The Hermit Club
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Oh how I would love to soak in those hot springs!
Lily, I will be thinking of you tomorrow. Surgeries are always tough, but we make it through, and you'll have one more step behind you. None of us will ever be our former, "normal" selves that we were, but we have to find ways to adapt and accept our new reality. BC sucks, that's for sure, but life is still beautiful. Sometimes it's just harder to find that beauty, but it's there.
Mags, you look absolutely fabulous. That wig looks great on you. Good luck with chemo #4.
Went bra shopping today - First time since my surgeries are all done (hopefully!). What a nightmare. I must have tried on 50 bras, most of which didn't fit right. I really wanted to find a cute, sexy lacy bra, but that didn't seem to be in the cards. I always seem to end up with plain, neutral boring bras. But, at least they somewhat fit. It's tricky when your two boobs are shaped different! And then the shock, when you take your purchases up to the cash register to pay - Holy crap! Why are bras to expensive?! These things better last a long time! Other than that lovely shopping experience, just hanging out at home for the holiday weekend, working out in the garden and getting some painting done inside the house. Hope you all have a great, relaxing Labor Day weekend.
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Good morning hermits. I just have to post this because it is so cute and will make you smile. For the dog lovers out there (and you know who you are!)
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Sally- the hot springs we went to yesterday are about 60 miles from here. An hour plus driving time and a beautiful drive too. My favorite hot springs are about 2 hours north of where I live, but not as good for a day trip. We are going to go back to this place, and do an over nighter there this fall to celebrate this friends 60th birthday.
You asked if there were others there and yes there were. We did the springs for 2 hours and the first hour there was a nice couple there, who were in from Odessa, TX and seem to spend a lot of time in NM. The second hour there was this cool homeopathic lady who had just moved here from Denver and we had a great chat with her. We went early and it was not busy so we mostly had the springs to ourselves.
I slept so well last night, and also have an ankle that is bothering me that seems better today.
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Good morning, Hermies! Doing absolutely nothing today. DH has left the Star Trek marathon on tv and gone shopping with cousin. They love to shop together, they have a great time and always come home with interesting finds. Today it's Bed Bath and Beyond, so you can imagine.
Jazzy, I can see a problem with the hot springs... I'd never want to leave. Our hot tub broke this spring, and with the surgery and chemo, we decided not to replace it until I was done. I sure miss it. I sat in the bathtub which has jets, and it's nice but so hard for me to get in and out of, even with the nice handle DH installed. I have to turn over and get up on my better knee and pull myself up. By the time I get out, I need a shower. And then exhausted the rest of the day.
Monica, your experience with bra shopping is one reason I chose BMX with no recon. After spending a small fortune on bras that never fit properly, and carrying 44DDDs around all those years, I'm glad to be rid of them. Now if I could get rid of the Buddha belly, that would be great.
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Mags- I never want to leave the hot springs but always remind myself I can go back to any number of them. New Mexico is loaded with them.
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Hello, my hermit friends! Been celebrating life. I was taken off Anastrozole 6 weeks ago. Felt a 100% better after 3weeks. Bones stopped aching, my trigger thumb that was popping up to 6 times a day only pop about once every two weeks if at all. My energy level is so much better. MO was very pleased but today I started on the new med Aromasin. We are trying this out and hoping it will treat me better. Oh yeah, my new PS has schedule my surgery to correct what the other surgeon did, as well as lifting my left breast and lipo under my arms. Can't have surgery until Dec 17th because I'm teaching again and have only 4 sick days left, so I need to wait until my holiday break. Hope all is well with all of you. Love you all!
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Mags, I know about the Buddha Belly all too well! Sometimes I regret not doing a DIEP, but the whole concept kinda grossed me out at the time.
Dwill, glad you're feeling better - Hope it lasts and the new med treats you well!
Just hanging out at home today for the holiday, Hermit Style! Did a little gardening and house cleaning. Got this year's garlic harvest all trimmed up and stored in mesh bags, and had a big pot of tomatoes simmering on the stove for sauce for the freezer. Back to work tomorrow, blah.
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Nini Hermies.
Monica, I am green with envy at the bounty of your garden. Mine is a failure this year. Everything died.
I'm in the chair tomorrow. Wish me good blood.
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think time zones confused things as surgery was yesterday and everyone was really kind. It was a rough one over four hours, and i feel really hungover today. Last time had local in areas touched as well as general, yesterday no local so sore today.
I see lots of people on Aromasin feel joyless.....but there is another 8 years of ALs for me and no doctor, even naturopathic will agree to me coming off them, anti deps dont agree with me, have tried various ones........i dont just sit in a chair but make myself do things, but nothing reaches me
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Lilly- so you are on the other side of surgery? Are you in the hospital or home? I am glad you were treated kindly. Rest well and hope you will be pleased with the outcome.
Keeping you in my thoughts for a good recovery and better days.
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Cami- this one is for you.
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i am home Jazzy, bit bruised and battered.......but i just feel like i am going though the motions in life emotionally....... I remember feeling like this on Femara, one reason i was changed to exemestane, i dont tolerate normal anti depressants but will look for natural alternatives like tryptophan
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Lily- I am sure you are hurting from the surgery, and am sorry to hear this. I hope you can rest well at home and know your support system is not ideal, but hope you have what you need. I am glad you are through the surgery though and on the mend. You will get better.
I know that feeling you speak of (going through the motions) from the hardest times during my medical care. I remember feeling that I might never feel good again either, I was pretty convinced at one point I might not. But the further I got away from things, the better things got and continue to improve to today.
It just takes time. So just keep taking it one day at a time for now. That is the best any of us can do during times like this.
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good morning Hermettes! I have returned. i've been lurking but not posting and I'm glad everyone seems to be doing okay. I also love all the pictures of your beautiful bald heads!
Thanks to everyone who sent me encouraging messages when I had my mini meltdown last week. After my second chemo on Friday I basically slept for the next 48 hours. I was fighting the fatigue at first but then I thought what the hell I have nowhere to go nothing to do why not just give my body what it wants?
I'll be doing this in the future- listening to my body- I feel so much better today. I'll try to remember that I will have setbacks and not let it drag me all the way down into that deep dark hole. All those beautiful vegetables have made me want to go to the store and get lovely things to nourish my body and soul.
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Teka- bunnies! I love bunnies!
Bippy- sorry about the meltdown, it does come around for us all sooner or later. I am glad you are letting your body rest. It is taking the lead as you go through this and trust it's wisdom. I hope you feel better as the week goes on.
Jazzy is getting her stitches out this afternoon. Can't wait.
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No there aren´t any here otherwise i would go to one.....Jazzy how you doing?
Mags how was the chair today?
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Hi ladies- stitches are out! No pain with it either. The nurse who removed them said everything looked very good, no sign of any concerns, etc. She told me to let the stitch openings close over the next day and then I can get back in the pool by tomorrow night. Yay! I have so missed swimming.
I go back mid November to see the derm to have her check things to make sure everything is healing, then again in 6 months, then yearly after that. I made my apt for the 2 month today and will see her 11/14. I will have a very thin scar from the looks of it, but nothing that will be visible with my hair that will cover it. I feel fine and thank you for caring folks!
Onco- I have not ever done a support group here. I kept my bc diagnosis and treatment private for professional reasons (and that has continued to this day). It sounds to me like maybe it has served it's purpose and you are ready to go? You can always talk to the leader and maybe ask her what the best exit strategy is. I do think it is good to find a way to say goodbye so people don't worry something happened to you if you stop going.
Hope everyone is having a decent day!
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Onco- no pictures!
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no support group here
yay jazzy..good news0 -
As I said to DH today, the actual administration of the chemo is the easiest part, though tiring. The hard part comes after. Please to report my blood work remains excellent, WBC count was even a bit high. All functions normal. Tonight, just a little nausea, so took my zofran & heading to bed.
But I wanted to tell you about what happened with my MO today. He always asks about not only my physical health, but also my mental and spiritual health. I told him, I struggle. He said, is there anything I can do for you? I said that our mutual friend who referred me to him told me he would pray with me. He said he'd be happy to. He sat with both my hands in his and prayed quite a while, didn't rush through or seem hurried at all. It was amazing and I was all tears. Highlight of my day. He also shared with me about a stressful time he'd been having and how he had started meditating on the 23rd Psalm, one line a day, and how that had really taken the stress off him. So I agreed to try that. It's a psalm I memorized as a child and still recite in my head when I can't sleep. But I like his idea.
Jazzy, grats on your stitchlessness. Will you be doing a combover?
I have not tried a support group because I'm a hermit and it would mean leaving the nest. Speaking of leaving the nest, I will have to to rads every weekday for 6-1/2 to 7 weeks. Needless to say I'm not looking forward to that. He's going to try to get me through it before the end of the year so I won't have to deal with the deductible issue. We might have to get another car so I can drive myself, as that's a lot to ask of my cousin. She has other obligations.
Ok heading to bed now. Nini Hermies! (By the way, the insomnia? Side effect of Effexor.)
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Hi Herms
YAY for stitchless Jazzy and u can swim soon too I'm glad that's all over for u.
U know I never even thought of a support group so I never went--my mind was usully in a good place tho.
Mags it's great to have a Dr. like that, it's such a boost for u'r morale and u'r right the chemo is the easiest part. The rads are so fast, u'r in and out in 15 min. I made all my app't early so it was over with early. Just a thought.
Lily I'm glad u'r over this one , well u know to rest--But I still think u can find a med that would be good, I know sometimes u have to go thru lot to get one, but eventually it could happen and u'll start to feel better.
I had a lot of calls today so I was busy, plus I had my D again--didn't make it everytime cuz someone was talking to me on the phoe--It was quite a day and now I'm exhausted.
But I wanted to come in to say Hi
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Hi cammie. ? Dont u have a cordless phone
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Good morning hermits. A little sunrise photo from Carrizozzo, NM.
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Mags- wow, that is really something your doctor prayed with you, but I have heard other stories like that here. Although I don't do organized religion these days, I grew up in the congregational church back east and 23rd Psalm is something that has always comforted me. I still recite to myself these days during the toughest of times. What a lovely story you shared.
So you had a BMX, I am wondering about your rads? What areas will you have done? Although I did not do chemo, I did do internal rads. There are some good threads here that will help you as you go through that. Just like you are doing with your chemo thread. My experience is, just be prepared for fatigue afterwards. Go home to rest right after. You should be able to drive yourself back and forth if you want to.
Cami-good to hear from you and sorry about the ongoing D. Rest sister.
Blondie- hope you are doing okay. Think of you every day.
Oh and about my incision/scar. I don't think I am missing much hair there. I am able to easily cover it with my blonde tendrils. I am going to get my hair cut tomorrow and thinking of a restyling, and will see what my hair dresser says. I have a presentation I am doing at a local technical conference here next week, so jazzy needs to look good!
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Good morning, Hermies! Slept ok until about 5, finally got up a bit after 6 and made my tea. Eyes are not focusing well this morning, very blurry and full of sleepies as my mom used to call them. They feel like they need a good rinsing out. Doc says the tear ducts are affected by the taxotere. He said if it gets really bad they send you to an ophthalmic surgeon and place stents in the tear ducts. Eek! I'll take this. I can handle blurry vision.
Jazzy, that is some view! Is that your property there? I don't know any more details on what they will be doing for rads, MO made the appointment, it'll be the day after next chemo, when I go in for Neulasta shot next day I'll go early and see the RO so hopefully will know more then.
Cousin has made me some scrambled eggs and toast, and a big glass of her special juice (carrots, beets, greens, apples) so I better eat.
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Mags- yikes, keep people away from your eyes! Sounds like it will be temporary.
That photo is from an area to the south and west of here. I am on a thread on FB called NM Pics and this is where a lot of my photos of NM come from (outside of the ones I show you from my adventures). I never knew Carrizozzo was so green, but think it is from all the rain this year!
I hope you like your RO, I had a really great one, he had the best bedside manner of any doctor I have ever known to date. My MO would be next in line for that.
Juice sounds yummy. I am going to the mid week farmers market today to get some goodies for my new juicer.
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Teka- your morning glories are BEAUTIFUL.
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Teka- good to hear. It has been hot here again the past week, as the rains have slowed down (monsoons wane in Sept). In the 90s yesterday which is hot for Sept. Should be cooling down towards the weekend. I noticed some of the cottonwoods are starting to get a bit of yellow color on them (they just turn yellow, but it is a beautiful shimmery gold in the sunshine).
Have your trees started turning yet?
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