmeal and that was fine. Lunch was awful and skipped eating anything else today. Thanks for the suggestions.
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Lita, like the others, I'm so so sorry to know of your progression. I wish I could cross the ocean from Australia and give you a gentle, loving hug. Keeping you in my prayers
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Am new here. Tried to update profile with specifics dx. It just kept asking me to "log in", which it clearly says I have already done. Soooo, becuz I need help with this quickly, I hope I can get some feedback with specifics I give now and will try to figure out profile later.
Diagnosed in 2012 with Stage 4 breast cancer to bone. A few lesions in liver. Now am age 57. Neck to entire rib cage to tail bone hurts at 10 most days. A second try at Tamoxifen was waste of time for 4 months. Have run through all hormonal (pill) options. Now Doc moving me to the dreaded IV chemos. Her two choices are gemcitabine (Gemzar) or taxol (Paclitaxel). Radiation will also be given first to sacrum area.
If gemcitabine works for me, I keep my hair and all moves on until it doesn't. Then move on to Taxol or something else.
If I jump directly to taxol and the numbers come out good as well but I lose my hair, I will then be bald for the rest of my life whatever amount of time that would be. Because I would never be "off" taxol long enough for hair to grow back. The cycle of injections just repeat over and over.
Does anyone know of a reason to choose between these two drugs? Any reason to choose one over the other? If the taxol pushed me forward 3 spaces over gemcitabine, I'd do it. Vanity is not a concern. But Dr shows no preference. She said a head-to-head study of Gemcitabine and Taxol has not been done.
My research shows no big difference either but maybe there's a piece I'm missing or not being told.
For people who have used these drugs PLEASE let me know your thoughts. What has been your experience on these drugs and how long have you been on them?
I would appreciate it very much. Feeling very overwhelmed, scared and need to make a decision quite soon.
Thank you!
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Hello Wildflower,
Nice handle☺️ So I started Taxol in April I've done five months was meant to do one more. I had a big issue with my liver a tumour went from two centimetres to eight within a couple weeks I got very sick and couldn't eat. So Taxol to the rescue my liver tumours are gone I was told last month but I fear they are back again. I will know more tomorrow see my onc. It hasn't been too terrible just lost the last of my eyebrows and eyelashes. It's hard to look in the mirror in the mornings but other than that it's all good. No nausea and my strength is still pretty good. Was hoping it would put me into remission but that dream is waining
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