The Hermit Club
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Teka those are so pretty and r u getting fall??? We re still warm here and no sight of fall for a whil anyway.
Jazzy u'r picts are always so calming where ever u get them
Mags rads just made me tired too but u can still do things tho, like Teka says.
Blondie u'r in my thoughts.
Lily I hope u'r resting well.
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Not finding it easy to rest as its so hot here still....but slept better than first night albeit with several wake ups..........this road has been so long and I keep thinking it will get better and it doesn´t...............I can honestly say every single day since pre diagnosis has been hard emotional work to try and get out there and live a relatively normal life.......
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Lily- it is work to get through this and back to having a normal life. Although it may be a sort of "new normal" as I have come to call it. As this is your last surgery, things will normalize once this stuff is over. You will see incremental improvement as you go on. One day, you may even say "wow, I had a day where I had good energy today!" Then more of those will come, and the bad days will be less and less.
Teka- yay for fall colors. I miss the east coast fall still.
Cami- is the D better today.
I just finished putting away all my CDs/music in my entertainment center finally. Jazzy has a lot of music.
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Its been over two years for me and oh how i wish this was my last surgery........the surgeon won´t even say how many more I will need but its another four at least...........after rad damage and the awful infection that ate tissue away the only route for me is this long haul......I don´t even know if I will get there as each procedure carries a risk of infection.........I hear the new normal and I try to adjust but you know the reality is I hurt down nelow as its so atrophied, I feel ancient, it takes me over ten minutes every morning to take my pills just for pre breakfast.........and I feel no joy or fun in life, I just feel pain and abused people and animals and sick souls and I wonder why am I working so hard to get out in the world when I just h u r t......and I don´t feel feminine anymore.
I kept going to exercise post op and post diagnosis, only surgeon forbidding me to exercise has stopped me, I kept on with animal rescue, I kept oN with finding a job etc etc......and for what as I feel NOTHING, I can see some people being kind to me but I don´t feel it.......am I making sense.......its all such a long road and I never feel refreshed.....never feel like I´ve had a good night´s sleep as I never get one! On top is all the stuff with my so called partner and the mad local who still plays up and so on and I just want to be out of it all, its really all too much........I had a complete meltdown a few days ago, my first one ever in public........so although more people now know I still feel just as bad and alone, and I am even bored with myself now writing this.......
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Lily- well no wonder you are having such a hard time. Four more surgeries? None one should have to go through that much. I remember the bad infection you had and did not realize how much it hurt your body.
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The cancer clinic is having an art exhibit. Many of the works are accompanied by a card describing "How cancer has affected me." I wanted to share some that I liked.
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Onco, I certainly would benefit from making a notebook about the posters on the thread.
Jazzy, it was good to hear that your scalp healed well with minimal scaring ... great picture of the NM morning.
Mags, you sound in good spirits even though your eyes are blurry. I hope the other SE's are milder this time.
Lily, if wishes could make you feel better, you would be feeling great. Like many others I am sending you a ton of good wishes.
Blondie, hope your day has been good and that you have a restful night.
Cami, is your computer all fixed?
Teka, as often happens, your post brought a smile to my face ... this time it was the "leaf peepers."
Sweet dreams everyone.
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Mags- great pictures. Very inspiring!
Simple pleasures are the best. I met my friend at the mid week farmers market today and we scored on some great fruits and vegetables. She bought a couple peaches and we went to the library near by to sit outside and have a visit and ate those peaches. OMG, were they ever good. Sitting outside on a late summer afternoon eatin' a peach under a shady tree. I also brought home some apples, romaine, japanese eggplant (they are skinny), tomatoes, cukes and 2 lbs of string beans. I am going to cook those up tonight and marinate them.
I went swimming for the first time today in 2.5 weeks. Felt good.
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Oh Lily, sending bigs hugs to you!
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Awesome pix.
Yep here still have a screwed up sleeping schedule. Steroids r working with the lugs hjust cant sleep.
Lily I think of u often
Jazzy they will love u r presentation, show us the new do.
Mags those pix r cool, hugs
Teka, sally, cammie, onco, monis.. Big hugs
Goodnight to u, I will b up 4 a while tho
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Hi hermits- I went to the gym today to meet with a personal trainer to get an evaluation for some fitness training for weight loss and body strength. I learned today via a test they do to assess your baseline that my body fat around my organs is twice as much as it should be. A bit of a reality check, but further confirming I need to do this.
I signed up for 24 sessions (3X a week for the next 6 weeks) and we begin next Monday. Excited!
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Teka- you are funny!
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lol teka
so excited for your jazzy
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Onco- it is this machine you hold in front of your heart and it sends a beam through and collects data around the center of your torso and feeds back a number. Never seen this thing before and not sure what it is called, but seems to do the same thing the calipers do to measure your BMI with external fat. My sister said her trainer is going to do it on her next and I said "get ready!"
I will ask her next time I see her what the thing is called.
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I don't think I want to know how much fat I have in my body
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Onco, those cute kittens in the photo are not mine. Here are mine, though, sadly, we have lost the sweet girl that is lying on the felt bag:
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And here's another cute baby pig picture, because they're just so stinkin' adorable!
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Monis I'm sorry u lost u'r furbaby they are so cute.
Hi everyone, no my computer isn't 100% but I's usable just gets goofy sometimes. All of a sudden u fals have moved quickly along here. Which is good.
Lily I worry about u so, I never had that many surgeries only 4 in all with cancer stuff--so I can imagine the constant wearing down of u'r spirits. I still wish u could take something to help--sometimes people have to take 2 different kinds but they do make u feel better. And I know in there somewhere u want to feel better. I know u'r just reading our words and not feeling them, but we mean what we say--u have to tell u'r Drs.. this is how u feel--iI'm sorry but I don't think u tell them all of this, u might say u don't feel well or am I ever going to feel better but they hear that all the time. U have to tell them u have flat affect and u need help somehow and u also feel like all of this is not worth it for u. U HAVE to tell them everything not that u'r sad but u are in trouble. Please do that---u have to. I'm ot being mean really but my heart breaks reading u'r posts it's just not right---we all have bad days , but that's just it they are a day here, or there not constant feeling it's not worth it.
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thank you everyone for your support.
All they will do is prescribe anti deps and i have tried a few of those in the past they just make me feel awful and suicidal, my body does not seem to like systemic drugs, I am sure a lot is lack of available oestrogen.. I will speak to the oncologist when i see him next but i dont hold out much hope he will be interested, doctors dont do emotional support here, i wonder if they even have emotional awareness. Ive had four surgeries in a year now with at least another four ahead of me, meanwhile i am still horribly disfigured
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Good morning hermits!
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Jazzy was asked to do a promo on the local TV station about the technical conference next week and our luncheon we are doing to promote entrepreneurship! Jazzy said yes! Must find the right outfit for TV, I was in a documentary once and know the camera surely does add pounds......
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Jazzy, do you have a Nordstrom's nearby. I used one of their personal shopper/shopper consultants one time and was very pleased with the effect she created for me.
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Sally- no, we don't have a Nordstroms here although I love the store. We are getting a Nordstrom Rack next year though and can't wait! We do have Dillards here and they have personal shoppers and they are helpful there.
I found a great outfit in my closet that is going to work well! I have a closet full of nice things and decided to look there first. I did buy a new outfit for my presentation next week, but think I need something different for my promo clip!
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Ah, Jazzy, you went shopping in your closet. It sounds like your closet is well stocked. Since retiring my closet has lost some zest, so I have been perusing catalogs. Maybe I should go to Dillards to try on some outfits. That's what I will do if my recent catalogue purchases fall flat.
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I have been following you gals off and on since my diagnosis
and I am so grateful for all the encouragement and advice you give. I am such a
hermit that it’s taken me 2 years to post anything. I have no friends. My
sister—my best friend—died in 1990 and I have never gotten over that. I am
married and have 2 grown children. I was
lucky and my cancer was found early. I had a lumpectomy, Savi radiation, and no
chemo. My diagnosis is similar to Jazzy and I live in SW Philly—close to you
Blondie! I just want to say Hi! and thank you.0
