The Hermit Club

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  • jazzygirl
    jazzygirl Member Posts: 11,974

    Mags- LOL.

    How are you doing today? And the shoulder?

  • magdalene51
    magdalene51 Member Posts: 2,062

    Good afternoon Hermies! Well, Jazzy, I am sitting here with my laptop, lidocaine patches and ice on both shoulders. Rads this morning was about 1/2 hour start to finish, so it's getting a few minutes shorter each time. Still way too long! The rest of my rads will be in the afternoon, but they had a scheduling issue & asked me to come in early.

    Actually, I'm really angry about the shoulder. After physical therapy a week ago, the "good" shoulder is worse than the "bad" shoulder that I've had 2 surgeries on, and I'm afraid it means that there's been some actual damage, like a rotator cuff tear. That's what happened to the other one, with repetitions, the bone spur sliced through the tendon. Physical therapy after the first surgery was too aggressive, so it never healed, necessitating a second surgery. But that was back in 2006, and in the interim the bone spurs have returned with a vengeance.

    RO prescribed 5mg percocet, which is a bit strong for me, so I'm cutting them in half. I just don't like how it makes me feel.

    My church has arranged rides for me 3 days a week, my cousin & DH will take me the other 2. I do have some amazing support.

  • jazzygirl
    jazzygirl Member Posts: 11,974

    Mags- well that stinks about your good shoulder now hurting. I hope icing and pain pills will help but shoulder pain is like no other. I am sorry you are hurting so. Hugs, sister.

    I am glad you have rides to your treatment. That will give your cousin a break, and know DH is likely working. Support comes in the most amazing ways. I am grateful you have this help.

  • duckyb1
    duckyb1 Member Posts: 9,646

    Stella is on PhenoBarb..........I think I could use some of that............image

  • duckyb1
    duckyb1 Member Posts: 9,646

    Stella is taking PhenoBarb for her seizures.............I might steal some if this is what it does......LOLimage

  • jazzygirl
    jazzygirl Member Posts: 11,974

    Ducky- aww, Stella. Sleeping like a baby. I hope the meds make things all better for her.

  • OncoWarrior
    OncoWarrior Member Posts: 3,326
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  • jazzygirl
    jazzygirl Member Posts: 11,974

    Onco- I have ringing in the ears too, but think mine is sometimes related to BP issues. It is not that problematic for me however, comes and goes and sort of used to it. I am sorry the meds gave you this SE, there are many associated with these meds that are not reported unfortunately. I hope as you continue to wean off, it will disappear. If it doesn't, have them check your hearing too.

    You are right that things are not the same for us after all we go through.

    And I would like to hear from Concerned too and hear how his wife is doing.

    Day 2 of the flooring project. Hallway and one bedroom done, the second one will be done before noon. Then they will return later today to see if the floors have had enough time to set, otherwise they will be back in the morning to finish up and put the furniture back in rooms. Then my fun begins again to re-assemble (and do more purging.....)

    In the midst of the mess, I have a crock pot of green chili stew going. I got tired of living out of the fridge with all the things stored in the fridge and making myself something warm to eat! I am ready to have my kitchen back!

  • SallyS70
    SallyS70 Member Posts: 816

    I am on my big computer where I have never before had a problem submitting comments on BCO.  I just wrote and tried to submit a moderately long entry ... it did not post.  I am going to try again. 

  • SallyS70
    SallyS70 Member Posts: 816

    Well, that worked, but I am running ... will post more soon.  Thinking of you all.

  • shelleym1
    shelleym1 Member Posts: 111

    Onco, I've been taking it too to help me sleep for about a month and a half. I have the same thing happening along with light sensitivity.

  • camillegal
    camillegal Member Posts: 15,711

    Hi Hermies--

    Shelley please don't push u'rself because someone else thinks u should. U just had surgery, it takes a while t really heal both mentally and physically so don't worry about not going out yet. Give it sometime, I know how that feels so relax first. with no guilt, that's just a waste of emotion.

    Oh poor Stella so cute---- hope she's doing better.

    Jazzy u'r pic is as beautiful as ever and Teka those bears are smarter than humans.

    Oh Mags I'm sorry about BOTH shoulders, like one isn't bad enough.

    Oh my 2 nails are liting off the beds again and I'm loosing them--what a stupid thing to keep on going on.

    OK my phone has been going so this is taking me forever to write. LOL See how jobs get in the way of life.

  • jazzygirl
    jazzygirl Member Posts: 11,974

    Cami- I see you posting on a couple threads today and like it!

    But sorry about your nails. Have you been out running marathons again? I know how you are......

    Hi Sally- good to hear from you. Sorry you are having posting problems. We will be patient and wait for more from you.....

    Footprints- how are things today with you?

    Bippy- where are you and how are you doing?

    How about Monis and Maiden?

    Floors got done today and are setting over night. I am going to let my green chili stew simmer a bit longer, then head out to the gym and some errands. Tomorrow we finish up here and will post pics when the rooms are put back together in all their glory.....

    We have a storm coming......

  • jazzygirl
    jazzygirl Member Posts: 11,974

    Ducky, I saw your pilot friend today....

    image

  • duckyb1
    duckyb1 Member Posts: 9,646

    Jazzy............LMAO................

  • Lily55
    Lily55 Member Posts: 1,748

    Hi HErmits - can i ask you a question? If there was somewhere you could go to after treatment finished, for a holiday or just time to catch up with yourself a kind of home from home place to stay with an owner who had had cancer so understands its not so simple,, would you do this? Would you want it catered or self catering?

  • OncoWarrior
    OncoWarrior Member Posts: 3,326
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  • OncoWarrior
    OncoWarrior Member Posts: 3,326
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  • jazzygirl
    jazzygirl Member Posts: 11,974

    Lilly- my first reaction is positive to your question, but would like to understand more too? Is is a place where you can get away to restore, have a like minded cancer survivor who understands where you have been, maybe provide some support and resources to you that you have been needing? Would it be like a cancer retreat where there is a program of things to do with others, or just a get away place to just have some gentle time to yourself ?

    When you say catered, you mean meals provided? I say "oh yeah" to that girlfriend. Every woman deserves to have a nice meal prepared and served to her.

    I think we have all found it is wonderful to have people to connect to that understand our journey, as most just cannot relate to any of this stuff we go through and still go through as we seek to find our new normal.

    Love to hear more?

    Onco- I hope the sleeping and the ears are better soon. You need good rest so you can get out and skate some more. And there is a new clock coming?

    Ducky- I thought that was hilarious. When I saw it, I immediately thought of you!


  • jazzygirl
    jazzygirl Member Posts: 11,974

    Onco- well, I took the green chili stew out of the crock pot and took some to my neighbor (we always share food and other cooking related things with each other). But here is what it looks like from a previous time I made it.

    And yes, it is delicious with corn bread, although I often avoid eating breads due to the carbs, etc.

    Tonight I am making some chicken parmesan. I am a cooking fool today.....

    image

  • footprintsangel
    footprintsangel Member Posts: 35,657

    Stopped by to see how everyone is, My prayer and thoughts

    are with you all, Hope You know You are all very special and

    am thinking about You all a lot. Keep on keeping on, with this

    friend thinking of you.

  • Lily55
    Lily55 Member Posts: 1,748

    well i was given Lorazepam 1mg for occasional use at my last Onc visit as I reported i get spontaneous anxiety but now I am worried about taking it.

    Thanks for fast responses re my idea, I haven't secured the place yet but am looking at income generation so its not fully formulated yet, but would be on individual or couples basis. No specific cancer support in area, as you know, apart from me but plenty of options for exercise, yoga, art, pottery and there are private services that do airport runs at very economical prices and of course speak english, so would be hassle free transport once they landed at airport.

    My dogs and cats would be available as therapy or could be kept away!

  • camillegal
    camillegal Member Posts: 15,711

    Hi Hermmies

    Lily that's an interesting idea, I've never heard of that--I hope u can find something for u.

    Onco sounds like a good visit. I'm one o those people who would see the cuff and get hysterical, so my primary always had to take it a few times--now I could care less so it's fine. LOL Oh I always have the TV on, my sister always has the radio on we both have tinnitus.

    Jazzy that pilot was hysterical. And as usual u'r busy--Right now my job has slowed down a bitso my phone is a little quiet. I'm glad. U'r stew looks great--is it spicey??? I used to love spicey, now I'm a wimp but my kids and Joey love things really hot.

    It's way to early now but I can't wait to have coffee. hmmmm maybe I will.

    I hope everyone has a good day.

  • m0mmyof3
    m0mmyof3 Member Posts: 9,757

    So far today is a quiet day

  • jazzygirl
    jazzygirl Member Posts: 11,974

    Good morning ladies- I think my pilot photo was a hit here, LOL!

    Lily- I think this sounds really great and just what you need. Yoga, pottery, etc. all sounds wonderful. I hope you can find a way to make it work. I am glad to hear you are looking for work too, you sound more ready to do that again. Going back to work after all this crap is hard, but you can do it!

    Cami- yes, busy with my home right now and we will be finishing up the floors today too. I also am talking to some folks about new consulting work in this new year. Not ready yet, but exploring.

    And the green chili stew is spicy, but not super hot. Green chili is a staple food here, and we eat it with and on everything! Red chili too!

    We have a storm coming today and into tomorrow.

  • OncoWarrior
    OncoWarrior Member Posts: 3,326
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  • jazzygirl
    jazzygirl Member Posts: 11,974

    Hermits- my floors are done! Whoot whoot!

    Now I wait for the painter to come and have plans to work all day tomorrow putting things back together. Although it won't be done in a day. Just sayin'......

  • OncoWarrior
    OncoWarrior Member Posts: 3,326
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  • shelleym1
    shelleym1 Member Posts: 111

    Hi ladies, I thought I would let you know I had my post surgery follow up yesterday. My path report was good for the most part - there was no nodal involvement but there was evidence of LVI. My surgeon didn't even mention that part. I saw it and pointed it out. He didn't make a big deal just said it will likely drive some of the treatment decisions (chemo). The hope I had feels a bit crushed knowing the tumor had access to my lymphatic and/or blood vessels. I came to work today to try and keep busy but it keeps coming up in my mind. None of my friends that have survived breast cancer had LVI present, so it just makes me wonder if I may not have a great prognosis. Everything I've found online about LVI isn't very in depth, but points to a poorer prognosis. Maybe I am reading too much in to it. I'm just ready to go home and sit in my chair. Hope all is well with you.

  • m0mmyof3
    m0mmyof3 Member Posts: 9,757

    Can't believe that this time next Wed. my mom will be on her way down here