The Hermit Club

1266267269271272395

Comments

  • blondiex46
    blondiex46 Member Posts: 2,726

    Thanks jazzy

    And the 37.5 is good when cancer is out of control l it can b like 500, or even more, so having double digits is good but it doesnt hsve anything to do with bone mets

  • jazzygirl
    jazzygirl Member Posts: 11,975

    Blondie- no hormone therapy for the bone mets?

  • Bippy625
    Bippy625 Member Posts: 602

    hi herms,  today is my 1st CAT scan...to ensure my new uninvited guest has not moved its chit around. Nervous but nothing for it. Well, not true, zanax is for it!  I know that if they mention they want more scans there is something bad wrong. I know they wont give me a wink or a thumbs up even if it looks okay......so, i see onco this Friday, and will try not to flip out all week as i will know then. Sighs. 

    I have minimal things to wrap up at my job and i will be done there by sept 1. Then i will be seeing you all alot more here! Joining the local cancer club, for free yoga, counseling, etc. too.  

    Have a great Monday Hermies!

  • jazzygirl
    jazzygirl Member Posts: 11,975

    Bippy- good luck with the CT scan. It is stressful going through all the tests and then waiting to hear results. I expect you will have an MRI on your other breast too.

  • Bippy625
    Bippy625 Member Posts: 602

    jazzy, i did have that on both already, if it is the one where your boobs are hanging out of holes, face down and the dye injection....the other one is healthy as of now. Well, it is what is will be, right?  I guess i must be getting used to it.

    Teka, so very very true! Already, this is a priority changer. I am dreading calling a pal, she is okay but very superficial and it is odd she and i even still talk, we are so different. All my other friends are deep, genuine, incredible gals, with zero guille and other fine qualities.

    Anyway, i know she will say something incredibly insensitive, or more likely,  simply monopoloze the conversation with the excrutiating minuteia(?) of her latest sexual/money-related activities. Well, i am wondering how to handle that, and how to turn it into a learning moment for her vs. flying off my very short handle. Thoughts are welcomed!

  • jazzygirl
    jazzygirl Member Posts: 11,975

    Teka- you are very right about that. I find it very free-ing to be able to just let things go with my nephew. My brother passed when he was not quite 3 years old, and made a commitment to him and my former sister in law that I would be part of his life as he was growing up. My sister and I both moved away a few years after our brother's passing but always kept in touch with our nephew, sent him gifts, had him come visit us a points, etc. I went to see him graduate from Army boot camp in 2009, sent him care packages while he was in Iraq, etc. In the past year, he has just stopped keeping in touch and so I will let things be. He turns 25 this fall and is an adult now and will make his own choices about family. I realized in just thinking about it this morning I think I have fulfilled my promise to my brother (whew!)

    Bippy- we all have stories here about people who were friends before but could not be there for us during our treatment time. Just know that not everybody can or will support another person through this. Those who have had their own health challenges, or have helped another family member who is ill, or have supported friends through cancer treatment will be the ones to help you the most. Surround yourself with people who keep in touch, ask what they can do to help, etc. Let them help too, your real friends will want to do things to make any part of this easier for you that they can. The ones with their own self created and problems will take too much of your time and energy.

    That being said, Teka is right on here, don't waste your time on the friend who is self consumed and wants to talk about herself. I learned some people are just looking for an "audience" so please decide not to be that person. During this time of treatment, you need no stressful people around as you must focus on taking care of yourself 100%. It is okay to tell people like this too you are going off the radar for awhile.  Trust me, this person will just go looking for someone else to talk to about her junk. Some people need to have been through a similar experience or just have empathy in general, but know that not everyone does. Like Teka, I also had to kick someone to the curb who was not there for me and realize now many months later, I don't miss the relationship at all. 

    Good to hear the MRI is done, keep us posted on the CT scan results. 

  • jazzygirl
    jazzygirl Member Posts: 11,975

    image

  • jazzygirl
    jazzygirl Member Posts: 11,975

    Oh and Jazzy is feeling much more prepared for her skin surgery tomorrow. I have read up lots about this particular method, talked to some doc friends and family members, cleared out a bunch of extraneous stuff on my schedule this week, and have food and drink to pack a little lunch for myself. They suggested I bring a book, and some snacks to be comfortable during my time there (will be there a few hours). They also told me what to expect for my out of pocket on this. I feel ready. My goal is to get through this procedure and come away with clean margins.

    Oh and I also did the same thing I recommended to Bippy above. Told a few people who I consider friends/supporters but like to go on about whatever is in their head or what they want to talk about that I must step away for a bit. They have been through it enough with me to know I just need my space. 

    And Jazzy also got paid her final invoice by her last client and that feels good.

    Got things to do today to be able to be ready to go tomorrow and then take it easy the rest of the day. Will pop in when I am feeling better tomorrow and let you know how things go.

  • Lily55
    Lily55 Member Posts: 1,748

    Good luck, all will be well

  • jazzygirl
    jazzygirl Member Posts: 11,975

    Thank you Teka, Lily and everyone else here! Happy

  • magdalene51
    magdalene51 Member Posts: 2,062

    Finally coming out of week 1 ickiness. So thankful for the upgraded meds which have managed the intestinal issues much better. Still, I've spent most of the weekend down for the count. Mostly just weak.

    Blondie, it saddens me to hear of your kids' incredible lack of compassion for you. Having a niece & nephew who are like that, though, I've seen how they can be, ungrateful brats.

    Jazzy, glad you got to have a day out, that prairie dog is the cutest thing, posing for you like that. Did the snoopy dance that you got your check (been there, done that, know that feeling).

    Teka, are you recovered from your trip? Recliner conforming to your butt? That second pic you posted is so right on.

    Bippy, most of us, I think, have had to reevaluate relationships during these rough times. This morning I had a message from an old friend in New Zealand who is also a survivor, we've never met face to face, but she checks in on me from time to time. Support comes from places you'd never expect. DH's boss lady sends cards home with him.

  • camillegal
    camillegal Member Posts: 15,711

    It's still morning so Good Morning.

    Jazzy u know I wish the best for u and like u said cotact us as soon as u'r up to it.

    Mags I'm sorry this one is again hard on you, being fatigued is so common, u'r whole body feels ike a wet noodle all the time.

    Teka likin' that recliner.

    Bippy is this u'r first scan? Only cus they usually take a lot of goofy tests for a while. Just hoping it all is good. And don't give that person another thought--Don't anyone ever take my advice, cuz everyone else has a much nicer approach to things--I'm just a sarcastic b*tch and everyone knows it. But u take care of u'rself first.

    My phones have been to quiet, that means no business--I don't like that.

  • Bippy625
    Bippy625 Member Posts: 602

    hi camilelegal, it was my first CT scan. The double boob MRI, echo, and bone scan were clear. I love sarcasm!  Do not ever change. Well, i will find out soon enough. Also i realize it dont matter if the little pal invites guests elsewhere say, 5 minutes or days after the freakin scan, right?  Why i invest myself, i do not know. This chit is making me crazy. Have a great night all!

  • jazzygirl
    jazzygirl Member Posts: 11,975

    image

  • jazzygirl
    jazzygirl Member Posts: 11,975

    Blondie- this one is for your ungrateful offspring.

    image

  • SallyS70
    SallyS70 Member Posts: 816

    Hi all.  Hugs to those of you feeling physically or emotionally low.  The posts of those offering suggestions make me think.  My emotional horizons are being expanded.  I certainly don't feel as alone as I have at times.

  • maidentiredofwaiting
    maidentiredofwaiting Member Posts: 143

    Hello!  Is anyone else feeling ornery today?  I don't know if it's the rainy weather, the chemo, or what but my DH and kids are getting on my last nerve and I just want everyone to leave me alone!  What a crab.  I don't want to even try and be positive today.  I'm actually looking forward to bedtime when the house is quiet.  Only me and the dog are getting along today.

  • camillegal
    camillegal Member Posts: 15,711

    Maiden don't feel bad, I think that's why so many of us have furbabies--they want us no matter what. And u'r not alone in this feeling it just happens. When I went thru all my crap I lived alone with my cat and everyone else was really lucky. So no one bothered me and I didn't bother anyone else. So don't be so hard on u'rself.

  • OncoWarrior
    OncoWarrior Member Posts: 3,326
    deleted
  • OncoWarrior
    OncoWarrior Member Posts: 3,326
    deleted
  • jazzygirl
    jazzygirl Member Posts: 11,975

    Hermits- up and dressed and on my way shortly to the derm to get this junk removed from my scalp. I look forward to just resting when I get home for the rest of the day.

    Will check in when I am back and rested. Thank you all for your positive thoughts as I head into his procedure today.

    image

  • OncoWarrior
    OncoWarrior Member Posts: 3,326
    deleted
  • jazzygirl
    jazzygirl Member Posts: 11,975

    Hi hermits- procedure done and successful. The area was more superficial than deep (a good thing) but was a bigger area than originally expected. However, it was confirmed they got everything and clear margins were obtained.

    I have six stitches in my head and a funny bandage on top, but otherwise, doing okay outside of being VERY TIRED. I am hydrating and then going to rest for awhile and then prepare for what I expect will be some pain coming later in the day as the anesthesia wears off.

    Thanks for being here with me as I went through this today. Will be back here soon!

  • Lily55
    Lily55 Member Posts: 1,748

    great news, chill and pill when you need!

  • SallyS70
    SallyS70 Member Posts: 816

    Jazzy, so very happy that your skin surgery went well today.

  • magdalene51
    magdalene51 Member Posts: 2,062

    HappyThumbsUp

  • OncoWarrior
    OncoWarrior Member Posts: 3,326
    deleted
  • Bippy625
    Bippy625 Member Posts: 602

    how you feelin jazzy?  Hope all is well!  

    Hermettes, behold, tomorrow is my last work day!!!! My choice, and it makes me so happy. I already feel relieved as today was so hard, no sleep last night.  Fallin asleep at the desk. Useless. Unemployment, here i come!

    BTW, anyone read Wild by Cheryl Strayed? I cried all the way. Cathartic. A good read for the wounded.

    This damn rash remnant of peeling skin is freakin me out. Have a good night all!

  • jazzygirl
    jazzygirl Member Posts: 11,975

    Doing okay here tonight folks. I slept off and on this afternoon. My head is a bit sore but nothing bad. Going to take some Tylenol and then go to bed shortly. 

    Bippy- good luck with finishing up work tomorrow. I read Wild a few years back. It is a book all women should read who have gone through anything hard (like all of us?)

  • Monis
    Monis Member Posts: 309

    Hi hermits!

    Jazzy, glad to hear your head is doing fine.  Are you sporting a funky hairdo now?

    Bippy, Congratulations on your last day of work!  I guess the reason why you quit sucks, but it sure would be nice to walk out of the office and never have to go back!

    Today was actually my last day of work sort of - Heading off on VACATION tomorrow for a week!  I haven't had a vacation in a long time.  All the time I've taken off of work in the past year has been for surgeries and recoveries.  No fun.  Me and the hubby aren't going anywhere exotic, just a road trip down to S. Calif. to visit my family which I haven't seen for almost 2 years.  It'll be nice to spend some time with my brothers and my mom.  Looking forward to some fun and relaxation.

    image