The Hermit Club
Comments
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Thanks for asking Sally. I've been feeling down more lately. I get so tired and my body hurts more and more as the day goes on. It feels good to go to bed and I feel my best in the morning.
I had labs drawn on Monday because my neutrophils and WBCs have been low. They seem to be improving. I work but am off on Friday. I will be at my daughter's dance competition on Saturday.
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OK anyone hear from Kath?
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okay. just got home. i cant believe they did 4 biopsy clips on one of the lumps, and three clips on the other. and the last clip on the first set, hurt like the muffer. so, i will not know the results of it till follow up next week. and they have never told me any thing over the phone. i wish they would sometimes. but i am icing, and hoping for no le flare up. hoping its nothing, but not really worring. the main thing i think i would be upset about if it was, is, i dont want to spend all my time going to more drs! endlessly again, any time soon! hope everyone is all right, and furfriends are comforting.
my tamox break is giving me more energy, for sure, but for now, my feet are up! glad that's over.
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Kath I'm glad u'r home, well they really did all that was needed, now just rest and keep those twinkle toes up.
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Kathy- I am glad you are through the biopsies. I am sorry you have to wait so long for the results. Keeping you in my thoughts and prayers for good outcomes here.
Dutchiris- sorry to hear you are a bit down. I hope your day off is good for you Friday, and that you feel better soon and have fun on Saturday.
Blondie- stay safe in the snow and hoping the sore throat is gone soon.
Thinking of the rest of you here and hoping your week is going okay.
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Oh we're having a heat wave--+5 degrees with a wind chill of -q5. a little colder.
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Stay warm everyone!
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TWINS UPDATE:
The brain scans were read yesterday. The specialist said, almost all preemies have some bit of brain bleed. The girls had none. Their scans were excellent! Yea God!!! The mama goes home from the hospital this evening. The girls have to stay until basically their due date in May.
Did I tell you, my nephew, Teddy, put his wedding band on one of the girls arms, but the ring was too big?
Paula
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Paula, great news. Leaving the twins at the hospital will be so hard for their parents. The precious girls and their parents are in my heart.
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wow,t hey must be tiny, paula, or he has big fingers! try to get a picture?
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They only weighed 1.3 & 1.2 lbs. they were born at 24 weeks. Dad is 6' tall, but his fingers are average.
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Soteria- so glad to hear the girls are doing well. I like that the one tried to crawl out of the incubator, she's a fighter.
It will be hard for the parents to go home without the babes, but hopefully they will grow quickly and be able to come home before May. Grow babies grow!
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Paula wonderful news, so glad to hear that and I'm sure they will be so well taken care of. Precious babies.
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Damn, lost you guys again...........WTH........why does this happen, and is it just me....now I have to catch up..........oh well that's ok.........I am home bound from the snow, and the below freezing temps.......will be back
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Mornin' didn't have much snow here but so cold--so I'm here too Ducky--
My cousin came over and brought me a large Starbucks yesterday so I saved half for this morning--what a difference to me--so good.
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Wow, went all the way back to page 212.........no idea why this happens......
Not even going to try to catch up........just hope everyone is ok, and staying warm.......it is horrible here in Philly......so much snow, and more predicted for Saturday........below freezing, and feel like an Eskimo in an Igloo.......its ridiculous.........can not wait for summer, my shore home, cool drinks, and the pool.......
Seems like while I was gone you all had some pretty touch times...........
The cold weather does not help with the aches and pains.......can't get out to drive, so just hope the food outlasts the snow packed driveway.......lol.......plenty in the freezer, but nothing I feel like eating....
Lily I have spinal stenosis, arthritis in my spine which developed after a bad fall down a flight of steel steps years ago, and 2 broken vertebrae........one was fixed by surgery (kyphoplasty), but the other healed before they could fix it........I know what your dealing with.....they want to inject my spine, but will not do that......hope you feel better......just try to hang in there.......
Blondie, hate this weather........hope your doing ok........
Just can't wait for warmer weather......hugs all.........
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Morning---Teka u'd think it was only cuz of waiting for the buses if nothing else, but yes there is school and it's freezing out there. This has been a rough January, plus more snow is coming and more freezing weather. It's to hard to even go out, unless u have to. Actually a lot of schools are closed today. That's how bad it is.
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Teka, I know they are saying with this type of weather it can happen within minutes. Geeze.
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Ducky, do you post from an iPad or other touch screen? I accidentally lost this thread last week. You touch something without realizing it, and POOF! Gone! I lost it on page 176 and had to read like 12 pages to catch up. I had wondered why no one was posting here.
The twins mom was released from the hospital yesterday eve. I'm sure she cried. Every time she looked at them, she would cry and tell Teddy, "Can you believe, we made these?" They'll be spending plenty of time at the hospital I'm sure.
Paula
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My grandson is 1/2 block from the required distance for the bus ride......in Middle School he was 2 miles away......HS he is 1 1/2 miles away.......no bus ride.......it is a miserable walk, and he has Asthma, so the wind, and cold beat the hell out of his breathing...plus it is very hilly, so that taxes the breathing too.........his breathing is bad this time of the year normally and has to use a Flovent everyday, and if it gets real bad the nebulizer.......but it is what it is.......
My grandaughter, (his sister) is in Middle School, so she gets a bus ride.....however, in weather like this my daughter drives her only 1/2 block down the street to wait for the bus......car is already warmed up from Sean's ride, so why not......I would do no different.......
I could go into how we walked 5 miles up hill in the snow, with no shoes, but I will forgo that....lol......I know we probably spoil kids today, but i you do it for the right reason I see nothing wrong with that ...........just don't spoil them for the wrong reasons........
At least the wind died down some, but the temps are brutal......hurry summer.........I am even willing to bypass Spring to be warm................kids already lost 2 days of their Easter week break, but hey, its better then going out in the snow, in the dark, to stand on a corner waiting for a school bus, which is what the kids with no rides have to do.......and trust me.....its dark........
Just 1 week ago we had a boy killed when 2 cars collided, and 1 jumped the curb hitting the 2 boys, killing the one, and the other is critical in the hospital......super kid, honor student, and a 3 letter athlete........so sad........
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how about flowers for everyone here. that one is from apainting that my pcp's brother did. they hang in his office, and i had recently asked him about them, and asking really seemed to "humanize" us both to each other in a deeper way. i like him because he answers all my questions!
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Kath........really nice............now Veggy would have loved that one.............miss my funny friend......she could keep me laughing.............our "big girl panty" thing was the best...........always told her some days I need to put suspenders on my "big girl panties"............but she always got me out of the fuglies with her 2 word phrases.........
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HI, Today feeling a bit of smaltsy, it's my 5th year Cancerversary. My home thread is Insomnia thread, but I thought who do I want to share this with besides my dear friends there. I thought of my friends here. I know you will share in my JOY of this day, b/c we each have the thoughts in common re:BC. Bless you all in your journey.
3 minutes ago, edited 2 minutes ago by sas-schatzi
Hmm opened a bottle of wine, thought about these few hours in 2009. 11:55 am--I had a phone call from a nurse that said "DR. L wants you to know you have a brain tumor"----no answers to what, where, what kind,etc. Said to her "Well, going out the door for a 1pm bx, we know is going to be positive" "I quess when the shit hits the fan".
Talked over films with radiologist, I pointed some stuff out on the films and said "This tells me it's very aggressive". He looked at me, with the look of --should I be honest with her or not. He said "Yes"
Figured a good little nurse would tell her boss that she had a brain tumor. DH and I already figured out a plan for him to drive me on my homecare nursing calls. Told boss of tumor and plan. Her words "We need to know you're safe with patients, I have to relieve you from work". I never worked again.
In the space of four hours, I had a triple hit. A brain tumor, breast cancer, and lost my career of 40 years.
But my Lovey's, It's five years today. We never know why anything happens the way it does. I wrote the following in 2011 it appears. Probably on a glass of wine then too
Nov 4, 2011 03:47am, edited Aug 14, 2013 06:58pm by sas-schatzi
This thread is about being prepared------------and will continue to be so, but add to your list about ending it.
There will come a time that you will no longer need BCO. It is different for each person. Some need to stay here b/c no one in their life gets what they have experienced.
Others need to stay b/c they have developed friendships, that are beyond dissolution, by leaving.
Others want to stay b/c they love helping others.
Why we stay or why we leave, is to each our own, we love when we are here and remember when we our gone.
But always , remember you are valued, and your return is received joyously, because you LIVE.
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Hello everyone,
I just had a mastectomy in July and am reading your posts. I too recently have become somewhat of a hermit due to working at a small biz in my home, trying to keep up with running the household,helping my husband out...on and on...
I have to agree that I do not have the energy I had before surgery yet. I am hoping that it does come back, but the doctors found that an aspect of my thyroid had dropped after surgery (the T3 level) by 20 points which can contribute to the tiredness. I was just saying to my husband that if I could just get enough energy to work my full hours, run my household, and exercise every day I would be so happy.
I also find that a lot of time I am staying in but most of the time its lack of energy.Any suggestions would be very appreciated or any information regarding similar experiences would be appreciated.
Thank you!
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hmm. some things going on behind the scenes here. i have recieved some very bizarre pms from people today, it is what i woke up to. i am going to ask the mods to take alook at my pms, and my posts, and ask them what they think. apparently some one doesnt like me talking to someone?
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LJDH........welcome..........nice to meet you, but not under the conditions we all meet..........you will like it here.....many good friends, nice ladies, all in the same boat.
Not surprised you are kind of laying low........not sure what your treatment was, but it can beat you up......I had surgery, Rads, and now take Letrozole........during most of my initial treatment I did very well......it was no till around 3 weeks after Rads that I began to feel beat up and worn down......then the Letrozole did a number on me, and still is........but I take it a day at a time.......
Don't push yourself.......it takes a while.......I will be 3 years in Feb......and still have bad days.....I live alone, my husband passed away 22 years ago......6 children all with families, 18 grandchildren, and 3 great-grandchildren, with another on the way.....
So life is good.........take it easy, and give yourself time.......this is a good place to hang out, so come back often.......there is always someone here to talk to...........hugs...........
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well, teka, i would if i knew how. on another note, for those of you who don't care if i talk to firekraker, i did find out accidentally yesterday that my two lumps were benign, but i wont have path notes till next week. it was nodes that are somehow inflamed. the radiologist that performed the test, kept saying "milk producing units" instead of breasts, it was pretty funny. and he actually called my cel today, and left his phone #, and said some pretty amazing things. it was the best gift i could give my mother, who just celebrated her 79th birthday yesterday. havent met sas, but great day for you. 5 yeaars is a very big deal.
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Thanks Teka and kathec---yes big day---------------mellowing
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Soteria.....sorry I missed your post.....must have gone past it, but went back and did see it......yes I do use an IPad............I have a computer, which is a Mac All In One, but don't use it.......at least not when I am on BCO....I think sometimes they just disappear, but usually I find them gone, and just put them back, but thanks for the suggestion.
Teka....Also just saw your post where you said , you were sure Veggy would not meet any bitches in heaven......have no idea why that comment was directed toward me......at no time did I ever make that reference, to Veggy or heaven.........so please before you attach my name to any of your posts, or comments make sure your right............really very unfair and inconsiderate to accuse someone without justification.....no apology necessary I am sure it was a mistake................
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Sas ... Happy 5th Year Cancercersary. I hope you have celebrated in ways perfect for you.
Welcome LJDH. I am in radiation treatment at the moment, so I don't feel qualified to give advice. I have gotten a lot of help from the ladies who post here so check back often.
kathec, glad your lumps were benign. Thanks for the giggle of the day at the term "milk producing units."
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