The Hermit Club
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Teka- believe it or not, I am going to a wedding tomorrow, although not GC's (invitation got lost in the mail....) A friend/colleague of mine is marrying her long time live in BF and the wedding and reception are all at a hotel nearby (love that it is in one spot). It is late afternoon and bought a new dress to wear at one of the end of the summer sales in August.
Going on Sunday to a harvest festival with a pet parade. I know the hermits will be wanting pictures of the cute animals in all their regalia.
So it may not be Italy and I may not be on anyone's A-list, but I am going to have some good fun this weekend!
Have a good night everyone. Sweet dreams!
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Good morning everyone---
Mommy hhahahaha--dummy's office---oh so right.
Mags sorry about all this crap u have to go thru--but I'm happy u have a wonderful support system at home.
Teka something sounds suspicious but u know I don't understand anything--just praying everything turns out good for u.
Jazzy OK we've been to weddings but never a pet parade---U've got lots of pics to take for us--I love the pet parade--sounds so cute.
I hope everyone has a decent weekend and I still have to nurse my computer, but when I can I'll pop in.
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Cami- well I screwed up and the pet parade is actually today so we will miss that since we are going tomorrow. But there is supposed to be a donkey parade so who knows what we will see?
And newbees, I know I have said it before and will back up Teka on her comments. Don't be afraid to ask questions about your path report, treatment recommendations, or anything else you don't understand. If you don't feel you are getting enough info, get a second opinion. Know each specialist on your medical team will zero in on different things. Usually we all start out with the BS, but they only know some about the other types of treatments we have to go through. Their job is to get the tumor out however that needs to happen, and they usually help to assemble your other medical team.
My experience during my treatment was that the BS tried to speak about things that were not in her area of expertise (rads and anti-hormone meds), and I just pushed to get info on the rads from two different ROs and two different MOs on the anti-hormone therapy. I know she did not like it and even made a comment at one point that I was fighting her, but I said "I am not fighting you, you told me I would have a medical team and I am seeking their advice for the treatments in their area of expertise." I know she has had problems with other bc patients around this, as I had a long talk with my PCP about it who referred me to her. My PCP has been with me since I moved here (18 years) and she knows me the best, knows I know the healthcare system (work in it alot), and that I am not intimidated by doctors either. She made sure I had my MO for the longer term tracking of the arimidex, SEs, bone health, etc.
Surgeon's always have huge egos, I have had a problem with every one of them I have ever dealt with. Your PCP can be a place to go in times of confusion to help with finding other docs for second opinions too. Also, never talk to a colleague of the person you questioning as they will only refer you to their colleagues and tell them to concur. I had that happen once around another issue too.
Now my BS and I are in a good place, I had the best visit with her yet during my last follow up. She knows I am going to make sure I have what I need to take care of me. She knows I am seeing the MO several times a year for the AIs and never has said a word about it that I went around her for that. Jazzy takes no prisoners.
I will also say when you are not feeling well as you go through treatment, it is hard to do this. For those of you with spouses and family nearby, just have them help you to be your advocate if you need one.
Wishing everyone a good day. Getting ready to go to personal training and it is cardio/core day which means I am going to have my butt kicked!
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Personal trainer called and had to cancel due to car problems, so the morning is now all mine!
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Dummy doc's office never called. Hope I don't have to play phone tags with the idiots next week just for the referral!
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Got to sleep in until almost seven this morning!
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hi hermies, Bippy is getting to work early on her surgery shopping list. Today DH took her goodwill shopping! Got 3 pairs of button up silky pjs, one mumu-zip up with pockets, 3 large mens hawaian button up short sleeved shirts and one fleece robe. I did not want to spend a fortune on new things, and frankly never want to see any of them once i am recovered. Bippy plans to mostly be in the PJs!
It has been torrential rains here every night. Love it, but wish cooler weather was here. Hate the heat!!
DH is working later today and I will be trying to do some housecleaning.
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i hear ya Teka--got the recliner, but hope to be trading it in for an automatic power reclining sofa!
Question for those that had surgery already. I have an inflatable queen size bed which is on a platform. So it's not directly on the ground. Any chance I will be able to sleep on that after my drains come out? Or even before if I get the wedge pillows? Will I be able to get out of it by myself if it's about a foot off the ground?
I feel like I'm going to have many restless nights and don't want to wake up DH by sleeping in our regular bed.
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got the laundry done, dinner ready to be put in the oven and after dinner I'ma gonna vaccuum the rug in the living room. But for now until dinner goes in the oven, I'm just kicking back
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Hermits- busy weekend but here to say hi!
Teka- I saw pics of them with their wedding bands so it happened. I expect in another week or so, there will be a People issue (if not many other mags) featuring the wedding photos. They do look happy!
Bippy- I think given you are the one who is having surgery and recovering, you need to be in the bed and let DH sleep on the inflatable bed. You are going to want to be as comfortable as possible post surgery.
Mommy- I find sometimes I have to call the doctors off 2-3 times anymore to get what I need. Ridiculous!
Enjoyed a lovely wedding last night for my friend and her new husband. It was outdoors at a nearby hotel and they just had a perfect day for it. After the reception was an open bar for awhile (whoot whoot) and I saw a few people I knew there, but one of the groups felt a bit too cliquey for me so I sat at a table with some of the grooms family and just had the best time. Such warm and welcoming people. One of the gals from the prof org group I was not comfortable sitting with came over to visit later (I like her a lot) and we had a good visit. We were all dancing the night away and then moved indoors and then at that point, it felt like it was time to go home.
Today I met a friend for brunch and went to a harvest festival in the same little town and enjoyed that. Farmers market and craft fair were all excellent.
Jazzy is tired and needs a nap! Some pictures coming later! I know you love pictures!
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Sally- I think you have your procedure tomorrow to check on that mass they have been watching. We will be in your pocket, and please let us know how things go there as you wish too. As Teka would say, we are positive for good outcomes for you!
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Teka- sleep well my tired friend!
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Jazzy thank u 4 sharing, love iit, I did nothing, coughing n sweats, not sure if it is yhe fluish or something else.
End of yet annother weekend
Hey teka, etal..
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Blondie- sorry to hear about the fever and sweats. Get yourself checked out if you are not feeling better soon. Wishing you a better week. Hugs sister.
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It's been a few days since I've checked in - Just busy with work all week and tired by the end of the day. Spent today purchasing a new dining room table, as we "donated" ours to our son for his new place. Drove to the coast to a wonderful antique/home decor shop that I fell in love with last time I was there, and found the perfect, old farmhouse table. Got in a nice walk on the beach while we were there too. Now we'll have to find some chairs/benches to go with the table.
Blondie - Hope you feel better, and it's not the flu.
Bippy - Forgive me, I'm not sure what type of surgery you're having, but if you're having a BMX or UMX you might find it very difficult to get up off of a mattress that's only a foot off of the ground. It was hard enough for me to get up and out of my regular bed, and I had a UMX so still had one arm to help push me up and around. You will want as much softness and comfort as you can get, and I'm not sure an inflatable mattress fits the bill!
Hi to every one else, Jazzy, Cami, Mags, Teka, Mommy, Onco, Lily, Ducky, Sally!
Have a wonderful week.
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Hate having to chase the doc for anything. I have even had to fight to get one of my prescriptions filled four times in one day because of his idiot staff
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Good morning hermits- slept well and up early to go to the gym for personal training at 8 a.m. (ugh!)
Mommy- sometimes no "care" in healthcare.......
Monis- glad you found a new table and hope you can find the chairs to go with it easily too! The walk on the beach sounded so nice too.
I hope everyone has a decent start to the week. October on the horizon.
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Onco- congrats on getting away for a bit, even though you went home for awhile each day. Baby steps with resuming things you used to do without too much pressure. Maybe next time you can do a weekend further away and see how you feel?
I find keeping the conversations "lite" with people I know or even strangers helps me the most. I can handle a little bit of small talk, but move quickly away from anything confrontational or whiny. Life is too short to listen to people endless opinions or unhappiness.
Today is national coffee day. Drink up ladies!
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good morning hermits! Glad to hear about some of your travels outside of the house. I have been pretty queasy this week so have not made it far. I was able to resume my walking regimen last night for the first time in days.
What a pleasure to eat like a normal human being. Just devoured Chinese food with DH, and it was wonderful! I had to shitcan my protein shakes, they have soy. Went to the post office and now resting in the recliner. still tire out easily after doing really nothing! I'm not fighting it though--just going with it.
I'm extra sad today though because a very good friend of ours is dying of small Squamus lung cancer. This is one of the deadliest kinds of cancer and he was stage 4 before they even knew. It's everywhere but his bones-liver, lungs, brain, stomach, and a big tumor wrapping around his esophagus. Last chance visit to Dana-Farber today, but he's chemoed-out, skin and bones and very very sick--even if they had a miracle clinical trial it's too late, given the condition he's in now.
it makes me realize how lucky I am that at least I have good chances of recovery------at least they can cut off the problem part of my body. they told him that he had zero chance except to buy some time. He is such an amazing friend, devoted husband, wonderful son, and loving father of two grown children. We miss him already. I hate this disease.
For those that pray, please send a prayer for my friend Kevin and his family today, for comfort and peace. Also not adverse to miracles.
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Sending up a prayer for your friend
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Bippy- I am glad you enjoyed a good meal with DH. Little things like this matter when going through treatment. I still appreciate the small things in life way after the fact.....
I also send you my heartfelt prayers for your friend who is dying from cancer. I hope that hospice or whatever else is available can help make him comfortable at the end, which from your description, sounds very near now. Cancer is a terrible disease, and we bc patients are often more fortunate as breast cancer is so highly treatable compared to most other types of cancer.
Peace sister.
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I am slowly returning to the land of the living, though weak as a kitten. And my tongue is still burning like I drank something really really hot. Nothing seems to help that, though some things make it worse.
Bippy, I lost a brother in law to small cell squamous cancer in 2000. He was not yet 50. It is a horrendous way to go, and I will keep Kevin and his family in my prayers. Please keep us up to date, if you will.
I had to do the same with my protein drinks, but cousin found a whey protein powder which I can mix up in my one-serving blender easily. And if I added ice cream to it, who would know?
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Mags- I am so sorry you are struggling through this chemo. Thank god you are almost done with this part of the treatment. I wish you better days ahead.
Also very sorry about the loss of your brother. My brother passed 22 years ago next month. Never have stopped missing him.
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So sorry to you both Mags and Jazzy, they both went waaaay too young........
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So sorry about u r friends, cancer really does suck
So glad u got away even for a short period of time
Mags sorry bout the chemo it is almost over
Jazzy, whatcha doing this weekend
Teka, mommy bippy n any other I forgot
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Blondie- no big plans this weekend. The balloon fiesta starts here this weekend so like all good locals, we lay low and stay away from the crowds. I expect to see a lot of balloons around though. Maybe a bike ride down near the river where some of them will come down from the park.
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Got the housework for the week done, so its kick back and relax the rest of the week. Might pull out a project for Halloween I started last year to finish it for this Halloween
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Hermettes, thanks all for the prayers...
Mags, hope you are better today.
Anyone try probiotics for tummy issues? I started yesterday and already have relief. Was gassy, bloated, explosively flatulent, crampy and nausea & diarhea had returned. Misery, for days on end. I have some hope maybe the remainder of chemo will be tolerable now. Digestive issues and nausea have haunted me for the last month!
Major house cleaning today, errands, and preps for friend's visit Friday. Weather is lovely this am, fall FINALLY on the way!
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Good morning hermits- did not sleep well but have some apts and things to do, so away I go. Maybe a nap later in the day. I love naps.
Bippy- I take probiotics pretty regularly and they help all my digestive issues. Really important to take after any dose of antibiotics as those will strip all the good stuff from your gut as well as things they are trying to get rid of. I was on antibiotics for a good month or so with my ruptured appendix (before, during and after) and got into taking them religiously then. But now I find they help to keep everything good in the digestive dept. Glad you found something that helps you with the tummy issues.
Teka- the wedding issue is coming out in People of GCs wedding. I know you are going to want to know about that!
http://www.people.com/article/george-clooney-amal-...
The only trip I have in October is for a conference up in the bay area. Flying in on Mon 10/20, activities begin that night and conference runs the next two days, and I fly home on that Wed night, 10/22. Quick trip, but glad I am able to go to this conference. It is associated with a certification program I did a few years back and I need to reconnect with this community. Part of my rebuilding process.
Blondie- hope you are doing okay, I know your sleep schedule is still off.
Cami, Lili, Ducky, Mags, Onco, and everyone else here today, make your last day of Sept a good one!
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