Bone Mets Thread
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Babs - Thanks for taking her on this trip with you!
Hugs and prayers
Claudia
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Momofmany
I was already on either Ibrance or Faslodex. Can't remember which. Just continued that after radiation.
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LindaE54, so glad they got that nausea under control...that is just horrid and makes everyrhing worse!!! So glad you are doing better all around. Have worried about you
Wendy, YEA!!!! Great news! I did Taxol my first go round with cancer and it kicked ass!! (pardon the language). I hope they can use it again if they need to, it's been 10 years now, so I don't know. Enjoy your chemo vacation!
Momall, thanks so much. How is Dani doing? And how are you? Being a caregiver is so hard, and wears you down. Please take good care of yourself!
Z - Thanks so much
I'm so much better. Wow, I didn't realize just how low I was until I felt better. It was bad....Jens, thanks! I can't take any of the SSRI's at all. Every one of them makes my colitis flare up. But Wellbutrin works on the dopamine instead of the seratonin, so it seems I can use it!!! Here I've gone years with all of the grief and everything, and was just barreling through everything. I'm really starting to feel alive again, and can actually read!! Ok, I know that seems silly, but I had gotten to the point where I had no appetite, wasn't eating, wasn't even drinking water. Could not concentrate on anything, had lost all drive to work on crafts, read, watch tv, exercise, everything! It was the worst thing I've ever gone through. All I could do was sit and cry. No sleep at all. Now I'm back to about 7 to 8 hours of sleep a night, which is just like heaven! And everything is getting better.
Lita, am praying for you daily. Hoping they can use some kind of radiation to clear up your headaches and sight problems. You have been through so much, I'm just amazed at how strong you are. You give me something to work toward.
Micmel!!! How are you girl? Think of you alot! Hoping you are getting out and finally getting to feeling like doing some stuff. Praying for you every day
Today I went out and planted seven new bushes around the back yard, including a rose I've been babying along. It felt wonderful getting them in the ground! Monday is my ct, and I'm having some weird pain, so of course, you all know where the mind goes!!!! I can't see my doc now until the 5th, he's going out of town!! I hate that I have to wait that long and think I will be calling his PA next week and see if I can get some answers.
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Gracie - the mental game is the toughest. It becomes impossible to even fight for yourself when depression sinks in. Like you said, you don't even know you are low. And yet you figured it out and found a solution. I get so worried when I hear that dark tone in people posts ... it's very difficult to pull out, but essential to staying in the game.
Tonight was a very long (7hour!) opera/social event with my husband and just as I was leaving I had some pain. I felt so tired. I started to cry, worrying I was not going to make it or even just not enjoy an evening with my husband due to pain and fatigue and hot flashes. In the end it went okay. One short period where I felt sick and it was really hard. Other parts were fine. Up and down through the evening. Back in bed with a ginger beer reading with my 11 year old. Much better.
>Z<
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zarvoka. Glad u were able to go and enjoy yourself now top it off with some time with child. Yea. Good news indeed
I had a pretty hard day again. Will be glad to get back on top of my pain again.
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Hi Babs, it's great that you're having such a good time. I hope you don't mind if I make a suggestion about your arm. It's probably something you already know but I'd feel bad if I didn't mention it and it could help.....are you keeping your arm raised as often as you can? Not while you're out, obviously haha!
Keep enjoying
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Oh Gracie, I have to congratulate you on taking a hold on your situation like you did. It's so hard to do when we're down in the dumps. I went through one major depression and always said it was cancer of the soul. Happy to read you're back on track and wishing you a very boring CT scan.
Z - glad you got to enjoy that long event. 7 hours is long even for someone in top shape!
Patty - wishing you a painless Sunday!
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Sending love to all. Have been busy all summer running around with kids, but trying to catch up. Grateful to have just passed two years since my de novo diagnosis and more than 25 bone mets (and three spinal fractures!)still responsive to my first line treatment. Danae--message me if you want or friend me on Facebook (Rachel Revell Fournier). I think we have a lot of similarities and I may be able to give some insight.
Here's a recent photo from our vacation last week. Minus the dog, but he's doing well, too!
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Gracie- that is wonderful news and a lesson for us all!
Love and healing to all.
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Gracie - so happy to hear you are feeling much better. Depression can be so difficult. Wellbutrin is very good. I was on it along with Celexa for many years.
I've been wondering where Micmel is also. Has anyone heard from her? I hope she is just taking a break from the boards. Micmel - how are you??
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Bluefrog you have a beautiful family!
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bluefrog--happy anniversary! I too have am trying to wrap my head around my de novo dx. However all you gals on this forum give me mental strength. Just started treatment and am 6 1/2 weeks post op. I decided last night to live it up a little. Music fest, cocktails and dancing. I love to dance and sing. I haven't moved that much since my surgery it felt wonderful! 
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Today I went to the wailing wall in Jerusalem and left a wish for all my BC sisters! If only that wish came true!
Jerusalem is just beyond amazing!!!! So moving. My DD wouldn't let me see what she wished for but when I was ready and she wasn't I saw the words my mother on one line and my baby boy on another. Had a very therapeutic cry!!!
Hugging all of you and please know that you're always in my prayers!!!!
Babs
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Hugs Bab.
>Z<
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Babs oh my!! You made me tear up - for sure she has you on her mind the whole time. Yes, it's quite an experience. Thanks so much of thinking of all of us over here, keep on sharing. the wedding is this week?
Zar that's messed up! What gives? When are you having scans? You are just to good to sit through all these hours, hope it was worth it. At the end of the day, reading with the little one that makes e/t ok.
Gracie how wonderful to hear you in this tone. Dani is very drained, but doing ok. Tomorrow is scans, only CT abdomen/chest/pelvis , not PET (which she always used ot have, to show all the other stuff going on in the bones etc.) and Brain MRI but at least we'll have an idea which direction we're heading.
Wendy WOWOWOOW this is just crazy great!! Oh my you are in a terrific place now. It's for everyone to just see how things could change. So happy for you.
Patty special strengths sending your way!! These kids will keep you on your toes.
Lita maybe you could call and see if there are any cancellations, i myself had to cancel many times very last minute, who knows, so you get results earlier. So sorry you have to go through so much anxiety.
illimae the pictures we see are devastating, so glad you are ok
Bluefrog such wonderful picture. The kids are such a mixture.
Jen, Stefajoy, Animalcrackers, Lindae Kaption oh my, for sure I am leaving so many out, so sorry just wanted to greet you all
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How are you doing, Mom?
>Z<
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Mom, hoping for all good news for Dani tomorrow.
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Babs😘 We need a hug emoji.
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Thx a lot guys, to be honest petrified.
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Mom, I will be with Dani in spirit. Is she having any brain issues to warrant the MRI? Is she freaking out like me (and I don't even have small kids anymore) or is she pretty much business as usual about the brain MRI?
As I wrote b4, yesterday wasn't too bad, but today the stuff is worse. I need to rest up after all the energy expenditure from the party. I will call regarding cancellations. I can't go til after Wed because we have a funeral to attend...Wouldn't you know, she died of St 4 cancer, and had brain mets to boot. As long as I take a few really deep breaths and hold them b4 standing, it's not as bad. I'm using my walker a bit more.
I'm taking a little bit of CBD tincture to calm some of the anxiety. I just don't want to miss this trip I've been looking forward to.
Babs, you give me hope. If you can handle the August heat in Israel, with lymphedema while on halaven, I should hopefully be able to handle a resort on the Big Island. At least it's a direct flight.
I've been off Xeloda entirely for a week, so I'm gonna pour myself a glass of Butternut Chardonnay, sit out on my new patio with DD, and say to hell with Mr. Cancer for the evening. It's warm today, so I'll be sure to drink extra water to stay hydrated and keep my cane/walker near me.
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Lifting a glass with you Lita. Here's to a nice evening on the porch.
>Z<
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New shorter hair cut, new patio, got my glass of Chard, and FUCK YOU, MR. CANCER. Brain mets be damned.
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Hi Lita, lovely photo and I love your big smile as you tell Mr Cancer to f....k off! With you every moment. Enjoy the wine and the moment. That's a gorgeous dog you have, posing for the camera
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Awesome Lita, enjoy!
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Awesome, Lita!! Love the doggie - and I've a glass that I'm raising it in your direction - clink :-)
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We rescued our Bulldog 4 years ago. She is such a sweetheart. How could anyone have surrendered her to rescue?
Oh well. Their loss our gain. I know the rescue story...it's a sad one...person suffered from PPD, and was gonna put her down (?!). The son stepped in and said No! surrendered her to rescue and saved her life, and we adopted her.
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Lita. Your picture says it all!!!! FU mr cancer!!!!
Mom the wedding is today. May go to a few museums this am. Wouldn't you know it I walked into a metal sign last night on my Lymphadema side and now have a gash. I freaked out a little to say the least. Hotel had something to clean it out with and bandaged me up. Always something!
Bab
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Lita, great picture! Enjoy! My thoughts are with you!
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Thank you all for the compliments. I love the wildlife photography. It's a real thrill and seeing the beautiful sight in their natural habitat is unbelievable.
Babs, you look great!! Glad you are with your daughter!!
Wendy, I can't believe how great you are doing after that treatment. What a relief 😅 to know this worked for you.
Kaption, I don't know if tumor goes beyond the femor, but when I was on tamoxifen my feet hurt for almost a year. No I have some foot pain on Xeloda but I think it has to do with connective tissues. It gets better after I walk around.
Hugs to everyone on the board. Hoping we all have a productive week, get treatments sorted out and can enjoy another week!!
Anita
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Gracie and Animalcrackers, Micmel is doing very well. She posts daily on another thread that she created. It is called My Husband, My Love, My Love, My Family, My Cancer. There are several people who post there regularly who have become good friends online. I don't think that Micmel would mind if I share that she recently received the very good news that her cancer is almost undetectable now.
I enjoying seeing all the pictures that have been posted.
Rachel, it is so good to hear from you. It is great to know that you are doing well after two years while still on your first line of treatment. Your family looks wonderful, as always. Your children have inherited those stunning smiles from you and your DH. Your beautiful daughter now seems to be almost as tall as you are. Your son is getting big, too, and is becoming quite a handsome young man. How old are they now? I can't believe how quickly they have grown.
Hilldegund, so happy to hear you are singing and dancing. Everyone in the picture looks so happy.
Babs, Take care of that arm. Ouch! Enjoy the wedding.
Hugs and prayers to all, Lynne
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