The Hermit Club
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Notso-welcome to our thread. We hermits like our quiet time but also like to share with others, as Ducky said. We will be here with you as you go through the rest of your chemo and any of the other things that go with bc during and after. Nice group of ladies here!
Piper- you crack me up about the plumber. I only get big guys with those mile long butt cracks! The guy that managed my roof replacement was pretty hot though!
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Ducky, sounds like we have the same problem with being "tipsy"! Do you also have a problem with "dropsy" like I do? I'll try to pick up a can of soda and it will slide right out of mmy hand. I'll try again thinking I increased the pressure just enough and grip so hard I dent the can.
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We're quite a bunch here.
Onco I love what u'r doing keep it up and just be careful, So Fun
Piper that can be a song romancing the plumber --hey it might just work they make money like a Dr. (some of them)
Chabba I know sometimes I just can't pick up something right--either my fingers or hand I don't know but it does get aggrevating. Oh and u all know I have lost all my spelling and typing talents. That has nothing to do with BC--it's just me.
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Onco- that is so cool about your skating. And wearing your mom's old speed skates too. Did she compete ever?
You keep that going girlfriend, it clearly gave you much joy!
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Chabba.........oh absolutely........I drop everything.......it is awful......and the truck driver mouth I have kicks in when this happens............and I am also clumsy......(long before Meds, and BC.), so that does not help.............
My hands don't work that well. some arthritis, and a small amount of shaking....very small, but just enough to cause me to get really annoyed..............I think we get annoyed with ourselves because you want things to be like they were not just before cancer, but how they were before getting a little older kicked in.................I don't mind being almost 79, I just don't want to perform like I'm 79............but the BC took some of that ability away.............not the disease........its what we had to do to keep it from recurring......Rads, AI's in my case........mainly the AI.....Letrozole......
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OW-I love ice-skating but haven't been for a couple of years. I cannot believe you have your mom's speed skates How cool!
You got me motivated to look up area rinks and time. But for the moment I see the sun-full force and the temps have been rising. I know they are calling for rain so I need to get my butt in gear. The one thing that makes me happy and gets me out of my cave is knowing I can take long walks around my neighborhood.I have been missing my outside walk time. And I need to get back into my running too. If my poor feet will hold up.
Dam bunions are getting worse, but having just one side done would put me out of work a good 3 months.
Wishing you all a very happy day
Piper
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TGIF my hermits! Started my day with a massage and now home finishing up some work for the work week and doing laundry too.
I don't have the hand strength I used to with the anastrozole meds. I often have to use those bottle grips or ask others to open tight lids.
I did some biz networking with my partnering firm here, and there is a cool opp that may come to fruitition after this current contract is done in June. Something where I may be able to work from home (ideal) and travel to the client site on the west coast and/or Hawaii on occasion. They placed one person so far, and may need more.
That would be SO cool!
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Jazzy, Hawaii ... at an employer's expense ... wow.
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I am packing my bags. I can take a travel assignment in Hawaii so you have a place to stay.
HAHA
anyhow, that is great news Jazz. Yea!
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Wow Jazz - you so deserve it....fingers crossed
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I have been blanking out on all this BC stuff for last few days so sorry if I´ve missed anyone´s post, please don´t take lack of response personally.......right now I am feeling very vulnerable financially, I don´t think I can ever work full time again energy wise as I get so tired and sleep does not replenish me, so how will I ever get enough funds to live on when I have zero work to do, then I wonder if I will ever need money as i might not be here etc etc....all really positive stuff..............!!! I am taking practical steps to move savings into what I hope will be more lucrative vehicles but with more risk attached......so I have hope and vulnerability together.......cancer and feeling old are not a happiness maker......also really worried as I show several symptoms of ovarian cancer and thats it my biggest drea as its always so hidden and that and lobular together could be a deadly combination....boy am i full of the joys of spring...............
Happy weekend everyone.
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Lily- I don't think you are alone here with not being able to work. I have come to realize many women on these threads are unable to work anymore due to all they have gone through. I really never realized how cancer disabled women. I always had the perception before going through it and being here, that you either got treated and got better or you didn't. I never realized you could go through treatment and end up disabled from the whole experience or have it return and live in a state of lesser quality. There is something about this which seems very wrong to me too. Medical treatment should help us to get better and return our quality of life. There are just not guarantees with any of this.
I know you are not in the US, are you able to get any disability from the government or anything else you may had through your jobs in the past? Is there a social worker or other professional where you get your medical care that may be able to advise you of programs you may qualify for? I know many women here are on social security here in the US, as they are of the age to get it. You can get it here too if you become disabled before retirement time too. I just wonder if there is not something like that where you live? Countries in Europe seem to have so many better programs around these things than we do.
It may be time to visit your gyn too. If there is a history in your family, they may run the BRACA tests. My doctor seems convinced I have a genetic cancer so she is doing some sort of new fangled genetic test now. I had the BRACA test and it was negative. It is all very scary to think about really.
I am sorry you are having a tough day. Hugs.
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Jazzy ... great idea ... and just what I needed to hear at the moment ... I am going to kick up my heels and dance figuratively while I serve our simple dinner.
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Lilly55, hoping you find resources to help you retire.
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thank you jazzy and sally, i do work part time but its not enough to live well on and only fir two thirds of each year! Absolutely no disability or possibility to retire as i am nit physically disabked enough so can only keep myself going but i battle weariness and pain on mx side daily, old at 57.......
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Lily I'm so sorry about u'r circumstances- I'm sure u;ve spoken totally to u'r Onc about this. and I hope u'r not going by the rule of thumb. Some people do so well after it amazing while others just don't and it's case by case, I planned on going back to work myself as did my sister (same stges) she went back and doing OK, I couldn't our bodies just reacted differently to Bc so maybe u can do more research on this. Unfortunately we have to do a lot on our own when I think our minds aren't; up to it, but it's worth a try. It's funny but I had planned on working til a certain age for my retirement and SS, never thinking something was going to stop me. And money wise I would have been ll right but it didn't work out that way and I didn't count on this either and u being younger it has to be worse.
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LOL Jazz, is that duck riding the back of a fish?
We have a place in PA where the carp are fed so much they are massive. They all crowd together to get the bread thrown to them and the ducks "walk on their backs".
I like your duck better. A single wave runner.
Here's my contribution for a quick laugh...warning, if you know the song, you will be singing it all day
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Jazzy love the Hawaii idea.....and thanks for the pix dancing is awesome
Dwiii congrats....
welcome to all the newbies...
I will tell you that i am one of the annoying people at chemo...I joke around all the time and if people don't like it then leave, lol....cancer is way too serious and we have so much fun there we laugh and joke, eat and get on peoples' nerves....they roll out the red carpet and we shake things when people are done their last chemo and they ring that stupid bell...we last week we were getting ready to do it for someone and one of the patients said "I came here for peace and quiet and I have a headache...so she unhooked herself from chemo and left THEN we did our thing, and we didn't tell the guy that was done that she why she left.......I get that for some people it is depressing and they can't deal with it.....
Chevy hope you are ok....
love to all of you
Sandy
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None of my docs could believe my 'tude either, I told every one of them, more than once, well, I could go sit in the corner with a blanket over my head and cry. But you would need a crane to get me up, and I'd get a headache.
True?
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OMG--that person actually left---whoa she wouldn't have lasted with my group either we got the nurses to put the chairs in a big circle so we could hear everything and all we did was laugh---one time my sister called and I couldn't hear her well and she could hear all the noise and said are u in a bar? Poor thing she didn't get chemo bt she got infusions and everyone was put behind a curtain. OMG we didn't want any curtain wrapped around us. So wasn't chemo better that way then poor me????
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Blondie- I think you are awesome!
Piper- love the picture!
Spent the afternoon with my friend whose mom just passed. We have not seen each other or talked in six months with all that has been going on. Lots of good talking and walking today. We took a nature hike down near the river, which was peaceful. We saw some migrating snow geese, but no sandhill cranes (we think they have gone now). Came back to the house for some snacks and beverages. It was good to reconnect, I have missed her.
She said she has not been a very good friend to anyone the last year and I said "you don't need to apologize, you were taking care of your mother at the end of her life. We all knew what was happening and friends give each other the needed space to do that they must do." It is good to have people in our lives who can just be present with each other's hard times. Support when you need to, give space when it's required. The friendship lives on.
I feel filled up on fresh air, exercise, and friendship. I could have not asked for a nicer day.
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Jazzy u have such enthusiasm about so much u do and such kindness ad empathy--u are one hell of a woman/
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Sounds wonderful Jazzy. Nice to have friends you can be at peace with
We have Sandhill cranes here too I didn't realize they are migratory birds. Mr & Mrs Crane thought a fenced in retention pond on the corner of a VERY busy street was a fine place to raise a family. A retired man made the news by spending the day there trying to keeps the kids out of traffic. They also mate for life. One of the parents was killed, the other wouldn't leave it's mate. I still cry when I think of that poor bird.
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Crows and Canada geese also mate for life. One morning on the way to work I saw a crow standing beside its dead mate, crying loudly. It sounded like a human wailing with grief.
On a happier note, I also saw a Canada perform the Heimlich maneuver on its chocking mate. The pair had been grazing in the weeds along our canal when one got something caught in its throat. The mate stood along side of it and started whacking the the base of other's neck with its neck. After just a few blows the obstruction was coughed up. They twined necks and calmley swam off together,
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So nice to hear of your afternoon/evening Jazz. You are a treasure and so glad that you had a day to reconnect and breathe in all that life and friendship offer.
These bird stories have me amazed.
Here's one more for you that has nothing to do with fidelity.
In Pittsburgh there has been a rare and interesting phenomenon: seagulls looking for open water, hence migrating here from the Great Lakes during this Polar Vortex. Apparently multiple types of water fowl are vacationing here on the great rivers of Southwestern PA. Now that the temps are rising, perhaps they will begin their flight home. ?
http://eclectictravelgirl.com/2014/02/pittsburgh-s...
more cool pics and an article about it above.
PS. I did yoga on that bridge this past summer. I'll post pics of that another time.
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Piper u did Yoga on that bridge???
Those birds sound so sweet and I'm not a bird lover--but I do know wolves mate for life and are faithful. Not that I want to be around wolves.
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As part of a summer cultural trust event, the 'Andy Warhol' bridge was yarn bombed.....Every inch of the bridge had a handmade yarn panel and you can even see in the first photo how far up the bridge they went. The last day of the festival the yoga and yarn event took place. An estimated 750 people participated. The bridge was packed. I cannot find the photo of me. Someone on the site took it and I have since lost the tag. Anyhow, a small glimpse of my end of the bridge. It was fantastic. I suck at yoga, but what fun to be part of something that big. I had so many people bail on me for this event. I went by myself and had fun anyhow. Talked to many wonderful people and enjoyed a warm summers (Sun)day in the "Burgh".
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