The Hermit Club
Comments
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thanks ladies for thoughts.....appts went well......love my BS.....sweetest man I ever met, end counting my deceased husband too.....lol.."..I have had a lump for a while now, same breast, they did a mam and an ultrasound In June, and nothing showed........I mentioned it again today...he checked it again...still thinks it's a benign fatty tumor, but will remove it if I want him to, just to be sure, and ease my mine......told me to think about it....
My MO pushed again for reclast, and again I pushed back and said no........mentioned going off AI....she was not real happy......said.."we can try another one"........I said....no thanks they all suck...."think she was sick of me, so that visit did not go well........oh well who gives a shit...not me...0 -
hi all. came home. was there all day. tired. must make dinner. gonna eat a brownie.0 -
wanted to show you all a pic
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was a painting i made of my friend sally when she did chemo from lung cancer, with her dog friend shi0 -
been thinkin of her alot.0 -
Ducky- I love your feisty attitude.....0 -
Beautiful Pic Kath...Is this the friend you took care of?0 -
Ducky- did your MO give you the % reoccurrence risk with or without the AIs? My MO says I have a 15% reoccurence risk based on my pathology, including my OncTypeDx score, and said it was reduced in half by the AIs. So I have around a 7.5% risk on AIs. He is very realistic about the SEs, and impact to the bones and said we have to weigh the risk vs. benefit as time goes on. I have read how so many women end up not completing the 5 years because of the highly reduction in quality of life. I have been fortunate in that I don't have the SE's super bad like some women, sore feet are my biggest complaint. I am concerned about bone loss though, and will have my next bone density test around March to April.
I am taking a month off from the anastrozole to see if it helps the foot problems (it is helping but they are not totally gone a week into the break). We are going to try it again and if the feet are still hurting, will try Aromosin. I wonder though what SE that new med could bring? No good answers to any of this.
Kathyec- lovely picture. You are a very gifted painter. I hope the brownie was good.
Good night hermits. Back into the work world tomorrow....0 -
Jazz your right.....they all have SE.......she offered Tamoxifen.....I said....."your kidding right"...........I had a heart attack....read the chart......not to mention leg phlebitis 6 times...1 for every baby.....she said...."well if you decide to stop Femara, let me know"..........I said..."oh I will, I'll dance right into your office singing if my decision stops the SE's".......she left the room
She said taking it adds at least 6 years to no recurrence and sometimes not at all........well I guess so...I'm friggin 78.......time is not on my side.....lol0 -
FINALLY DUCKY...yay. Been tellin u for how long to go off that damn medicine.
We lived our lives and now it's time to enjoy what's left
I hope u stick to this and don't change ur mind..
Been lurkin...and busy..and had another birthday...
Hi everyone..Ill be back
Xo I am the FireKracker..ducky gave me that name...0 -
the MO swears by Femara....she said it is very successful in stopping recurrence which is fantastic, if it does not cause SE.....some women get none, zip, zero, nada....which is great........that was not me......my SIL's mother is on Arimidex, gets no SE at all......luck of the draw..they are all AI's........she was just lucky.....0 -
Grannydukes- happy birthday! You firecracker.
Ducky- it sounds like you have made a very wise informed choice for yourself. We know doctors will recommend things to because it is the standard of care, even if it is not what we want. You do what is right for you. You are the one living in that body, not the MO or anyone else.
Also, I wanted to also share a formal welcome to GrammaB who posted here recently! My nephew used to call my mother "gramma B" and so I have fondest for your name! Glad to hear you found this thread, and I am a night owl too more often than not. Please feel feel comfortable to join our thread. Nice group of ladies here and we talk about all kinds of things, share some laughs, try to help one another on the harder days. We are a judgement free zone.0 -
Can't believe how much i love reading all of us.0 -
Oh I'm so late coming in. But I'm here.
Jazzy I'm glad u'r home.but u have to work tomorrow--UGH I'd never do that hahaha I always took a vacation time and 1 day--it just seemed right.
Kath u'r painting is so feeling--looking at it I can see the feeling u had painting it. What a dear friend.
ducky do whatever u want. I'm struggling with Aromasin and I don't know why, it's done damage that can not be repaired and yet I'm stupid enough not to stop and yet some are on it and have minimal SE's go figure. What I really think tho is some are teaching the Drs, of all the SE's cuz they sometimes look at me like OH u actually have this? I mean when all my skin was peeling off constantly which was not a big deal to me, my feet were so smooth, the Dr. wanted to see them like she must have heard of this but she never saw it and she could see how the skin could peel right off and she felt myy feet and said They are so smooth OMG, so they don't really know all this or how we feel everyday. So we are not at the top of the food chain, we're kind of like mice being practiced on. Fire cracker will agree LOL BTW is it u;r birthday today?0 -
good morning
When I first went on the ALS way back in 2011 after I finished the rads I had such pains in my stomach I took myself off the.Then the onco tried to convince me to try another one...hell no...after I said no she started to treat me different...why? Because they get a kick back..sooo I fired her.no ALS for me..I refuse to give up quality of life for a 2% chance of it comin back in over 5yrs...hey it's 3/12 yrs and so far I'm ok..BEEN BEGGING DUCKY TO COME OFF THEM FOR A WHILE NOW.
My birthday was Sat...0 -
my birthday is Aptil 24th....my husband's was October 30th........maybe that is what your thinking, cause AI rid mention it.....0 -
ok grannydukes Firekracker! happy birthday, too late to throw you a party, but watch out next year!! Teka, i am sure you are completely gifted in another way that i am not0 -
Oh Firecracker so sorry--Unless I did remember and I forgot I remembered--well if I didn't I hope u had a happy Birthday0 -
Laurieparr, I have horrible muscle aches, ankle pain and bone pain. This week was so bad--leg pains would flare while walking and I would find myself almost missing my steps. I can't figure out if it is the long bones in my legs or closer to the knees, I just know I ache all the time and sometimes worst then others-like this week. I wake up and feel like an old lady who needs a cane. I had tendonitis before the cancer meds but not the bone pain.
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Hi hermits- work went okay today. I realized the other day I am 2/3 of the way through this contract and somehow, some of the things that go on at this client site are just not bothering me as much these days. Better outlook!
Speaking of meds, I have been off the anastrozole for a week now and see a big change already. I am walking more normally, less foot pain and noticed a increase in my flexability to do the yoga poses at yoga class tonight. Not that I was not aware of how stiff and sore my body had become, but now that I am a week into the med vacation, I am amazed how much better I feel. I put on 10 pounds right away in the spring when I went on the AIs, and now working my weight down again but it is still hard to loose no matter what. One must wonder which is more important, to be able to move our bodies, exercise, keep a healthy body weight or take these pills? The later seem to work against the former.0 -
jazz......so true....how long have you been off the AL.......0 -
sorry Jazz I see it's 1 week, and you feel better already..0 -
Ducky- yes, one week. My MO told me last week I can take a month to six weeks off to see if it helps my feet. That has been the worse SE for me from the anastrozole. My feet are complicated world, as I was suffering before the bc diagnosis with bone spurs and plantar's faciitis, but that all got better. Then I went on the AIs this past spring and within three months, my foot pain was pretty bad. I will resume the anastrozole and if the bad foot pain returns, then he wants to switch me to Aromosin. I think the surgery and rad treatments were relatively easy compared to these drugs.0 -
Speaking of Thanksgiving.....
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Good Moring all---Jazzy I can't believe u started feeling abetter in such a short time--good--If after u go back on them, the first feeling u have call u'r Onc and change them--don't wait at all.
Dwilli all these crappy meds are for the most part screwing us how we feel in every direction. So talk to u;r Onc, Cuz some of us have the same SE' and some. have less--it's again a crap shoot.0 -
Thanks for posting the turkeys-Cute! I'm sending it to my old friends at work. They'll get a kick!0 -
Yes-thanks!0 -
lynn1235......did the yes mean you are new...if do, welcome.....0 -
Welcome Lyn
Teka-no I haven't posted a pic of Fritz....DH helped me post other pics, and can"t recall how he did it and he is still gone hunting. Speaking of hunting, someone asked what he does with the meat....this year he is going to donate it. We don't have a big freezer, plus we don't eat much venison.
Today is a sunny day....I might do some cooking....haven't been eating much being alone and all.
Teka- I have been working on an art project with beads and fake flowers....its a mosaic(sp?) to others it might look like a busy somewhat gawdy pic, but it has a lot of meaning to me. I started just experimenting with things, like I melted beads in the oven and some of them turned out really pretty, and others just didn't melt or lost their color from the heat. I hope you give painting a try.....
Take Care everyone...0 -
For sure Teka! seed pods and stuff like that are so amazing! you can do something with them! collections of things are pretty cool! i want to start collecting.....Cats! seriously, i really want a shelter kitty. just really need to convince him. i really need the purr! sometimes i make a purr sound with my tongue when i am happy. Lori, cant wait to see the bead thing, cool that you thought of melting them. Welcome lynn1234, i am pretty new here myself, but hermits are wonderful! i woke up today, a little more hopeful, so that is good. i hope it lasts. going to treatment center always throws me for a loop! did the bone density test, and it seems like he took extra close ups or something, weirded me out. but over time, my MO is becoming more human. I told him i went to Zion national park, turns out it was his favorite place, and i showed him a rock i bought there and keep in my pocket, and i could tell he wanted it! it is called a shaman stone, pretty cool. i got it because it is the right size to roll around and squeeze with my trigger finger thumb, the pressure feels good on it. but i do have a collection of rocks. it is why i started making jewelry, cause i am so amazed at how the Earth makes these beautiful things for us to enjoy. maybe we should take pictures of our collections, and share... or start a new thread! ooooooh! i think i will! Flowers for all!
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