The Hermit Club
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sorry mags, I do know that some places have places that u can go n get make overs for free along with wigs, if u have a cancer crnter around u call there
Dwiii I know I am a bitch and have no been fun to be around, especially when I was on chemo, I realized n tok myself out of the mix and became a hermit.
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Hi Hermies, what a day it has been. Went to my hairdresser this morning and got my shave. Feels really weird, kind of like lightweight velcro to the touch. So I promised pics, here's one of John shaving me.
And at the end, with John and his wife Susan who was all teary eyed.
Then we went to the boutique I told you about and bought a wig and a couple of turbans. When I get the wig to where I like it, I'll post a pic. DH picked it out and he likes it so I don't really care what it looks like because I don't have to see it.
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awesome.....I never wore a wig, always went out with whatever it was...loving your head....
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Mags, it sounds and looks like John and Susan are good friends. I am happy that you were with friends for this step ... and, of course, your DH. Is your wig the same color as your hair was or did you decide to try a new color?
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I tried on quite a few, DH ended up liking one that is fairly close to my color, more salt & pepper where mine (as you can see) is pretty much white. And it's short and straight. But he likes it. So it's all good.
Gonna put on my new sleep cap & see if it stays on all night. See y'all tomorrow. Nini.
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Mags u look beautiful and I bet the wig will look great too, especially cuz u'r DH wouldn't have u wear anything that wouldn't look good. I hope this wasn't to difficult for you, I know some who it was. Not me tho, I always hated my frizzy hair so I was glad to see it go and so far it is pretty straight, so it worked out fine for me. But I did have a lot of hats and scarves but only cuz I worked the first 4 months of my chemo, after that I didn't buy any more I had enough and I didn't go out everyday like I had done, so I wouldn't wear anything around my house or in the hospital, it just didn't bother me--but I wouldn't work like that tho.
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Teka, I love morning glories. Always grew them when I had a spot. I'll see if I can find a picture. Have you grown moonflowers? I grew them too, loved them.
DH will absolutely not shave! I wouldn't let him. He has the lumpiest head you've ever seen. I would never allow him to uncover it!
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Mags hahahaha
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Teka, here you go.
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Hi hermits- just a quick hi before I head out today and begin winging my way back west. Time with family in RI has been good, anniv. party for my cousin and husband was awesome. Got to see so many cousins I have not seen in 20 years, meet spouses, see children grown up or new families I have yet to meet.
Many in the family are staying up here in beach houses for the week and it makes me want to stay (I am on a break from work as you know...) but have my six month follow up coming up later this week. So home we go!
This family of cousins has been touched deeply by cancer with two of the women spouses. The wife of one cousin who is here has come through some really hard years dealing with lymphoma. She has been through rounds of chemo as well as a bone marrow transplant and of course, it has taken a toll on her in many ways. But she is pretty amazing and has such a good attitude. She was telling us last night "I am grateful for everything now." Touche.
Mags- I am glad you had your hair shaved and have some wigs and turbans now. I like that you got proactive to take the way before it all fell out, and to also find some head gear to help you through. You are a trouper!
Hope everyone else here is doing okay. I will have some pics to post when I am home and settled.
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Jazzy, I too look forward to the pictures. Teka, my coffee is full of sunshine too.
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Teka my coffe tastes great this morning.
Jazzy be safe and tell us when u'r home--U'r trip sounded wonderful and we're all glad u shared, now for the pics.
Hope everyone has a good Monday.
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Aw, chemo took away my taste for coffee but fortunately I still love tea.
(Don't you hate it when this happens? You start a post then go somewhere else to find a pic and when you come back you have to log in again? That's why if I have to leave the page mid-post I copy my post first.)
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Mags I never log out so very seldom do I log in I just use tabs for pics and everything else. I don't know if that is right but that's what I do.
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I don't have the problem so much on my laptop but I'm usually posting from my iPad and it's very fussy. I'm sure part of the reason I have to log in from time to time is that I log in from different devices. I do keep a tab open for the forum because I'm here so much, but when I go to a different tab or to my photo app, there's no telling what I'll find when I come back, so I've just gotten in the habit of copying my post so I don't lose it. I always keep a tab open for Facebook because that's the other place I "live". My little iPad mini sure gets a workout!
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OK Mags u lost me, I kno nothing about Ipads, Ipods and apps--Joey has tried to teach me but no way==The kid saved his money for his own toys cuz no one else here has them. LOL
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Mags I am so impressed by u n this chemo thing
Thank goodness for joey
Hi teka
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Blondie, honey, I have no idea why you would be impressed by me, but thanks anyway! I am in awe of you and your decisiveness in dealing with this crappy situation. You have stepped out in front and said, NO MORE! I was so tempted last week to call and cancel everything. And I've decided that once this round – chemo, rads, hormones – is over, if the cancer comes back, I'm not doing it again. If the poison and radiation doesn't kill it the first time, it's just too bad. I think, in the back of my mind, I'm not going to be one of the "lucky" ones who beat it; I had the strong sense from the beginning that I'm looking at what will finally kill me – some day. I don't mean to sound morbid, and maybe this is a normal reaction to a cancer dx. I know survival rate is 90%. I just have this feeling, this sinking feeling. And maybe it's because my personal odds aren't all that great. Eh, what do I know, anyway?
Steroids today, I may be up half the night. But right now, I gotta pee.
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I still love my coffee hot and black. I only drink tea when I am sick and prefer it hot, too. Happy early Tuesday morning everyone!
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Hi hermits- just a quick note to let you know I am back and had a great time with the family party. My bag did not make it in last night though, but is here today and I am going to get it (along with a voucher for my next travel with SW). Then I plan to come home to do laundry and sleep.
Six month follow up begins tomorrow with mammo and ultrasound. With it following this trip, I have not as much time to obsess about it as I often do, but it has been there in my mind. I will see the BS on friday and will let you know how I am doing.
This was the view from the house on the pond in RI where I stayed this past weekend with my cousins. A little slice of heaven.
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Jazzy, that scene is sure relaxing.
Does anyone take both Foxamax and Synthroid? I have taken Synthroid for years. Now Foxamax, although only taken once a week, is to be started and taken like Synthroid first thing in the morning on an empty stomach. Both drugs seem to say no meds for 4 hours. Yikes! What's a person to do? My pharmacist seemed a little perplexed?
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Good Morning---
Jazzy what a relaxing and fun time--and u timed it right. OK u let us know everything the Docs. say, I'm praying all is OK, u sound good and we all want u good. U are our way to the excitement of the world of traveling. LOL
Teka I had 2 cups of coffee and I want to go to sleep. WTF
Mags u'r right in the middle of this mess so u'r feelings are raw, when it's all behind u, u'l feel better.
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Hi hermits- back from the airport. Got my bag and will start doing laundry in awhile.
I stopped at the local co-op for a few food items and milk and a juice drink to energize me. She suggested a ginger drink that included carrots, apples and a shot of wheat grass. To help with the jet lag and fatigue from traveling. Now on to my nap.....
Sally- I don't take any of those but what a situation to be in? The hard part of taking more than a one or two meds, the conflicts begin. I hope someone here can help you or check the drug web sites. Maybe your PCP or someone can advise too?
Mags- it is good to know how much treatment you are willing to do. You sound like you are back on the path to getting through this course of treatment and know your decisions for the future.
Cami-thanks for the good wishes. We always hold our breath around the follow ups, but I have been feeling good and hope everything else is good on the inside.
On that nap!
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Aw I didn't mean to sound so morbid last night, I just wanted to be honest about what I'm feeling, and none of knows for sure. But it's just my feelings, nothing quantifiable. It doesn't seem to matter how often someone tries to disabuse me of the notion, it just hangs in there like a tooth abscess. Can't seem to shake it, so I live with it. I think y'all know me well enough to know I'm not going to let it destroy me or lay me low.
I'm in the chemo chair now, got A+ on bloodwork so Neulasta is doing its job. Met the NP since MO is out today, and she was so nice and encouraging, gave me some hints about dealing with the hormones, suggested an herbal supplement to add to black cohosh, it's called Enzymatic AM/PM and she said it should help with the night sweats & stuff. She asked me about pain meds, I told her I used to be on narcotics but after surgery meds were gone I decided I didn't want to be stupid any more so I haven't gone back on them. She wanted to know what I do for pain. Well, I live with it. I think she thought that was weird, why wouldn't you want to be pain free if you could? But there's always a trade off. Narcotics make me stupid and I didn't want to be any more. At some point in our lives we learn there's no magic pill that fixes everything and has no SEs. Amirite?
So everything starts over today. Wish me luck!
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Mags ... am wishing you luck. Your honesty in your posts touches me and makes me feel my emotions are acceptable. Thank you.
Cami and all coffee lovers, what is your favorite brew? Since I just bought a Keurig Mini, I am experimenting with blends/roasts one cup at a time.
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Mags- nothing morbid about talking about how much treatment you wish to do. We all have to face that question in the short and long term. Better to be clear about it so you know how to respond down the line if that question comes. We all have to live through this and for the longer term with the SEs and it the end, it is a personal choice.
Sally- oh coffee! I found a sugar free/lite version of the Starbucks frappucino back east. Made with skim milk and sugar free syrup, and no whip creme on top! That is my new favorite coffee experience.
Friend from back in my home town (who now lives in CA) called to talk about my trip with me. Good sharing there. Still working into the nap.....
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Jazzy, welcome home. I'm so glad you had such a great trip, it sounds like a wonderful time, and that picture is wonderful. I spent a couple of years in Rhode Island, summer of '69 to summer of '71. Lived in Davisville then Cranston. Loved going to Jamestown Island to fish off the rocks. And canoed in Narragansett Bay, if you can imagine that.
Sally, thanks for your kind words. I just think it's really important sometimes to speak the words that are in our hearts. It's great that we can laugh and chat and encourage each other here, but sometimes I just have to get something off my chest to you who have been there and are still there, because the people who love me can't hear it. Can't bear to hear it. But I can't keep it bottled up inside. So sometimes I have to take to the Couch in the Hermitage and let the Hermies shrink me. It's all good.
Let's see, Keurig coffees. We got our first Keurig when they first came out; we got a new one when we found out how quiet it was. (We could always tell when Cousin was up because we could hear the Keurig from our bedroom.) I'm actually using it for my Earl Grey now, but I do have some favorites, let me see if I can remember them. I always liked Emeril's Big Easy Bold, Folger's Black Silk, Millstone's Fog Lifter, I think what we have now is Folger's Lively Colombian which Cousin gets in the big boxes at Sam's since she drinks about 5 or 6 cups a day. Probably your best bet is to get a variety box and try them out. It really depends on your personal taste. I like a bold coffee, but not Starbuck's (except their mocha which I love). I find Panera's coffees to be much smoother.
I'm going to rest now. Feeling it.
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Mags u can say whatever u want. Nothing is written in stone n u dont have to make any decisions now. U r just starting n I know how the head goes. No worries just do what feels right 4 u.. like them steroids, lol
Jazzy so glad u had a good time the pix was heavenly.
Cammie u r right
No sally just synthroid
Hey teka n dwi
Oh I have a keurig n only hot t
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Mags.....hang in their........your gonna be fine......we gotta believe....right......
I had one of the first Keurig's......love it....the noise is ridiculous..............however I have one at my shore house too.......very quiet..................one night QVC had a fantastic buy on the newest one out, so I bought it.....in the box unopened, but guaranteed when Mr. Noisy breaks..........the box will be opened.........cannot do without it..............LOL
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