Bone Mets Thread
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Oh Lita you poor sweet lady I can't imagine how you must be feeling. I hate the helplessness of this disease so frustrating. I agree with Patty you are so eloquent in your posts doesn't make sense to me. I'm right there with you ....is there no drugs for this ? There must be something out there .. gentle hugs and Im praying for you. .
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Claudia Chelle is doing well I spoke to her yesterday.
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Lita, I am so sorry to hear this, I can't imagine what you're going through and have no words other than I'm sorry and I'm hoping there is something, anything that can make things better for you.
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Lita, Words just don't seem adequate. I'm sorry to hear this and I hope your family surrounds you with love. We are here if you need us.
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Lita - words can't express my sadness reading your post. My thoughts and prayers are with you and your family. Remember, we are here for you.
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Lita,
I am in shock and in tears. Your spirit and spunk lift these boards. My prayers for you and your family.
I admire you so much. Stay comfortable and surrounded by loved ones.
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Lita, your words have touched us all. You have had some tough news to deal with and some hard decisions to make. We are here for you and support you all the way. Many prayers coming your way.
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Lita- there are no words!!!! I wish it wasn't so. Please know that we're all there with you hugging you as you deal with this awful news I can only imagine how your family is reeling. I definitely will pray for them
Babs
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Lita, your energy and posts are always inspiring and uplifting - big hugs to you and to your family.
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Lita, you and your family are in my thoughts and prayers. You are an inspiration to so many of us who read this board for information and guidance and clarity as we deal with bc. While this disease has challenged me to my core, I was raised to believe in a "peace that passes all understanding." I wish that peace for you and your family over the coming days and weeks.
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Lita, I'm so sorry you got such news! I will keep you and your family in my prayers. I can't begin to imagine what you are going through. Your strength in the face of all of this continues to inspire me. Sending many prayers and gentle cyber hugs your wsy
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Oh Lita!
Sending hugs! Wishing you joy filled times with family and friends, and a long pain free time to do so. You are a bright light here! We love you.
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Lita is immunotherapy a possibility at all? I know it's a hit and miss for most but it may help.
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Wheneve I tell new people joining this board that there are women here with some great and lovely sass, I'm specifically thinking of you Lita. I love you as we all do and we are here for you. I will pray for your family. I will also continue telling Mr. Cancer to fuck off.
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Lita-I am so sorry you are dealing with this! It sounds very scary. your posts do sound very compos mentis and I hope you continue to write. Hospice nurses are usually amazing, supportive, and cut through all the red tape to get you and your family what you need.
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My MO is off until Tuesday, but I intend to TRY and get a consult with an actual neuro-oncologist. My MO is just a general oncologist.
I want to hear what a "brain" person has to say b4 I literally sign up for hospice.
Yes, I'm still pretty cognizant, but I notice it's getting harder to type. Every time I stand up now, I get really dizzy and feel like I'm going to pass out. Keeping the walker and cane close at hand.
Thank you for all the love. I will try to write when I can.
I will possibly set up another thread in the STAGE IV only forum.
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Lita, my heart is breaking! You are such a strong, inspirational woman! I am holding you close to my heart and praying for you and your family. I am so glad you are going to get a Neuro consult, I knew you would fight!
Do you know, when I first posted here, I was a mess? I was having rads to my hip and I was sick as a dog and feeling so incredibly low. And you, you jumped right in with advice on how to feel better! I was so grateful, and you sounded so strong and sure, I immediately emotionally, started feeling better! I will remain grateful for that for the rest of my life! I thought you should know how much you help people!
Love, Claudia
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lita-- I echo Claudias statement. I joined just a few weeks ago and you were one of the first to offer me comforting words. I empathize with your family as I've cared for both my parent s in hospice. I pray for you. May God wrap you and your family inHis loving arms
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Dear Lita, my heart goes out to you. You have been such an inspiration to each one of us, you have comforted when needed, you have encouraged us as we walk this path, Your determination and will to live a life full of humor and good times have inspired us. You and your family are in my prayers. Blessings, hugs and love to you, my friend!
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Zita I knew you would fight omg you need a big red cape a consult is an awesome idea. Someone said to me once as long as you are breathing things can change and turn around.
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I've been away a while because of a hard, hectic summer (part of our house had to be demo'd and rebuilt due to water damage, which took from mid-April until mid-August). Our summer ended with a family trip to tour most of Scotland, which was glorious and somehow I did okay, even though I almost backed out because I was so scared I would not be able to handle the trip. So for the summer-- in three months, we spent 60 nights in 10 hotels. I am glad to finally be home.
My youngest child moved out and started college last week and I am reeling from the silence here in the house. I have shed my mama tears this week and it's going to be a huge transition. But suddenly I am seeing so much I need to do around here, things I have put off these twenty-eight years of mothering and homeschooling three children, and my lists of projects are getting longer by the day. I do not think I will be bored. Lonely for sure, but not bored.
I just spent an hour catching up on this thread, and at the end I got to Lita. Oh dear Lita. I am so sorry. I don't know what else to say except I pray you will have comfort and joy every day that you live. You have been so good to all of us. So much love.
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Lita- I am praying for you and your family
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Lita. Thinking of you the evening. Hope you found something to occupy your thoughts today. Big hugs. Much love.
Hugs all
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Lita - I am absolutely devastated to hear this news. I am glad that you will meet with a specialist. Be absolutely sure that WBR is not worth trying. Mara as well as many others have had WBR. Mara's life is full. Her mind is sharp. That said, I don't expect any easy decisions for you this coming week. The right answer is what you feel gives you peace. Praying that you and your family find peace every day this week... and that you win first place in the baking competition next year.
>Z<
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Lita, I think you should go ahead and call Hospice, regardless of what happens in the days ahead. I say that not because of the recent news about the lesions in your head, but because I believe all Stage IV women should touch base with local Hospice. They have plenty of services for people who still have plenty of time, such as pain management and caregiver support.
You've always been an "uplifter" on these boards, thinking of others more than yourself, evidenced by your multiple postings about this recent news, so no one will be left out. Your advice makes everyone here feel comfortable sharing secrets no one else hears. Most of us, if not all of us, can't get in the car and pop in to see you. If we could, your home would be overflowing with friends, there to hug you, dry any tears, and fetching drinks for you as you relax on the patio.
I hope everyone else is having a good holiday weekend (those of us in the USA).
I may start a thread for cancer pain unrelated to surgeries. Many posts I've found seem old.
Several of you are in the same spot as me, with hip pain. I appreciate the camaraderie.
I did some deep-diving into Oxy written materials, and discovered that for cancer patients, there is no "too-high" dose, at least from the doctor's perspective.
Gabapentin has helped me feel more clear headed and it seems to help my hypersensitive skin. I'm not sure if it's helping my pain. My opiates don't seem to be working at all. I'm slowly backing off Oxy so I can try another pain reliever when I see my pain doctor. I've resorted to Aleve to give me a few hours without pain. It's ridonkulous to think I have been prescribed 220 mg. of Oxy for my pain. I've visited two doctors several times in past 5 weeks to complain about my acute pain not being touched by opiates, and in the end, I'm reduced to OTC meds for some of the worst bodily pain imaginable
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Lita, I'm just so shocked and devastated by your news, but I too, am so glad you are seeking advice from a neuro-oncologist, very smart move, and you are one smart cookie! I always admire and enjoy your spunk, wit and wisdom. Words just don't seem adequate right now, but know you and your family are in my thoughts. I pray for comfort for you and your family, and offer you all big, gentle cyber hugs.
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Wemma, I was on TCHP, but after 4 rounds my tumor reduced over 60%. Are you experiencing neuropathy? I have it, although not extreme, it's not pleasant and I'm pretty certain it's from the Taxotere. Taxol, I think, is the other drug they use, and for some is more effective with fewer SEs. Definitely ask your MO about other drugs. Doesn't seem like Taxotere is working for you.
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TarheelMichelle - I am very concerned to hear that you are in pain. Praying you get relief. Can you sleep okay?
>Z<
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Tarheel, I'm sorry you are dealing with all that pain. This is what I've learned so far about my pain. I did get the results of all my MRI's and I have profound progression as stated by the RO. I have quite large tumors on both hips, all over my pelvis, lumbar and all down my spine. The pain is considerable. I just finished radiation as well on my hip and it did not help the pain at all. I've got a consult coming up with my neurosurgeon as he thinks the hip pain is also generated from spine compression. I had spinal fusion surgery 3 years ago and although the rods and screws are in place, the tumors are still encroaching in my spinal canal and causing pain. Have you had MRI's to your hip? That would be a good place to start to see you have nerve impingement etc. My MRI's gave us much needed information to go forward with proper treatment. I take Oxycontin every 12 hours and Vicodin every 4. It doesn't do much. They don't want me on Gabapentin until all nerve tests are complete. If you start a thread I'll follow you. I hope you find the right drug combo to help you.
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https://community.breastcancer.org/forum/8/topics/858394?page=1#idx_8 This is the link to Litas new thread.
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