The Hermit Club
Comments
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Skittle- good luck with scan. I hope there is no bone loss from the AI. I wanted to also tell you after going off the anastrazole, I already feel better three days later! You know how you just cope with the SEs, including the joint stiffness, foot pain, etc. The difference coming off of it is really amazing. I know I will have a hard time going back on it, but hopefully the SEs won't be as bad and/or we are going to move to Aromosin.
Kathyec- I am glad your man took you away for that much needed break to beautiful Utah. I had a friend last winter when I was in between rad treatments who made sure she got me out for things just to have a break from the grind of treatment, dealing with the fatigue, etc. One of my favorite things she did was to take me to a Carnival dance show in February featuring music and dance from Brazil. It was one of the few outings I had during everything and made me feel normal for just a bit. It is good when people can help us with these things.
Heading out of town for a few days, will be back on line next week hermits!0 -
Thanks everyone for your input...I did get some answers finally. The M.O wants me to see a Rheumatologist. He said he wants to rule out Rheumatoid Arthritis. I also asked the nurse who exactly am I suppose to call when having issues, and reminded her of her statement about calling my PCP...she assured me that is was fine to call the B.C triage line, and when things become stable, I can work with the PCP again. (Not sure why she even mentioned the PCP in the initial conversation) She definatly changed her tune, and was nice.....God its just so hard to feel trustful of people. I really am thankful that I could vent here, and not be judged....
Kath-yum trout and rice....could you pm your link of your art work? I am in the mood for retail therapy these days....Your DH is the bomb.....its good to hear you enjoy life...
Blondie, Lilly, Cami, teka, C.C...hope all is well with you...
Jazzy-I agree with Skittle, you are indeed a wise woman.....
Today has been Day 1 of being a hunters widow, its just me and Fritz.... Have a good night....0 -
Lori... did you manage to convince Fritz to wear a costume? I know my two would protest wildly. I hope the alone time is more of a peacefulness than loneliness. Do you make things like venison chili, or what is he hunting? (Here, it seems to be anything that moves, yet some travel west for bigger game like elk or buffalo.)
Tomorrow dh and our two dd's will be taking me out to dinner... (bday is Sunday.)
So glad for the weekend. Will be able to sleep past the usual 5:40... yay! Hugs to all. Safe journeys to those out and about.
Camille... did Joey go trick or treating? Dress up? Students here had lots of tales of frights and candy and delighting in scaring others. I never got into the scary side of it all.0 -
Hi everyone---busy day here==Jazzy I'm glad u; told us u'll be off for a couple of days cuz u always post and then we'd have to worry.
Kath I'm so glad u got away and glad u enjoyed u'rself--u needed that.
Lori---When I read u'r second post I say u got taken care of. While I was going thru Chemo my Onc pretty much did everything, and during a break from chemo (operation) my surgeon took care of everything, in fact I called my Onc, about something, she helped me--but my surgeon was not happy and he said right now I was his patient and don't call her--(sensitive) then when I went back to chemo she was back in charge but I also saw other drs. she would have me see--I see my Onc every 3 months now and my rimary for everything else then she sends me to other specialists. And if she thinks I should see my onc soone then I'm with her. But she gives me my pain meds and some other my card gives me those meds and my onc the others, so all in all I take about 15 diff. meds a day---all from diff Drs. but they must go together or the pharmacist would know, I hope. LOL
Skittle that the name, now I have to tell him the other ones--he's enjoying it---and he was out in the rain for 3 hrs. last night with the kids and some parents too--this one fther takes them to an area where the homes are more expensive cuz they really give good candy and the dad likes it. My kids went right along with them.
Teka it's dark so early now it feels so late now--so Sunday the night will be so long, but the morning will be better----so spring ahead and fall backwards.we're falling now.0 -
Good Mornin all---I was up most of the night so I'm hermitting a lot today but I did teach myself how to post-pics-or did I tell u already LOL see even my Avatar is Joey in his costume--it took me forever but I did it. The problem now is I kinda don't remember how but maybe it will come back to me oh I should try on my FB or did I already I don't remember chit. This stinks0 -
i just cant figure out how to post a picture from my iphoto. it says there was an image there, but i dont see it.0 -
Kath I would help u but mind is still by chance, but see the fourth thingy from the smiley faces it has to do with that somehow, but u have to put the picture in the saving files??? see what I mean, I really can't help.0 -
thank u sweet camille, i did try that. and it did say image and the number, so i thought it was saved, but no. and then i tried just the smiley or frowny, and it wouldnt do that either. so i dont know.
ooops! it just did that!
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ok , i will try again with a pic
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HEY!!! It did it! that's me! Happy! uh oh. now you guys will probably see too many pictures from me!!!
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ok, just one more
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im actually 10 pounds up, all in my belly. i thought all the hiking we did would help, but no. i was reaaly really skinny, all my life. i think the ai's and tamox n chemo mess with metabolism. i am glad you like the photos. i had to put the camera away, cause every step i would be taking one! And i wish to have a cute kitty, like yours, Teka. out of the question, since we lost our cat, "Lumpy", and it broke our hearts, and i can't talk him into another, yet.0 -
looking good Kath....
Gone down into the low 30's in the Philly suburbs tonight.......,2 blanket night........then back up yo 70 week.....nutty weather.......
Doing my IPad, and tv is on...love PBS, can't stand 😝Martha Stewart........just her voice annoys me......she reminds me of a milder form of Julia Child's......find' like her either.......change the channel you say.....can't...."Josh Groban is next, and can't miss him........love him......0 -
i am feeling sunken like my chest that hurts like mad tonight.......can feel myself sinking in to whats the point etc.....0 -
She's sideways, this is THE ONE AND ONLY. SPOOKIE
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now I need to figure out how to turn it around. The poodle is DHs boy, KrisKringle0 -
not seen paín specialist no , back to radiotherapy consult in two weeks and will really complain then.......but i logged on especially to post the following....
I really see no hope in my relationship if it can be called that, we had anither row, another one that never gets resolved, over nothing and ge yelled at ne just because he could not find what id asked him to read, all he had to do was scroll to the bottom of a page he was on, byt that was not enough for him he yelled there was nothing there then there was loads there, and i yelled at him for yelling and we ended up telling each other to f off........he banged around and i said go ahead indulge your bad temper, a regular statement of mine and he said i make him bad tempered, well everything makes him bad tempered, and truthfully i dont want to be with him anymore.....we are not married so i have no rights if we split up and i dont see how i can survive alone or with all my dogs as i font have the energy to work full time and there are no jobs here anyway i could not live on my part time income but also i would be. Choosing to be alone as no one would want whats left of me.....but i had to say it here as deep down i know i need to leave but feel trapped, and lonely......0 -
I've been lurking here a while, trying to read the whole thread, then just jumped to the end when I saw Spookiesmom had posted. We know each other from other threads and another forum. Spookie is absolutely gorgeous!! I'm so glad to see a pix of him!!
I am not only a hermit, but also a night owl. They actually kind of go well together because I sleep through the first half of the day!! DH died of leukemia in '97. My kids and grands all live in CA so I am pretty much on my own all the time. I have friends here (moved to MT in 2004) and we do all the holidays together, but mostly I am solitary. I am semi retired and sell online (ebay) to augment SS. Another solitary venture. LOL, that's a hermit for you.
kathec, I absolutely love Utah!! My DH and I did several vacations there hiking all over. That gorgeous red rock country is so special to me!! Your photos make me want to take a trip there!0 -
lily55,! if your mind is there, then YOU are all there, and all you need! can you get short term disability, or unemployment, or something to help to tide you over for now? Can you find another woman to live and share expenses with? this could be an opportunity in disguise, for you to change up everything. sorry he is being such a buthead. i know that mine was too, but i think it was because he was scared, as we had just lost two good friends in the last two years, and were both sad & exhausted too. but it was like he was angry with me for getting sick, and not happy with having to hear all the details all the time. so i found other people to talk to. & here. with which even still i could not live happily without. pls take care of you right now, n i am sorry you have to deal with this on top of everything else.
Welcome grammab..... an spookie is so pretty!0 -
Hi everyone
I'm sorry I haven't been around. I needed a BC or cancer in general, break. I should have checked in though 
I logged on tonight to see when my diagnosis date was...how funny that I couldn't remember.
Hugs to all and I'll try to catch up in the morning.0 -
HI! I'm back too! I have been MIA on this thread for a while now. I stop in and read a couple of pages every now and then, just to check on you hermits and see how you are doing. (Guilty of not read every page though.)
Markat we are both up past bed time tonight!
Spookie is just as beautiful in real life! Spookiesmom is my coffee buddy, so I have had the privilege of meeting Spookie!
Happy Birthday Skittle!!!
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Thank you, sweet Fl... so glad to see you back. Missed you.
And, Markat, I have considered a break as well. Sometimes the whole mess gets overwhelming. Missed you, too, and hope you're finding some sort of peace. Grief can zap energy and healing, and can come out of nowhere in a flash.
Lily... I so wish I could help in some way. If you have good moments and want to hang on, would he consider couples counseling? There may be resources through bc chapters or a community center or a church... or coping w/anger, loss, depression? You sound so lost and sad, I wish I could help. But if you decide to split apart, the roommate idea might be a good one. Someone may be working and want a stay-home someone to care for pets and home. Room/board could be a trade?
Spookie... so white! I've never understood how little dogs can stay so clean--or does Spookie spend lots of grooming time? With an enormous black dog, I cannot really picture all the bathing. He'd be back to his old habits quicker than I could take a picture.
Kathec... wow, woww. You and Utah look great! Landscape and thin/trim... Wonderful.
Camille... glad you figured out pictures. I haven't gotten that advanced.
grammab... welcome to hermits nest. Great group of sweet people.
Hugs to each. Hope all enjoyed extra hour of sleep... except all you night owls. Extra hour of up and around. Be well.0 -
Sorry haven't been here yep been hermitting over and above I am so frustrated and annoyed that they can't figure out why I can't breathe I have been sitting in the dark just laying, not good......hope you all are doing welll and taking care of yourself....
Have CT scan tomorrow then a lung biopsy whatever
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Sandy...who are you going to.......and is it DCMH......0 -
That pic, posted from my iPhone, was last year on her birthday. I think they all get dirty at the same speed, white ones just show it sooner. She's not in full coat any more, short is easier for both.
Fl Warrior you're making us blush!0 -
blondie you are very graceful in your frustrations, hope they find something they can resolve.
Sadly there are no full time jobs as over thirty percent unemployment, and no single friends either, i would be happy in a little studio cottage with my dogs and cats.......another dream, but i need to move on tired of repeat rows that are never resolved or generate change0 -
lily55 i would adopt you if possible0 -
Lily u sound so sad, I'm so truly sorry that all this confusion and emotional turmoil is all happening to u. I don't know how to help u---but before u can do anything u have to heal emotionally, then things start making more sense. Is there any family member u'd feel comfortable living with? Not a choice I would have picked, but I did and make the best of it, but there was a choice for me--I don't know for u what u'r choices are--but somehow I think u might see something when u get clearer of this emotional tangle.But I just wish we could all help u fel better, please there will be an answer for u and maybe a roommate might be it. Or some kind of government help--Just don't give up, this wikl be a sad memory, but it wil be a memory.0 -
Markat and FL it's so nice to hear from u--we speak of u often. And always miss u----but u are busy now and we know that. And handling things coming u'r way.0 -
Happy Birthday Skittle!
I remember now why I stopped posting. The boards changed the format for posting and I can't post from my Android phone now for some reason. Maybe I should look on the technical threads and see if there is something wrong.
Lily, I'm sorry you are going through such a difficult time. My emotions have been all over the place since my diagnosis. Pain, depression, pain that leads to depression...then my sweet mother's passing...it was too much. I recently saw a psychiatrist and hopefully things will begin to even out a bit. I went off all meds- pain, anxiety, tamoxifen, antidepressant. I started a new AD and am slowly taking the tamoxifen again.
Teka, I hope you and the family are doing well I have no idea because most of your posts are deleted, lol!
Camille, I've missed you! You are our sweet, funny rock. How are you and the fam?
Bgirl, Fl, Jazzy, blondie, and everyone else, I hope you all have a wonderful, peaceful day. I'm hermitting today while the girls spend time with my MIL. My youngest is doing better. Work is work, lol! There are days now that I completely forget about BC. I'm still fighting off the residual lasting effects that this disease has caused, but I'm dealing0
