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Bone Mets Thread

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Comments

  • KiwiCatMom
    KiwiCatMom Member Posts: 2,337
    edited November 2013


    Happiness is a good scan! Saw the MO today and all good news. Mets in the spine, rib, and femur are inactive; the one in the spine appears "dead" (his words). Two lymph nodes and two spots on the hip still active, but no growth. No new spots and the itty bitty spots they saw last February are gone. So, continue on with Letraccord and see him in four months. He's also going to San Antonio to the oncology conference and is going to look for clinical trials that might be good for me (and other patients here in NZ) and see if he can get us in on them.


    All the best to all of you,


    Terre

  • chrissyb
    chrissyb Member Posts: 11,438
    edited November 2013


    Yay Terre!!!! That is fabulous news!!! That's gotta make you relax so you can enjoy Christmas all the more!


    Love n hugs. Chrissy

  • NickyJ
    NickyJ Member Posts: 372
    edited November 2013


    that's great news Terre! Happiness is indeed a good scan! So pleased for you. And right before the holidays, too!


    Nicky

  • Safetyyfirst
    Safetyyfirst Member Posts: 31
    edited November 2013


    Hi Exbrxgirl,


    Thanks for the "welcome" and the time to explain the threads. After I had submitted my response


    I retread the question and that's when I noticed the date lol. Thanks again!


    Barb





  • Safetyyfirst
    Safetyyfirst Member Posts: 31
    edited November 2013


    Hi Kiwi,


    Congrats! This is the first good news I have read since coming aboard. I am sincerely


    Happy for you. This allows me to feel there is hope for sunshine along the way.


    Continue to have a blessed holiday wk.

  • teacher911
    teacher911 Member Posts: 152
    edited November 2013


    Congrats Terre! That is fabulous news! My onc is also attending the San Antonio conference, I hope there is lots of great information for them to pick up.

  • MaryLW
    MaryLW Member Posts: 1,585
    edited November 2013


    Great news, Terre! Your treatment is working well. I haven't heard of that drug. Is it a chemotherapy drug?

  • CJRT
    CJRT Member Posts: 221
    edited November 2013


    kiwi- thanks for sharing your experience. my TM have stayed low and stable so hopefully that is good news. will rescan next month.


    terre- congrats on the great news!


    happy thanksgiving to all of you! hugs.

  • aoibheann
    aoibheann Member Posts: 259
    edited November 2013


    Fantastic news, Terre! I am delighted for you. Hugs

  • curveball
    curveball Member Posts: 1,583
    edited November 2013


    A suspicious spot in one vertebra turned up on my most recent CT. I have a bone scan next Monday to verify that what was seen on the CT actually is bone metastasis, and if it is I will be starting Zometa next month. I wanted to enroll in a trial called "Osteonecrosis of the Jaw in Patients With Cancer Receiving Zoledronic Acid for Bone Metastases". The trial shows up in my search results on breastcancertrials.org as one I would be eligible for, and the NCI website and clincaltrials.gov both say it's active, but the trial coordinator at my clinic says it has been closed to new enrollees since 2010. I asked the trial coordinator to double-check, since it seems really weird that all three of these sites would be three years out of date. Then it occurred to me to ask here. Are any of you on this thread in the trial, and do you know if it's still taking new people?

  • QueenOfHope
    QueenOfHope Member Posts: 11
    edited November 2013


    Canadagirl-- I'm so sorry to hear your Mother's having to live with pain. I urge you to keep searching for answers.


    I guess I'm an anomaly, because I never experienced any side-effects from Zometa. 5 or 6 months ago we switched to Xgeva just because it makes for a shorter visit at the cancer center. Have had zero side-effects from that drug, either.

  • Redroan
    Redroan Member Posts: 111
    edited November 2013


    Hi yall, Ok talked to Onc on Wednesday, He thinks next step will be Abraxane weekly after a CT and labs of course in 3 week, Good news is no more Adryamiacin, I won't miss that. So what do you all know about Abraxane. I have tried to find something on here but not getting alot of info. Any is appreciated.


    Thanks Redroan

  • fredntan
    fredntan Member Posts: 237
    edited November 2013

    i  am on abraxene. its my fav chemo

    i only get the constipation. no tiredness, nonausea. nothing. they say its well tolerated

    i start AC back next week. thrilled. not my fav chemo

  • ADJ
    ADJ Member Posts: 203
    edited November 2013


    ooh, if my latest scans show progression, I will do abraxane, also. I am glad for your report and pray for you, too.


    Anita

  • aoibheann
    aoibheann Member Posts: 259
    edited November 2013


    Hi Anita,


    I was wondering how long were you on taxol and were you on it weekly, two-weekly... Also did you take it in combination with a hormonal?Thanks,


    Aoibheann

  • ADJ
    ADJ Member Posts: 203
    edited November 2013


    Aoibheann,


    I was on Taxol as weekly, actually 3 weeks on, rest 1, 2 cycles only. My doc said it was working, so we would stop and "save" it. On Arimidex simultaneously. And I just got a call, telling me my bone scan is pretty close to my last one, oh, and I fell down a few steps yesterday! not on my good side thank God, doing ok. That was at the end of a nice little visit with our son in KC.


    Anita

  • Redroan
    Redroan Member Posts: 111
    edited November 2013


    Fran, Did your hair grow back on abraxane? I am just getting fuzz and I want hair by May as my youngest graduates, Any other problems with abrazne? My big toenails are black from AC . And have to take Dex, and Amend and Aloxi with all of that. Hoping not to have to do all that, I don't like the Dex very well, althought it helps with nausea , My first AC was aweful. and I never want to go through that again. Thanks


    Redroan

  • activern
    activern Member Posts: 111
    edited November 2013


    Good morning everyone!! I did a bone scan a week ago with suspicion on my left ribs (2) but no confirmation. Long story but I am about to go up side someone's head if I don't get a response soon. Bless!! Devil

  • patsback
    patsback Member Posts: 36
    edited November 2013


    Started arimidex in September, with bone mets to hip and pelvic area. Also have had 2 injections of xgeva. Went for my second PETCT scan on Tuesday. I was actually feeling pretty good...no pain when walking as before the injections. I sent my MO an email that I wanted her to release the results of scan to the "mychart" site, so that I could read it. Well, she called Wednesday afternoon and said she would do that, but not until after my appointment on the 3rd. When I asked her how it came out, she informed me that there was growth in the tumors, plus additional ones on the chest wall and a spot on one of my lungs. I guess you can imagine how my Thanksgiving was....stressful, to say the least. Didn't say anything to my kids yet...want to wait until my appointment before I let them know. She said I've got many options available. Do you think chemo will probably be one of them (I've only been on arimidex and the xgeva up until now) ?

  • starbrightlyshines
    starbrightlyshines Member Posts: 73
    edited November 2013

    I dont know about the arimidex but when I was on tamoxifen it took several months to work, we monitered it with tumor markers. And my PET scan 10 months later showed great improvement. So maybe its just too early to tell?

  • Maureen813
    Maureen813 Member Posts: 1,826
    edited November 2013


    hi pat your erpr pos. my understanding is many options available. I'm on zometa and faslodex. I'm sure others will be along soon I'm rooting for good choices and brighter days for you

  • MaryLW
    MaryLW Member Posts: 1,585
    edited November 2013


    Patsback, there may be other options before chemo. I was on Arimidex for almost 5 years before I was diagnosed with mets. Then I went on Faslodex, which is a hormone therapy drug. Then, after 7 months and a progression, I went on Aromasin (a hormone therapy drug) and Afinitor (targeted therapy). The MO said chemo will be next. Hopefully one of these drugs, or another, will work for you before chemo. Sorry you're having to deal with this.

  • patsback
    patsback Member Posts: 36
    edited November 2013


    Thank you everyone for giving me a feeling of hope

  • macyhen111
    macyhen111 Member Posts: 402
    edited November 2013

    I was on Abraxane approx. 6 months I had diarreha and taste issues while on it. It was a pretty easy chemo. I am now in remission.and on femera, 1 pill daily and Zometa infusions once a month and feeling great.

  • aoibheann
    aoibheann Member Posts: 259
    edited December 2013


    Anita,


    I am delighted for you that your bone scan result is close to your last one - I guess that means stable!!! Great news! I presume that you won't have to change treatment. Sorry to hear that you fell though, I hope you are feeling better by now.


    So basically you only had six infusions of taxol and you've been stable on hormonals ever since. It's interesting how different oncologists treat us and our varied responses to the treatments.


    Hugs

  • fredntan
    fredntan Member Posts: 237
    edited December 2013

    redroan, my hair stopped falling out. i had allready buzzed it though.

    i have these gawd awful bumps on my head. almost feels like chiggers, but they are no where else. i think they maybe be ingrown hairs? they hurt, esp when sleeping. luckily i have one side without them . anyone had experience with this sort of thing?

    i went to cvs and put some mechurichrom on them floowed by boil medicine.it has med to help ease the pain. . makes for even uglier head

  • ADJ
    ADJ Member Posts: 203
    edited December 2013


    yes, stable on hormonals, zometa, and 6 different rounds of radiation and bilateral surgeries for nailing my femurs! Oh, my.


    Anita

  • wyo
    wyo Member Posts: 165
    edited December 2013


    Fran- wondering if the serum for ingrown hairs that the waxing salons sell might help? one is tendskin and there is another I forget the name of from european wax salons. particularly good to apply after bathing

  • DC197
    DC197 Member Posts: 58
    edited December 2013


    Fran, I'm wondering if what you may have are Sebaceous cysts. I had one several years ago, and both of my sons have had several. The cysts can grow large and be itchy and painful. They are harmless, but can become infected with bacteria. I had mine surgically removed. It was a very simple outpatient procedure. If I were you, though, I wouldn't be treating it with any over-the-counter meds. Ask your doctor.

  • fredntan
    fredntan Member Posts: 237
    edited December 2013

    i have appt today with oncology NP. these things are annoying. painful mostly. just my luck mets now painful head of sores. i need a break

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